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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (39 total).

Berman Institute of Bioethics. 2024. Raising children with medical complexity: Issues in housing and household expenses. Baltimore, MD: Johns Hopkins ,

Annotation: This website describes a project that was developed from stakeholder concerns about the fragility of stable and adequate housing for families of children with chronic and complex conditions raised at the 2019 Levi Symposium hosted at the Berman Institute. The project is ongoing.

Contact: Johns Hopkins, Berman Institute of Bioethics , Deering Hal , 1809 Ashland Avenue, Baltimore , MD 20205, Telephone: (410) 614-5550 E-mail: [email protected]

Keywords: Children with special health care needs, Financial barriers, Housing, Physical disabilities, State initiatives

Safe Routes Partnership. 2018. Engaging students with disabilities in safe routes to school. Fairfax, VA: Safe Routes Partnership, 7 pp.

Annotation: Communities around schools are encouraged to implement a "Safe Routes to School" program for students with disabilities. This guide explains the benefits to students with disabilities (which now includes 1 in 7 students), strategies for including those students, and ways to partner and build resources. It discusses inclusion, the components of "Safe Routes" programming, and considerations of the different kinds of disability. References and "Program Highlights" draw attention to programs that have worked.

Contact: Safe Routes Partnership , 12587 Fair Lakes Circle #251, Fairfax, VA 22033, Web Site: https://www.saferoutespartnership.org/

Keywords: Persons with disabilities, Physical activity, Physical disabilities

National Academies of Sciences, Engineering, and Medicine. 2018. Opportunities for improving programs and services for children with disabilities . Washington, DC: National Academies Press , 322

Annotation: This consensus study report provides a comprehensive analysis of health outcomes for school-aged children with disabilities. It reviews and assesses programs, services, and supports available to these children and their families and describes overarching program, service, and treatment goals. The report also examines outreach efforts and utilization rates; identifies which outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu

Keywords: Access to care, Children with developmental disabilities, Children with special health care needs, Disabilities, Learning disabilities, Outcome evaluation, Outreach, Physical disabilities, School age children, Services

SHAPE America: Society of Health and Physical Educators. 2016. Providing community-based PE services for students with disabilities in special education transition programs. Reston, VA: SHAPE America: Society of Health and Physical Educators, 8 pp.

Annotation: This document for physical educators provides guidance on ensuring that students in community-based transition programs receive physical education services in community settings, and that those services are developed and implemented by certified adapted physical education teachers. Contents include background, reasons for concern, clarification from the U.S. Department of Education's Office of Special Education Programs, a call to action, and best practices and recommendations for providing meaningful physical education services in secondary special education transition programs.

Contact: SHAPE America–Society of Health and Physical Educators, 1900 Association Drive, Reston, VA 20191-1598, Telephone: (800) 213-7193 Fax: (703) 476-9527 E-mail: Web Site: http://www.shapeamerica.org Available from the website.

Keywords: Community action, Community based services, Disabilities, Models, Nutrition education, Physical activity, Physical education, Students, Teaching, Transition planning, Transition to independent living, Youth in transition programs

SHAPE America. 2016. Answering frequently asked questions about adapted physical education. Reston, VA: SHAPE America, 20 pp.

Annotation: This guidance document answers common questions about providing physical education services for students with disabilities. The document was developed as a resource for physical educators, adapted physical educators, school district administrators, and parents as they work to provide consistent adapted physical education services for students with disabilities. Contents include descriptions of advocacy resources, legal guidelines, teaching tips, and commonly used motor assessments.

Contact: SHAPE America–Society of Health and Physical Educators, 1900 Association Drive, Reston, VA 20191-1598, Telephone: (800) 213-7193 Fax: (703) 476-9527 E-mail: Web Site: http://www.shapeamerica.org Available from the website.

Keywords: Assessments, Disabilities, Learning, Legal definitions, Motor development, Physical activity, Physical education, Resources for professionals, School districts, Service delivery systems, Students, Teaching

Special Olympics. 2014-. Project UNIFY toolkit. Washington, DC: Special Olympics,

Annotation: This toolkit provides resources to help schools implement Project UNIFY, an initiative that focuses on social inclusion that brings youth with and without intellectual disabilities together through sports and related activities. The resources describe Project UNIFY's vision, its major components, how to get started, implementation models, the connection to equal education and inclusion, evaluation reports, and the project's impact.

Contact: Special Olympics, 1133 19th Street, N.W., Washington, DC 20036-3604, Telephone: (202) 628-3630 Secondary Telephone: (800) 700-8585 Fax: (202) 824-0200 E-mail: [email protected] Web Site: http://www.specialolympics.org Available from the website.

Keywords: Physical fitness, Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, School health programs, Sports

Alliance for a Healthier Generation, American College of Sports Medicine, Bipartisan Policy Center. 2014. Teaching nutrition and physical activity in medical school: Training doctors for prevention-oriented care. Washington, DC: Bipartisan Policy Center, 40 pp.

Annotation: This white paper focuses on options for improving medical education and training in topics such as nutrition and physical activity that have an important role to play in the prevention and treatment of obesity and chronic disease. The paper describes recent efforts to address gaps in knowledge and skills, and offers recommendations for further progress.

Contact: Bipartisan Policy Center, 1225 Eye Street NW, Suite 1000, Washington, DC 20005, Telephone: (202) 204-2400 Fax: (202) 318-0876 E-mail: [email protected] Web Site: https://bipartisanpolicy.org Available from the website.

Keywords: Chronic illnesses and disabilities, Medical education, Nutrition, Obesity, Physical activity, Prevention, Training

2014. Disability and health. Arlington, VA: Association of State and Territorial Health Officials,

Annotation: This web page links to resources that provide an overview of the barriers and challenges that people with disabilities face when accessing preventive health and health promotion services. Also included are 10 case studies developed by the Association of State and Territorial Health Officials (ASTHO) that provide a snapshot of what state public health departments are doing to address the health needs of people with disabilities.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Access to care, Barriers, Community programs, Developmental disabilities, Disabilities, Health promotion, Physical disabilities

Center for Health Care Strategies. 2013. Family and youth peer support literature review. Hamilton, NJ: Center for Health Care Strategies, 5 pp.

Annotation: This document summarizes research on peer support for children and adolescents with significant mental health challenges, physical health challenges, or both. Topics include the benefits of family and youth peer support (FYPS), increased use of FYPS, families' roles, work force and sustainability, and areas needing further research.

Contact: Center for Health Care Strategies, 200 American Metro Boulevard, Suite 119, Hamilton, NJ 08619, Telephone: (609) 528-8400 Fax: (609) 586-3679 Web Site: http://www.chcs.org Available from the website.

Keywords: Adolescents, Children, Family support services, Health services delivery, Literature reviews, Mental disorders, Peer support services, Physical disabilities, Special health care needs

National Center for Chronic Disease Prevention and Health Promotion, Division of Community Health. 2013. A practitioner's guide for advancing health equity: Community strategies for preventing chronic disease. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Division of Community Health, 120 pp.

Annotation: This guide offers lessons learned from practitioners on the front lines of local, state, and tribal organizations that are working to promote health and prevent chronic disease health disparities. Contents include a collection of health equity considerations for several policy, systems, and environmental improvement strategies focused on tobacco-free living, healthy food and beverages, and active living. Additionally, the document provides guidance on integrating the concept of health equity into local practices by building organizational capacity, engaging the community, developing partnerships, identifying health inequities, and conducting evaluations.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Division of Community Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/nccdphp/dch Available from the website.

Keywords: Barriers, Chronic illnesses and disabilities, Disease prevention, Environmental influences, Equal opportunities, Health care systems, Health policy, Health promotion, Nutrition, Physical activity, Program improvement, Tobacco

Bipartisan Policy Center, Nutrition and Physical Activity Initiative. 2012. Lots to lose: How America's health and obesity crisis threatens our economic future. Washington, DC: Bipartisan Policy Center, 105 pp.

Annotation: This report focuses on the problem of obesity and chronic disease in the United States. The report provides recommendations for families (including diet and physical activity guidelines, nutrition-assistance programs, and breastfeeding), schools, the workplace, and the community (including community-based, prevention-focused health care, large institutions, and community programs and the built environment). Cross-cutting recommendations (including public awareness and marketing, food and farm policy, and information sharing and analysis) are also presented.

Contact: Bipartisan Policy Center, 1225 Eye Street NW, Suite 1000, Washington, DC 20005, Telephone: (202) 204-2400 Fax: (202) 318-0876 E-mail: [email protected] Web Site: https://bipartisanpolicy.org Available from the website.

Keywords: Breastfeeding, Chronic illnesses and disabilities, Communities, Community programs, Families, Guidelines, Health, Marketing, Nutrition, Nutrition programs, Obesity, Physical activity, Prevention, Public awareness campaigns, School health, Workplace

Bauer AF. 2011. Disparities in food access and in opportunities for physical activity. Washington, DC: Grantmakers In Health, 2 pp. (Views from the field)

Annotation: This document discusses the causes for the rise in preventable chronic diseases, including obesity, type 2 diabetes, heart disease, stroke, and some cancers, in Massachusetts and across the country. The article also highlights some of the key factors that have produced this change and the parts of the population that are most affected. Topics include health access and outcomes in Massachusetts, Boston health data, access to and affordability of healthy food, opportunities for physical activity, and encouraging healthy behaviors.

Contact: Grantmakers In Health, 1100 Connecticut Avenue, N.W., Suite 1200, Washington, DC 20036-4101, Telephone: (202) 452-8331 Fax: (202) 452-8340 Web Site: http://www.gih.org Available from the website.

Keywords: Access to health care, Cardiovascular diseases, Chronic illnesses and disabilities, Costs, Diabetes mellitus, Food consumption, Health promotion, Income factors, Massachusetts, Obesity, Physical activity, Prevention, Racial factors, Strokes

Axley DL, Zendell AL. 2011. Sexuality across the lifespan for children and adolescents with developmental disabilities. (Rev. ed.). Tallahassee, FL: Florida Disabilities Development Council, 114 pp.

Annotation: This instructional manual is designed to help parents and caregivers assist individuals with intellectual or developmental disabilities in their explorations of self and sexuality. The manual presents hints for family members, discusses adapting for different learning styles, and offers tips. The manual also offers ideas for addressing the following topics: understanding the differences between males and females (grades K-5), changes in the body (grades 4-8), becoming an adult (grades 9-12), beginning social skills (grades K-8 and ongoing), advanced social skills (grades 6-12 as ready), dating, and sexual or physical abuse. A companion resource guide for educators is also available.It is available in English and Spanish.

Contact: Florida Disabilities Development Council, 124 Marriott Drive, Suite 203, Tallahassee, FL 32301-2981, Telephone: (850) 488-4180 Secondary Telephone: (850) 488-0956 Fax: (850) 922-6702 E-mail: [email protected] Web Site: http://www.fddc.org Available from the website.

Keywords: Adolescent sexuality, Adolescents with developmental disabilities, Adolescents with special health care needs, Children with developmental disabilities, Children with special health care needs, Dating, Families, Parents, Physical abuse, Sexual abuse, Sexuality, Social skills, Spanish language materials

Washington State Department of Health. 2010. Nutrition interventions for children with special health care needs (3rd ed.). Olympia, WA: Washington State Department of Health, 425 pp.

Annotation: This book is a resource for those involved in the monitoring or delivery of nutrition care for children with special health care needs. It is intended to serve as a framework for developing and providing nutrition screening, assessment, and intervention as routine components of comprehensive health care for children with disabilities and chronic illnesses. The book is divided into three sections: (1) determination of nutrition status, (2) problem-based nutrition interventions, and (3) condition-specific nutrition interventions. The book includes numerous appendices, including sample screening forms, growth charts for children with a variety of different special health care needs, and other tools. New chapters included in the third edition include breastfeeding, physical acitivity, and autism spectrum disorders.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website. Document Number: DOH Pub. No. 961-158.

Keywords: Breastfeeding, Children with special health care needs, Chronic illnesses and disabilities, Dietary assessment, Forms, Growth charts, Intervention, Nutrition, Physical activity, Resources for professionals, Screening, Washington

U.S. Government Accountability Office. 2010. Students with disabilities: More information and guidance could improve opportunities in physical education and athletics. Washington, DC: U.S. Government Accountability Office, 51 pp.

Annotation: This report examines (1) what is known about the physical education (PE) opportunities that schools provide for students with disabilities and how schools provide these, (2) what is known about extracurricular athletic opportunities that schools provide for students with disabilities and how schools provide these, and (3) how the Department of Education assists states and schools in these areas. Recommendations for improving opportunities for students with disabilities in PE and athletics are offered.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Disabilities, Physical activity, Physical education, Programs, School age children, Schools, Sports

Womack L, Sappenfield WM. 2010. Preconception health: An issue for every woman of childbearing age in Florida—Florida's preconception health indicator report. Tallahassee, FL: Florida Department of Health, Bureau of Family and Community Health, 1 v.

Annotation: This report looks at preconception health among Florida's women of childbearing age. The report covers 10 different health areas (general health status and life satisfaction, social determinants of health, health care, reproductive health and family planning, tobacco and alcohol use, nutrition and physical activity, mental health, emotional and social support, chronic conditions, and infections) and examines how Florida compares to the United States, compares over time, and compares among different socioe-demographic groups.

Contact: Florida Department of Health, 4052 Bald Cypress Way, Tallahassee, FL 32399, Telephone: (850) 245-4444 E-mail: [email protected] Web Site: https://www.floridahealth.gov Available from the website.

Keywords: Alcohol consumption, Chronic illnesses and disabilities, Family planning, Tobacco use, Florida, Health care, Infections, Mental health, Nutrition, Physical activity, Preconception care, Reproductive heath, Social support, State surveys, Women', s health

Leavitt R. 2009. Cultural competence: A lifelong journey to cultural proficiency. Thorofare, NJ: SLACK, 264 pp.

Annotation: This book represents an effort to facilitate the development of cultural competence and cultural proficiency among physical therapists. The book covers theory, practice, and professional development areas of study that have frequently been omitted from the traditional curriculum for rehabilitation professional students or continuing education for the practitioner. Chapters 1,2, and 3 address the domains of culture and cultural competence from a broad perspective. Chapter 4 identifies special considerations that need to be addressed when doing an ethnography of a client. Chapter 5 is devoted to understanding disability. Chapter 6 focuses on present-day circumstances of disparities in health status, health care, and physical therapy. Chapters 7 and 8 are about poverty and racism. Chapter 9 is about communication. Chapter 10 introduces the concept of service learning and explores the relationship between service learning and cultural competence. Chapter 11 discusses the social construct of disability. Chapter 2 provides specific strategies to enable individual physical therapists and the profession of physical therapy to work toward increased cultural competence.

Contact: Slack, Incorporated, 6900 Grove Road, Thorofare, NJ 08086, Telephone: (856) 848-1000 Fax: (856) 853-5991 Web Site: http://www.slackbooks.com Available in libraries. Document Number: ISBN 978-1-55642-876-0.

Keywords: Chronic illnesses and disabilities, Communication, Cultural competence, Health, Health care disparities, Health status disparities, Physical therapists, Physical therapy, Physical therapy education, Poverty, Racism, Rehabilitation

Lee V, Mikkelsen L, Srikantharajah J, Cohen L. 2008. Strategies for enhancing the built environment to support healthy eating and active living. Oakland, CA: PolicyLink, Healthy Eating Active Living Convergence Partnership, 24 pp.

Annotation: This brief outlines a range of organizational practices and public policies being considered to improve the built environment in support of healthy eating and regular physical activity. The brief begins with a description of key characteristics of the built environment and how they affect eating and activity behaviors. It then outlines three target areas -- active transportation and public transit, activity-friendly recreation environments, and land use planning -- and provides a general overview of the breadth of strategies and federal policies to effect the change. The brief also highlights political opportunities, primarily at state and federal levels, that promote increased levels of physical activity and healthy eating in communities.

Contact: Convergence Partnership, PolicyLink, 1438 Webster Street, Suite 303, Oakland, CA 94612, Telephone: (510) 663-2333 Fax: (510) 663-9684 E-mail: http://www.kintera.org/site/lookup.asp?c=fhLOK6PELmF&b=3930101 Web Site: http://www.convergencepartnership.org/ Available from the website.

Keywords: Chronic illnesses and disabilities, Communities, Food habits, Low income groups, Nutrition, Physical activity, Public policy, Urban environment

National Center for Chronic Disease Prevention and Health Promotion. 2005. State programs in action: Exemplary work to prevent chronic disease and promote health. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, 84 pp.

Annotation: This document provides examples of state-based programs that make a substantial contribution to reducing the burden of chronic disease in the United States. Topics include aging, arthritis, block grants: preventing chronic disease, cancer, diabetes, healthy mothers and healthy babies, healthy youth, heart disease and stroke, nutrition and physical activity, oral health; prevention research enters, racial and ethnic approaches to community health, and tobacco.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: https://www.cdc.gov/chronicdisease/index.htm Available from the website.

Keywords: Adolescent health, Arthritis, Block grants, Cancer, Child health, Chronic illnesses and disabilities, Communities, Community programs, Diabetes mellitus, Disease prevention, Health promotion, Heart diseases, Infant health, Maternal health, Model programs, Nutrition, Oral health, Physical activity, State programs, Strokes, Tobacco

Schor EL, ed. 2004. Caring for your school-age child: Ages 5 to 12. New York, NY: Bantam Books, 1 v.

Annotation: This book provides information parents need to take care of children between the ages of 5 and 12. It designed to help the parents prepare their children for the world outside of the home. The book includes 60 chapters organized in these parts: promoting health and normal development, nutrition and physical fitness, personal and social development, behavior and discipline, emotional problems and behavior disorder, family matters, children in school, chronic health problems, and common medical problems. The book treats topics into two ways: it includes chapters which provide background information to help the parents develop a context for the problems their children face, and it contains chapters targeted to particular problems which provide specific suggestions for dealing with them. This book is the second of a three-volume series developed by the American Academy of Pediatrics and Feeling Fine Programs.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org $29.95 plus shipping and handling.

Keywords: Behavior, Behavior disorders, Child development, Child health, Child nutrition, Children, Chronic illnesses and disabilities, Developmental stages, Discipline, Emotional development, Family relations, First aid, Parenting, Parenting skills, Physical fitness, Psychosocial development, School adjustment, School age children

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.