Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 7 (7 total).

Hales N, Hokenmaier SC, Lewis C, Parekh S, Tai KL, Truss M. 2016. Maryland comprehensive cancer control plan [upd.]. [Baltimore, MD]: Maryland Department of Health and Mental Hygiene, Family Health Administration, 89 pp.

Annotation: This document presents a plan for reducing the burden of cancer in Maryland. Contents include goals, objectives, and strategies related to the primary prevention of cancer; high burden of cancers in Maryland; and cancer survivorship, palliative care, and hospice care. Information about the Maryland Cancer Collaborative, terms and acronyms, surveillance and data used in the plan, and special topics in cancer control is included.

Contact: Maryland Department of Health and Mental Hygiene, Center for Cancer Prevention and Control, 201 West Preston Street, Baltimore, MD 21201, Telephone: (410) 767-6500 E-mail: https://health.maryland.gov/Pages/contactus.aspx Web Site: https://phpa.health.maryland.gov/cancer/Pages/home.aspx Available from the website.

Keywords: Cancer, Disease prevention, Maryland, Oral health, Palliative treatment, Prevention services, Screening, Statewide planning, Strategic plans, Therapeutics

National Institute of Nursing Research. 2013. Palliative Care Conversations Matter: Palliative Care for Children [campaign]. Bethesda, MD: National Institute of Nursing Research,

Annotation: This website provides information about palliative care as well as resources for children, their families, and health professionals. Information for children and families includes an explanation of what palliative care is, a discussion about why asking for it is important, a video about a personal story, and additional resources. Information for health professionals includes a customizable tear-off pad, videos, and other resources. Information about the Palliative Care: Conversations That Matter campaign, which seeks to raise awareness about pediatric palliative care and to help health professionals and patients discuss it earlier, is also included.

Contact: National Institute of Nursing Research, Building 31, Room 5B10, 31 Center Drive , Bethesda, MD 20892-2178, Telephone: (301) 496-0207 Secondary Telephone: (866) 910-3804 Fax: (301) 480-8845 E-mail: [email protected] Web Site: http://www.nih.gov/ninr Available from the website.

Link

Keywords: Children, Communication, Families, Palliative treatment, Public awareness campaigns, Resource materials

Gans D, Kominski GF, Roby DH, Diamant AL, Chen X, Lin W, Hohe N. 2012. Better outcomes, lower costs: Palliative care program reduces stress, costs of care for children with life-threatening conditions. Los Angeles, CA: UCLA Center for Health Policy Research, 7 pp.

Annotation: This policy brief examines the Partners for Children program—California's public pediatric community-based palliative care benefit to children living with life-threatening conditions and their families. The brief provides an overview of the program and discusses California's response to the need for palliative care; preliminary program findings related to hospital days, spending reductions, and families' quality of life; and family and staff satisfaction with the program. The brief also includes an explanation of what pediatric palliative care is and a list of counties participating in the program.

Contact: UCLA Center for Health Policy Research, 10960 Wilshire Boulevard, Suite 1550, Los Angeles, CA 90024, Telephone: (310) 794-0909 Fax: (310) 794-2686 E-mail: [email protected] Web Site: http://www.healthpolicy.ucla.edu Available from the website.

Keywords: California, Child health, Chronic illnesses and disabilities, Communities, Costs, Families, Palliative treatment, Pediatric care, Research, State programs

Data Resource Center for Child and Adolescent Health. 2012. National profile of complementary and alternative medicine (CAM) use for children with pain-related conditions or problems (0-17 years) (rev.). Portland, OR: Data Resource Center for Child and Adolescent Health, 10 pp.

Annotation: This brief uses data from the 2007 National Health Interview Survey to examine complementary and alternative medicine (CAM) use for children from birth to age 17 with pain-related conditions or problems. Topics include characteristics of these children and the relationship between CAM and conventional medical care use.

Contact: Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: [email protected] Web Site: https://childhealthdata.org Available from the website.

Keywords: Adolescents with special health care needs, Alternative medicine, Children with special health care needs, Comorbidity, Data analysis, National surveys, Pain, Palliative treatment, Prevalence

Association of Maternal and Child Health Programs. 2009. Models of care for children and youth with special health care needs: Promising models for transforming California's system of care. Washington, DC: Association of Maternal and Child Health Programs, 55 pp.

Annotation: This report provides a range of models of care for children and youth with special health care needs that the Lucille Packard Foundation for Children's Health can review and discuss as a starting point for mapping out a strategy to support a transformation of the system of care. The report discusses models of care, the importance of integrated services, the medical home, care coordination, cultural competence, family-centered care and family involvement, transition, palliative and respite care, financing of care, and health information technology.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Financing, Adolescents with special health care needs, Children with special health care needs, Cultural competence, Families, Health care systems, Medical home, Palliative treatment, Respite care, Service coordination, Service integration, Transition to independent living

Field MJ, Behrman RE, eds.; Board on Health Sciences Policy, Committee on Palliative and End-of-Life Care for Children and Their Families. 2003. When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: National Academies Press, 490 pp.

Annotation: This book examines what is known about the needs of children who are dying, as well as the needs of their families; the extent to which these needs are being met; and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving the child and parents in treatment decisions, strengthening the organization and delivery of services, hospice care, reducing financial barriers to care, developing support programs for bereaved families, training health professionals, ethical and legal issues; and expanding the knowledge base to guide clinicians and families. Nine appendices provide information on study origins and activities, prognostication scores, assess health-related quality of life in end-of-life care, bereavement experiences, end-of-life care in emergency medical services, education in pediatric palliative care, a description of a New York state demonstration project, and committee biographical statements. The book also includes a summary, a list of reviewers, a reference list, and an index.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available in libraries. Document Number: ISBN 0-309-08437-7.

Keywords: Bereavement, Child death, Ethics, Families, Family support, Fetal death, Financial barriers, Health care delivery, Hospice services, Infant death, Palliative treatment, Parent professional relations, Professional training, Terminal care, Terminal illness

Solomon M, Romer A, Sellers D and National Task Force on End-of-Life Care in Managed Care. 1999. Meeting the challenge: Twelve recommendations for improving end-of-life care in managed care. Newton, MA: Education Development Center, Center for Applied Ethics and Professional Practice, 74 pp.

Annotation: This report presents recommendations of the National Task Force on End-of-Life Care in Managed Care. The first chapter discusses current problems with end-of-life care, the reasons for focussing on managed care, and setting goals for better end-of-life care. The second chapter lists task force recommendations for improving access, strengthening accountability, and developing and evaluating payment methods. The third chapter explains what policy makers, managed care leaders, and purchasers of managed health care can do to develop better end-of-life care.

Contact: Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 969-7100 Fax: (617) 969-5979 E-mail: [email protected] Web Site: http://www.edc.org Available at no charge.

Keywords: Accountability, Death, Health care costs, Health insurance, Hospices, Managed care, Palliative treatment, Reports, Terminal care, Terminal illness