Lane PA, Buchanan GR, Hutter JJ, Austin RF, Britton HA, Rogers ZR, Eckman JR, DeBaun MR, Wang WC, Mathew P, Iden S, Recht M, Cohen JD, Fruge E, Embry L, Hsu L, Mueller BU, Goldsby R, Quinn CT, Mann M, Lloyd-Puryear MA. 2002. Sickle cell disease in children and adolescents: Diagnosis, guidelines for comprehensive care, and care paths and protocols for management of acute and chronic complications. [Rev. ed.]. [no place]: Sickle Cell Disease Care Consortium, 37 pp.
Annotation: This manual provides information about the diagnosis of sickle cell disease, an overview of comprehensive care, and clinical paths and protocols for the management of some of the more common acute and chronic complications. The manual includes the following main sections: (1) principles of care for children and adolescents with sickle cell disease, (2) diagnostic testing for the common sickle cell syndromes, (3) newborn screening follow-up guidelines, (4) sickle cell disease -- comprehensive care, (5) acute illness in sickle cell disease: illness requiring urgent medical care, (6) transfusion therapy for acute complications, (7) clinical care paths, (8) general anesthesia and surgery, (9) chronic transfusion protocol, (10) hydroxyurea protocol, (11) hematopoietic stem cell transplantation, (12) transcranial doppler ultrasonography, and (13) references. Two appendices include a list of sickle cell disease care consortium members and a list of other contributors. [Funded in part by the Maternal and Child Health Bureau]
Contact: Sickle Cell Information Center, Grady Memorial Hospital, P. O. Box 109, 80 Jessie Hill Jr. Drive, S. E., Atlanta, GA 30303, Telephone: (404) 616-3572 Fax: (404) 616-5998 E-mail: firstname.lastname@example.org Web Site: http://www.scinfo.org/ Available from the website.
Keywords: Acute diseases, Adolescents, Children, Chronic illnesses and disabilities, Comprehensive health care, Diagnosis, Disease management, Guidelines, Management, Neonatal screening, Protocols, Sickle cell disease, Sickle cell screening