Search Results: MCHLine

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147130.

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Annotation: This project worked with the Technical Assistance for Parent Programs Project and the U.S. Office of Special Education Resources in order to increase and enhance parent involvement in the health care of children with disabilities and special health needs. The project sought to (1) prepare parents to assume an integral role in the health care of their children with disabilities; (2) promote effective communication and collaboration among health care professionals and parents in order to enhance health services for children; and (3) develop a national support system to ensure that parents have access to essential information and peer support. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152940.

Keywords: 99-457 Financing Intervention, Early Association for the Care of Children', Health Professionals, L, Parent Education Parent Professional Communication Peer Support P, Parents, s Health (ACCH) Parent Networks

Annotation: This issue brief looks at how toll-free hotlines are used to provide families with the support and guidance they need to raise healthy children. Topics covered include (1) a brief history of maternal and child health (MCH) toll-free lines, (2) elements of their operation, (3) a parent tests the lines, (4) opportunities to expand toll-free lines, and (5) enhancing coordination among states. The brief also includes an abstract, as well as state-specific information presented as sidebars. Statistical information is presented in figures throughout the report. The report concludes with a table listing MCH toll-free lines and a description of the methodology.

Contact: Commonwealth Fund, One East 75th Street, New York, NY 10021, Telephone: (212) 606-3800 Fax: (212) 606-3500 E-mail: [email protected] Web Site: http://www.commonwealthfund.org Available from the website.

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Keywords: Children, Families, Hotlines, Information networks, Parents, Referrals, State programs

Annotation: The overall aim of this project was to establish and evaluate the Nebraska Network for Children and Families (NNCF). This project: (1) Established the management structure, including a project management committee and a community-based, multicultural project advisory committee; (2) established the NNCF system and recruited and trained parent and professional users; (3) developed family-centered, culturally competent information resources pertinent to health care reform, the service delivery system, and parenting or caring for children with special health care needs; and (4) demonstrated that NNCF participation enhanced professional leadership toward family-centered, culturally competent, community-based care. NNCF was made Internet accessible. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Communication Systems, Electronic Bulletin Boards, Electronic Mail, Families, Health Care Reform, Information Networks, Online Systems, Parent Networks

Annotation: The goal of this project was to create a system for Parent-Directed Family Resource Centers (PDFRCs) and assist others to develop and institutionalize this system. PDFRCs offered a comprehensive (one-stop shopping) array of family resources and support programs to a local area (cities, counties, and parishes). The project objectives included developing a series of "how to" manuals on initiating and institutionalizing PDFRCs and developing 15 self-teaching packets on replicating Parents Helping Parents, Inc., programs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB96-187026.

Keywords: Children with Special Health care Needs, Families, Information Systems, National Information Resource Centers, National Programs, Parent Networks, Parent Support Groups, Parent Support Services, Parents, Peer Counseling

Annotation: The overall goal of the Strengthening Our Partnership project was to further develop services for Iowa's children with special health care needs and their families through activities that strengthened the effective leadership of parents in the design of a comprehensive service system. The three primary project objectives were to: (1) Establish statewide coordination among parents and parent programs to facilitate ongoing communication and collaboration; (2) establish a multiagency capacity for parent leadership in the design and delivery of services for children with special health care needs and their families; and (3) strengthen parent-professional teamwork in the development, implementation, and evaluation of family-centered programs and policies. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Family Professional Collaboration, Leadership Training, Parent Networks, Parent Professional Communication, Parents, Service Coordination

Annotation: This network sought to improve the care of children and adolescents with hemophilia and cystic fibrosis. To this end, the network developed a computerized medical information system which allowed health professionals to quickly enter and retrieve patient information. It also provided a series of workshops for parents on psychosocial issues. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147122.

Keywords: Chronically Ill, Cystic fibrosis, Data Bases, Education of Parents, Families, Hemophilia, Networking, Parent Networks, Stress