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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (123 total).

Shimizu H. n.d.. Identification of Hearing Loss in the Neonatal Intensive Care Unit at The Johns Hopkins Hospital [Final report]. Baltimore, MD: Johns Hopkins University School of Medicine, 27 pp.

Annotation: The goal of this project was to develop and recommend an appropriate hearing screening model to be used in Neonatal Intensive Care Units (NICUs) in the state or nation. The project was designed to compare three of the most commonly used screening procedures to determine the incidence of hearing loss, to identify the most predictive procedure or cluster of procedures for screening hearing loss in the NICU, to study the relationship between hearing screening procedures and the outcome of independent audiometric and developmental measures, and to identify the most cost effective mass hearing screening procedures. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152825.

Keywords: Data Collection, Hearing, Hearing Loss, High risk infants Hearing Impaired, Neonatal Intensive Care Unit, Screening

New York State Department of Health, Wadsworth Center. n.d.. Childbirth education toolkit. Albany, NY; New York State Department of Health, Wadsworth Center,

Annotation: This toolkit is for midwives, doulas, and other childbirth educators to introduce newborn screening into midwifery practices and into nontraditional settings including childbirth education classes. Brochures, videos, and other educational materials are provided for the states of New York, Delaware, District of Columbia, Maryland, New Jersey, New York, Pennsylvania, Virginia, and West Virginia. Links to resources for national audiences are provided from the March of Dimes, the Health Services and Resources Administration, Genetic Alliance, and the Save Babies Through Screening Foundation. Materials are available in English and Spanish, with items from Pennsylvania available in Chinese, French, Portuguese, Vietnamese, and Russian.

Contact: Wadsworth Center for Laboratories and Research, NYS Department of Health, Empire State Plaza, P.O. Box 509, Albany, NY 12201-0509, Telephone: (518) 474-2160 Web Site: http://www.wadsworth.org Available from the website.

Keywords: Childbirth education, Educational materials, Genetic screening, Midwifery, Midwives, Neonatal screening, Newborn infants, Spanish language materials

Association of Maternal and Child Health Programs . 2018. Title V and Newborn Screening: State Performance Measures and Long-Term Follow-Up. Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This issue brief describes an environmental scan of states and jurisdictions that adopted state performance measures related to newborn screening in their application for a federal Title V Block Grant. Included is an overview of newborn screening long-term follow-up activities documented in the fiscal year 2018 block grant applications entered in the Title V Information System.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: MCH programs, Measures, Neonatal screening, State Initiatives

[U.S. Maternal and Child Health Bureau]. 2016. Resource guide for states and communities caring for infants and children affected by Zika (upd.). [Rockville, MD: U.S. Maternal and Child Health Bureau], 18 pp. (Latest update 10/21/2016; document doesn't cite author/publisher; received via AMCHP's Emerging Issues Committee. (JMB))

Annotation: This resource is designed to assist states and communities in developing a coordinated response to the immediate and long term needs of infants and children affected by Zika virus (ZIKV), and their families. Contents include an overview of ZIKV, infection, and outcomes; systems of care as a public health approach for comprehensive care for infants and children exposed to ZIKV; and an overview of federal and state programs serving children affected by ZIKV. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Assessment, Child health, Community coordination, Comprehensive health care, Emergency medical services for children, Federal programs, Health care systems, Infant health, Infection control, Neonatal screening, Policy development, Population surveillance, Program coordination, Program planning, Quality assurance, Resources for professionals, Service coordination, Service integration, Special health care needs, State programs, Systems development, Virus diseases, Work force

Association of Public Health Laboratories. 2014-. Newborn screening and genetics. Silver Spring, MD: Association of Public Health Laboratories, multiple items.

Annotation: This resource provides information on the role of public health laboratories in genetics testing and newborn screening science and practice. Resources for education, technical assistance and evaluation, training, and quality improvement are also included.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

Keywords: Evaluation, Infants, Laboratories, Laboratory techniques, Neonatal screening, Program improvement, Quality assurance, Resources for professionals, Technical assistance, Training

Ramakrishnan M. 2014. Neonatal abstinence syndrome: How states can help advance the knowledge base for primary prevention and best practices of care. Arlington, VA: Association of State and Territorial Health Officials, 24 pp.

Annotation: This report describes opportunities to avert or ameliorate the outcome of neonatal abstinence syndrome (NAS) along a continuum of care spanning timeframes in the mother's and infant's life and the role of state health agencies. Topics include surveillance for NAS-affected infants and the sources of maternal opiate use; reimbursement for using screening protocols to detect substance abuse early in pregnancy and withdrawal signs in newborns; development of measures to ensure follow-up with opioid-dependent women and receipt of comprehensive services; and collaborative efforts to strengthen clinical standards for identification, management, and follow-up with NAS-affected infants and their families. A state index of resources is included.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Comprehensive health care, Intervention, Neonatal abstinence syndrome, Neonatal addiction, Newborn infants, Opiates, Population surveillance, Primary prevention, Screening, State health agencies, Substance use

Association of State and Territorial Health Officials. 2014. Improving newborn screening processes. Arlington, VA: Association of State and Territorial Health Officials, 1 p.

Lorenzo SB. 2014. Screening: Professional resource brief (3rd ed., upd. ed.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

World Health Organization, United National Children's Fund. 2014. Every newborn: An action plan to end preventable deaths. Geneva, Switzerland: World Health Organization, Partnership for Maternal, Newborn, and Child Health, 55 pp.

Annotation: This action plan is based on epidemiology, evidence, and global and country learning, setting a framework to end preventable newborn deaths and stillbirths by 2035. Topics include information on existing commitments, rights, and the current situation; effective interventions for improving the health of newborns across the continuum of care; vision and goals; strategic objectives and principles; impact framework, coverage targets, measures of success, milestones, and core indicators; research priorities and coordination; and actions by constituency. A summary of the action plan process is included. The executive summary is available in English, French, and Spanish.

Contact: Partnership for Maternal, Newborn, and Child Health, World Health Organization, 20 avenue Appia, CH-1211, Geneva, Switzerland Telephone: +41 22 791 2595 Fax: +41 22 791 5854 E-mail: [email protected] Web Site: http://www.who.int/pmnch/en Available from the website.

Keywords: Community action, Early intervention, Fetal death, Health objectives, International health, Models, Neonatal screening, Newborn infants, Primary prevention

Association of Public Health Laboratories. (2013). Newborn screening: Four facts policymakers need to know. Silver Spring, MD: Association of Public Health Laboratories, 14 pp.

Annotation: This bochure describes the importance of newborn screening in the early detection of heritable and genetic conditions that may otherwise be hidden in infancy or early childhood. It outlines the history of newborn screening in the United States in the past 50 years, the importance of blood-spot samples from every newborn being screened by a laboratory, the public health success of newborn screening, the economic benefits of early detection of conditions, the success of pre-discharge hearing and heart screening, and the importance of evolving and improving newborn screening. The brochure contains tables describing the most common disorders screened for and partners in the screening process. It also provides several vignettes of people who were diagnosed with various conditions and were able to lead healthy lives because their conditions could be treated if diagnosed early.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

Keywords: Blood tests, Genetic screening, Hearing tests, Neonatal screening, Newborn infants, Screening tests

Association of Public Health Laboratories. (2013). What's the best thing you can do to protect your newborn's health?: Newborn screening, 50 years - saving babies' lives. Silver Spring, MD: Association of Public Health Laboratories, 2 pp.

Annotation: This brochure explains the importance of newborn screening for new parents. It discusses national and state testing practices so that parents will know early about potential life threatening illnesses or disabilities to their baby.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

Keywords: Consumer education materials, Neonatal screening, Newborn infants, Screening tests

Ohio Department of Health. (2013). Preventing infant mortality. [Columbus, OH]: Ohio Department of Health, 5 pp.

Annotation: This fact sheet focuses on efforts to prevent infant mortality in Ohio. It provides information about the Ohio Department of Health's (ODH's) safe sleep campaign, its progesterone prematurity project, its prenatal smoking-cessation initiative, and its decision to add severe combined immune deficiency and critical congenital heart disease to its list of newborn screening items. ODH's project to reduce elective deliveries before 39 weeks' gestation, its institute for equity in birth outcomes, and its support for select communities to participate in an initiative to improve black infant mortality and prematurity rates are also discussed.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Blacks, Infant death, Infant mortality, Neonatal screening, Ohio, Prematurity, Prenatal care, Preterm birth, Prevention services, Public awareness campaigns, Safety, Sleep position, Smoking cessation, Smoking during pregnancy, State initiatives

Washington State Department of Health, Health Education Resource Exchange. 2013. Guidelines for testing and reporting drug exposed newborns in Washington state. Olympia, WA: Washington State Department of Health, Health Education Resource Exchange, 16 pp.

Annotation: This document provides guidance to hospitals, health care providers and affiliated professionals about maternal drug screening, laboratory testing, and reporting of drug-exposed newborns delivered in Washington State. Contents include indicators for testing, hospital policy, newborn and maternal risk indicators, consent issues for testing, newborn drug testing, management of a newborn with positive drug toxicology, and reporting to Children's Administration. Appendices include references and resources, guidelines for obtaining consent, a sample letter, neonatal abstinence syndrome scoring system, and information on Washington's Children's Administration prenatal substance abuse policy.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Drug use during pregnancy, Guidelines, Hospital services, Infant health, Neonatal abstinence syndrome, Neonatal screening, Newborn infants, State initiatives, State social service agencies, Substance abusing pregnant women, Substance use screening, Washington

Association of Public Health Laboratories. 2013. The newborn screening story: How one simple test changed lives, science, and health in America. Silver Spring, MD: Association of Public Health Laboratories, 95 pp.

Annotation: This book traces the evolution of newborn screening over the last 50 years, with stories from families affected by newborn screening conditions and portraits of the health professionals who support the newborn screening system. Contents include an outline of the origins of newborn screening, health implications of test results and the impact on treatment, the role of science and laboratory testing, how policy contributes to provide newborn screening, and how future screening research, practices, and policies can help improve the survival and growth of newborn infants.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website. Document Number: ISBN 978-0-9892398-0-6.

Keywords: Congenital abnormalities, History, Infant health, Neonatal mortality, Neonatal screening, Newborn infants

Association of Maternal and Child Health Programs. 2013. State newborn screening and birth defects program roles in screening for critical congenital heart defects (CCHD). Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This issue brief provides recommendations for planning, developing, implementing, and evaluating comprehensive critical congenital heart disease (CCHD) programs. The brief highlights efforts in Indiana, Michigan, New Jersey, and Utah to establish collaboration between programs, particularly newborn screening and birth defects programs, to effectively implement CCHD screening and follow-up. Topics include key elements of the state approaches, data considerations, and program challenges and successes. The role of the Title V MCH Services Block Grant is discussed.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Barriers, Collaboration, Congenital abnormalities, Congenital heart defects, Indiana, Michigan, Neonatal screening, New Jersey, State programs, Title V programs, Utah

Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. 2013. Resources planning and management meeting. Rockville, MD: U.S. Maternal and Child Health Bureau, 1 v.

Annotation: This notebook contains materials related to the second meeting of the Discretionalry Advisory Committee on Heritable Disorders in Newborns and Children, held September 21, 2013. It includes subcommittee agendas and draft reports; draft summary of the first meeting of the committee, held May 16-17, 2013; updated recommendations by the committee; information on whole genome sequencing in newborn screening and other newborn screening tests; committee legislation, by-laws, and charter; and a list of committee members.

Keywords: Advisory committees, Federal initiatives, Neonatal screening

Washington State Department of Health, Health Education Resource Exchange. 2012. Can your baby hear?: Your baby's first hearing test. Olympia, WA: Washington State Department of Health, Health Education Resource Exchange, 2 pp.

Annotation: This brochure explains to new parents the importance of newborn hearing screening and provides a form for recording testing results. It also contains milestones in the first year for parents to watch for to indicate normal speech, language, and hearing. Te brochure is available in English, Spanish, and Russian.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Brochures, Consumer education materials, Hearing screening, Neonatal screening, Newborn infants, Non English language materials, Spanish language materials

Brazelton TB. 2011. Neonatal behavioral assessment scale (4th ed). London: Spastics International Medical Publications, 66 pp. (Clinics in developmental medicine, no. 50)

Nebraska Department of Health and Human Services, Newborn Screening Program. 2011. Newborn screening in Nebraska: Newborn screening for metabolic and inherited disorders and early hearing detection and intervention. Lincoln, NE: Nebraska Department of Health and Human Services, 40 pp.

Annotation: This annual report describes the Nebraska program for newborn screening for inborn errors of metabolism and inherited disorders. Contents include sections on major initiatives, process and output data, plans, continuing activities. Additional sections review the newborn hearing screening system and data as well as additional projects and summaries. [Funded by the Maternal and Child Health Bureau]

Contact: Nebraska Department of Health and Human Services, P.O. Box 95026, Lincoln, NE 68509-5026, Telephone: (402) 471-3121 E-mail: [email protected] Web Site: http://www.dhhs.ne.gov Available from the website.

Keywords: Genetic screening, Hearing screening, Nebraska, Neonatal screening, Newborn infants, State programs

Save Babies Through Screening Foundation. 2011. One foot at a time: An introduction to newborn screening and what it can mean for your baby . [Cincinnati, OH]: Save Babies Through Screening Foundation, 1 DVD (16 min. 30 sec.).

Annotation: This video for parents and expectant parents, which is available in English and Spanish, present opinions of experts and parents on the newborn screening process. It depicts how screenings are conducted, what happens afterwards, and how newborn screening results are used. State screening policies are discussed, and parents' concerns about newborn screening are addressed. Resources for more information are provided.

Contact: Save Babies Through Screening Foundation, P.O. Box 42197, Cincinnati, OH 45242, Telephone: (888) 454-3383 E-mail: [email protected] Web Site: http://savebabies.org Available at no charge; also available from the website.

Keywords: Consumer information materials, DVDs, Genetic disorders, Infant health, Multimedia, Neonatal screening, Prevention, Spanish language materials
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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.