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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 13 (13 total).

Behrman RE, Butler AS, eds; Board on Health Sciences Policy, Committee on Understanding Premature Birth and Assuring Healthy Outcomes. 2007. Preterm birth: Causes, consequences, and prevention. Washington, DC: National Academies Press, 772 pp.

Annotation: This books assesses the problem of preterm birth in the United States with respect to both its causes and outcomes. It addresses the need for research involving clinical, basic, behavioral, and social science disciplines. It is organized into sections including a summary of preterm birth in America, measurement of fetal and infant maturity, causes of preterm birth, diagnosis and treatment of preterm labor, consequences of preterm birth, and research and policy. Each section contains recommendations. References are provided and appendices include data sources and methods, several essays on prematurity and geographic variation, ethical issues, costs associated with preterm birth, and slected programs funding research. Biographies for the authoring committee and staff are provided along with an index.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available in libraries. Document Number: ISBN 0-309-10159-X; ISBN 13: 978-0-309-10159-2.

Keywords: Infant health, MCH research, Pregnancy complications, Pregnancy outcome, Premature infants, Premature labor, Prematurity, Prenatal diagnosis, Prenatal health, Preterm birth

Creasey RK, Resnik R. 2004. Maternal-fetal medicine: Principles and practice. (5th ed.). Philadelphia, PA: W. B. Saunders Company, 1362 pp.

Annotation: This textbook provides reference material in both the clinical and basic sciences in maternal-fetal medicine. The text is divided into three parts: early fetal development and the environment; fetal diagnostic and treatment modalities; and maternal and fetal pathophysiology. Normal and abnormal growth and development of the fetus, normal and abnormal labor and delivery, problems of pregnancy and problems of neonates are covered.

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com Available in libraries.

Keywords: Fetal development, Medical reference books, Newborn infants, Pregnancy, Prenatal diagnosis, Textbooks

Genetics and Public Policy Center. 2004. Reproductive genetic testing: Issues and options for policymakers. Washington, DC: Genetics and Public Policy Center, 61 pp.

Annotation: This report aims to help focus and faciliate the discussion about reproductive genetic testing by outlining key scientific and medical facts, considering ethical and social implications, and assessing both current and potential oversight for the development and use of reproductive genetic tests. The report presents a range of policy options supported by expert analyss that consider the potential effects, positive and negative, of distinctly different policy directions. The report provides an overview of reproductive genetic testing and discusses (1) genetic testing and issues for society, (2) carrier testing, (3) prenatal testing, (4) preimplantation genetic diagnosis, (5) the future of reproductive genetic testing, (6) the current legal and regulatory landscape, (7) policy options, and (8) what more we need to know. Some information is presented in figures and tables throughout the report. A list of abbreviations is included.

Contact: Genetics and Public Policy Center, , 1717 Massachusetts Avenue, N.W., Suite 530, Washington, DC 20036, Telephone: (202) 663-5971 Fax: (202) 663-5992 Web Site: http://www.DNApolicy.org Available from the website.

Keywords: Diagnosis, Genetic screening, Genetic services, Prenatal diagnosis, Prenatal screening, Public policy, Reproductive health

Jenkins E. 2000. Improved Prenatal Detection of the Fragile X Mutation: [Final report]. Staten Island, NY: Research Foundation for Mental Hygiene, 39 pp.

Annotation: The fragile X syndrome, the most prevalent inherited form of mental retardation, is preventable by prenatal testing. Prenatal diagnosis is not yet widely available because the testing is technically difficult and is not 100 percent reliable. The goal of this project was to develop a more reliable prenatal test. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB2000-106930.

Keywords: Fragile X Syndrome, MCH Research, Mental Retardation, Pregnant Women, Pregnant women, Prenatal Diagnosis, Research

Kuliev A, Greendale K, Penchaszadeh V, Paul NW, eds. 1992. Genetic services provision: An international perspective. White Plains, NY: March of Dimes Birth Defects Foundation, 141 pp. (Birth defects: Original article series; v. 28, no. 3)

Annotation: This publication presents the proceedings from an international meeting on genetic services provision held prior to the 8th International Congress of Human Genetics on October 4, 1991, in six languages including English and Spanish. The fifteen papers included discuss progress in the diagnosis, prevention, and treatment of congenital disorders, as well as with organizational problems relevant to the delivery of genetic services and the associated social and ethical issues. Specific topics include the impact of genetic diseases and birth defects monitoring systems, thalassemia, Down syndrome, genetic screening, evaluation of services, and new technologies. Geographic areas covered include Latin America, Cyprus, Denmark, Cuba, Federal Republic of Germany, and Bahia, Brazil.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available in libraries.

Keywords: Congenital abnormalities, Genetic disorders, Genetic services, Genetics, International health, Non English language materials, Prenatal diagnosis, Research, Spanish language materials

Texas Department of Health, Texas Genetics Network. 1992. Directory of genetic service providers. Austin, TX: Texas Department of Health, 89 pp.

Annotation: This directory lists genetic service providers in Texas. It is organized by category of service including medical genetics programs, biochemical genetics laboratories, cytogenetics laboratories, DNA laboratories, and sickle cell anemia programs. Each entry includes the program name, address, phone, program director, contact person, and a list of the clinical services provided. Many of the entries include information about cost reimbursement. [Funded by the Maternal and Child Health Bureau]

Contact: Texas Department of State Health Services, Children with Special Health Care Needs Services Program, MC 1938, PO Box 149347, Austin, TX 78714, Telephone: (512) 458-7355 Secondary Telephone: (800) 252-8023 Fax: (512) 458-7417 Web Site: http://www.dshs.state.tx.us/cshcn/default.shtm Available in libraries.

Keywords: DNA, Directories, Family support services, Genetic counseling, Genetic screening, Prenatal diagnosis, Sickle cell disease, Special health care needs

Evers-Kiebooms G, Fryns J, Cassiman J, Van den Berghe H, eds. 1992. Psychosocial aspects of genetic counseling: Proceedings of a conference held September 24-26, 1990, Leuven, Belgium. New York, NY: Wiley-Liss, John Wiley and Sons, 203 pp. (Birth defects: Original article series; v. 28, no. 1)

Annotation: These proceedings include contributions on the following psychosocial aspects of genetic counseling: process issues; cross-cultural issues; decision making in the context of genetic risk; the reproductive decision-making process after genetic counseling; support in decision making processes in the post-counseling period; reproductive choices in couples at risk for genetic disease; a protocol to address the depressive effects of abortion for fetal abnormalities discovered prenatally via amniocentesis; psychosocial intervention strategies for professionals; genetic counseling and mental retardation; Prader-Willi syndrome; pitfalls in counseling for predictive testing in Huntington disease; hemophilia and the use of genetic counseling and carrier testing within family networks; psychological implications of genetic screening; and lay conceptions of genetic disorders.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available in libraries.

Keywords: Abortion, Albinism, Fragile X syndrome, Genetic counseling, Genetic counselors, Genetic disorders, Genetic screening, Huntingtons disease, Neurofibromatosis, Prader Willi syndrome, Prenatal diagnosis, Psychosocial factors

Evers-Kiebooms G, Cassiman JJ, Van den Berghe H, d'Ydewalle G. 1987. Genetic risk, risk perception, and decision making. New York, NY: Alan R. Liss, 333 pp. (Birth defects: Original article series; v. 23, no. 2)

Annotation: This book presents the proceedings of a conference held July 28-29, 1986 in Leuven, Belgium. It was designed to provide an exchange of information between genetics counselors and those in other situations dealing with risk perception and decision making under uncertainty. Presentations covered the state of the art in genetics, risk perception and decision making, and applying decision models and technologies to genetic risk.

Keywords: Decision making, Genetic counseling, Genetics, Prenatal diagnosis, Risk assessment

American Association of University Affiliated Programs for Persons with Developmental Disabilities. 1984. Developmental handicaps: Prevention and treatment II. Silver Spring, MD: American Association of University Affiliated Programs, 129 pp.

Annotation: This report is divided into two main sections. Section one contains reports on developmental issues for 1984: prenatal diagnosis, fetal alcohol syndrome, adolescents with chronic illness or disability, a methodology for forecasting health care needs of chronically ill or disabled persons, and the regionalization of health service systems. Section two contains examples of linkages between university affiliated programs and state and local programs and a consideration of the integration of public services for children with disabilities.

Keywords: Chronic illnesses and disabilities, Fetal alcohol syndrome, Health services, Prenatal diagnosis, Program planning

National Center for Education in Maternal and Child Health. 1983. Pregnancy outcome: A selected resource guide for the health professional: Draft. Washington, DC: National Center for Education in Maternal and Child Health, 35 pp.

Annotation: This draft bibliography on pregnancy outcome was prepared for a day course designed for health professionals titled 'Lifestyle Factors Affecting Pregnancy Outcome,' given by the Center for Health Education, Holy Cross Hospital in December, 1983. Both professional and patient education materials are included. Topics covered are: smoking and pregnancy, drug use in pregnancy, alcohol and pregnancy, pregnancy basis, prenatal diagnosis, fetal treatment, and medical genetics.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHA271.

Keywords: Adolescent health, Alcohol use during pregnancy, Breastfeeding, Drug use during pregnancy, Fetal monitoring, Genetics, Immunization, Maternal nutrition, Patient education, Pregnancy, Pregnancy outcome, Prenatal care, Prenatal diagnosis, Rubella, Ultrasonography

Kan YW, Reid CD, eds. 1980. Prenatal approaches to the diagnosis of fetal hemoglobinopathies: An international research workshop designed to update knowledge in prenatal diagnosis and laboratory methodologies of hemoglobinopathies, February 23-24, 1978. Bethesda, MD: National Institutes of Health, 259 pp.

Annotation: This report includes the presentations and discussions of the workshop on Prenatal Approaches to the Diagnosis of Fetal Hemoglobinopathies held in 1978 in Los Angeles. The document is divided into eight major subject areas, each containing presentations and discussion. These subject areas are: (1) fetoscopy; (2) placental aspiration; (3) biochemical methods; (4) immunologic methods; (5) cooperative efforts in data collection; (6) critical issues in prenatal diagnosis including ethical and legal issues, efforts to develop guidelines, the role of the community, and public policy; (7) future developments; and (8) the international roundtable.

Contact: National Institutes of Health, 9000 Rockville Pike, Bethesda, MD 20892, Telephone: (301) 496-4000 Secondary Telephone: (301) 402-9612 Fax: (301) 496-0017 E-mail: [email protected] Web Site: http://www.nih.gov Available in libraries. Document Number: NIH 80-1529.

Keywords: Collaboration, Community role, Data collection, Ethics, Fetoscopy, Fetus, Guidelines, Hemoglobinopathies, Immunologic tests, International programs, Legal issues, Placenta, Prenatal diagnosis, Public policy, Reports, Research methodology, Screening

National Institute of Child Health and Human Development. 1979. Antenatal diagnosis: Report of a consensus development conference. Washington, DC: National Institutes of Health,

Gold EM, ed., Fuchs F, Cederqvist LL. 1970. Perinatal mortality. Clinical Obstetrics and Gynecology. 13(1):1-207. March 1970.,

Annotation: This report of a symposium on perinatal mortality includes articles on a variety of issues related to the national and international aspects of perinatal mortality, the relationship of birthweight and gestational age to perinatal mortality, the epidemiology and prevention of low birthweight, intensive care of low-birthweight and other at-risk infants, the influence of maternal nutrition, and the role of family planning on the immediate and long-term outcome of pregnancy and in the prevention of pregnancy wastage. The volume includes special articles on antenatal sex determination and on recent advances in antenatal diagnosis by amniotic fluid analysis.

Keywords: Family planning, Infant health, International health, Low birthweight, Low birthweight infants, Maternal health, Nutrition, Perinatal mortality, Pregnancy, Prenatal diagnosis, Sex determination

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.