Search Results: MCHLine

Annotation: This summary report is from a focus group convened to discuss issues related to the use of ACTG 076 to treat HIV-infected pregnant women. The chief issues covered are: women's attitudes about health care providers and the health care system; information and informed decision making; and counseling and testing. Implications, conclusions and recommended are included. [Funded by the Maternal and Child Health Bureau]

Contact: Institute for Patient and Family-Centered Care, 7900 Wisconsin Avenue, Suite 405, Bethesda, MD 20814, Telephone: (301) 652-0281, ext. 16 Fax: (301) 652-0186 E-mail: [email protected] Web Site: http://www.familycenteredcare.org Available from the website.

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Keywords: Attitudes, Counseling, HIV, HIV infected patients, Pediatric HIV, Pregnant women, Testing, Treatment outcome, Treatment refusal

Annotation: This electronic resource presents information on the prevention of transmission of HIV infection from mother to child. It includes a clinician toolkit, antiretroviral guidelines, curricula, manuals, online training, patient information, pocket guides, prevention and testing guidelines, slides, and other materials. Topics include preconception care, HIV testing including rapid testing at labor and delivery, and counseling.

Contact: AIDS Education and Training Centers National Resource Center, Rutgers School of Nursing, Francois-Xavier Bagnoud Center, 65 Bergen Street, Newark, NJ 07107, Telephone: (973) 972-5141 Fax: (973) 972-0397 E-mail: [email protected] Web Site: https://aidsetc.org Available from the website.

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Keywords: Disease transmission, HIV, Infant health, Pediatric HIV, Prevention

Annotation: These guidelines provide health professionals with information for discussion with HIV-infected pregnant women to enable the patient-health professional team to make informed decisions about the use of antiretroviral drugs during pregnancy and the use of elective Cesarean delivery to reduce perinatal HIV transmission. The recommendations in the guidelines are accompanied by discussion of various circumstances that commonly occur in clinical practice and the factors influencing treatment considerations. Topics include (1) lessons learns from clinical trials of antiretroviral interventions to reduce perinatal transmission of HIV, (2) preconception counseling and care for HIV-infected women of childbearing age, (3) antepartum care, (4) intrapartum care, (5) postpartum care, and (6) neonatal postnatal care.

Contact: AIDSinfo, P.O. Box 6303, Rockville, MD 20849-6303, Telephone: (800) 448-0440 Secondary Telephone: (888) 480-3739 Fax: (301) 315-2818 E-mail: [email protected] Web Site: http://aidsinfo.nih.gov Available from the website.

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Keywords: Cesarean section, Counseling, Disease transmission, Guidelines, HIV infected patients, Pediatric HIV, Physician patient relations, Postnatal care, Postpartum care, Preconception care, Pregnant women, Prenatal care, Prevention, Treatment

Annotation: This fact sheet provides information about HIV and AIDS during pregnancy. The fact sheet offers background information and answers questions about HIV and AIDS during pregnancy, included who should be tested, what types of treatment are available, symptoms of AIDS in infants, and steps women can take to remain uninfected. References are included.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available from the website.

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Keywords: AIDS, HIV, Pediatric AIDS, Pregnancy, Prevention, Screening tests, Treatment

Annotation: This report assesses the responses of seven health care provider sites to the findings by a pediatric AIDS trial clinic that the drug zidovudine (ZDV), also known as AZT, can reduce perinatal transmission of HIV by as much as two thirds when administered to women during pregnancy and delivery to infants for six weeks after birth. It identifies the range of strategies and activities undertaken and also sheds lights on contextual factors that affected the responses and addresses their implications.

Contact: HathiTrust Digital Library, University of Michigan, Telephone: (734) 764-8016 E-mail: [email protected] Web Site: https://www.hathitrust.org/digital_library Available from Hathitrust via participating libraries. Document Number: HRSA Info. Ctr. MCHJ097.

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Keywords: Assessment, Demographics, Evaluation, High risk pregnancy, Infant health promotion, Maternal health, Pediatric AIDS, Pediatric HIV, Perinatal care, Perinatal health, Public health, Risk prevention, Socioeconomic factors, Zidovudine

Annotation: This report describes a qualitative study conducted from July through December 1995 of youth empowerment positions in HIV/AIDS service delivery models. The study examined the ways 11 Special Projects of National Significance (SPNS) Program grantee organizations have been engaging youth to provide services to other youth, under Title II of the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act of 1990. The projects provided outreach, risk reduction counseling, HIV counseling and testing, medical care, case management, and/or support services. A phone survey instrument is included.

Contact: U.S. Bureau of Health Resources Development , 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-9481 Available at no charge. Limited number of copies available..

Keywords: Adolescents, Federal programs, HIV, Pediatric AIDS, Peer counseling, Peer education, Program evaluation

Annotation: This paper recounts the process used at the Brooklyn Pediatric AIDS Network in adapting the principles of case management to the services the network provides to children and adolescents at risk for HIV and AIDS and their families. The paper reviews the six-step case management process: 1) identification and intake, 2) assessing the child's and caretaker's needs, 3) developing the service plan, 4) implementing the service plan, 5) linkage of clients and resources, and 6) monitoring services and reassessment. The paper also considers termination and transition out of the process and defines various levels of case management. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Case management, Children, Community based services, Family centered services, Health services, Manuals, Pediatric AIDS, Pediatric HIV, Social services

Annotation: This book provides standards for assessing the quality of care delivered to children and youth who are HIV-positive or who have AIDS, and to their families. Providers, families, and government officials collaborated to produce these standards, which are based upon the standards in "Enhancing Quality." The book is organized into five sections: individualized services received by the child and the family, activities of health professionals in delivering services, responsibilities of health care agencies, the state health department's role in developing policies, and possible contributions of advocacy groups. The book also contains a glossary of commonly used terms. [Funded by the Maternal and Child Health Bureau]

Contact: New England SERVE, 101 Tremont Street, Suite 812, Boston, MA 02108, Telephone: (617) 574-9493 Contact Phone: (800) 362-0071 Fax: (617) 574-9608 Available from the website.

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Keywords: AIDS, Adolescents with special health care needs, Assessment, Children with special health care needs, Families, Family centered services, HIV, Health care delivery, Health policy, Pediatric AIDS, Quality assurance, Standards

Annotation: This resource manual enables Head Start administrators, component coordinators, staff, and other child care professionals to care for children of HIV-affected families. General topics covered are the HIV-infected child, working with families, health care concerns, legal issues, staff and agency management, and community relations. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available in libraries. Document Number: HRSA Info. Ctr. MCHF097.

Keywords: Child care, Chronic illnesses and disabilities, Consumer education, HIV, Head Start, Health and safety, Pediatric AIDS, Programs, Special education

Annotation: This manual addresses legal issues frequently encountered by health care providers in serving children and their families affected by HIV disease. The following legal topics are examined: the obligation of health care providers to treat persons with HIV; the obligation of health care providers to obtain patient consent for treatment; provider-patient confidentiality; a health care provider's duty to warn persons at risk of HIV infection; provider testing for HIV; clinical trials and research issues; and individual rights, privacy, and entitlements. [Funded by the Maternal and Child Health Bureau]

Keywords: HIV, Legal issues, Patient care management, Patient consent, Pediatric AIDS, Physician patient relations

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHC074.

Keywords: AIDS, HIV, Pediatric AIDS

Keywords: AIDS, HIV, Pediatric AIDS

Annotation: This booklet describes the OMCH initiatives for pediatric AIDS. These initiatives are integrated into a coordinated care system that is family centered, community based, and culturally sensitive. The history of pediatric AIDS activities is discussed and the goals of the Pediatric AIDS Campaign launched by the Association for the Care of Children's Health are presented. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHC064.

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Keywords: AIDS, Child health, HIV, Pediatric AIDS

Annotation: This document addresses how HIV infection is different in children and adults; health and social services that are needed by children with HIV infection; and services provided by selected cities and federal programs to address these needs.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 E-mail: [email protected] Web Site: http://www.gao.gov Available from the website. Document Number: GAO/HRD-89-96.

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Keywords: HIV, Health services, Pediatric AIDS

Annotation: This report describes the needs of the pediatric population with respect to HIV infection and AIDS and offers recommendations for addressing them. The report covers issues in research, care, financing, and prevention;

Contact: U.S. Government Publishing Office, 732 North Capitol Street, N.W., Washington, DC 20401, Telephone: (202) 512-1800 Secondary Telephone: (866) 512-1800 Fax: (202) 512-2104 E-mail: [email protected] Web Site: http://www.gpo.gov Available from Hathitrust via participating libraries. Document Number: NIH 89-3063.

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Keywords: HIV infection, Pediatric AIDS

Annotation: This book for children discusses how the fictional hero found out he had the virus that causes HIV and AIDS. The title and the story line turn upon his misunderstanding the acronym, AIDS, thinking that adults were saying eggs. The book reviews the significant facts about the disease that a child needs to know and dispels common misperceptions they may encounter. [Funded in part by the Maternal and Child Health Bureau]

Contact: Women, Children, and HIV, Center for HIV Information , University of California, San Francisco, CA Contact Phone: (800) 362-0071 Fax: E-mail: [email protected] Web Site: http://www.womenchildrenhiv.org Available in libraries.

Keywords: Children, Materials for children, Pediatric AIDS, Pediatric HIV

Annotation: The purpose of this workshop was to summarize the current knowledge about AIDS in children and to make recommendations about future directions in research, prevention, and amelioration of the effects of pediatric AIDS. This report includes excerpts from the presentations at the conference, work group recommendations, and the response of the Surgeon General. Appendices include guidelines for management of HIV, the CDC classification system for HIV infection in children, and a report on education and foster care for children infected with HIV.

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Keywords: AIDS, HIV, Pediatric AIDS