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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 10 (10 total).

Spencer C. n.d.. Regional Center for Children with Rheumatic Diseases [Final report]. New Orleans, LA: Children's Hospital, 33 pp.

Annotation: The purpose of this project was to increase access of pediatric rheumatology patients to the team approach, improve regional care, provide psychosocial counseling and support, increase knowledge of medical professionals and the lay public, and provide cost-effective, outpatient care. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-165686.

Keywords: Arthritis, Children with special health care needs, Multidisciplinary teams, Pediatric rheumatology, Rheumatic diseases

Lindsley C. n.d.. Mid-America Pediatric Rheumatology Outreach Program: [Final report]. Kansas City, KS: University of Kansas Medical Center, Department of Pediatrics, 18 pp.

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-153005.

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Schaller J. n.d.. The Affiliated Children's Arthritis Centers of New England [Final report]. Boston, MA: New England Medical Center, Department of Pediatrics, 52 pp.

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

Rapoff M. 1997. Prevention of Medication Compliance Problems in Children with Juvenile Rheumatoid Arthritis: [Final report]. Kansas City, KS: University of Kansas, 26 pp.

Annotation: This study was a randomized, two-group trial of a program to strengthen compliance with medication regimes among children with juvenile rheumatoid arthritis. The experimental prevention component includes: 1) written and videotaped educational materials aimed specifically at preventing and managing compliance problems; 2) instruction by a nurse practitioner in behavioral strategies for improving compliance; and 3) followup telephone contacts in which these strategies are reinstated. Both the literature and previous research by this research team suggests that a combination of educational and behavioral management strategies can be effective at improving compliance in patients who previously had been noncompliant. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB99-107229.

Keywords: Children with Special Health care Needs, Chronic Illnesses and Disabilities, Juvenile Rheumatoid Arthritis, MCH Research, Patient compliance, Preventive Health Care Education, Research, Rheumatic Diseases

Athreya B. 1987 (ca.). Regional Pediatric Rheumatology Program of Eastern Pennsylvania [Final report]. Philadelphia, PA: Children's Seashore House and Children's Hospital of Philadelphia,

Children's Hospital of the District of Columbia. 1970. Symposium on services for children with heart disease: Children's Hospital of the District of Columbia—Commemorating its 100th anniversary. [Washington, DC: Children's Hospital of the District of Columbia?], 116 pp.

Annotation: The purpose of this conference was to assess present and past services for children with heart disease and to make recommendations regarding future goals to the Maternal and Child Health Service. Pediatric heart disease, its incidence, prevalence, mortality, and cost were discussed. Medical recommendations for future systems of care were also discussed, addressing congenital heart disease, rheumatic fever, regional specialty centers and catheterization laboratory standards. Manpower needs for surgeons, nurses, social service workers, and paramedical personnel were discussed. The administrative issues of regional, national, and state systems of care in the future were discussed as well. [Funded by the Maternal and Child Health Service]

Keywords: Children, Emergency medical technicians, Employment, Geographic factors, Heart catheterization, Heart diseases, Nurses, Rheumatic fever, Social workers, Surgeons

Pryor R, ed. 1966. Heart disease in children: Training program in cardiology: Proceedings—Denver, Colorado, December 3-6, 1962. Washington, DC: U.S. Department of Health, Education, and Welfare, Public Health Service, Heart Disease Control Program, 74 pp. (Public Health Service publication: no. 1374)

Annotation: These conference proceedings discuss the anatomy of congenital and acquired heart disease in children, the physiology of the cardiovascular system, epidemiology of congenital and rheumatic heart disease, the importance of history, techniques in physical diagnosis, the contribution of the laboratory to diagnosis in heart disease, the rheumatic fever diagnostic service, psychological aspects of heart disease, attitude and activity in the therapy of rheumatic fever, medical therapy in congenital heart disease, general aspects of congenital anomalies in children, surgery in heart disease, role of the field nurse and public health services in the care of heart diseases, and the role of the medical social worker.

Keywords: Children, Congenital abnormalities, Congenital heart defects, Diagnosis, Epidemiology, Heart diseases, Heart surgery, History, Home care services, Physiology, Psychology, Public health services, Rheumatic heart disease, Social workers

Lawrence EM. 1961. Vocational counseling for children with heart disease or a history of rheumatic fever: A pilot study. New York, NY: American Heart Association, 246 pp.

Wolff G. 1948. Childhood mortality from rheumatic fever and heart diseases. [Washington, DC]: U.S. Children's Bureau, 63 pp.

Annotation: This study of differential mortality from rheumatic fever and heart diseases in childhood discusses and provides statistics regarding their relative importance among other leading causes of death, age differential, race and socioeconomic differential, sex differential, and geographic variations. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Age factors, Cause of death, Child mortality, Children, Geographic factors, Heart diseases, Racial factors, Rheumatic fever, Sex factors, Socioeconomic factors, Statistics

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.