Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

Brown LW, Camfield P, Capers M, Cascino G, Ciccarelli M, de Gusmao CM, Downs SM, Majnemer A, Miller AB, Saninocencio C, Schultz R, Tilton A, Winokur A, Zupanc M. 2016. The neurologist's role in supporting transition to adult health care: A consensus statement. Neurology 87(8):835–840, 7

Annotation: This article describes the child neurologist's role in planning and coordinating successful transition from the pediatric to adult health care system for youth with neurologic conditions. Topics include eight common principles that define the child neurologist's role in a successful transition process as outlined by a multidisciplinary panel, the evidence for successful transition models, and areas for future consideration. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Neurology, 1080 Montreal Avenue, Saint Paul, MN 55116, Telephone: (651) 695-2717 Secondary Telephone: (800) 879-1960 Fax: (651) 695-2791 E-mail: [email protected] Web Site: http://www.aan.com Available from the website.

Link

Keywords: Adolescents, Family support services, Financing, Health care systems, Interdisciplinary approach, Leadership, Legal issues, Model programs, Multidisciplinary teams, Neurologic disorders, Program coordination, Special health care needs, Transition planning, Young adults

Gomperts E. 1993. Collaborative Study of the Effects of HIV on Development of Hemophilic Children [Final report]. Los Angeles, CA: Children's Hospital of Los Angeles, 88 pp.

Annotation: This project examined a very important group of children infected with HIV. The patients studied included children with hemophilia who received repeated infusions of clotting factor concentrate derived from pooled human plasma prior to routine screening of the blood supply. This prospective longitudinal study examined changes in neurological and neuropsychological functioning, physical growth and development, and immunological status in hemophilic children exposed to HIV and in matched control groups of HIV-negative children with hemophilia and siblings of children with hemophilia. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Chronic Illnesses and Disabilities, HIV, Hemophilia, MCH Research, Neurological Disorders, Research

Pollack M. 1988. Severity of Illness: A National Study [Final report]. Washington, DC: Children's Hospital National Medical Center, 68 pp.

Annotation: This project tested four hypotheses related to the assessment and use of severity of illness in Pediatric intensive care units (PICUs). Nine PICUs collected data prospectively for 6 months, or on 200 consecutive admissions. Among the study's findings were the following: (1) Mortality rate differences among PICUs can be quantitatively explained by differences in the distributions for severity of illness; (2) indications that significant PICU cost reductions could occur by improving PICU efficiency; and (3) the pediatric intensivist reduced the severity of illness-adjusted mortality rate and significantly improved efficiency by decreasing the bed days of low risk monitor patients. The findings indicate potential areas for cost containment and demonstrate that the addition of a pediatric intensivist could improve care. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB89-218648.

Keywords: Cardiovascular disease, Chronic illnesses and disabilities, Data bases, Neurological disorders, Pediatric Intensive Care Units, Respiratory illness

Haynes U. 1975 . A developmental approach to casefinding with special reference to cerebral palsy, mental retardation, and related disorders. Washington, DC: U.S. Bureau of Community Health Services, 85 pp., development wheel (1975 ed.)

Annotation: This booklet is intended as an aid to nurses in recognizing signs of disease and anomalies in infants. Although the guide is addressed primarily to nurses, other professionals concerned with the health of infants and children may also find it useful. Special attention is given to the incidence of neurological disorders and anomalies in infants and to the factors which help to identify infants at risk. The focus is placed on the vulnerable child, the evolution of basic neurological reflex patterns, and the maturation of the central nervous system. No attempt is made to cover fundamental principles and practices presented in basic texts. A device is included (inside back cover) to assist with assessment of the rate at which a child achieves developmental milestones, and criteria indicated as to whether an index of suspicion exists. A special procedure is suggested for assessing the child's stage of development and behavior when circumstances indicate that particular discretion is needed to avoid parental anxiety.

Keywords: Assessment, Cerebral palsy, Child development disorders, Developmental screening, Diagnosis, Early childhood development, Infant development, Infants, Infants with developmental disabilities, Mental retardation, Neonatal morbidity, Neurologic tests, Nurses, Nursing services, Public health nursing