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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 7 (7 total).

Henderson AM. n.d.. New England genetics group: Summary 1983-1986—Buzzards Bay report. Buzzards Bay, MA: New England Regional Genetics Group, 31 pp.

Annotation: This report of the New England Regional Genetics Group includes a review of their administration/organization and the projects they have administered. Reports are submitted for the following completed projects: External Quality Control of Pregnancy AFP; New England Regional Myelodysplasia Nurse Clinicians; Development of a Cytogenetic Quality Assurance Program; Prevalence of Common Birth Defects in New England; Evaluation of Satellite/Regional Clinics; Fragile-X Syndrome Project; New England Regional Speakers' Bureau; Genetics Digest; and Teratogen Exposure Registry and Surveillance. [Funded by the Maternal and Child Health Bureau]

Contact: NERGG, Inc., P.O. Box 920288, Needham, MA 02492, Telephone: (781) 444-0126 Fax: (781) 444-0127 E-mail: [email protected] Web Site: http://www.nergg.org Available from the website.

Keywords: New England, Regional genetics networks

Wertz DD, Gregg R. 1996. Optimizing genetics services in a social, ethic, and policy context: Suggestions from consumers and providers in the New England Regional Genetics Group. The Genetic Resource 10(2):1–107,

Annotation: This special issue of this journal focuses on issues pertaining to optimizing the delivery of genetic services; it is based on the observations of health consumers and providers in the New England Regional Genetics Group. The introduction of the journal describes the rationale, history, methodology, and goals of the project. The remainder of the issue covers these broad topics: consumer-provider interactions; the social, ethical, and policy contexts in which genetic services are provided; and specific contexts for direct interactions. [Funded by the Maternal and Child Health Bureau]

Contact: NERGG, Inc., P.O. Box 920288, Needham, MA 02492, Telephone: (781) 444-0126 Contact Phone: (301) 570-6586 Fax: (781) 444-0127 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://www.nergg.org Available in libraries.

Keywords: Ethics, Genetic services, Health services delivery, Public policy, Regional genetics networks, Social factors

Council of Regional Networks for Genetic Services Education Committee. 1989. Guide to human genetics educational resources in the regional networks. Washington, DC: National Center for Education in Maternal and Child Health, 70 pp.

Annotation: This resource guide, published in loose-leaf format, includes information about publications and audiovisual materials, as well as formal education programs for a wide variety of audiences, including special populations. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Out of print. Document Number: HRSA Info. Ctr. MCHC023.

Keywords: Genetic services, Genetics education, Regional genetics networks

Mountain States Regional Genetic Services Network. 1987. Mountain States Regional Genetic Services Network directory: Services for the health professional. Washington, DC: National Center for Education in Maternal and Child Health, 25 pp.

Annotation: This directory for health care providers describes genetic services available in the Rocky Mountain states, which include Arizona, Colorado, Montana, New Mexico, Utah, and Wyoming. An introductory chapter covers topics such as what to expect from a genetics consultation; indications for genetic counseling/referrals; and advances in diagnosis and management. Services provided by university-based comprehensive centers, hospital programs, and commercial laboratories are included in the directory. A concluding chapter provides a brief review of classical medical genetics. [Funded in part by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Price unknown.

Keywords: Directories, Genetic services, Regional genetics networks, Rocky Mountain region

Amato RSS. 1985. Council of Regional Networks for Genetic Services: Report of meeting held July 8, 9, 1985, Georgetown University, Washington, DC. Morgantown, WV: West Virginia University, 76 pp.

Mid-Atlantic Regional Human Genetics Network . 1985. MARHGN directory: Services for the health professional. Washington, DC: National Center for Education in Maternal and Child Health, 26 pp.

Annotation: This directory for health care providers describes genetic services available in the mid-Atlantic region, which includes Delaware, the District of Columbia, Maryland, New Jersey, Pennsylvania, Virginia, and West Virginia. An introductory chapter covers topics such as what to expect from a genetics consultation; indications for genetic counseling/referrals; and advances in diagnosis and management. Services provided by university-based comprehensive centers, hospital programs, and commercial laboratories are included in the directory. A concluding chapter provides a brief review of classical medical genetics. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan.

Keywords: Directories, Genetic services, Mid Atlantic region, Regional genetics networks

Emory University School of Medicine, Department of Pediatrics, Division of Medical Genetics. [1984?]. Resources and goals for genetic services in MCH region IV; Symposium-workshop II. Atlanta, GA: Emory University School of Medicine, Division of Medical Genetics, 148 pp.

Annotation: These proceedings focus on the following stated goals of the MCH region IV meeting: maintain and develop communications among professional providers and purchasers of genetic services; identify resources and develop a registry of available services in genetic counseling, clinical genetics, laboratory - (cytogenetics, biochemical genetics, population based screening), data collection for assessment, management resources, sickle cell disease, and hemophilia; develop short and long range goals; and determine short and long range needs and priorities. [Funded by the Maternal and Child Health Bureau]

Keywords: Genetic services, Genetics, Region IV, Regional genetics networks

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.