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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 3 (3 total).

Evers-Kiebooms G, Fryns J, Cassiman J, Van den Berghe H, eds. 1992. Psychosocial aspects of genetic counseling: Proceedings of a conference held September 24-26, 1990, Leuven, Belgium. New York, NY: Wiley-Liss, John Wiley and Sons, 203 pp. (Birth defects: Original article series; v. 28, no. 1)

Annotation: These proceedings include contributions on the following psychosocial aspects of genetic counseling: process issues; cross-cultural issues; decision making in the context of genetic risk; the reproductive decision-making process after genetic counseling; support in decision making processes in the post-counseling period; reproductive choices in couples at risk for genetic disease; a protocol to address the depressive effects of abortion for fetal abnormalities discovered prenatally via amniocentesis; psychosocial intervention strategies for professionals; genetic counseling and mental retardation; Prader-Willi syndrome; pitfalls in counseling for predictive testing in Huntington disease; hemophilia and the use of genetic counseling and carrier testing within family networks; psychological implications of genetic screening; and lay conceptions of genetic disorders.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available in libraries.

Keywords: Abortion, Albinism, Fragile X syndrome, Genetic counseling, Genetic counselors, Genetic disorders, Genetic screening, Huntingtons disease, Neurofibromatosis, Prader Willi syndrome, Prenatal diagnosis, Psychosocial factors

Ekvall SM, Stevens FS, eds. 1989. Nutritional needs of the handicapped/chronically ill child: Nutrition assessment Manual III. Cincinnati, OH: University Affiliated Cincinnati Center for Developmental Disorders, 169 pp.

Annotation: This manual contains papers presented at the interdisciplinary symposiums entitled "Nutritional Needs of the Child with a Handicap or Chronic Illness." Several symposiums were held between 1984 and 1988. Materials are organized by topics and presented in three manuals focusing on nutrition program planning, clinical nutrition, and nutrition assessment. The goal of the symposiums was to provide an opportunity for participants to become aware of techniques and resources that will enable them to improve the nutritional status of the child who is chronically ill or handicapped. Manual III addresses assessment of growth and development, guidelines for the use of nutrient supplements, nutrient and drug interactions, and feeding assessment of children who have renal failure and muscular dystrophy. The appendix includes study questions for use in group or self study, Title V agencies, or academic programs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHC098.

Keywords: Assessment, Child development, Child health, Children with special health care needs, Chronic illnesses and disabilities, Down syndrome, Kidney diseases, Nutrition, Prader Willi syndrome

Holm VA, Sulzbacher S, Pipes PL, eds. 1981. Prader-Willi syndrome. Baltimore, MD: University Park Press, 349 pp.

Annotation: This book is a general text on Prader-Willi sydrome. Individual chapters were given at a conference funded by the Office of Maternal and Child Health. The text is divided into general sections on: historical background, etiology and diagnosis, obesity management, behavior and social aspects, and medical aspects. An annotated bibliography is included.

Keywords: Prader Willi syndrome

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.