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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (45 total).

Fiser D. n.d.. Demonstration Project: Emergency Medical Services for Children: [Final report]. Little Rock, AR: University of Arkansas for Medical Sciences, 44 pp.

Annotation: The Arkansas Demonstration Project utilized a broad-based approach to evaluate and improve the outcome of pediatric emergencies in Arkansas. It involved interaction with many statewide agencies, including various offices of the Arkansas Department of Health and the Area Health Education Centers (AHECs) of the University of Arkansas for Medical Sciences. The project was designed with four primary purposes: (1) Increase the level of knowledge regarding the consequences of critical illness and injury in children in the State of Arkansas; (2) improve the emergency medical services provided to those children during the project period and after, particularly to handicapped and minority children; (3) determine the effectiveness of the proposed methodologies for the reduction of morbidity and mortality associated with childhood illness and injury; and (4) determine effective methods of imparting the knowledge gained to other States in a manner resulting in the adoption of effective programs by those States. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196947.

Keywords: Ambulances, Child Education of Health Professionals, Data Bases, Data Collection, Disabled, Emergency Medical Services, Emergency Medical Technicians (EMTs), Emergency medical technicians, Minorities, Morbidity, Mortality, Networking

Berman C. n.d.. Project Zero to Three: [Final report]. Washington, DC: National Center for Clinical Infant Programs, 48 pp.

Annotation: The main goal of this project was to improve services for infants and toddlers with disabilities (or at risk for disabililties) and for their families by developing an interstate network for early identification and intervention services for this population. Activities included a national network meeting, two regional conferences, an intensive course, small topical meetings, consultations, publications, and a newsletter. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-103373.

Keywords: American Public Welfare Association, Children', Collaboration of Care, EPDST, Early Intervention, Environmental Risk, Families, Family-Based Health Care, Healthy Mothers Healthy Babies Coalition, High risk infants, Networking, PL 99-457, WIC Program, s Defense Fund

Gates A. n.d.. The Chronic Illness Program (CIP) [Final report]. New Orleans, LA: Children's Hospital, 21 pp.

Annotation: The goal of this project was to develop a regionalized system of care for chronically ill children and their families. To achieve this goal, the project identified the needs of children with chronic illnesses and their families, developed a network of existing resources for this population, and established new resources. Activities included developing a network of parents, community providers, and health professionals; conducting education/training sessions for school and Title V personnel, parents, and health professionals; producing educational packets and training materials; and developing a computerized information and referral system for state MCH and school system staff. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147080.

Keywords: Chronically Ill, Coordination of Health Care, Families, Networking, Play Therapy, Referrals

Epstein S. n.d.. New England SERVE: A Planning Network for Children with Special Health Care Needs [Final report]. Boston, MA: Massachusetts Health Research Institute, 29 pp.

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158681.

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Thomas R. n.d.. Child and Family Support Project [Final report]. Seattle, WA: Children's Hospital and Medical Center, 144 pp.

Annotation: The Child and Family Support Project was designed to facilitate and support access to and coordination of health care services for children with chronic conditions and their families in order to strengthen family capacity to care for their child in the community setting. The project included activities to identify and develop models for services through: improvement of communication and coordination between community-based services; development of a data base of resources for the populations; enhancement of transition from institutional to community or least restrictive environment; and support for the families of children with chronic conditions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-106291.

Keywords: Chronically Ill, Coordination of Health Care, Data Bases, Family Support, Family-Based Health Care, Networking

Association of University Centers on Disabilities, National Association of Councils on Developmental Disabilities, National Disability Rights Network. 2021-. HCBS advocacy. Silver Spring, MD: Association of University Centers on Disabilities, multiple items.

Annotation: This website provides a platform for the aging and disability communities to post information and resources about the home and community-based services (HCBS) settings rule and steps each state is making to comply with the rule. Contents include resources, dates and deadlines, documents, news, and other information organized by state. Additional contents include official resources and information from the federal government about the HCBS rule including guidance and a settings requirements and compliance toolkit.

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

Keywords: Advocacy, Community based services, Compliance, Disabilities, Federal legislation, Guidelines, Information sources, Medicaid, Networking, Public private partnerships, Transition planning

Association of Maternal and Child Health Programs. 2017. National Title V children and youth with special health care needs program profile. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Altarum Institute. 2016–. SmileConnect℠. [Ann Arbor, MI]: Altarum Institute, multiple items. (Version 1.8)

Annotation: This integrated care model emphasizes multidisciplinary service delivery through provider education, information technology, and community outreach to improve access to oral health care for children. Users can create an account and request oral health curricula, classroom materials, and supplies; screening and preventive services; and educational materials for children and parents. The application also provides news, statistics on children’s oral health, information and resources about the impact of oral health on overall health, and links to organizations that may serve as resources. Information for volunteers (dental school and dental hygiene program administrators and students, oral health professionals) and organizational sponsor-donors is also provided.

Contact: Altarum Institute, 3520 Green Court, Suite 300, Ann Arbor, MI 48105, Telephone: (734) 302-4600 Secondary Telephone: (800) 879-6505 Fax: (734) 302-4991 Contact E-mail: [email protected] Web Site: http://www.altarum.org/contact Available from the website.

Keywords: Access to health care, Financing, Networking, Preventive health services, Teaching, Work force

FDI World Dental Federation. 2016–. World Oral Health Day [campaign materials]. Geneva, Switzerland: FDI World Dental Federation, multiple items.

Annotation: These resources for World Oral Health Day, celebrated globally every year on March 20, focus on ways to maintain and protect oral health throughout life. The messages are intended for use by the general public and health professionals who play a key role in educating clients. Contents include an advocacy guide; a brochure on oral health do's and dont's, with sections devoted to oral health of women during pregnancy, children, and older adults; a game; posters; a toolkit for organizing events and social media campaigns; and a video. The materials are available in multiple languages.

Contact: FDI World Dental Federation, Tour de Cointrin, Avenue Louie Casai 51, Case P.O. Box 3, 1216 Cointrin-Geneve, Switzerland Telephone: (41) 22 560 81 50 Fax: (41) 22 560 81 40 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://www.fdiworldental.org Available from the website.

Keywords: Children, Decision making, Disease prevention, Families, Health behavior, Health promotion, International health, Life course, Multimedia, Networking, Non English language materials, Older adults, Oral health, Oral hygiene, Pregnant women, Public awareness campaigns, Risk factors

Carnegie Foundation for the Advancement of Teaching. 2016. Learning to improve glossary. Stanford, CA: Carnegie Foundation for the Advancement of Teaching, 1 p.

Annotation: This glossary organizes a selection of key terms and definitions related to improvement research and networked communities. The terms are grouped together according to the following topics: networked improvement communities, improvement science and quality improvement, standard work and processes, systems, driver diagrams and working theories of practice improvement, doing improvement research, measurement, and evidence for improvement. In some cases the terms have been modified slightly for the education context.

Contact: Carnegie Foundation for the Advancement of Teaching, 51 Vista Lane, Stanford, CA 94305, Telephone: (650) 566-5100 Fax: (650) 326-0278 Web Site: http://www.carnegiefoundation.org Available from the website.

Keywords: Education, Networking, Outcome and process assessment, Performance measurement, Program improvement, Quality assurance, Research, Systems development, Teaching

Coalition for Community Schools, Communities in Schools, Strive Together. 2016. Aligning networks to enable every student to thrive. Washington, DC: Institute for Educational Leadership, Coalition for Community Schools, 6 pp.

Annotation: This document describes progress toward educational equity and opportunities to achieve shared goals by aligning assets and expertise across networks, school districts, and communities. Contents include a unifying concept of student-centered education and five principles for driving the work. Topics include trusting relationships, cross-sector partnerships, purposeful engagement, actionable data, and shared accountability.

Contact: Institute for Educational Leadership, Coalition for Community Schools, 4301 Connecticut Avenue, N.W., Suite 100, Washington, DC 20008-2304, Telephone: (202) 822-8405 X111 Fax: (202) 872-4050 E-mail: [email protected] Web Site: http://www.communityschools.org Available from the website.

Keywords: Accountability, Barriers, Collaboration, Community action, Data, Education, Equal opportunities, Ethnic groups, Networking, Policy development, Poverty, Public private partnerships, Race, Social support, Trust

O'Hare WP, Mayol-Garcia Y, Wildsmith E, Torres A. 2016. The invisible ones: How Latino children are left out of our Nation's census count. Bethesda, MD: Child Trends Hispanic Institute and the National Association of Latino Elected and Appointed Officials Educational Fund,

Annotation: This report identifies issues associated with the undercount of young Hispanic children in the U.S. Census and provides recommendations to improve the accuracy of the count in the next census. Contents include information about the net undercount of young Latino children by state and by county, drivers of the undercount, and strategies to reduce it by 2020. Topics include identifying and pursuing research questions, developing networks that will reach households with young children, raising awareness among stakeholders, targeting outreach to locations with concentrations of Latino families, leveraging government programs that serve children and existing partnerships with local organizations, and reaching out to health professionals and families of preschoolers.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org Available from the website.

Keywords: Families, Hispanic Americans, Neighborhoods, Networking, Outreach, Participation, Public private partnerships, Research, Schools, Young children

National Improvement Partnership Network, Vermont Child Health Improvement Program, University of Vermont College of Medicine; Vermont Department of Health; Commonwealth Fund. 2015. Establishing a child health improvement partnership: A how-to guide (3rd ed.). Burlington, VT: National Improvement Partnership Network, 81 pp.

Annotation: This guide captures the existing knowledge base on improvement partnerships (IPs), including the definition of an IP, various models for IPs, and major benefits of IPs. Additional topics include strategies for developing and implementing an IP and success stories drawn from interviews conducted with child health innovators from across the country. The guide also offers tips and tools for developing an IP such as prompting questions to help guide planning discussions, worksheets to inform decision-making processes, checklists that outline the components of fundamental tasks, examples and lessons learned from IPs in several states, sample documents such as budgets and job descriptions for key staff positions that users can adapt for their needs, and selected references.

Contact: National Improvement Partnership Network, University of Vermont Larner College of Medicine, UHC St Joseph 7200, 1 South Prospect Street, Burlington, VT Telephone: (802) 656-8210 Fax: (802) 656-4545 E-mail: [email protected] Web Site: http://www.med.uvm.edu/nipn/home Available from the website.

Keywords: Child health, Children, Health care systems, Networking, Pediatric care, Program development, Program evaluation, Program improvement, Program planning, Public private partnerships, Quality assurance, Resources for professionals, Systems development

[Connecticut Coalition to Improve Birth Outcomes]. 2015. Connecticut plan to improve birth outcomes. [no place: Connecticut Coalition to Improve Birth Outcomes], 87 pp.

Annotation: This document provides recommendations and strategies for improving birth outcomes in Connecticut. Contents include the list of organizations represented on the Connecticut Coalition to Improve Birth Outcomes and how they used policy analysis tools to identify priorities and recommendations, and the Collaborative Improvement and Innovation Network that supports the strategies outlined in the plan. Topics include addressing socioeconomic factors, making the healthy choices the easy choice, protecting individuals, implementing evidence-based interventions in clinical settings, and providing individual or public educational messages and support. Information about the perinatal landscape, emerging issues, and suggestions for using the plan are also included.

Contact: Community Foundation of Greater New Haven, 70 Audubon Street, New Haven, CT 06510-9755, Telephone: (203) 777-2386 Fax: (203) 787-6584 E-mail: [email protected] Web Site: http://www.cfgnh.org Available from the website.

Keywords: Coalitions, Collaboration, Connecticut, Ethnic groups, Health disparities, Infant mortality, Infants, Low birthweight, Networking, Outcome and process assessment, Perinatal care, Pregnant women, Preterm birth, Program improvement, Service integration, Statewide planning, Systems development

Collective Impact Forum. 2014–. Initiative directory. Boston, MA: Collective Impact Forum, multiple items.

Annotation: This website provides information about initiatives that are using the collective impact approach to address social and environmental problems. Users can search for existing initiatives by state/locality, social issue, region, and country. Users can also create a page to highlight the work they are doing; submit information about their progress; hold discussions; and share reports, photos, news, and more.

Contact: Collective Impact Forum, 500 Boylston Street, Suite 600, Boston, MA 02116, Telephone: (866) 351-8484 E-mail: [email protected] Web Site: http://www.collectiveimpactforum.org Available from the website.

Keywords: Collaboration, Communities, Community action, Community programs, Directories, Interdisciplinary approach, International programs, Local initiatives, National initiatives, Networking, Problem solving, Social interaction, State initiatives, Teamwork

Varda DM. 2014-. PARTNER: Program to Analyze, Record, and Track Networks to Enhance Relationships. Denver, CO: University of Colorado Denver, 1 v.

Annotation: This tool allows people and organizations that work together as a network to measure and monitor collaborative activity over time. Using social network analysis, network measures indicate progress of collaboration by assessing which partners are involved, the ways that partners exchange resources, and provide a better understanding of the amount of effort required to sustain a collaborative. Additionally, outcome measures related to the process of collaboration can be determined. The tool can be purchased for varying amounts depending on the type of organization purchasing it and the amount of technical assistance desired.

Contact: University of Colorado Denver, School of Public Affairs, P.O. Box 173364, Campus Box 142, Denver, CO 80217-3364, Telephone: (303) 315-2228 Fax: (303) 315-2229 E-mail: [email protected] Contact E-mail: [email protected] Web Site: https://publicaffairs.ucdenver.edu/ Available from the website.

Keywords: Coalitions, Collaboration, Measures, Networking, Outcome and process assessment, Public private partnerships, Relationships, Surveys, Sustainability

Weinfield NS, Mills G, Borger C, Gearing M, Macaluso T, Montaquila J, Zedlewski S. 2014. Hunger in America 2014: National report. Chicago, IL: Feeding America, 161 pp., exec. summ. (24 pp.).

Annotation: This report documents the role that the charitable food assistance network plays in supporting families in the United States. Topics include collecting data about food programs and their clients, the national network of food programs, characteristics of program clients and their households, and their use of food assistance. Surveys and data tables and figures are included.

Contact: Feeding America, 35 East Wacker Drive, Suite 2000, Chicago, IL 60601, Web Site: http://feedingamerica.org Available from the website.

Keywords: Charities, Data collection, Family support programs, Financing, Food banks, Food supply, Local initiatives, National initiatives, Networking, Nutrition, Supplemental food programs

Families USA. 2014. Network adequacy and health equity: Improving health insurance provider networks for communities of color. Washington, DC: Families USA, 19 pp.

Annotation: This brief describes the barriers that people of color face disproportionately in gaining access to necessary health care, components of an adequate health care provider network, and policies to help achieve such networks in private insurance plans. Topics include health disparities; geographic distribution, numbers, and types of health care providers; transportation, language, and culturally-competent care; hours and timeliness of care; and consumer rights under the Affordable Care Act including access to community essential providers. The brief provides examples from states and information on advocating for provider network standards to protect diverse communities.

Contact: Families USA, 1225 New York Avenue, N.W., Suite 800, Washington, DC 20005, Telephone: (202) 628-3030 Fax: (202) 347-2417 E-mail: [email protected] Web Site: http://www.familiesusa.org Available from the website.

Keywords: Access to health care, Advocacy, Barriers, Consumer protection, Equal opportunities, Ethnic groups, Health insurance, Networking, Patient rights, Policy development, Public health, Quality assurance, State initiatives

National Association of County and City Health Officials. 2014. Maternal, child, and adolescent health (MCAH) champions: The local MCAH capacity building project experience. Washington, DC: National Association of County and City Health Officials, 8 pp.

Annotation: This report describes a multi-year demonstration project to build local health department's (LHD's) technical knowledge and leadership abilities for maternal and child health through blended learning techniques including in-person capacity building trainings and virtual coaching, networking, and peer-to-peer sharing. Contents include information about the project framework and outcomes, participating LHDs, lessons learned, and recommendations for future capacity building projects is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Association of County and City Health Officials, 1100 17th Street, N.W., Seventh Floor, Washington, DC 20036, Telephone: (202) 783-5550 Fax: (202) 783-1583 E-mail: [email protected] Web Site: http://www.naccho.org Available from the website.

Keywords: City health agencies, County health agencies, Leadership, Local MCH programs, MCH training, Networking, Organizational change, Peer education, Public health infrastructure, Technical assistance, Work force

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.