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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (76 total).

Shimizu H. n.d.. Identification of Hearing Loss in the Neonatal Intensive Care Unit at The Johns Hopkins Hospital [Final report]. Baltimore, MD: Johns Hopkins University School of Medicine, 27 pp.

Annotation: The goal of this project was to develop and recommend an appropriate hearing screening model to be used in Neonatal Intensive Care Units (NICUs) in the state or nation. The project was designed to compare three of the most commonly used screening procedures to determine the incidence of hearing loss, to identify the most predictive procedure or cluster of procedures for screening hearing loss in the NICU, to study the relationship between hearing screening procedures and the outcome of independent audiometric and developmental measures, and to identify the most cost effective mass hearing screening procedures. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152825.

Keywords: Data Collection, Hearing, Hearing Loss, High risk infants Hearing Impaired, Neonatal Intensive Care Unit, Screening

van Dyck P. n.d.. Methods of Funding Nutrition Services for Children with Developmental Disabilities [Final report]. Salt Lake City, UT: Utah Department of Health, 16 pp.

Annotation: The purpose of this project was to develop and apply a model for providing comprehensive nutrition services for children in Utah who have certain developmental disabilities or disease conditions. The objectives of the project were to (1) provide comprehensive nutrition care and expand resources; (2) demonstrate the costs and benefits of providing nutrition services to those children with selected developmental disabilities using an economic model; and (3) obtain third-party reimbursement for nutrition services provided to children with selected special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-199172.

Keywords: Cystic Fibrosis, Developmentally Delayed/Disabled, Financing Health Care, Inborn Errors of Metabolism, Neonatal Intensive Care Unit(NICU), Nutrition, Reimbursement

Aris C, Weeks C, American Association of SIDS Prevention Physicians. n.d.. Taking your baby home from the NICU: Facts about safe sleep. [Marietta, GA]: American Association of SIDS Prevention Physicians, 6 pp.

Annotation: This brochure is for parents taking home their newborn that has been discharged from the neonatal intensive care unit (NICU). It defines sudden infant death syndrome (SIDS) and provides advice on safe sleep positioning and environments for the infant at home. Topics also include the increased risk factors for SIDS of infants that have needed special care at birth, the importance of breastfeeding, not sharing a bed with an infant by parents or siblings, "tummy time", proper bedtime clothing and temperature, the use of a pacifier, and a safe crib. It mentions differences between how things were done in the NICU and how they should be done at home.

Contact: American Association of SIDS Prevention Physicians, 528 Raven Way, Naples, FL 34110, Telephone: (239) 431-5425 Fax: (239) 431-5536 E-mail: [email protected] Web Site: http://www.aaspp.net Available from the website.

Keywords: Brochures, Consumer education materials, High risk infants, Hospitals, Infant health, Injury prevention, Neonatal intensive care units, Prevention, SIDS, Sleep position

Sudden Infant Death Services of the Mid-Atlantic. n.d.. Safe sleep for your special baby. Haymarket, VA: Sudden Infant Death Services of the Mid-Atlantic, 2 pp.

Annotation: This brochure for parents of a premature baby discusses safe sleep practices that should be followed once the infant is discharged from the hospital. It discusses practices suitable for the NICU that are no longer needed and may be unsafe once the infant is at home. It provides tips on following the American Academy of Pediatrics guidelines on back sleeping, safe cribs, not covering the baby's head and face, no smoking, no overheating, talking with others who care for the baby, and tummy time for the awake infant who is closely supervised.

Contact: Sudden Infant Death Services of the Mid-Atlantic, P.O. Box 799, Haymarket, VA 20168, E-mail: [email protected] Web Site: http://www.sidsma.org/ Available from the website.

Keywords: Consumer education materials, Hospitals, Neonatal intensive care units, Premature infants, Prevention, SIDS, Sleep

Payne E, Garcia S, Minkovitz C, Grason H, Strobino D. 2017. Strengthen the evidence base for maternal and child health programs: NPM 3–Risk-appropriate perinatal care [NPM 3 brief]. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 3 pp.

Annotation: This brief identifies evidence-informed strategies that state Title V programs may consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in hospitals with a level III or higher neonatal intensive care unit. Contents include information about the methods and results of the evidence review, key findings, and implications. The full review is also available. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Hospitals, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Protective factors, Regional medical centers, Regional planning, Resources for professionals, State MCH programs, Systems development, Title V programs

Payne E, Garcia S, Minkovitz C, Grason H, Lai YH, Karp C, Strobino D. 2017. Strengthen the evidence for maternal and child health programs: National performance measure 3 risk-appropriate perinatal care evidence review. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 46 pp. (brief 3 pp.).

Annotation: This document identifies evidence-informed strategies that state Title V programs might consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in a hospital with a level III or higher neonatal intensive care unit. Contents include an introduction and background; review methods and results, including search results, characteristics of studies reviewed, intervention components, summary of study results, and evidence rating and evidence continuum; and implications of the review. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs

[U.S. Maternal and Child Health Bureau]. 2016. Resource guide for states and communities caring for infants and children affected by Zika (upd.). [Rockville, MD: U.S. Maternal and Child Health Bureau], 18 pp. (Latest update 10/21/2016; document doesn't cite author/publisher; received via AMCHP's Emerging Issues Committee. (JMB))

Annotation: This resource is designed to assist states and communities in developing a coordinated response to the immediate and long term needs of infants and children affected by Zika virus (ZIKV), and their families. Contents include an overview of ZIKV, infection, and outcomes; systems of care as a public health approach for comprehensive care for infants and children exposed to ZIKV; and an overview of federal and state programs serving children affected by ZIKV. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Assessment, Child health, Community coordination, Comprehensive health care, Emergency medical services for children, Federal programs, Health care systems, Infant health, Infection control, Neonatal screening, Policy development, Population surveillance, Program coordination, Program planning, Quality assurance, Resources for professionals, Service coordination, Service integration, Special health care needs, State programs, Systems development, Virus diseases, Work force

National Institute for Health Care Management Foundation. 2015. Reducing neonatal abstinence syndrome in Tennessee. Washington, DC: National Institute for Health Care Management Foundation, 2 pp. (Women, children & adolescents)

Annotation: This fact sheet highlights partnerships to address the neonatal abstinence syndrome (NAS) epidemic in Tennessee. Topics include efforts to expand a community-based program to assist mothers with substance abuse problems and ensure a drug-free and safe home for their newborns; provide start-up costs for a regional detox center for women addicted to prescription drugs; research the effectiveness of detox from opiate drugs during pregnancy, and the long-term effect of detox treatment on NAS rates in the state; and establish a hospital-based NAS treatment process.

Contact: National Institute for Health Care Management Foundation, 1225 19th Street, N.W., Suite 710, Washington, DC 20036, Telephone: (202) 296-4426 Fax: (202) 296-4319 E-mail: http://www.nihcm.org/contact Web Site: http://www.nihcm.org Available from the website.

Keywords: Drug addiction, Drug use during pregnancy, Financing, Neonatal abstinence syndrome, Newborn infants, Opiates, Postpartum care, Pregnant women, Prenatal care, Prevention program, State initiatives, Substance abuse treatment, Tennessee

Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center. 2015. Strengthen the evidence for MCH programs: Environmental scan of strategies National Performance Measure (NPM) #3: Perinatal regionalization. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 6 pp.

Annotation: This environmental scan identifies collections of strategies to advance performance for NPM #3: Perinatal Regionalization--percent of very low birth weight (VLBW) infants born in a hospital with a Level III+ neonatal intensive care unit (NICU). It includes a list of reviews and compilations on the topic; frameworks and landmark initiatives; databases and related search terms; and inclusion and exclusion criteria. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Evidence-based practice, Hospitals, Literature reviews, Low birthweight infants, Measures, Model programs, Neonatal intensive care units, Perinatal care, Policy development, Program planning, Regional planning, Resources for professionals, State MCH programs, Title V programs

Ramakrishnan M. 2014. Neonatal abstinence syndrome: How states can help advance the knowledge base for primary prevention and best practices of care. Arlington, VA: Association of State and Territorial Health Officials, 24 pp.

Annotation: This report describes opportunities to avert or ameliorate the outcome of neonatal abstinence syndrome (NAS) along a continuum of care spanning timeframes in the mother's and infant's life and the role of state health agencies. Topics include surveillance for NAS-affected infants and the sources of maternal opiate use; reimbursement for using screening protocols to detect substance abuse early in pregnancy and withdrawal signs in newborns; development of measures to ensure follow-up with opioid-dependent women and receipt of comprehensive services; and collaborative efforts to strengthen clinical standards for identification, management, and follow-up with NAS-affected infants and their families. A state index of resources is included.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Comprehensive health care, Intervention, Neonatal abstinence syndrome, Neonatal addiction, Newborn infants, Opiates, Population surveillance, Primary prevention, Screening, State health agencies, Substance use

National Institute for Health Care Management Foundation and Association of State and Territorial Health Officials. 2014. Neonatal abstinence syndrome: Strategies for states and health plans. Washington, DC: National Institute for Health Care Management Foundation, multiple items.

Annotation: These resources, from a webinar held on July 16, 2014, highlight strategies for preventing and treating neonatal abstinence syndrome (NAS). Contents include a recording of the speaker's presentations (1 hour, 27 min., 23 sec.), the webinar agenda and speaker biographies, and related materials. Topics include recent trends in opioid abuse and NAS, with an overview of federally-led prevention efforts; the impact of rising NAS rates across the states, including implications for Medicaid and examples of state-level action; a health plan-led initiative to improve care coordination and social support for pregnant women in treatment for addiction; and the latest in NAS treatment, and an assessment of where public and private investments would be most beneficial.

Contact: National Institute for Health Care Management Foundation, 1225 19th Street, N.W., Suite 710, Washington, DC 20036, Telephone: (202) 296-4426 Fax: (202) 296-4319 E-mail: http://www.nihcm.org/contact Web Site: http://www.nihcm.org Available from the website.

Keywords: Analgesic drugs, Collaboration, Drug addiction, Drug effects, Federal initiatives, Health care systems, Model programs, Neonatal abstinence syndrome, Newborns, Opiates, Pregnant women, Prevention programs, Public private partnerships, State MCH programs, Substance abuse treatment

National Association of Neonatal Nurses. 2014. Baby steps to home. Glenview, IL: National Association of Neonatal Nurses, 234 pp.

Annotation: This document provides guidance for nurses and parents preparing for an infant's discharge from the neonatal intensive care unit. Contents include information and references for nurses and modifiable documents that can be printed and handed to parents following discussion about their infant's condition. The parent-focused content is available in English and Spanish. Topics include common issues and diagnoses that parents may encounter while their infant is in the NICU, questions to ask their infant's health professional, and after-discharge tips.

Contact: National Association of Neonatal Nurses, 4700 West Lake Ave., Glenview, IL 60025, Telephone: (800) 451-3795 Secondary Telephone: (847) 375-3660 Fax: (888) 477-6266 E-mail: [email protected] Web Site: http://www.nann.org Available from the website.

Keywords: Spanish language materials, Infants, Neonatal intensive care units, Nursing, Parent education, Patient discharge

Ohio Department of Health. (2013). Preventing infant mortality. [Columbus, OH]: Ohio Department of Health, 5 pp.

Annotation: This fact sheet focuses on efforts to prevent infant mortality in Ohio. It provides information about the Ohio Department of Health's (ODH's) safe sleep campaign, its progesterone prematurity project, its prenatal smoking-cessation initiative, and its decision to add severe combined immune deficiency and critical congenital heart disease to its list of newborn screening items. ODH's project to reduce elective deliveries before 39 weeks' gestation, its institute for equity in birth outcomes, and its support for select communities to participate in an initiative to improve black infant mortality and prematurity rates are also discussed.

Contact: Ohio Department of Health, 246 North High Street, Columbus, OH 43215, Telephone: (614) 466-3543 Web Site: http://www.odh.ohio.gov Available from the website.

Keywords: Blacks, Infant death, Infant mortality, Neonatal screening, Ohio, Prematurity, Prenatal care, Preterm birth, Prevention services, Public awareness campaigns, Safety, Sleep position, Smoking cessation, Smoking during pregnancy, State initiatives

Truven Health Analytics. 2013. The cost of having a baby in the United States. New York, NY: Childbirth Connection, 84 pp., exec. summ. (5 pp.).

Annotation: This study examines and compares payments made to hospitals, clinicians, and other service providers for maternal and newborn care, including the costs associated with specific services according to source of payment. The study analyzes charges and payments made in states across the country and presents average costs for cesarian and vaginal births, neonatal intensive care services, and costs associated with laboratory, pharmacy, radiology, anesthesiology, and other services. Included are detailed comparisons of costs based on the source of payment (whether Medicaid, an employee-sponsored commercial insurer, a second insurer such as a union, or out-of-pocket) and the amounts billed, the amounts approved, and the amounts paid by individuals. Key findings are summarized in tables, which include data from selected states. Also provided are lists of top medical diagnoses of newborns admitted to Neonatal Care Units.

Contact: National Partnership for Women and Families, Childbirth Connection , 1725 Eye Street, Suite 950 , Washington, DC 20006, E-mail: [email protected] Web Site: https://nationalpartnership.org/childbirthconnection/ Available from the website.

Keywords: Childbirth, Comparative analysis, Costs, Health care costs, Hospitalization, Maternal health services, Neonatal intensive care, Newborn infants, Research, Statistics

Texas Breastfeeding Collaborative. 2013. Improving breastfeeding support through milk banks. Boston, MA: National Initiative for Children's Healthcare Quality , 1 video (4 min., 4 sec.).

Annotation: This video provides a tour of the Mother's Milk Bank of North Texas. The video explores how the milk bank works, explains why breastfeeding is important for mothers and infants, and discusses why donation milk is important for helping families to support breastfeeding. The video describes the screening and approval process for donors and explains how milk is tested, stored, mixed, bottled, pasteurized, and released to hospitals for use—primarily in neonatal intensive care units.

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

Keywords: Breastfeeding, Breastfeeding promotion, Community programs, Hospitals, Infant health, Mothers, Multimedia, Neonatal intensive care units, State programs, Texas, Videos, Women', s health

U.S. Agency for Healthcare Research and Quality. 2013. Transitioning newborns from NICU to home: A resource toolkit. Rockville, MD: U.S. Agency for Healthcare Research and Quality,

Annotation: This toolkit includes resources for hospitals to improve safety when newborns transition home from their neonatal intensive care unit (NICU) by creating a Health Coach Program, tools for coaches, and information for parents and families of newborns who have spent time in the NICU. Contents include a resource toolkit, family information packets, clinical materials to share with primary care providers, a NICU needs assessment, and a followup telephone survey.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website.

Keywords: Infant health, Neonatal intensive care units, Newborn infants, Parent education, Parent support services, Patient discharge

Howson CP, Kinney MV, eds. 2012. Born too soon: The global action report on preterm birth. Geneva, Switzerland: World Health Organization, 113 pp.

Annotation: This report discusses what is known about preterm birth and its causes and trends. The report, which includes national, regional, and global estimates of preterm birthrates, including rates by country, presents a plan for the actions needed to reduce the incidence of death and disability resulting from preterm birth, provide care for infants born preterm, and reduce the numbers of preterm births.

Contact: World Health Organization, 20, Avenue Appia, Geneva, Switzerland , Telephone: (+ 41 22) 791 21 11 Fax: (+ 41 22) 791 3111 E-mail: [email protected] Web Site: http://www.who.int/en Available from the website. Document Number: ISBN 9789241503433.

Keywords: Geographic factors, High risk infants, Chronic illnesses and disabilities, Infant death, Infant health, Infant mortality, International health, Neonatal intensive care, Postpartum care, Preconception care, Prenatal care, Preterm birth, Prevention

National Healthy Mothers, Healthy Babies Coalition. 2012. Acute stress disorder, posttraumatic stress disorder and postpartum depression in parents of NICU babies. Alexandria, VA: National Healthy Mothers, Healthy Babies Coalition, (Maternal and child health webinar series: Webinar 10)

Annotation: This webinar, hosted by the National Premature Infant Health Coalition in May 2012, presents the symptoms of acute stress disorders (ASD), post-traumatic stress disorder (PTSD), and postpartum depression (PPD) and examines research on the potentially dangerous relationship between high levels of emotional distress in new parents and impaired infant development. The webinar's featured speaker, Dr. Michael Hynan, also discusses model programs in neonatal intensive care units (NICU) and potential interventions that include screening mothers and fathers for emotional distress; offering psychosocial programs in the NICU; teaching developmental care and parenting competencies; and facilitating parent support groups led by veteran NICU parents and psychologists.

Contact: National Coalition for Infant Health, Alliance for Patient Access, 1275 Pennsylvania Avenue, N.W., Suite 1100A, Washington, DC 20004, Telephone: (202) 499-4114 E-mail: [email protected] Web Site: http://www.infanthealth.org Available from the website.

Keywords: Audiovisual materials, Infant development, Intervention, Mental health, Neonatal intensive care units, Postpartum depression, Posttraumatic stress disorder

National Healthy Mothers, Healthy Babies Coalition. 2012. The Pediatrix BabySteps Clinical Data Warehouse (CDW): Implications for the future of neonatal care. Alexandria, VA: National Healthy Mothers, Healthy Babies Coalition, (Maternal and child health webinar series: Webinar 9)

Annotation: This webinar presents an overview of a large-scale database that allows the analysis of clinical information collected from physicians using the Pediatrix Medical Group's electronic health record, called BabySteps, in neonatal intensive care units throughout the United States. Topics include how digital documentation of care in the clinical data warehouse is used to assess treatment outcomes, develop strategies to improve care, and promote meaningful changes in clinical practices to continuously enhance the quality of neonatal care.

Contact: National Coalition for Infant Health, Alliance for Patient Access, 1275 Pennsylvania Avenue, N.W., Suite 1100A, Washington, DC 20004, Telephone: (202) 499-4114 E-mail: [email protected] Web Site: http://www.infanthealth.org Available from the website.

Keywords: Databases, Multimedia, Neonatal intensive care, Quality assurance, Research, Treatment outcome

MedImmune, National Initiative for Children's Healthcare Quality. 2011. Toolkit for the follow-up care of the premature infant. [Gaithersburg, MD]: MedImmune; [Boston, MA: National Initiative for Children's Healthcare Quality],

Annotation: This electronic toolkit has been developed to assist healthcare providers in the transition of the premature infant from hospital to outpatient care, to facilitate the accurate transfer of patient information, and to help provide evidence‐based practical measures for consideration in the care of the premature infant The toolkit provides age‐specific information, highlighting what is unique for the premature infant from birth to 12 months (corrected for age). Sections include discharge planning, outpatient follow‐up care, parent/caregiver, and tools. Policy statements on hospital discharge from the American Academy of Pediatrics (AAP), anticipatory guidance, Bright Futures well-child guidance and screening tables, and listings of specific medical issues complicating outcomes or premature infants and the role of role of primary physicians are included in the online interactive toolkit.

Contact: National Institute for Children's Health Quality, 30 Winter Street, Sixth Floor, Boston, MA 02108, Telephone: (617) 391-2700 Secondary Telephone: (866) 787-0832 Fax: (617) 391-2701 E-mail: [email protected] Web Site: http://www.nichq.org Available from the website.

Keywords: Hospital services, Infant care, Neonatal intensive care, Outpatient services, Patient discharge, Premature infants, Prematurity, Resources for professionals, Service integration

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.