Search Results: MCHLine

Annotation: This manual was developed to accompany an 8-hour class. It introduces the concept of mainstreaming and relates it to the principles of early childhood education and best practice guidelines for caring for children with special needs. Module one includes sections on the importance of working with families, ethical issues, laws protecting children with special needs, typical vs. atypical development, how children learn, suggestions for working with parents are included, and diversity resources. Module two deals with motor development and concludes with a bibliography and references. Module three covers social-emotional development and behavioral issues. [Funded by the Maternal and Child Health Bureau]

Keywords: Americans With Disabilities Act, Child behavior, Child care, Child development, Children with special health care needs, Developmental disabilities, Ethics, Families, Learning, Legislation, Mainstreaming, Motor development, Parents, Psychosocial development, Special education

Annotation: This program trained parents in specific competencies necessary for teacher aides, with special emphasis on appropriate and frequent child and adult interactions. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Parents, Special education

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Annotation: This project was a partnership between families and their medical home to develop a demonstration model for care coordination for environmentally at-risk infants and toddlers in low-income culturally diverse urban and rural settings. The families were being served as part of the eligible population under P.L. 99–457, with an individualized family support plan (IFSP) developed for each family. The target population included many families of different ethnic origins. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Children with Special Health care Needs, Cultural Diversity, Families, Family Centered Health Care, Family Support Programs, Hawaiians, Health Promotion, Healthy Tomorrows Partnership for Children, Low Income Population, PL 99-457, Parents, Preschool Children, Primary Care, Rural Population, Service Coordination, Urban Population

Annotation: This brochure describes the Iowa Family Leadership Training Institute (IFLTI), a program offering leadership training for parents and primary caregivers of children with special health care needs. It outlines the program's four in-person sessions focused on developing leadership and advocacy skills across individual, community, and policy levels, using the Maternal and Child Health Leadership Competencies framework. Key components include training topics such as disability history, servant leadership, storytelling, and policy advocacy, along with mentored Community Service Projects that provide practical application of learned skills (e.g., installing adult changing tables and creating safety presentations for first responders).

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Keywords: Iowa, Children with special health care needs, Materials for parents, Parent education,

Annotation: This report provides information about best practices in therapeutic or treatment foster care (TFC), a clinical intervention for youth from birth to age 18 who have severe mental, emotional, or behavioral health needs. Topics include essential partners; building relationships among provider agencies and child advocates; example practices in Connecticut, Illinois, Michigan, Oklahoma, Nebraska; efforts to expand the focus beyond safety and permanency to well-being for youth in therapeutic foster care; and public policy challenges.

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Keywords: Access to health care, Adolescents with special health care needs, Advocacy, Behavioral medicine, Children with special health care needs, Foster care, Foster parents, Health services delivery, Intervention, Medically fragile children, Mental health, Policy development, Psychological needs, Reimbursement, Relationships, Therapeutics, Training, Trauma care, Youth

Annotation: This report analyzes how disability law and policy in the United States apply to parents with disabilities in the child welfare and family law systems. It provides a comprehensive review of the barriers and facilitators that people with intellectual, developmental, psychiatric, sensory, and/or physical disabilities experience when exercising their right to create and maintain families. It examines the pervasive and systemic discrimination against parents with disabilities and the disparate treatment that parents with disabilities and their children receive. Included are chapters that focus on parental disability and child welfare in the Native American community; custody and visitation in the family law system; and the lack of adequate adaptive services, equipment, and parental guidance in child welfare and family courts. The report also looks at support systems for parents with disabilities; promising practices to prevent the unnecessary removal and loss of children; and the need for legislation to ensure the rights of parents with disabilities and their families An examination of the impediments that prospective parents with disabilities encounter when adopting or accessing assisted reproductive technologies is also provided. The goal of this report is to advance understanding and promote the rights of parents with disabilities and their children.

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Keywords: Adults, Analysis, Disabilities, Legislation, Parent rights, Parents with special health care needs, Policy analysis, Reports, Reproductive rights

Annotation: This guide is designed to assist parents and caregivers of children with epilepsy and seizure disorder in keeping health information and their child's health records in a central location. The guide provides answers to questions to help parents better understand epilepsy and seizure disorder; learn about access to care and services; reach out to other parents; and learn about additional resources. The appendixes include forms to help parents keep a log of their child's diagnosis, seizures, visits to the doctor and medications taken, and communication with health professionals and organizations. The guide is available in English, Spanish, and Farsi. [Funded in part by the Maternal and Child Health Bureau]

• Resource Page For English, Spanish, And Farsi Versions

Keywords: Children with special health care needs, Consumer education materials, Epilepsy, Forms, Medical records, Non English language materials, Parents, Seizures, Spanish language materials, child care workers

Annotation: This instructional manual is designed to help parents and caregivers assist individuals with intellectual or developmental disabilities in their explorations of self and sexuality. The manual presents hints for family members, discusses adapting for different learning styles, and offers tips. The manual also offers ideas for addressing the following topics: understanding the differences between males and females (grades K-5), changes in the body (grades 4-8), becoming an adult (grades 9-12), beginning social skills (grades K-8 and ongoing), advanced social skills (grades 6-12 as ready), dating, and sexual or physical abuse. A companion resource guide for educators is also available.It is available in English and Spanish.

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• Spanish

Keywords: Adolescent sexuality, Adolescents with developmental disabilities, Adolescents with special health care needs, Children with developmental disabilities, Children with special health care needs, Dating, Families, Parents, Physical abuse, Sexual abuse, Sexuality, Social skills, Spanish language materials

Annotation: This booklet for parents of newborns provides information about how to maintain the health and safety of both parents and infants. It includes space to fill in information to help plan for infants' health needs and provides resources for more information. Topics include newborn screening, immunizations, pertussis, planning for after delivery, postpartum mood disorders, infant crying, safe sleep and sudden infant death syndrome, choosing a child care provider, child safety seats, and special needs and early intervention. It is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

• English
• Spanish

Keywords: Car seats, Child care, Consumer education materials, Crying, Early intervention, Health, Immunization, Infant health, Infants with special health care needs, Medical records, Neonatal screening, Newborn infants, Parents, Postpartum depression, SIDS, Safety, Sleep position, Spanish language materials, Whooping cough

Annotation: This pamphlet explains the importance of choosing high quality child care for children with special health needs and offers tips to help parents. It provides guidelines on locating and selecting quality programs; lists questions that parents should ask when interviewing directors and child care providers; and describes key indicators of high quality care that parents should look for when observing and listening. Also included is a tear-off checklist of things that parents should look for and ask about during the process of identifying a quality program for a child with special health needs.

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Keywords: Child care, Child care centers, Children with special health care needs, Guidelines, Parents, Program evaluation

Annotation: This document is excerpted from the "Home Care Program Policy Manual" of the University of Illinois at Chicago Division of Specialized Care for Children. It describes some of the differences and difficulties experienced by families and nurses working together in the home care of technology assisted children. It also provides information to help nurses establish and maintain a professional working relationship within a home environment. General guidelines are presented to help nurses prepare mentally for the experience of home care. More specific guidelines are also included that discuss establishing appropriate relationships with the child, the parents, and the siblings. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Home care services, Medically fragile children, Nurses, Parents, Technology dependence

Annotation: This report documents Family Voices' conversations with parents of children and youth with special health care needs and/or disabilities from diverse cultural groups (Hispanic, African American, and Native American). The report describes parents' concerns about and perceived barriers to (1) being partners in decision-making about supports and services and (2) being advisors to committees and councils. The report also shares parents' recommendations for how to improve their capacity to be effective decision-makers for their own children, and provides parents' suggestions for improving organizational recruitment and support for participation on advisory committees and for other leadership roles. The report discusses engaging Hispanic parents, African-American parents, and Native American parents and presents common themes across groups for recruiting and supporting parents new to advisory roles.

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Keywords: Adolescent with special health care needs, Advisory committees, American Indians, Blacks, Children with special health care needs, Cultural factors, Health services, Hispanic Americans, Leadership, Minority groups, Parent participation, Parent professional relations, Parent support services, Parents, Recruitment

Annotation: This toolkit is designed to be a resource guide and information referral source for parents or caregivers whose child has recently been diagnosed with epilepsy. Contents include information and tips with links to downloadable tools. The toolkit is organized into the following six sections: About Epilepsy, Managing Epilepsy, Daily Life with Epilepsy, Life Stages with Epilepsy, Resources, and Forms. A DVD that chronicles the experiences of three families raising a child with epilepsy is also available. [Funded by the Maternal and Child Health Bureau]

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• Additional Information

Keywords: Children with special health care needs, Consumer education materials, DVDs, Epilepsy, Parents, Resource materials

Annotation: This brochure offers practical tips for involving families in program and policy development. Suggestions are offered for how to start, what works, and outcomes. Tips are presented as brief bullet points. Information on the Washington Family Advisory Network, a group of parents of children with special health care needs, is also included. The brochure concludes with quotes from parents.

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Keywords: Children with special health care needs, Collaboration, Community coordination, Families, Family centered services, Parents, Policy development, Program planning, Public health, Public policy

Annotation: This final report for the Wisconsin Integrated Services for Children with Special Health Care Needs program discusses the project purpose; goals and objectives; methodology; evaluation; results, outcomes, and lessons learned; publications and products; dissemination and utilization of results; and sustainability. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents with special health care needs, Children with special health care needs, Community health services, Families, Final reports, Health care systems, Leadership, Medical home, Parents, Service integration, Wisconsin, Youth in transition programs

Annotation: This final report for the Sooner SUCCESS (State Unified Children's Comprehensive Exemplary Service for Special Needs) program discusses the project purpose; goals and objectives; methodogy; evaluation; results, outcomes, and lessons learned; publications and products; dissemination and utilization of results; and sustainability. [Funded by the Maternal and Child Health Bureau]

Keywords: Final reports, Adolescents with special health care needs, Children with special health care needs, Communities, Community health services, Families, Family support services, Health care systems, Medical home, Oklahoma, Parents, School to work transition, Service coordination, Service integration, Transition to independent living, Youth in transition programs

Annotation: This guide, the first in a series of maternal and child health (MCH) case studies developed through a collaborative effort between the Association of Maternal and Child Health Programs and the Association of Teachers of Maternal and Child Health, is intended as a tool for teachers of public health, MCH, health policy, and health evaluation, The guide focuses on implementing the medical home model for children with special health care needs in Minnesota. Topics covered include (1) the importance of parents, (2) the importance of physicians, (3) the collaborative team, (4) the importance of funding, and (5) the future. A section on how to use the guide is included. Two appendices are also included, one discussing the medical home concept and the other providing information about meetings related to the case study held in St. Paul, Minnesota.

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Keywords: Case studies, Children with special health care needs, Collaboration, Financing, Medical home, Minnesota, Parents, Physicians, State programs

Annotation: This paper offers information about providing high-quality child care for children with special health care needs. Information is included about parents' and providers' concerns, what parents and providers need to know to get started, suggestions for talking to parents and providers, how to get child care off to a good start, strategies for success, resources, and what to do when a child care provider refuses to care for a child with a disability. Questions and answers about topics including the American with Disabilities Act are presented.

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Keywords: Child care, Child care workers, Children with special health care needs, Communication, Disabilities, Legislation, Parents