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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (294 total).

San Diego State University, Mainstreaming Project. n.d.. Including all of us: Caring for children with special needs in early childhood settings—Manual for child care providers. San Diego, CA: San Diego State University, Mainstreaming Project, 218 pp.

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Cloud H. n.d.. Nutrition Programming for the Chronically Ill/Handicapped Child: [Final report]. Birmingham, AL: University of Alabama at Birmingham, Sparks Center for Developmental and Learning Disorders, 7 pp.

Annotation: The purpose of this project was to conduct a workshop for nutritionists, nurses, physicians, and other health professionals to update knowledge of nutritional needs of chronically ill/handicapped children, identify screening and referral procedures and develop a plan for improving nutrition services through Title V programs in the 13 states comprising Region IV and VI. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Nurses, Nutrition, Nutrition screening, Nutritionists, Physicians, Professional education

Semrau B. n.d.. Competency-Based Parenting Skills for Handicapped and Special Needs Mothers and Children [Final report]. Jonesboro, AR: Focus, Inc., 6 pp.

Eaton A. n.d.. Children with Special Health Care Needs - Continuing Education Institute (formerly Crippled Children's Services Continuing Education Institute) [Final report]. Columbus, OH: Children's Hospital, 26 pp.

Annotation: The purpose of this institute was to maintain and strengthen leadership capabilities for medical, nursing, and administrative personnel in programs providing services to children with special health care needs. One institute and one topical seminar were given each year. The institute offered orientation for new staff concerning the history, organization, funding, purposes, and functions of CSHCN programs. The topical seminar attracted senior CSHCN program officers who discussed current issues, developed problem-solving strategies, and forecasted future trends in health care services for children with special health care needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Continuing education, Health professionals, Leadership training, Professional education, Special health care needs

University Centers for Excellence in Developmental Disabilities in California, Massachusetts, Iowa, and Kentucky. n.d.. Your baby and Down Syndrome: Answers to questions you might have. Los Angeles, CA: University of Southern California University Center for Excellence in Developmental Disabilities at Children's Hospital, 2 pp.

Annotation: This brochure is intended to serve as a starting point for new parents looking for information about Down syndrome and related resources and support groups. It includes talking points to use during a diagnostic consultation with a physician and answers to frequently asked questions such as (1) What is Down syndrome? (2) Where do I begin to help my baby? (3) How might Down syndrome affect my baby's health? (4) Where can I find more information about Down syndrome? and (4) How can I find other parents of children with Down syndrome? The brochure is available in both English and Spanish.

Keywords: Consumer education materials, Down syndrome, Infants with special health care needs, Spanish language materials

Puritz A, Carmody MA. n.d.. Sexuality and children and youth with special health care needs: Information and education. Washington, DC: D.C. Resource Center for Children with Special Health Care Needs, 3 pp. (Fact sheet)

D.C. Resource Center for Children with Special Health Care Needs. n.d.. Sexuality information resource list. Washington, DC: D.C. Resource Center for Children with Special Health Care Needs, 3 pp.

Annotation: This fact sheet lists resources on sexuality education, education curricula, health conditions and disabilities, online learning, educators and counselors, and national resources related to sexuality and children and adults with disabilities. Resources also cover parenting with a disability, reproductive health, sexual violence, and screening for abuse or violence.

Keywords: Adolescents with special health care needs, Adults, Children with special health care needs, Disabilities, Sexuality education

Honsberger K, Kotz J, Fernancez B, Dembo R. 2025. Oral health and dental care for children with special health care needs: Summary of an expert panel convening. Chicago, IL: NORC at the University of Chicago, 9 pp. (Research brief)

Annotation: This report summarizes discussions and takeaways from an expert panel conducted by NOHC of the University of Chicago to discuss challenges related to, opportunities for, and promising approaches to providing equitable oral health care for children with special health care needs (CSHCN). Topics include accessibility and accommodations, health professional training and education, dental insurance coverage policies, supporting families with oral health care guidance at home, innovative models and approaches, and future research needs.

Keywords: Access to health care, Family support, Health education, Health insurance, Health services accessibility, Oral health, Research, Special health care needs, Training

Insure Kids Now. 2023. Improving oral health. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, multiple items.

Annotation: These resources are designed to help health professionals promote oral health coverage in Medicaid and the Children’s Health Insurance Program (CHIP) and educate pregnant women and parents and other caregivers about good oral health habits. Contents include links to Medicaid and CHIP benefits for children by state and a tool to help families find a dentist. Additional contents include a fact sheet, a flyer, a poster, tear pads, web banners and buttons, social media messages, images for Facebook and Twitter, and newsletter templates in English and Spanish.

Keywords: Children with special health care needs, Children's Health Insurance Program, Consumer education materials, Medicaid, Oral health, Pregnant women, Public awareness campaigns, Resources for professionals, Spanish language materials, Young children

Nemours Children's Health System. 2023. Transition of Care . Jacksonville, FL: Nemours Children's Health System, multiple

Annotation: This website includes information for families about changes that occur when a child with a disability or with special health care needs becomes a legal adult. Teaching your child how to navigate the health care system and encouraging them to become actively involved in their medical care are among the topics explored in video and e-publication formats.

Keywords: Adolescents, Consumer education, School to work transitions, Special health care needs, Transition planning, Transition to independent living, Young adults

Eldridge Q, Khan S, Ravi B, Aronoff D, Yousuf J, Fine J. 2020. Community of practice curriculum: Continuing education trainings for dental care providers—Guide for trainers. Oakland, CA: Office of Dental Health, Alameda County Public Health Department, 69 pp.

Annotation: This guide for trainers provides continuing education (CE) to oral health professionals serving infants, children, and adolescents from birth through age 21, including children with special health care needs (CSHCN) and pregnant women. Topics include (1) introduction to public dental health and care coordination; (2) behavioral guidance; (3) motivational interviewing; (4) early childhood oral health care; (5) tooth decay progression, management, diagnosis, and treatment; (6) restorative techniques; (7) cost-effective practice; (8) pediatric anesthetic and behavior management; (9) oral health care for CSHCN and pregnant women; and (10) tobacco, vaping, and oral health.

Keywords: , Adolescent health, Children with special health care needs, Continuing education, Infant health, Infants with special health care needs, Oral health, Pregnant women, Public health

Alameda County Public Health Department, Office of Dental Health. 2020. Curriculum on dental care coordination (for community dental care coordinator workforce)--Guide for trainers. San Leandro, CA: Alameda County Public Health Department, Office of Dental Health, 170 pp.

Annotation: This curriculum provides information on oral health care coordination for community oral health care coordinators in Alameda County, California. It encompasses a training plan and modules focusing on basic dental terminology; oral health care for infants, children, and adolescents from birth through age 20, including those with special health care needs, and for pregnant women; oral health education; effective communication; privacy, confidentiality, and security; principles of oral health care coordination; protocols and tools; and data collection, data entry, and reporting.

Keywords: Adolescent health, Adolescents, California, Care coordination, Children, Community health, Data collection, Health education, Infant health, Infants, Oral health, Special health care needs, State materials

University of Iowa Division of Child and Community Health . 2020. Iowa Family Leadership Training Institute brochure. [Iowa City, IA]: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics, 2 pp.

Annotation: This brochure describes the Iowa Family Leadership Training Institute (IFLTI), a program offering leadership training for parents and primary caregivers of children with special health care needs. It outlines the program's four in-person sessions focused on developing leadership and advocacy skills across individual, community, and policy levels, using the Maternal and Child Health Leadership Competencies framework. Key components include training topics such as disability history, servant leadership, storytelling, and policy advocacy, along with mentored Community Service Projects that provide practical application of learned skills (e.g., installing adult changing tables and creating safety presentations for first responders).

Keywords: Iowa, Children with special health care needs, Materials for parents, Parent education,

Brenneman D. 2020. Iowa Family Peer Support Specialist Training Program. [Iowa City, IA]: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics, 23 pp.

Annotation: This slide presentation outlines key aspects of the Iowa Family Leadership Training Institute (IFLTI), focusing on three main areas: community service projects, the importance of recruiting diverse family leaders, and post-training engagement activities. The presentation uses data from the 2016 National Survey of Children's Health to justify the program's continuation, showing that only 79.5% of Iowa families consistently demonstrate all four qualities of family resilience (talking together, problem-solving, recognizing strengths, and maintaining hope). It includes participant data from 2016-2020, refers to the Innovation Station toolkit, and lists a panel of program participants, providing a comprehensive overview of the program's structure, impact, and ongoing development.

Keywords: Iowa, Children with special health care needs, Parent education,

Swanson-Holm R, Rettinger S, . 2020. Development of Iowa's Family Navigator Model. [Iowa City, IA: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics], 25 pp.

Annotation: This presentation from the Peer to Peer Exchange meeting hosted by AMCHP/SPHARC in 2020 that meeting outlines a comprehensive framework for developing and strengthening family-professional partnerships in healthcare systems, particularly focusing on the transition from basic family engagement to true partnership. The slides describe multiple levels of family participation, from individual care planning to policy-level involvement through programs like the AMCHP Leadership Lab and Family Delegate Program.They emphasizes six core principles of family-professional partnerships and outline engagement opportunities at individual, community, and policy levels.

Keywords: Iowa, Children with special health care needs, Parent education,

National Maternal and Child Oral Health Resource Center. 2018. Special care: An oral health professional's guide to serving children with special health care needs (2nd ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 1 v.

Annotation: This curriculum provides oral health professionals with information about children with special health care needs and oral health, oral health supervision, prevention of oral disease, and behavior guidance. The curriculum can help fulfill dental education and dental hygiene education program requirements on the management and treatment of patients with special health care needs. The curriculum can be taken for continuing education credit at no charge or for no credit (self-assessment). [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Curricula, Dental education, Disease prevention, Distance education, Oral health, Oral health care, Resources for professionals, Young children

National Maternal and Child Oral Health Resource Center. 2018. Special care: Oral health educational resources. Washington, DC: National Maternal and Child Oral Health Resource Center, multiple items.

Annotation: This series of handouts provides information for oral health professionals to use and to share with children with special health care needs to foster good oral hygiene practices. Oral health professionals can also use the handouts to improve their office set-up and services and assess families’ satisfaction with services. Handouts for parents include a dental office considerations checklist, a family satisfaction questionnaire, and a form that parents and children can fill out to provide information about the child. Other handouts for parents cover different positions for toothbrushing, toothbrushing, oral hygiene aids, and focusing on the basics (oral hygiene, oral health, and special problems). [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Consumer education materials, Families, Oral health, Oral hygiene

Massachusetts Department of Public Health, Office of Oral Health. [2016]. Toothbrush adaptations. Boston, MA: Massachusetts Department of Public Health, Office of Oral Health, 1 p. (Oral health in Massachusetts; A fact sheet)

Annotation: This fact sheet for parents provides information about how toothbrushes can be adapted to make brushing easier. It presents background information about why oral health is important and provides ideas for adapting toothbrushes for anyone who has difficulty brushing their teeth. Illustrations showing the adaptations are included.

Keywords: Adolescents with special health care needs, Children with special health care needs, Consumer education materials, Oral health, Oral hygiene, Assistive devices

National Center on Health, Behavioral Health, and Safety. 2016-. Healthy habits for happy smiles. Washington, DC: National Center on Health, Behavioral Health, and Safety, 42 items.

Annotation: This series of handouts for pregnant women and parents of infants and young children provides simple tips on nutrition and oral health issues. Topics include brushing a young child’s teeth, choosing healthy drinks, encouraging children to drink water with fluoride, giving children healthy snacks, taking care of oral health for pregnant women, and taking care of an infant’s oral health. The series is written in simple language and is available in English and in Spanish. One handout, Using Silver Diamine Fluoride on Children's Teeth, is also available in Arabic, Chinese, Haitian Creole, Persian, and Somali.

Keywords: Asian language materials, Chronic illnesses and disabilities, Consumer education materials, Fluorides, Infants, Injury prevention, Non Englishs language materials, Nutrition, Oral health, Oral hygiene, Pregnant women, Preventive health services, Spanish language materials, Special health care needs, Young children

Washington State Department of Health, Oral Health Program. 2016. Oral health promotion cards. Olympia, WA: Washington State Department of Health, Oral Health Program, 26 items.

Annotation: This series of cards provides oral health messages for health professionals to share with clients and their families. Each card addresses a specific population (pregnant women, infants, children, adolescents, children with special health care needs, adults, and older adults) and is accompanied by a brochure listing messages and resources. The cards and brochures are available in English and in Spanish.

Keywords: Adolescents, Adults, Children with special health care needs, Educational materials, Health promotion, Infants, Life course, Oral health, Pregnant women, Resources for professionals, Spanish language materials, Young children

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.