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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 11 (11 total).

Guttmacher AE. 2012. Birth defects: The role of research. [Rockville, MD]: Eunice Kennedy Shriver National Institute of Child Health and Human Development, 1 video (12 min., 52 sec.).

Annotation: In this video presentation, NICHD Director Alan E. Guttmacher, M.D., describes the role of research in understanding, preventing, and treating birth defects. In his talk, Dr. Guttmacher provides some basic facts about birth defects and recounts how research led to the discovery that the vitamin folic acid could reduce the chances of neural tube defects. He also describes the role of model organisms, such as the zebrafish, in understanding developmental processes as an important step in uncovering the origins of birth defects. The video concludes with an introduction to the new technologies of systems biology and chemical genomics, which promise to yield new insights leading to greater understanding of birth defects and their eventual prevention and treatment.

Contact: Eunice Kennedy Shriver National Institute of Child Health and Human Development, P.O. Box 3006, Rockville, MD 20847, Telephone: (800) 370-2943 Secondary Telephone: (888) 320-6942 Fax: (866) 760-5947 Web Site: https://www.nichd.nih.gov/Pages/index.aspx Available from the website.

Keywords: Audiovisual materials, Congenital abnormalities, Folic acid, Genomics, Neural tube defects, Prevention, Research

Centers for Disease Control and Prevention, Public Health Grand Rounds. 2010. Folic acid in the prevention of birth defects. Atlanta, GA: Centers for Disease Control and Prevention, Public Health Grand Rounds,

Annotation: This webcast focuses on efforts currently under way to decrease the prevalence of neural tube defects (NTDs) in the United States and discusses global strategies to reduce the burden of NTDs worldwide through mandatory fortification of staple foods with folic acid.The webcast also includes information about NTDs, a discussion of possible harmful effects of folic acid, and information about next steps in folic acid fortification. A video of the webcast and a PowerPoint presentation are available.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: https://www.cdc.gov/cdc-info/forms/contact-us.html Web Site: http://www.cdc.gov Available from the website.

Keywords: Anencephaly, Folic acid, Food additives, High risk groups, International health, Neural tube defects, Prevention, Public policy, Research, Spina bifida

Association of Reproductive Health Professionals. 2010. Counseling patients on preconception care: Folate and beyond. (Upd. ed.). Washington, DC: Association of Reproductive Health Professionals, 2 pp. (What you need to know)

Annotation: This fact sheet provides information about counseling women on preconception care, and in particular on folate intake. The fact sheet discusses preconception counseling as lifelong health promotion; neural tube defects, folate, and folic acid; folate intake and folic acid supplementation; environmental contaminants; and alcohol consumption during pregnancy. A list of folate and folic acid sources is included, along with recommendations.

Contact: Association of Reproductive Health Professionals, 1901 L Street, N.W., Suite 300, Washington, DC 20036, Telephone: (202) 466-3825 E-mail: [email protected] Web Site: http://www.arhp.org Available from the website.

Keywords: Alcohol use during pregnancy, Counseling, Environmental exposure, Folic acid, Health promotion, Neural tube defects, Pregnancy, Prenatal care, Prevention, Women', s health

National Center on Birth Defects and Developmental Disabilities. 2008. Folic acid: Helping to ensure a health pregnancy. [Atlanta, GA]: National Center on Birth Defects and Developmental Disabilities, (Birth defects)

Annotation: This podcast for consumers provides information about taking folic acid before and during pregnancy to help prevent neural tube defects, including spina bifida and anencephaly. The podcast explains why all women of childbearing age should take folic acid every day, discusses fetal development, and outlines different ways for women to ensure that they are taking in sufficient amounts of folic acid.

Contact: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/ncbddd Available from the website.

Keywords: Anencephaly, Folic acid, Infant health, Neural tube defects, Pregnancy, Prevention, Reproductive health, Spina bifida

Centers for Disease Control and Prevention. [2005]. Reducing the risk of a neural tube birth defect. Atlanta, GA: Centers for Disease Control and Prevention, 2 pp.

Annotation: This brochure, which is geared toward families who have had a pregnancy affected by a neural tube defect (NTD), provides an overview of NTDs, describes the three most common NTDs (anencephaly, spina bifida, and encephalocele), and explains that folic acid before pregnancy and early in pregnancy can reduce the risk of experiencing another pregnancy affected by an NTD.

Contact: National Birth Defects Prevention Network, 1321 Upland Drive, Suite 1561, Houston, TX 77043, E-mail: [email protected] Web Site: https://www.nbdpn.org Available at no charge; also available from the website.

Keywords: Anencephaly, Encephalocele, Families, Folic acid, Neural tube defects, Pregnancy, Spina bifida

[Craig J]. 2005. Crozer-Keystone Healthy Start impact report. Chester, PA: Crozer-Keystone Health System, 41 pp., plus appendices.

Annotation: This report describes a Healthy Start project in Delaware County, Pennsylvania from 2001-2005 focusing on children with special health care needs, folic acid intake and neural tube defects, breast feeding education, disparities in birth outcomes, access to Medicaid and state children's health insurance programs and childhood immunization services to vulnerable high-risk pregnant girls and women, families, and sick young children. Report contents include an overview of the program and its services as well as racial and ethnic disparities addressed; descriptions of project implementation, management and governance, project accomplishments; the impact of the project on systems of care, the community, the state, the role of the local government, lessons learned. Additional sections discuss local evaluation, fetal and infant mortality review, as well as products produced and data collected during the project. Appendices include budget details, data collection forms and reports, performance measures, participant data, risk reduction and prevention services data, and a major service table. Samples of health education surveys are provided along with printed PowerPoint presentation slides of the project and a copy of the local evaluation report. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org

Keywords: Breastfeeding promotion, Children with special health care needs, Final reports, Folic acid, Health education, Healthy Start, Local initiatives, MCH services, MCH services, Neural tube defects, Pennsylvania, Pregnant women, Prenatal care, Prevention programs

National Birth Defects Prevention Network. 2004. Neural tube defect ascertainment project. Atlanta, GA: National Birth Defects Prevention Network, 2 pp.

Annotation: This fact sheet includes data pertaining to the Neural Tube Defect Ascertainment Project. Data were provided by all 23 participating birth defects surveillance systems in March 2004 and covered approximately 2, 000, 000 births annually (approximately half of all U.S. births). Data are provided for spina bifida and anencephaly.

Contact: National Birth Defects Prevention Network, 1321 Upland Drive, Suite 1561, Houston, TX 77043, E-mail: [email protected] Web Site: https://www.nbdpn.org Available from the website.

Keywords: Anencephaly, Data, Neural tube defects, Population surveillance, Spina bifida

National Alliance for Hispanic Health. 2004. Folic acid: Before and during pregnancy?. Washington, DC: National Alliance for Hispanic Health, 4 pp.

Annotation: This fact sheet for consumers on the importance of folic acid before and during pregnancy explains what folic acid and folate are, why it is important to take folic acid, what neural tube defects are, how much folic acid to take, how to take folic acid, how to get folic acid from food, what else can be done to ensure a healthy baby, and how a woman's partner can be involved. Resources are included.

Contact: National Alliance for Hispanic Health, 1501 16th Street, N.W., Washington, DC 20036-1401, Telephone: (202) 387-5000 Secondary Telephone: (866) 783-2645 Fax: E-mail: Web Site: http://www.hispanichealth.org Available from the website.

Keywords: Consumer education materials, Folic acid, Infant health, Neural tube defects, Pregnancy

Burke B, Daniel KL, Latimer A, Mersereau P, Moran K. Mulinare J, Prue C, Steen J, Watkins M. 1998. Preventing neural tube birth defects: A prevention model and resource guide. Atlanta, GA: Centers for Disease Control and Prevention, Birth Defects and Pediatric Genetics Branch, 150 pp., 1 diskette.

Annotation: This guide was designed to help reduce neural tube defects, demonstrating how to design, develop, deliver, and evaluate a birth defects prevention program. The accompanying appendices, provided on diskette, include sample materials such as cover letters, news releases, public service announcements, tested survey questions, and other tools for use or adaptation in conducting such a program. A glossary is provided at the end of the text. Throughout the guide are examples of real-life folic acid campaigns to spark creativity in developing each step of a community program. The guide's step-by-step process can also help in designing, developing, delivering, and evaluating other public health awareness campaigns and birth defects prevention programs in communities.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHL008.

Keywords: Community programs, Congenital abnormalities, Neural tube defects, Prevention programs, Program evaluation, Program planning, Public health education

Children's Hospital Medical Center of Akron. 1997. What you should know about folic acid: For parents who have lost a pregnancy or had a child with spina bifida, anencephaly, or encephalocele. [Akron, OH?]: Children's Hospital Medical Center of Akron, 6 pp.

Annotation: This brochure explains neural tube defects and how they can be lessened by folic acid intake. The brochure is available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHJ107 (English), MCHK112 (Spanish).

Keywords: Folic acid, Maternal health, Neural tube defects, Nutrition, Patient education materials, Risk prevention, Spanish language materials

Mitchell AA. 1992. Periconceptional vitamin use and neural tube defects. Arlington, VA: National Center for Education in Maternal and Child Health, 3 pp. (Research roundtable summary; no. 1)

Annotation: This paper summarizes a MCHB-funded research project examining whether multi-vitamin use or folate supplements during the first months of pregnancy reduces neural tube birth defects. The project is also considering the effects of excessive vitamin or mineral use in the first months of pregnancy. Mothers of infants with neural tube birth defects and other major birth defects will be interviewed. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Congenital abnormalities, First pregnancy trimester, Folic acid, MCH research, Neural tube defects, Vitamin supplements

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.