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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

Tage S, Corona A, Bussanich P. 2018. Creating connections through telehealth: Linking children and their families, self-advocates, and providers. Washington, DC: Association of Maternal and Child Health Programs, State Public Health Autism Resource Center, 1 pp.

Annotation: This infographic discusses the lessons learned from the 2018 SPHARC Peer-to-Peer Exchange on using telehealth to connect children and their families, self-advocates, and providers for individuals with Autism Spectrum Disorder (ASD) and Developmental Disabilities (DD). Discussion points include the advantages of and barriers to telehealth, as well as the need for early and continuous intervention services. Lessons emphasize the importance of meaningful inclusion of self-advocates, addressing the unique challenges of family advocates, and showcasing innovative state grantee solutions. The document concludes with priority action items for states and the need to explore culturally competent care solutions to address the needs of diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Autism, Telemedicine, Family support services, Delaware, Rhode Island, Washington, Wisconsin, Maryland, Iowa, New Hampshire, Minnesota, Texas, Virginia

The Autism Project. 2017. Rhode Island family navigator tool. [Johnstone, RI]: The Autism Project, 2 pp.

Annotation: This checklist serves as a resource for caregivers of children recently diagnosed with Autism Spectrum Disorder (ASD). It outlines emotional responses to the diagnosis, conversation starters for discussions with families, and provides essential resources and support options available in Rhode Island. This document is a tool for caregivers navigating the complexities of an ASD diagnosis. It promotes emotional processing, fosters supportive communication, and connects families to essential local resources, helping to ease the transition into understanding and managing their child's needs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Rhode Island, Autism, Family support services

Langevin D. 2017. Family support: The Autism Project's toolkit. Johnstone, RI: The Autism Project, 21 pp.

Annotation: This presentation describes The Autism Project's toolkit for family support. It outlines the program's primary goal to improve Rhode Island's system-level of care integration for children and youth with Autism Spectrum Disorder and Developmental Disabilities, and their families. The presentation details the "Creating the Connections" initiative that works across core communities in Rhode Island, strengthening existing resources through Family Support Specialists who provide navigation services, education, and direct support to families. The toolkit includes training modules, intervention methodologies, resource sharing, and family-centered approaches that emphasize listening, empathy, and responsive support tailored to individual family needs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Rhode Island, Autism, Family support services

The Autism Project . 2017. Call me anything, Just don't call me late for dinner!: The evolution of family navigation in Rhode Island. . [Johnstone, RI]: The Autism Project, 33 pp.

Annotation: This PowerPoint presentation provides an overview of how family navigation services have developed in Rhode Island, focusing on the roles and impacts of three key organizations in supporting families of children with special healthcare needs, particularly those with autism. The information concerns the Autism Project's Family Support Program, the RI Department of Health's PPEP (Pediatric Practice Enhancement Project) and their interaction with RIPIN (Rhode Island Parent Information Project, an organization created by parents for families of children with special healthcare needs). The presentation details both system-level and individual-level evaluations, utilization analyses, and projections of cost savings from these integrated systems, emphasizing the importance of family support in healthcare. The evaluation framework and family support programming detailed in this document highlight the importance of integrated care systems in improving outcomes for individuals with disabilities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Rhode Island, Autism, Family support services
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.