Search Results: MCHLine

Annotation: This bochure describes the importance of newborn screening in the early detection of heritable and genetic conditions that may otherwise be hidden in infancy or early childhood. It outlines the history of newborn screening in the United States in the past 50 years, the importance of blood-spot samples from every newborn being screened by a laboratory, the public health success of newborn screening, the economic benefits of early detection of conditions, the success of pre-discharge hearing and heart screening, and the importance of evolving and improving newborn screening. The brochure contains tables describing the most common disorders screened for and partners in the screening process. It also provides several vignettes of people who were diagnosed with various conditions and were able to lead healthy lives because their conditions could be treated if diagnosed early.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

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Keywords: Blood tests, Genetic screening, Hearing tests, Neonatal screening, Newborn infants, Screening tests

Annotation: This brochure explains to new parents the importance of newborn hearing screening and provides a form for recording testing results. It also contains milestones in the first year for parents to watch for to indicate normal speech, language, and hearing. Te brochure is available in English, Spanish, and Russian.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

• English
• Spanish

Keywords: Brochures, Consumer education materials, Hearing screening, Neonatal screening, Newborn infants, Non English language materials, Spanish language materials

Annotation: This report summarizes joint work undertaken by Title V, clinical teams, and families to improve state systems of care for children with epilepsy and for infants needing follow-up after newborn hearing screening using a quality improvement approach. The report describes the approach; aims, changes, and measures; lessons learned; change strategies; data collection; and the role of families in quality improvement. [Funded by the Maternal and Child Health Bureau]

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

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Keywords: Adolescents, Children, Community based services, Early intervention services, Education, Epilepsy, Families, Health care systems, National initiatives, Newborn hearing screening, Organizational change, Program improvement, Public health infrastructure, Quality assurance, Special health care needs, Statewide planning, Title V programs, Training, Young adults

Annotation: This annual report describes the Nebraska program for newborn screening for inborn errors of metabolism and inherited disorders. Contents include sections on major initiatives, process and output data, plans, continuing activities. Additional sections review the newborn hearing screening system and data as well as additional projects and summaries. [Funded by the Maternal and Child Health Bureau]

Contact: Nebraska Department of Health and Human Services, P.O. Box 95026, Lincoln, NE 68509-5026, Telephone: (402) 471-3121 E-mail: [email protected] Web Site: http://www.dhhs.ne.gov Available from the website.

• 2011 Full Report

Keywords: Genetic screening, Hearing screening, Nebraska, Neonatal screening, Newborn infants, State programs

Annotation: In this online video recording, members of the Improving Hearing Screening & Intervention Systems (IHSIS) Learning Collaborative talk about their experiences improving newborn hearing screening and intervention services. Members of the Collaborative from the states of Alaska, Georgia, Ohio, Colorado, and Mississippi describe some of the challenges they've faced and the ways that they've been able to increase the numbers of newborns that receive screening and follow-up services. The video was recorded during an IHSIS learning session that took place in Denver, Colorado in November 2011. [Funded by the Maternal and Child Health Bureau]

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

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Keywords: Collaboration, Health care systems, Hearing screening, Intervention, Multimedia, Neonatal screening, Newborn infants, Program improvement, Quality assurance, State initiatives

Annotation: This orientation kit was developed to provide coordinators of early hearing detection and intervention (EHDI programs with information and tools to help facilitate their work. It is divided into ten sections, which cover technical support for EHDI, guidelines and position statements, hearing loss, program evaluation, newborn hearing screening, diagnostic hearing tests, medical evaluations, early intervention, early childhood hearing screening, and hot topics. Also included is a listing of additional resources; a newborn hearing screening training curriculum on DVD, an infant hearing guide on CD-ROM, a pamphlet for parents on parent-child communication, and a brochure on early identification of hearing loss.

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org

• Updated Version

Keywords: Evaluation, Hearing screening, Interventions, Neonatal screening, Newborn infants, Professional education, Program development, Program management, Training

Annotation: This site contains resources that alumnae and collegiate chapters of Delta Zeta can use to educate their membership and community about the Sound Beginnings Program, an awareness program on the need for newborn hearing screening and early intervention if hearing loss is detected before six months of age. Contents include videos, PowerPoint presentation slides, telephone scripts and other materials. The National Center for Hearing Assessment and Management is a partner in the program and a link is offered on this site.

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org Available from the website.

• Link

Keywords: Multimedia, Early intervention, Hearing screening, Neonatal screening, Newborn infants, Public awareness materials

Annotation: This policy brief provides information on newborn hearing screening. It introduces the issue of children born with hearing loss, discusses the state and the federal role in providing screening, and offers recommendations.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Federal programs, Hearing disorders, Hearing screening, Infant health, Neonatal screening, Newborn infants, State programs

Annotation: This brochure for parents describes the need for hearing screening in newborn infants, how hearing loss impacts infant and child development, what techniques are used, and how results are interpreted.

Contact: Vermont Department of Health, Division of Health Improvement, 108 Cherry Street, P.O. Box 70, Burlington, VT 05402, Telephone: (802) 865-1333 Secondary Telephone: (800) 660-4427 Web Site: http://healthvermont.gov/admin/hi/hi.aspx Available at no charge; also available from the website.

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Keywords: Child development, Consumer education materials, Hearing screening, Hearing tests, Neonatal screening, Newborn infants, Vermont

Annotation: This evidence synthesis identifies strengths, weaknesses, and gaps in the evidence supporting universal newborn hearing screening (UNHS) and compares the additional benefits and harms of UNHS with those of selective screening of high-risk newborns. The report, which includes an abstract, discusses the study methods and results and offers a discussion. Statistical information is presented in figures and tables throughout the report. The report includes three appendices: (1)literature search strategy, (2) literature search results, and (3) quality rating criteria.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website. Document Number: AHRQ pub. no. 02-S001.

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Keywords: Hearing screening, MCH research, Neonatal screening, Newborn infants

Annotation: This final report describes a maternal and child health improvement project covering 19 states from 1996-2000 to (1) establish universal hearing screening, (2) identify hearing loss by three months of age and ensure that proper amplification is provided in a timely fashion, and (3) institute intervention services by six months of age and measure the impact of early identification of hearing loss on development. Report contents include an abstract and a narrative including a description of the purpose of the project, capacity to provide services, the identification of the target population and service availability, needs assessment for development of state plans, support, goals and objectives, project methodology, a summary of major results, a list of publications and products, a description of the dissemination and utilization of results, future plans and follow-up, and type and amount of support and resources needed to replicate the project. A list of references is also provided. [Funded by the Maternal and Child Health Bureau]

Contact: University of Colorado, Boulder, Department of Speech, Language, and Hearing Sciences, 2501 Kittredge Loop Road, 409 UCB, Boulder, CO 80309-0409, Telephone: (303) 492-3050 Fax: (303) 492-3274 Web Site: http://www.colorado.edu/slhs

Keywords: Early intervention services, Final reports, Hearing screening, Infants with special health care needs, MCH research, Neonatal screening, Newborn infants

Annotation: This report addresses universal newborn hearing screening (UNHS). The report itself provides a brief explanation of the 13 points that need to be addressed in implementing and operating a successful early identification of hearing loss program for newborns. These points include: (1) enlisting support for the program, (2) determining an appropriate protocol, (3) procedural issues, (4) communicating with parents and staff, (5) training screeners, (6) keeping referral rates low, (7) managing data and patient information, (8) financing the program, (9) caring for equipment and supplies, (10) reporting, (11) completing audiological diagnosis and follow up, (12) coordinating with state systems, and (13) considering legislative mandates. The first volume of appendices are printed in a separate loosleaf volume, and contain information supporting the 13 points. The second volume of appendices are in a bound volume. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHN020 (appendices 2nd vol.), MCHL027 (appendices), MCHK125 (report).

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Keywords: Hearing screening, Neonatal screening, Newborn infants, Program budgeting, Program development, Program management, Referrals, Reports, State legislation, State programs, Training

Annotation: This book contains state-of the-art information on early identification of auditory dysfunction in children which was presented at the International Symposium on screening children for Auditory Function. The topics are: (1) some of the critical problems involved in screening children; (2) issues, techniques, and model programs associated with newborn screening; (3) and (4) issues concerned with screening preschool and school age children; and (5) intervention issues and strategies appropriate for children with hearing loss. The book also contains appendices, references, an author index, and a subject index. [Funded by the Maternal and Child Health Bureau]

Contact: Bill Wilkerson Center, 1114 19th Avenue, South, Nashville, TN 37212, Telephone: (615) 320-5353 Secondary Telephone: (615) 340-5711 Available in libraries. Document Number: ISBN 0-9631439-0-5.

Keywords: Audiologists, Audiology, Early intervention, Hearing screening, Hearing tests, High risk infants, Newborn infants, Otitis media, School age children

Annotation: These proceedings discuss acrocephalosyndactyly, craniofacial dysotosis, and related syndromes; genetic counseling clinics; minor anomalies as indicators of altered morphogenesis; biochemical aspects of handicapping conditions; biochemical screening; evaluation of screening procedures; what happens after screening; children and computers; prevention of mental retardation; fetal and neonatal assessment; newborn hearing screening; congenital dislocated hip in the Navajo Indian; mass computer evaluation of school children for heart disease; implications of screening techniques for comprehensive care; prevention of behavior disorders in early childhood; remediation of learning disabilities; poverty; and delivery of health services to children in the inner city.

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Keywords: Acrocephalosyndactylia, American Indians, Assessment, Behavior disorders, Biochemical genetics, Children, Computers, Congenital hip dislocations, Craniofacial abnormalities, Developmental screening, Diagnosis, Disabilities, Evaluation, Genetic counseling, Genetic screening, Health services delivery, Hearing screening, Heart diseases, Inner city, Learning disabilities, Mental retardation, Newborn infants, Poverty, Prevention