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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (75 total).

Clark D. n.d.. Dietary score: Assessment tools and instructions. Des Moines, IA: Iowa Department of Public Health , 20 pp.

Reach Heallthcare. n.d.. Reversing maternal morbidity and mortality trends with digital healthcare. San Diego, CA: Reach Healthcare Organization,

Annotation: This white paper discusses the worsening maternal morbidity and mortality (MMM) rates in the United States, which continue to disproportionately affect Black/African American and American Indian/Alaska Native women. The document addresses maternal health risks, the costs associated with maternal morbidity, and four crucial delays in care identified by the World Health Organization (WHO): delays in seeking medical care, reaching a facility, diagnosis/misdiagnosis, and receiving appropriate treatment. It discusses how digital healthcare solutions can advance maternal health by closing gaps in care, diminishing these four delays, empowering women to self-monitor, and equipping providers with more patient data for timely diagnosis. The paper describes the "Happy Mama" technology platform, which is designed to guide patients from preconception through 12 months postpartum while using FHIR-based interoperability standards to connect patient data with provider Electronic Health Records (EHRs).

Keywords: Data collection, Health care disparities, Maternal morbidity, Maternal mortality, Remote patient monitoring, Telemedicine

Maternal Health Learning and Innovation Center. 2023. Advance data collection, standardization, harmonization, transparency,research, and analysis. Chapel Hill, NC: Maternal Health Learning and Innovation Center, 13 pp. (White House blueprint evidence to action brief )

Annotation: This brief highlights Goal 3 of the White House blueprint for addressing the maternal health crisis, which is to advance data collection, standardization, harmonization, transparency, research, and analysis. The brief outlines the need to mprove data collection by enhancing MMRC (Maternal Mortality and Review Committee) data to inform maternal health interventions; bolster research and build the next generation of maternal health researchers; and better understand conditions that impact pregnancy. Evidence-informed strategies for improvement, criteria for states to consider when developing strategies, and additional resources are included. Statistics indicate which states are funded to enhance maternal mortality review and surveillance; the percentage of epidemiologists employed at the state and jurisdiction levels by program area; and the states that participate in the Pregnancy Risk Assessment Monitoring System (PRAMS).

Keywords: Data collection, Initiatives, Maternal health, Monitoring, Population surveillance, Risk assessment, Statistics

University of Wisconsin--Madison. 2021. Staying healthy after childbirth (STAC) operational handbook. Madison, WI: University of Wisconsin, Department of Obstetrics and Gynecology, 81 pp.

Annotation: This handbook provides guidance for hospitals and health systems interested in implementing STAC, a remote patient monitoring program that helps new mothers with hypertension-related diagnoses safely monitor and treat their blood pressure from home. It describes the program, its benefits, and the research demonstrating its efficacy in reducing postpartum readmissions. The document outlines the core elements of STAC, including daily needs, equipment requirements, enrollment criteria, and the roles of physicians, nurses, and enrollment staff. It also details the processes for patient onboarding, daily nurse assessments, and program completion. The handbook includes treatment algorithms, proper blood pressure measurement techniques, and appendices with program workflows, checklists, consent forms, tip sheets, and documentation templates. Additionally, it provides a sample job description, training plans, and scripts for patient communication.

Keywords: Hypertension, Postpartum, Remoting patient monitoring, Telemedicine

Schoenberg M, Heider F, Rosenthal J, Schwartz C, Kaye N. 2015. State experiences designing and implementing Medicaid delivery system reform incentive payment (DSRIP) pools. Portland, ME: National Academy for State Health Policy, 61 pp.

Annotation: This report provides an analysis of eight Medicaid delivery system reform incentive payment (DSRIP) and DSRIP-like programs and federal, state, and provider perspectives on program implementation. The report also offers insight into the role of DSRIPs in the Medicaid delivery system by examining key policy issues including program design, financing, measurement, and monitoring.

Keywords: Administrative policy, Financing, Health care reform, Measures, Medicaid, Monitoring, Policy analysis, Reimbursement, Service delivery systems

Jee J, Nagarajan J. 2014. Identification and assessment of children and youth with special health care needs in Medicaid managed care: Approaches from three states. Portland, OR: National Academy for State Health Policy, 23 pp.

Annotation: This report describes approaches in three states (California, Michigan, and Minnesota) to identify and assess children and youth with special health care needs (CYSHCN) in Medicaid managed care. Topics include identification and assessment of contract requirements; monitoring and quality improvement; and collaboration between Medicaid, health plans, Title V, and families. The report concludes with a discussion and promising practices for implementing Medicaid managed care for CYSHCN that emerged from the states studied.

Keywords: Adolescents, Children, Collaboration, Contract services, Families, Medicaid managed care, Monitoring, Program improvement, Quality assurance, Special health care needs, Title V programs

American Academy of Pediatrics. 2012. Autism A.L.A.R.M.. Elk Grove Village, IL: American Academy of Pediatrics, 2 pp.

Kim H, Yang M. 2012. Rhode Island Pregnancy Risk Assessment Monitoring System data book. Providence, RI: Rhode Island Department of Health, Pregnancy Risk Assessment Monitoring System (PRAMS), 78 pp.

Annotation: This data book provides information on thirteen health topics regarding material behaviors and experiences before, during, and shortly after pregnancy, using information from the Rhode Island Pregnancy Risk Assessment Monitoring System (PRAMS). The topics include unintended pregnancy, pre-pregnancy, obesity, prepregnancy multivitamin use, intimate partner violence, tobacco use, prenatal care, flu vaccination, human immunodeficiency virus (HIV) testing, perinatal depression, low birth weight, preterm birth, breastfeeding, and infant sleep position. The data book focuses on monitoring the prevalence of health problems over time and identifying groups at high risk for the problems. Figures throughout the book present statistics based on PRAMS survey data for 2004-2009.

Keywords: Data, Maternal health, Monitoring, Pregnancy, Rhode Island, Risk assessment, State initiatives, Statistics, Women

Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities. 2012. Community report from the Autism and Developmental Disabilities Monitoring (ADDM) Network: Prevalence of autism spectrum disorders (ASDs) among multiple areas of the United States in 2008. Atlanta, GA: National Center on Birth Defects and Developmental Disabilities, 44 pp.

Annotation: This report addresses the rise in the number of children diagnosed with autism and autism spectrum disorders (ASDs), how children are identified and served in local communities, and the need for accelerated research. Contents include defining ASDs, how many people have ASDs, what is the Autism and Developmental Disabilities Monitoring (ADDM) network, results of monitoring and the prevalence of ASDs in national and state-by-state demographics, and how the data can be used. Additional information is provided on related topics and resources.

Keywords: Surveillance, Autism, Children with special health care needs, Developmental disabilities, Monitoring, National surveys, State surveys

Adkins M, Frank S, Hawkins H, O'Neil ME, Stampfel C, Willilams L. 2012. Data-driven decisions: Using surveillance data to inform infant safe sleep programs. [Lansing, MI]: Association of SIDS and Infant Mortality Programs, 4 pp. (Issue brief)

Annotation: This issue brief describes how surveillance data, such as that collected through the Pregnancy Risk Assessment Monitoring System (PRAMS), can guide decision marking for programs, especially those related to infant sleep. The brief includes state-specific examples and use of PRAMS in informing programmatic change in safe sleep programs. The brief indicates which states participate in PRAMS and highlights data-supported infant safe sleep efforts in states such as Alaska, Michigan, and Florida. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Data, Data collection, Injury prevention, Monitoring, Program development, SIDS, Sleep position, State initiatives

Horchler JN, Rice R. 2011. SIDS and infant death survival guide: Information and comfort for grieving family and friends and professionals who seek to help them. (4th ed., rev. and upd.). Hyattsville, MD: SIDS Educational Services, 324 pp. (Continues: The SIDS Survival Guide)

Annotation: This book provides information for parents and other caregivers who have lost a child to sudden infant death syndrome (SIDS). Topics include a definition of SIDS, perspectives from experts, a brief review of research into a diagnostic test, a history of SIDS, and accounts by parents of their experiences. Additional topics include dealing with guilt and anger; grieving and bereavement; the grief of fathers, other siblings, and grandparents; the loss of an infant at the childcare provider's; advice for friends of parents who have lost an infant; planning a funeral and the role of the clergy; advice on grieving and moving forward; dealing with anniversaries and holidays; advice on peer contact and professional help; emergency medical responders and the authorities; and a subsequent baby and the question of home monitoring. Additional information is provided on guilt and risk reduction; dreams and premonitions; and more stories and poems from the experience of losing an infant. The appendices include national and international organizations that provide information, counseling, research data, and grants on SIDS and related topics as well as a bibliography and a suggested reading list. The 3rd edition is available in Spanish.

Keywords: Bereavement, Child care, Clergy, Consumer education materials, Family support, Grandparents, Grief, Home monitoring, Infant death, Parent support services, Parents, Risk assessment, SIDS, Siblings, Spanish language materials

Duckworth K, Gruttadaro D, Markey D. 2010. What families should know about adolescent depression (2nd ed.). Arlington, VA: National Alliance for the Mentally Ill, 36 pp.

Annotation: This guide provides information about adolescent depression and treatment options. It introduces adolescent depression and its causes and symptoms and getting an accurate diagnosis. It then discusses treatment, including talk therapy and medications; risks and benefits of antidepressants, as well as family history and treatment. Risk of suicide is also presented, creating good monitoring systems and safety plans, treatment research, and how to be an effective advocate for an adolescent with depression. The guide concludes with resources.

Keywords: Adolescents, Advocacy, Antidepressant drugs, Cognitive therapy, Consumer education materials, Depression, Families, Monitoring, Parents, Safety, Treatment

Stallings VA, Suitor CW, Taylor CL, eds.; Institute of Medicine, Committee on Nutrition Standards for National School Lunch and Breakfast Programs. 2010. School meals: Building blocks for healthy children. Washington, DC: National Academies Press, 380 pp.

Annotation: This report provides recommendations for the U.S. Department of Agriculture (USDA) on revising its standards and requirements so that school meals are more healthful. The recommendations are based on a review and assessment of Dietary Reference Intakes (a system of nutrition recommendations from the Institute of Medicine) and the 2005 Dietary Guidelines for Americans (jointly prepared by the USDA and the U.S. Department of Health and Human Services). The eight recommendations in the report update the National School Lunch Program (NSLP) and School Breakfast Program (SBP) nutrition standards and meal requirements approved in 1995; shift the focus toward meeting recommendations in the 2005 Dietary Guidelines; emphasize the need for effective implementation; and identify key research topics. The recommendations encompass standards for menu planning and standards for meals as selected by the student (in contrast to those that are simply offered to students). Seventeen appendixes include sample menus, data tales, definitions, and comparisons between the existing guidelines and proposed revisions for school meal preparation.

Keywords: Child health promotion, Data, Dietary guidelines, Federal programs, Nutrition assessment, Nutrition monitoring, Nutrition programs, Program evaluation, School age children, School breakfast programs, School food services, School lunch programs

Williams L, O'Neil ME. 2010. Two pieces of the puzzle: A collaboration between the Pregnancy Risk Assessment Monitoring Systems (PRAMS) and the Federal Healthy Start Initiative. Washington, DC: National Healthy Start Association, 4 pp. (Issue brief)

Annotation: This issue brief describes how the Federal Healthy Start Initiative and the Pregnancy Risk Assessment Monitoring System (PRAMS) are collaborating in efforts to identify, assess, and address maternal behaviors and conditions that prevent women from having a healthy pregnancy. The brief describes the goals of federal Healthy Start programs to reduce infant mortality.and explains how PRAMS (the surveillance system developed by the U.S. Center's for Disease Control and Prevention to identify and monitor maternal behavior and experiences before, during, and after pregnancy) collects state-specific data on core topics in maternal and child health. The brief describes why it makes sense for the Healthy Start and PRAMS programs to work together and provides examples of collaborative efforts in New York City, Georgia, South Dakota, Michigan, New Mexico, North Carolina, and Oklahoma. It also explains how programs can begin to collaborate.

Keywords: Collaboration, Healthy Start, Infant mortality, Maternal health, Population surveillance, Pregnancy Risk Assessment Monitoring System, Pregnancy outcome, Prevention programs, Risk assessment, State initiatives, Surveys

Finke J, Plonski-Fuqua B, Hartley B, Hargrave AF, Tasev D, Tumolo C, Vargas PA. 2009. Asthma guidelines for schools. Arizona Asthma Coalition in cooperation with the Arizona Department of Education and Arizona Department of Health Services, 22 pp.

Annotation: These guidelines provide information to help school administrators, school health personnel, teachers, and support staff understand how to monitor asthma control in the school setting and how to help identify students with poorly controlled asthma so that parents can be encouraged to follow-up with the student’s health care provider. Included are District-level policy and procedure recommendations for asthma management; a lists of responsibilities for school personnel; students; and families; age-specific information on asthma control; Arizona statutes related to medical treatment in school settings; and individual treatment plans for students with asthma.

Keywords: Arizona, Asthma, Health education, Monitoring, School age children, School health, State initiatives, Treatment

U.S. Government Accountability Office. 2008. Head Start: A more comprehensive risk management strategy and data improvements could further strengthen program oversight. Washington, DC: U.S. Government Accountability Office, 36 pp.

Annotation: This report examines the Administration for Children and Families' (ACF's) progress related to the oversight of local organizations that receive Head Start program grants and the grantees' financial management. Also examined are ACF's progress in conducting a risk assessment of the Head Start program and ensuring the accuracy and reliability of data from its annual Program Information Report survey of grantees, ACF's efforts to improve its on-site monitoring processes, and ACF's use of data to improve oversight and help grantees meet performance standards.

Keywords: Children, Families, Grants management, Head Start, Monitoring, Oral health, Program evaluation, Risk management

USC Division of Community Health. 2006. Reaching out and reaching in: Understanding efforts to identify and enroll uninsured children into health insurance programs. Los Angeles, CA: California Endowment, 31 pp.

Annotation: This report provides a review of what is known about the effectiveness of outreach and enrollment strategies for uninsured children in California and a framework for ways to evaluate future outreach and enrollment programs. The report is based on (1) information gathered from published studies and reports, (2) information gathered from scans of outreach and enrollment activities in California, including those targeting children, and (3) data collected by the Division of Community Health during the past 5 years on projects that include or are closely related to outreach and health insurance program enrollment. The report is divided into the following main sections: (1) conceptual framework for assessing outreach and enrollment, (2) assessment: identify and understand the target population, (3) approaches to outreach, enrollment, retention, and utilization, (4) developing networks and partnerships, (5) addressing policy and program barriers, (6) program monitoring, evaluation, and finance, (7) conclusion and summary, and (8) recommendations. References are included.

Keywords: Barriers, California, Child health, Financing, Low income groups, Monitoring, Outreach: Enrollment, Program evaluation, Public policy, Research, State health insurance programs, Uninsured persons

Friedman DJ. 2006. Assessing the potential of national strategies for electronic health records for population health monitoring and research. Rockville, MD: National Center for Health Statistics, 83 pp. (Vital and health statistics: Series 2, Data evaluation and methods research; no. 125)

Annotation: This report assesses the potential of national strategies for electronic health records for population health monitoring and research. The report has a fourfold purpose: (1) to describe the current status of national strategies for electronic health records and their supporting national health infrastructures in Australia, Canada, England, and New Zealand; (2) to summarize themes about potential contributions of strategies for electronic health records, and to describe barriers; (3) to summarize themes emerging from key informant interviews; and (4) to delineate fundamental issues in the relationship between national strategies for electronic health records and population health and monitoring.

Keywords: Health, Medical records, Monitoring, National programs, Population dynamics, Research

National Alliance for Nutrition and Activity. 2005. Model local school wellness policies on physical activity and nutrition. Washington, DC: National Alliance for Nutrition and Activity, 26 pp.

Annotation: These model school wellness policies on physical activity and nutrition, which are intended for use by school districts, are based on nutrition science, public health research, and existing practices from exemplary states and local school districts around the country. The policies include a background section, a discussion of how to use the policies, a list of organizations that assisted with or supported the development of the policies, and the policies themselves. Policy goals are presented, as well as steps that school districts can take to achieve the goals. The section on achieving policy goals is divided into the following subsections: (1) school health councils, (2) nutritional quality of foods and beverages sold and served on campus, (3) nutrition and physical activity promotion and food marketing, (4) physical activity opportunities and physical education, (5) monitoring and policy review, and (6) resources for local school wellness policies on nutrition and physical activity.

Keywords: Child nutrition, Health promotion, Marketing, Models, Monitoring, Physical activity, Physical education, Public policy, Resource materials, School districts, School health, Schools

National Institute of Child Health and Human Development. 2004. Managing gestational diabetes: A patient's guide to a healthy pregnancy. Bethesda, MD: National Institute of Child Health and Human Development, 45 pp.

Annotation: This guide provides general guidelines for pregnant women with gestational diabetes for keeping healthy during pregnancy and for promoting the best outcome for the baby. It describes gestational diabetes, its causes and its features, includes a general treatment plan to help control the condition in making informed decisions about care with their health care providers, dietitians, and family members. Appendices provide information on high-fiber foods, a sample menu, and sample record sheets for monitoring glucose, food, and physical activity.

Keywords: Blood glucose self monitoring, Gestational diabetes, Nutrition, Patient education materials, Physical activity, Pregnancy complications, Pregnant women, Prenatal care

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.