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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 9 (9 total).

Fraker M, Mazza AM. 2010. Direct-to-consumer genetic testing: Summary of a workshop. Washington, DC: National Academies Press, 93 pp.

Annotation: This report summarizes the presentations and discussions at a workshop on direct-to-consumer (DTC) genetic testing held in Washington, DC, on August 31 and September 1, 2009. The report discusses (1) scientific and ethical foundations for DTC genetic testing, (2) personal and social issues related to DTC genetic testing, (3) research and medical issues in the context of DTC genetic testing, (4) the impact on health care and public health, and (5) an overview of the current legislative and regulatory framework governing genetic testing in the United States. Each section includes a series of questions for further discussion. The report concludes with a holistic examination of areas for further study.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu $28.75; also available from the website. Document Number: ISBN 978-0-309-16216-6.

Keywords: Genetic screening, Health care, Legislation, Medical ethics, Public health, Regulations, Research

Panté MD, Simon SG, Callahan JM. 2009. Basic life support provider: Pediatric education for prehospital professionals. Sudbury, MA: Jones and Barlett, 332 pp.

Annotation: This textbook, which is un updated version of the 2005 edition, provides prehospital medical information for the emergency care of infants and children. The textbook presents medical content using special features and an interactive course. Features include learning objectives, case studies, tips, and key terms, among others. Topics covered include pediatric assessment, using a developmental approach, respiratory emergencies, cardiovascular emergencies, medical emergencies, trauma, toxic emergencies, children in disasters, emergency delivery and newborn stabilization, children with special health care needs, sudden infant death syndrome, child maltreatment, medicolegal and ethical considerations, transportation considerations, and making a difference.

Contact: Jones and Bartlett Learning, 5 Wall Street, Burlington, MA 01803, Telephone: (800) 832-0034 Secondary Telephone: (978) 443-5000 Fax: (978)443-8000 E-mail: [email protected] Web Site: http://www.jblearning.com Available in libraries. Document Number: ISBN 0763755877.

Keywords: Children with special health care needs, Legal issues, Child health, Child maltreatment, Childbirth, Disasters, Emergency medical care, Infant health, Medical ethics, Newborn infants, SIDS, Training, Trauma

Center for HIV Law and Policy. 2009. HIV and pregnancy: Medical and legal considerations for women and their advocates. New York, NY: Center for HIV Law and Policy, 30 pp.

Annotation: This guide outlines the legal, ethical, and medical issues surrounding HIV and pregnancy in the United States. It addresses considerations for women and their advocates before, during, and after pregnancy, including HIV testing, treatment options for HIV-positive patients, and the legal rights of the expectant mother. It also discusses child birthing options and infant care practices that may help to reduce the risk of transmission from mother to child. The guide also underscores the public health advantage of treating women as active partners in their own and their newborn's treatment, and recognizing their right to appropriate counseling and medical care that accommodates their reproductive options. The guide includes an appendix of Web-based resources.

Contact: Center for HIV Law and Policy, 65 Broadway, Suite 832, New York, NY 10006, Telephone: (212) 430-6733 Fax: (212) 430-6734 E-mail: [email protected] Web Site: http://www.hivlawandpolicy.org Available from the website.

Keywords: HIV, Health care delivery, Legal issues, Medical ethics, Newborn infants, Pregnancy complications, Pregnant women, Reproductive rights

Dieckmann RA, Brownstein D, Gausche-Hill M. 2006. Pediatric education for prehospital professionals 2nd ed.. Sudbury, MA: Jones and Bertlett, 404 pp.

Annotation: This textbook provides prehospital medical information for the emergency care of infants and children. The textbook presents medical content using special features and an interactive course. Features include learning objectives, case studies, tips, and key terms, among others. Topics covered include pediatric assessment, using a developmental approach, respiratory emergencies, cardiovascular emergencies, medical emergencies, trauma, toxic emergencies, children in disasters, emergency delivery and newborn stabilization, children with special health care needs, sudden infant death syndrome, child maltreatment, medicolegal and ethical considerations, transportation considerations, and making a difference.

Contact: Jones and Bartlett Learning, 5 Wall Street, Burlington, MA 01803, Telephone: (800) 832-0034 Secondary Telephone: (978) 443-5000 Fax: (978)443-8000 E-mail: [email protected] Web Site: http://www.jblearning.com Available in libraries. Document Number: ISBN 0763726540.

Keywords: Children with special health care needs, Legal issues, Child health, Child maltreatment, Childbirth, Disasters, Emergency medical care, Infant health, Medical ethics, Newborn infants, SIDS, Training, Trauma

Seltzer VL, Pearce WH, eds. 2000. Women's primary health care: Office practice and procedures. (2nd ed.). New York, NY: McGraw Hill, 1216 pp.

Annotation: This book is intended to assist the clinician in providing lifelong preventive and primary care to women in the office setting. It is organized into eight parts and contains many tables, references, and an index. Topics include the social context of women's health, prevention, health care needs over the course of life, reproductive health and disorders, office diagnostic procedures, psychiatric and psychosocial issues and societal violence, general health, drug therapies and interactions, ethics for the practitioner, risk management, alternative medicine, and patient education in the office.

Contact: McGraw-Hill Companies, PO Box 182604, Columbus, OH 43272, Telephone: (877) 833-5524 Fax: (614) 759-3749 E-mail: [email protected] Web Site: http://www.mcgraw-hill.com Available in libraries. Document Number: ISBN 0-07-058044-8.

Keywords: Cancer, Cardiovascular diseases, Diabetes, Diagnosis, Domestic violence, Eating disorders, Ethics, Life cycle, Lung diseases, Medical records, Mental health, Patient education, Pregnancy, Prevention, Reproductive health, Screening, Social factors, Sports injuries, Substance abuse, Women', s health

American Academy of Pediatrics. 1997. Managed care and children with special health care needs. Elk Grove Village, IL: American Academy of Pediatrics, 131 pp.

Annotation: This book deals with issues affecting services for children with special needs and their families. It is divided into three sections: issue briefs, policy statements, and related articles. Six issues concerning care for children with special needs in a managed care environment are addressed: defining and identifying the population; gate keeping, service authorization, and profiling; capitation and risk adjustment; care coordination strategies; quality care; and approaches to integrated system designs. Policy statements cover the medical home concept, health care financing, and service delivery. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Contact Phone: (800) 433-9016 x7621 Fax: (847) 434-8000 Contact E-mail: [email protected] Web Site: https://www.aap.org Available in libraries. Document Number: ISBN 0-910761-89-2.

Keywords: Children with special health care needs, Ethics, Health care delivery, Health care financing, Home care services, Homelessness, Managed care, Medical home, Pediatric care, Pediatric hospitals

CIBA Foundation. 1986. Human embryo research: Yes or no?. New York: Tavistock Publications, 232 pp.

Annotation: This book reports on a forum held by the CIBA Foundation in which scientists, moral philosophers, doctors, and lawyers discussed the issues raised by embryo research. Topics include embryogenesis, nature and extent of infertility, in vitro fertilization, use of human pre-embryos for infertility, analysis of fetal DNA for the diagnosis and management of genetic disease, reduction of severe congenital disease, the case for contraception, status of the pre-embryo, the sociology of public morality, religions and the status of the embryo, and types of moral argument against embryo research.

Keywords: Embryo, Ethics, Medical research, Reproductive technologies

Nicholson RH, ed. 1986. Medical research with children: Ethics, law, and practice. New York, NY: Oxford University Press, 265 pp.

Annotation: This book is a report of an Institute of Medical Ethics working group on the ethics of clinical research investigations on children. It covers moral dilemmas in conducting research involving children, definitions of terms, the nature of research, risks and benefits in research on children, consent issues, ethical review in the United Kingdom, and issues in planning a research project.

Contact: Oxford University Press, 198 Madison Avenue, New York, NY 10016, Telephone: (800) 451-7556 Secondary Telephone: (212)726-6000 E-mail: [email protected] Web Site: http://www.oup.com/us Available in libraries.

Keywords: Children, Ethics, Great Britain, Legislation, Medical research, Pediatrics

National Academy of Sciences. 1975. Experiments and research with humans: Values in conflict. Washington, DC: National Academy of Sciences, 234 pp. (Academy forum; third of a series)

Annotation: This publication presents papers from a public forum on the concerns and problems surrounding the use of human subjects in research. Topics include perspectives of biomedical research; individual risks versus societal benefits; regulatory, judicial, and legislative processes; and future policy options. Subtopics include consent, the fetus, the child, the military, prisoners, and the poor.

Keywords: Human rights, Medical ethics, Medical research

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.