Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (45 total).

University of Michigan Health System, Adolescent Health Initiative. 2015. Voices of transgender adolescents in healthcare. Ann Arbor, MI: University of Michigan Health System, Adolescent Health Initiative, 1 video.

Annotation: This video for health professionals and staff offers perspectives from transgender and gender non-conforming youth about their experiences and what they want from the health care system.

Contact: University of Michigan Health System, Adolescent Health Initiative, 2025 Traverwood Drive, Suite A6, Ann Arbor, MI 48105-2197, Telephone: (734) 998-2034 Fax: (734) 998-2213 E-mail: [email protected] Web Site: http://umhs-adolescenthealth.org Available from the website.

Keywords: Adolescents, Gender discrimination, Health services delivery, Personal narratives, Sex characteristics, Sex role, Training, Young adults

Hughes D. 2015. In their own words: Improving the care experience of families with children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 23 pp.

Annotation: This report summarizes findings from focus groups of parents of children with special health care needs (CSHCN) about their lives with CSHCN, their experiences obtaining needed services, and recommendations for improving the current system of care. The report provides a brief description of the foundational circumstances of the families in the study and summarizes findings into four core themes. Topics include system complexity and fragmentation; system not designed for families; family burden unrecognized; and race, language, and income barriers.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: [email protected] Web Site: http://www.lpfch.org Available from the website.

Keywords: Barriers, California, Children, Families, Health care systems, Parents, Personal narratives, Program improvement, Quality assurance, Special health care needs

Declercq ER, Sakala C, Corry MP, Applebaum S, Herrlich A. 2013. Listening to Mothers III: New mothers speak out–Report of national surveys of women's childbearing experiences. New York, NY: Childbirth Connection, 89 pp.

Annotation: This report presents findings on women's postpartum experiences from birth into the second year of the child's life. The report is based on responses of women ages 18-45 who gave birth to single infants in a U.S. hospital in 2011-2012 and who completed an initial survey in 2011-2012 and a follow-up survey in early 2013. Contents focus on major topics of the follow-up survey including maternal well-being; child well-being; family and relationships; employment, maternity leave, child care, and health insurance; and women's views about the quality of maternity care and engaging in maternity care. The report also looks at subgroup differences among white non-Hispanic, black non-Hispanic, and Hispanic women, as well as women covered by private insurance and Medicaid or the Children's Health Insurance Program. Trends across surveys are also examined.

Contact: National Partnership for Women and Families, 1875 Connecticut Avenue, N.W., Washington, DC 20009, E-mail: [email protected] Web Site: http://www.childbirthconnection.org Available from the website.

Keywords: Child health, Childbirth, National surveys, Personal narratives, Postpartum women, Trends, Women', s health

Boston Women's Health Book Collective, Norsigian J. 2011. Our bodies, ourselves. New York, NY: Simon and Schuster, 944 pp.

Annotation: This revised and updated edition focuses on women’s reproductive health and sexuality including the political, economic, and social forces that shape women’s health. Contents include personal stories and evidence-based information about gender identity, sexual orientation, birth control, abortion, pregnancy and birth, perimenopause, menopause, health issues such as breast and ovarian cancers, and sexuality and sexual health. The book also features stories about public health outreach and advocacy.

Contact: Simon and Schuster, 1230 Avenue of the Americas , New York, NY 10020, Telephone: (212) 698-7000 Web Site: http://www.simonsays.com/ Available in libraries. Document Number: ISBN 9781439190661.

Keywords: Evidence based medicine, Personal narratives, Reproductive health, Sexual health, Sexuality, Women', s health

Rosenthal AK. 2010. My baby book: A keepsake journal for baby's first year. New York, NY: Crown Publishing, Potter Style, 96 pp.

Annotation: This journal contains spaces to record information about a child's growing-up years during the mother's pregnancy and on each birthday from birth to age 18.

Keywords: Adolescents, Children, Personal narratives

National Campaign to Prevent Teen and Unplanned Pregnancy with Pathways/Senderos Center. [2009]. Thinking about our future: Latino teens speak out about teen pregnancy. Washington, DC: National Campaign to Prevent Teen and Unplanned Pregnancy, 12 pp.

Annotation: This pamphlet, which is geared toward Latino adolescents, is intended to provide insights into Latino adolescents' own views about sex, pregnancy, and related issues. The pamphlet includes statistics about adolescent pregnancy and parenthood among Latinos, discusses reasons to avoid sex and pregnancy from the points of views of male Latino adolescents and female Latino adolescents, and provides three personal stories told by Latino adolescents.

Contact: National Campaign to Prevent Teen and Unplanned Pregnancy = Power to Decide, 1776 Massachusetts Avenue, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 478-8500 Fax: (202) 478-8588 E-mail: [email protected] Web Site: http://www.thenationalcampaign.org Available from the website.

Keywords: Adolescent attitudes, Adolescent parents, Adolescent pregnancy, Adolescent sexuality, Consumer education materials, Contraception, Costs, Hispanic Americans, Personal narratives, Prevention

Schroedel J. 2009. Naming the child: Hope-filled reflections on miscarriage, stillbirth, and infant death. Brewster, MA: Paraclete Press, 164 pp.

Annotation: This book, directed to consumers grieving the death of a child, offers perspectives on ways to grieve and heal after the loss of a child, and how to make difficult decisions regarding a dying or deceased child. Apart from her personal perspectives, the author recounts the child loss related experiences of many others as well.

Contact: New Futures, 6110 Bellamah, NorthEast, Albuquerque, NM 87110, Telephone: (505) 872-0463 Available in libraries. Document Number: ISBN 978-1-55725-585-3.

Keywords: Bereavement, Consumer education materials, Fetal death, Infant death, Neonatal death, Perinatal bereavement, Personal narratives, SIDS, Spontaneous abortion

Rosenthal AK. 2009. The grandparent book: A keepsake journal. New York, NY: Crown Publishing, Potter Style, 96 pp.

Annotation: This keepsake journal is designed to make it easy for grandparents to share the stories of their lives with their grandchildren. It is organized by stage of life, including childhood, teenhood, adulthood, and grandhood.

Keywords: Grandparents, Personal narratives

Rosenthal AK. 2009. The big sibling book: Baby's first year according to ME. , 96 pp.

Annotation: This keepsake journal book is designed to help prepare a young child for the birth of a sibling. It has interviews, sticker activities, and pages for recording pre-birth information and firsts about the baby during its first year. It is designed for use with children ages 2-6 and can be used for older children as well.

Keywords: Activity books, Infants, Personal narratives, Siblings

Rosenthal AK, Pearle I, illus. 2008. Words to remember: A journal for your child's sweet and amusing sayings. [New York, NY]: Crown Publishing, Potter Style, 80 pp.

Annotation: This keepsake journal provides spaces for parents to write down and preserve things their children say. It is a hardback with lined notebook paper, and includes illustrations and other children's quotations.

Keywords: Children, Personal narratives

Exe N, Ferguson H, Krokosky A, Sawyer S, Terry SF. [2007]. Genetic testing stories. Washington, DC: Genetic Alliance, 56 pp. (Monograph series no. 2)

Annotation: This publication consists of a collection of brief stores of individuals who have undergone genetic testing for a variety of conditions. Each story is told in the individual's own voice. Topics include carrier testing, diagnostic testing, gene mapping, predictive, and prognostic. For each topic there are several stories, each focusing on a different condition.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Personal narratives, Carrier state, Diagnostic techniques, Genetic counseling, Genetic disorders, Genetic screening

Campaign for Children's Health Care, ed. 2007. When an apple a day isn't enough: Students speak out about health coverage. Washington, DC: Families USA,

Annotation: This Web site provides information from the book published as a result of the contest, When an Apple a Day Isn't Enough: Students Speak Out About Health Coverage. The Web site describes the contest, which was held in 2006 for students ages 11-17, and provides chapters of the book and essays of grand prize and state winners.

Contact: Campaign for Children's Health Care, P.O. Box 34143, Washington, DC 20043, Telephone: (202) 879-0299 Fax: (202) 347-2417 Web Site: http://www.childrenshealthcampaign.org Available from the website.

Keywords: Adolescents, Health insurance, Media campaigns, Personal narratives

Rosenthal AK. 2007. Your birthday book: A keepsake journal . New York, NY: Crown Publishing, Potter Style, 104 pp.

Annotation: This journal provides birthday activities for a child ages 1-18 as well as space for photos, questions to ask the child, and keepsake envelopes for each year.

Keywords: Adolescents, Children, Personal narratives

Rosenthal AK. 2006. The belly book: A nine-month journal for you and your growing belly. New York, NY: Crown Publishing, Potter Style, 96 pp.

Annotation: This pregnancy keepsake journal is organized by trimester and week-by-week. It includes pages for “time-lapse” belly photos and ultrasound images, as well as prompts for writing about morning sickness, food cravings, maternity clothes, and other topics.

Keywords: Personal narratives, Pregnant women

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Hope for women in recovery: Understanding and addressing the impact of prenatal alcohol exposure. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 24 pp.

Annotation: This report presents information from the summit, Hope for Women in Recovery: Understanding and Addressing the Impact of Prenatal Alcohol Exposure, held on July 21-22, 2005, in Raleigh, North Carolina. The summit was designed to educate women of childbearing age in recovery and substance abuse treatment center staff about fetal alcohol spectrum disorders. The report includes information from presentations held at the summit, including personal stories of women in recovery and presentations by health professionals.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: [email protected] Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Alcohol consumption during pregnancy, Education, Fetal alcohol syndrome, Perinatal addiction, Perinatal health, Personal narratives, Prenatal addiction, Recovering addicts, Recovering alcoholics, Substance abuse treatment, Substance abusing pregnant women, Women', s health

Tomorrows Child Michigan SIDS. 2005. Little book of big ideas. Lansing, MI: Tomorrow's Child Michigan SIDS, 23 pp.

Annotation: This booklet serves as a guide on how to support Michigan Baby Walks, a fundraiser to support Tomorrow's Child/Michigan SIDS, an organization dedicated to advancing community efforts that prevent infant death and providing education that promotes infant well-being and grief support to those affected by an infant death. The booklet includes ideas on how to raise money; reach friends, families, and communities; and maintain support, among other topics. The booklet also provides background about the organization and presents personal stories.

Contact: Tomorrow's Child Michigan SIDS, 612 West Lake Lansing Road, Suite 800 , East Lansing, MI 48823, Telephone: (517) 485-7437 Secondary Telephone: (800) 331-7437 E-mail: Web Site: http://www.tomorrowschildmi.org Available from the website.

Keywords: Bereavement, Communities, Education, Families, Financial support, Fundraising, Grief, Infant death, Infant health, Michigan, Personal narratives, Prevention, Programs, SIDS

Harris AC. 2005. The pregnancy journal: A day-to-day guide to a healthy and happy pregnancy. (Rev. ed.). San Francisco, CA: Chronicle Books, 205 pp.

Annotation: This spiral-bound diary for expectant parents provides helpful tips, information on baby's development, and blank space for notes during days of the nine-month cycle of pregnancy. It includes guidelines on healthy eating and lifestyle choices; describes common symptoms of pregnancy during each stage of development; and asks the expectant mother how she is feeling in terms of her mood, energy, and appetite. It also provides tips for expectant mothers who are past full term; provides space for documenting details about labor and delivery; and encourages new parents to write down details about their newborn infant. Simple illustrations and inspirational quotations about children and parenting are provided throughout.

Contact: Chronicle Books, Web Site: http://www.chroniclebooks.com/ $19.95, plus shipping and handling.

Keywords: , Fetal development, Personal narratives, Pregnancy, Prenatal care, Self care

National Early Childhood Technical Assistance Center. [2002]. Reflections on early childhood. Chapel Hill, NC: National Early Childhood Technical Assistance Center, 1 CD-ROM.

Annotation: This CD-ROM features three adults with disabilities who share early experiences that have influenced their ability to lead productive, independent lives. It is also available in a video format.

Contact: Early Childhood Technical Assistance Center, Campus Box 8040, UNC-CH, Chapel Hill, NC 27599-8040, Telephone: (919) 962-2001 Secondary Telephone: (919) 843-3269 Fax: 919.966.7463 E-mail: [email protected] Web Site: http://ectacenter.org/ Available from the website.

Keywords: Audiovisual materials, CD-ROMs, Children with special health care needs, Disabilities, Early childhood development, Education, Personal narratives, Special education, Videotapes, Young children

U.S. Substance Abuse and Mental Health Services Administration and Casey Family Programs. 2001. The Starting Early Starting Smart Family Strengths Institute: A journal of the convening. Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration; Seattle, WA: Casey Family Programs, 36 pp.

Annotation: This journal documents the family involvement process of The Starting Early Starting Smart (SESS) Family Strengths Institute. The SESS program is a research-based collaborate effort between the Substance Abuse and Mental Health Services Administration and the Casey Family Programs that targets families with very young children who are at risk for delayed social-emotional, language, and physical development owing to to risk factors such as caregiver substance abuse, immigrant status, or poverty. The purpose of the institute was to learn from SESS families how to keep families at the center of care while empowering them in a meaningful participatory way in program implementation. The journal describes the planning process for the institute, summarizes the events of the institute and lessons learned, and includes stories about families who participated in the institute. Appendices list participants, presenters, and SESS grant sites.

Contact: National Clearinghouse for Alcohol and Drug Information, Telephone: (800) 729-6686 Secondary Telephone: (800) 487-4889 Web Site: http://ncadi.samhsa.gov Available from the website.

Keywords: Caregivers, Community programs, Early childhood development, Emotional development, Families, Federal programs, Immigrants, Language, Mental health, Parent participation, Personal narratives, Poverty, Research, Social skills, Substance abuse, Young children

Covington SS. 1999. A woman's journal: Helping Women Recover—A program for treating addiction. San Francisco: Jossey-Bass Publishers, 134 pp.

Annotation: This manual is a personal journal to be used by a participant in a program for treating addiction, Helping Women Recover. The journal is intended for use in a group meeting setting although it may be used one-on-one with a counselor. The program is organized into four modules: self, relationships, sexuality, and spirituality. For each module, the journal contains exercises to be used at the group meetings, summaries of information received at meetings, and questions and exercise for reflection between meetings. The appendix contains a list of other recovery resources.

Contact: Jossey-Bass Publishers, John Wiley & Sons, Inc. Corporate Headquarters, 111 River Street, Hoboken, NJ 07030, Telephone: (201) 748-6000 Fax: (201) 748-6088 E-mail: [email protected] Web Site: http://www.JosseyBass.com Available in libraries. Document Number: ISBN 0-7879-4430-0.

Keywords: Behavior modification, Personal narratives, Recovering addicts, Substance dependence, Therapeutic programs, Women', s health

    Next Page »

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.