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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (44 total).

Shimizu H. n.d.. Identification of Hearing Loss in the Neonatal Intensive Care Unit at The Johns Hopkins Hospital [Final report]. Baltimore, MD: Johns Hopkins University School of Medicine, 27 pp.

Annotation: The goal of this project was to develop and recommend an appropriate hearing screening model to be used in Neonatal Intensive Care Units (NICUs) in the state or nation. The project was designed to compare three of the most commonly used screening procedures to determine the incidence of hearing loss, to identify the most predictive procedure or cluster of procedures for screening hearing loss in the NICU, to study the relationship between hearing screening procedures and the outcome of independent audiometric and developmental measures, and to identify the most cost effective mass hearing screening procedures. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152825.

Keywords: Data Collection, Hearing, Hearing Loss, High risk infants Hearing Impaired, Neonatal Intensive Care Unit, Screening

van Dyck P. n.d.. Methods of Funding Nutrition Services for Children with Developmental Disabilities [Final report]. Salt Lake City, UT: Utah Department of Health, 16 pp.

Annotation: The purpose of this project was to develop and apply a model for providing comprehensive nutrition services for children in Utah who have certain developmental disabilities or disease conditions. The objectives of the project were to (1) provide comprehensive nutrition care and expand resources; (2) demonstrate the costs and benefits of providing nutrition services to those children with selected developmental disabilities using an economic model; and (3) obtain third-party reimbursement for nutrition services provided to children with selected special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-199172.

Keywords: Cystic Fibrosis, Developmentally Delayed/Disabled, Financing Health Care, Inborn Errors of Metabolism, Neonatal Intensive Care Unit(NICU), Nutrition, Reimbursement

Aris C, Weeks C, American Association of SIDS Prevention Physicians. n.d.. Taking your baby home from the NICU: Facts about safe sleep. [Marietta, GA]: American Association of SIDS Prevention Physicians, 6 pp.

Annotation: This brochure is for parents taking home their newborn that has been discharged from the neonatal intensive care unit (NICU). It defines sudden infant death syndrome (SIDS) and provides advice on safe sleep positioning and environments for the infant at home. Topics also include the increased risk factors for SIDS of infants that have needed special care at birth, the importance of breastfeeding, not sharing a bed with an infant by parents or siblings, "tummy time", proper bedtime clothing and temperature, the use of a pacifier, and a safe crib. It mentions differences between how things were done in the NICU and how they should be done at home.

Contact: American Association of SIDS Prevention Physicians, 528 Raven Way, Naples, FL 34110, Telephone: (239) 431-5425 Fax: (239) 431-5536 E-mail: [email protected] Web Site: http://www.aaspp.net Available from the website.

Keywords: Brochures, Consumer education materials, High risk infants, Hospitals, Infant health, Injury prevention, Neonatal intensive care units, Prevention, SIDS, Sleep position

Sudden Infant Death Services of the Mid-Atlantic. n.d.. Safe sleep for your special baby. Haymarket, VA: Sudden Infant Death Services of the Mid-Atlantic, 2 pp.

Annotation: This brochure for parents of a premature baby discusses safe sleep practices that should be followed once the infant is discharged from the hospital. It discusses practices suitable for the NICU that are no longer needed and may be unsafe once the infant is at home. It provides tips on following the American Academy of Pediatrics guidelines on back sleeping, safe cribs, not covering the baby's head and face, no smoking, no overheating, talking with others who care for the baby, and tummy time for the awake infant who is closely supervised.

Contact: Sudden Infant Death Services of the Mid-Atlantic, P.O. Box 799, Haymarket, VA 20168, E-mail: [email protected] Web Site: http://www.sidsma.org/ Available from the website.

Keywords: Consumer education materials, Hospitals, Neonatal intensive care units, Premature infants, Prevention, SIDS, Sleep

Payne E, Garcia S, Minkovitz C, Grason H, Strobino D. 2017. Strengthen the evidence base for maternal and child health programs: NPM 3–Risk-appropriate perinatal care [NPM 3 brief]. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 3 pp.

Annotation: This brief identifies evidence-informed strategies that state Title V programs may consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in hospitals with a level III or higher neonatal intensive care unit. Contents include information about the methods and results of the evidence review, key findings, and implications. The full review is also available. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Hospitals, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Protective factors, Regional medical centers, Regional planning, Resources for professionals, State MCH programs, Systems development, Title V programs

Payne E, Garcia S, Minkovitz C, Grason H, Lai YH, Karp C, Strobino D. 2017. Strengthen the evidence for maternal and child health programs: National performance measure 3 risk-appropriate perinatal care evidence review. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 46 pp. (brief 3 pp.).

Annotation: This document identifies evidence-informed strategies that state Title V programs might consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in a hospital with a level III or higher neonatal intensive care unit. Contents include an introduction and background; review methods and results, including search results, characteristics of studies reviewed, intervention components, summary of study results, and evidence rating and evidence continuum; and implications of the review. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs

Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center. 2015. Strengthen the evidence for MCH programs: Environmental scan of strategies National Performance Measure (NPM) #3: Perinatal regionalization. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 6 pp.

Annotation: This environmental scan identifies collections of strategies to advance performance for NPM #3: Perinatal Regionalization--percent of very low birth weight (VLBW) infants born in a hospital with a Level III+ neonatal intensive care unit (NICU). It includes a list of reviews and compilations on the topic; frameworks and landmark initiatives; databases and related search terms; and inclusion and exclusion criteria. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Evidence-based practice, Hospitals, Literature reviews, Low birthweight infants, Measures, Model programs, Neonatal intensive care units, Perinatal care, Policy development, Program planning, Regional planning, Resources for professionals, State MCH programs, Title V programs

National Association of Neonatal Nurses. 2014. Baby steps to home. Glenview, IL: National Association of Neonatal Nurses, 234 pp.

Annotation: This document provides guidance for nurses and parents preparing for an infant's discharge from the neonatal intensive care unit. Contents include information and references for nurses and modifiable documents that can be printed and handed to parents following discussion about their infant's condition. The parent-focused content is available in English and Spanish. Topics include common issues and diagnoses that parents may encounter while their infant is in the NICU, questions to ask their infant's health professional, and after-discharge tips.

Contact: National Association of Neonatal Nurses, 4700 West Lake Ave., Glenview, IL 60025, Telephone: (800) 451-3795 Secondary Telephone: (847) 375-3660 Fax: (888) 477-6266 E-mail: [email protected] Web Site: http://www.nann.org Available from the website.

Keywords: Spanish language materials, Infants, Neonatal intensive care units, Nursing, Parent education, Patient discharge

Truven Health Analytics. 2013. The cost of having a baby in the United States. New York, NY: Childbirth Connection, 84 pp., exec. summ. (5 pp.).

Annotation: This study examines and compares payments made to hospitals, clinicians, and other service providers for maternal and newborn care, including the costs associated with specific services according to source of payment. The study analyzes charges and payments made in states across the country and presents average costs for cesarian and vaginal births, neonatal intensive care services, and costs associated with laboratory, pharmacy, radiology, anesthesiology, and other services. Included are detailed comparisons of costs based on the source of payment (whether Medicaid, an employee-sponsored commercial insurer, a second insurer such as a union, or out-of-pocket) and the amounts billed, the amounts approved, and the amounts paid by individuals. Key findings are summarized in tables, which include data from selected states. Also provided are lists of top medical diagnoses of newborns admitted to Neonatal Care Units.

Contact: National Partnership for Women and Families, 1875 Connecticut Avenue, N.W., Washington, DC 20009, E-mail: [email protected] Web Site: http://www.childbirthconnection.org Available from the website.

Keywords: Childbirth, Comparative analysis, Costs, Health care costs, Hospitalization, Maternal health services, Neonatal intensive care, Newborn infants, Research, Statistics

Texas Breastfeeding Collaborative. 2013. Improving breastfeeding support through milk banks. Boston, MA: National Initiative for Children's Healthcare Quality , 1 video (4 min., 4 sec.).

Annotation: This video provides a tour of the Mother's Milk Bank of North Texas. The video explores how the milk bank works, explains why breastfeeding is important for mothers and infants, and discusses why donation milk is important for helping families to support breastfeeding. The video describes the screening and approval process for donors and explains how milk is tested, stored, mixed, bottled, pasteurized, and released to hospitals for use—primarily in neonatal intensive care units.

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

Keywords: Breastfeeding, Breastfeeding promotion, Community programs, Hospitals, Infant health, Mothers, Multimedia, Neonatal intensive care units, State programs, Texas, Videos, Women', s health

U.S. Agency for Healthcare Research and Quality. 2013. Transitioning newborns from NICU to home: A resource toolkit. Rockville, MD: U.S. Agency for Healthcare Research and Quality,

Annotation: This toolkit includes resources for hospitals to improve safety when newborns transition home from their neonatal intensive care unit (NICU) by creating a Health Coach Program, tools for coaches, and information for parents and families of newborns who have spent time in the NICU. Contents include a resource toolkit, family information packets, clinical materials to share with primary care providers, a NICU needs assessment, and a followup telephone survey.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website.

Keywords: Infant health, Neonatal intensive care units, Newborn infants, Parent education, Parent support services, Patient discharge

Howson CP, Kinney MV, eds. 2012. Born too soon: The global action report on preterm birth. Geneva, Switzerland: World Health Organization, 113 pp.

Annotation: This report discusses what is known about preterm birth and its causes and trends. The report, which includes national, regional, and global estimates of preterm birthrates, including rates by country, presents a plan for the actions needed to reduce the incidence of death and disability resulting from preterm birth, provide care for infants born preterm, and reduce the numbers of preterm births.

Contact: World Health Organization, 20, Avenue Appia, Geneva, Switzerland , Telephone: (+ 41 22) 791 21 11 Fax: (+ 41 22) 791 3111 E-mail: [email protected] Web Site: http://www.who.int/en Available from the website. Document Number: ISBN 9789241503433.

Keywords: Geographic factors, High risk infants, Chronic illnesses and disabilities, Infant death, Infant health, Infant mortality, International health, Neonatal intensive care, Postpartum care, Preconception care, Prenatal care, Preterm birth, Prevention

National Healthy Mothers, Healthy Babies Coalition. 2012. Acute stress disorder, posttraumatic stress disorder and postpartum depression in parents of NICU babies. Alexandria, VA: National Healthy Mothers, Healthy Babies Coalition, (Maternal and child health webinar series: Webinar 10)

Annotation: This webinar, hosted by the National Premature Infant Health Coalition in May 2012, presents the symptoms of acute stress disorders (ASD), post-traumatic stress disorder (PTSD), and postpartum depression (PPD) and examines research on the potentially dangerous relationship between high levels of emotional distress in new parents and impaired infant development. The webinar's featured speaker, Dr. Michael Hynan, also discusses model programs in neonatal intensive care units (NICU) and potential interventions that include screening mothers and fathers for emotional distress; offering psychosocial programs in the NICU; teaching developmental care and parenting competencies; and facilitating parent support groups led by veteran NICU parents and psychologists.

Contact: National Coalition for Infant Health, Alliance for Patient Access, 1275 Pennsylvania Avenue, N.W., Suite 1100A, Washington, DC 20004, Telephone: (202) 499-4114 E-mail: [email protected] Web Site: http://www.infanthealth.org Available from the website.

Keywords: Audiovisual materials, Infant development, Intervention, Mental health, Neonatal intensive care units, Postpartum depression, Posttraumatic stress disorder

National Healthy Mothers, Healthy Babies Coalition. 2012. The Pediatrix BabySteps Clinical Data Warehouse (CDW): Implications for the future of neonatal care. Alexandria, VA: National Healthy Mothers, Healthy Babies Coalition, (Maternal and child health webinar series: Webinar 9)

Annotation: This webinar presents an overview of a large-scale database that allows the analysis of clinical information collected from physicians using the Pediatrix Medical Group's electronic health record, called BabySteps, in neonatal intensive care units throughout the United States. Topics include how digital documentation of care in the clinical data warehouse is used to assess treatment outcomes, develop strategies to improve care, and promote meaningful changes in clinical practices to continuously enhance the quality of neonatal care.

Contact: National Coalition for Infant Health, Alliance for Patient Access, 1275 Pennsylvania Avenue, N.W., Suite 1100A, Washington, DC 20004, Telephone: (202) 499-4114 E-mail: [email protected] Web Site: http://www.infanthealth.org Available from the website.

Keywords: Databases, Multimedia, Neonatal intensive care, Quality assurance, Research, Treatment outcome

MedImmune, National Initiative for Children's Healthcare Quality. 2011. Toolkit for the follow-up care of the premature infant. [Gaithersburg, MD]: MedImmune; [Boston, MA: National Initiative for Children's Healthcare Quality],

Annotation: This electronic toolkit has been developed to assist healthcare providers in the transition of the premature infant from hospital to outpatient care, to facilitate the accurate transfer of patient information, and to help provide evidence‐based practical measures for consideration in the care of the premature infant The toolkit provides age‐specific information, highlighting what is unique for the premature infant from birth to 12 months (corrected for age). Sections include discharge planning, outpatient follow‐up care, parent/caregiver, and tools. Policy statements on hospital discharge from the American Academy of Pediatrics (AAP), anticipatory guidance, Bright Futures well-child guidance and screening tables, and listings of specific medical issues complicating outcomes or premature infants and the role of role of primary physicians are included in the online interactive toolkit.

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

Keywords: Hospital services, Infant care, Neonatal intensive care, Outpatient services, Patient discharge, Premature infants, Prematurity, Resources for professionals, Service integration

Linden DW, Paroli ET, Doron MW. 2010. Preemies: The essential guide for parents of premature babies. (2nd ed.). New York, NY: Pocket Books, 633 pp.

Annotation: This book is written for expecting or new parents of premature babies. It is divided into the following sections: before birth, in the hospital, a life together, and other considerations. Before birth outlines some known causes of premature labor and birth and how to prevent them. Topics discussed in the second part include the premature delivery, the neonatal intensive care unit at the hospital, testing and possible complications that occur in the first week, settling down in the hospital, and if baby needs surgery. Part three covers decisions and preparations for taking baby home, what to expect and watch for during early development and possible consequences of prematurity. Part four talks about losing a premature baby and ways of coping with grief and what special arrangements should be expected. Also discussed are examples of famous premature babies that thrived. The appendices include conversion charts, growth charts, a schedule for multiples, cardiopulmonary resuscitation - birth to one year, and resources. A glossary and an index conclude the text.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available in libraries. Document Number: ISBN 0-671-03491-X.

Keywords: Consumer education materials, Infant death, Infant development, Infant health, Low birthweight, Neonatal intensive care units, Neonatal screening, Parent education, Pregnancy complications, Pregnancy outcome, Premature infant diseases, Premature infants, Premature labor, Preterm birth

Hartwell CL. 2010. The many faces of America's children's hospitals: Spotlight on children's hospitals within hospitals. Philadelphia, PA: Health Strategies and Solutions, 16 pp.

Annotation: This white paper provides information about different types of children's hospitals and discusses the pros and cons of children's hospitals within general hospitals vs. freestanding children's hospitals. The paper discusses the pressure to choose which type of hospital to develop, children's hospital within a hospital genres, selecting an appropriate children's hospital genre, what every children's hospital must have, the four genres (freestanding look-alike, neonatal intensive care unit-centric, system consolidator, and community hospital) and the outlook for children's hospitals within hospitals.

Contact: Health Strategies and Solutions, 1628 John F. Kennedy Boulevard, Suite 500, Philadelphia, PA 19103, Telephone: (215) 363-3500 E-mail: [email protected] Web Site: http://www.hss-inc.com/ Available from the website.

Keywords: Child health, Costs, Hospitals, Infant health, Neonatal intensive care units, Financing, Public policy

Freeman VA. 2010. Very low birth weight babies delivered at facilities for high-risk neonates: A review of Title V national performance measure 17–Final report. Chapel Hill, NC: University of North Carolina at Chapel Hill, Cecil G. Sheps Center for Health Services Research, 41 pp.

Annotation: This report examines state maternal and child health (MCH) Title V grantees' national performance measure number (NPM) 17 -- the percent of very low birthweight (VLBW) infants delivered at facilities for high-risk neonates. The author looks at trends in the rate of VLBW deliveries in the appropriate hospital over an 8-year period and examines information obtained from a review of state Title V applications/annual reports and follow-up conversations with MCH staff in a sample of states. The report includes information about state rates that have improved, worsened, or remained the same. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Block grants, Evidence-based practice, High risk infants, Literature reviews, Low birthweight infants, Measures, Model programs, Neonatal intensive care, Newborn infants, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs

State University of New York, Upstate Medical University College of Nursing. [2009]. Sudden infant death syndrome: Facts for NICU nurses. Syracuse, NY: State University of New York, Upstate Medical University College of Nursing,

Annotation: This online resource addresses neonatal nurses about the known hazards that contribute to sudden infant death syndrome (SIDS) and how preventive measures can be incorporated into the neonatal intensive care unit (NICU) and demonstrated to new parents before discharge of the infant. The half-hour video component of the training defines SIDS and sudden unexpected infant death (SUID), the history of SIDS in the United States, SIDS biology and possible causes, external stress factors, other etiologies, risk factors, AAP guidelines, the Back to Sleep campaign, co-sleeping and co-bedding, as well as the role of the NICU nurse as an educator for new parents. Quizzes are given at intervals during the video presentation. Additional resources on the web site include references, a final quiz, an evaluation, and instructions for receiving continuing education credit.

Contact: State University of New York, Upstate Medical University, 7250 East Adams Street, Syracuse, NY 13210-2375, Telephone: (315) 464-5540 E-mail: http://www.upstate.edu/about/contact.php Web Site: http://www.upstate.edu Available from the website.

Keywords: Hospital nurseries, Multimedia, Neonatal death, Neonatal intensive care units, Nurses, Prevention, Resources for professionals, SIDS, Training materials, Videos

Maryland Department of Health and Mental Hygiene, Perinatal Clinical Advisory Committee. 2008. Maryland perinatal system standards: Recommendations. (Rev. ed.). [Baltimore, MD]: Maryland Department of Health and Mental Hygiene, Family Health Administration, 40 pp.

Annotation: These recommendations provide guidelines on perinatal systems that are consistent with the Guidelines for Perinatal Care, 6th edition, issued in 2007 by the American Academy of Pediatrics (AAP) and the American College of Obstetricians and Gynecologists. Guidelines are provided in the following areas: organization, obstetrical unit capabilities, neonatal unit capabilities, obstetric personnel, pediatric personnel, other personnel, laboratory, diagnostic imaging capabilities, equipment, medications, and education program.

Contact: Maryland Department of Health, Maternal and Child Health Bureau, Office of Family and Community Health Services, 201 West Preston Street, Third Floor, Baltimore, MD 21201-2399, Secondary Telephone: (800) 456-8900 E-mail: https://health.maryland.gov/Pages/contactus.aspx Web Site: http://phpa.dhmh.maryland.gov/mch/Pages/Home.aspx Available from the website.

Keywords: Diagnostic imaging, Diagnostic techniques, Education, Guidelines, Health care systems, Laboratories, Neonatal intensive care units, Obstetrical care, Pediatrics, Perinatal care, Perinatal services, Standards

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.