Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

University of Alabama at Birmingham, University of Florida, Tulane University, and Louisiana State University-Shreveport, Pediatric Pulmonary Centers. 1998. Advances in pediatric pulmonary care: Interdisciplinary approaches to asthma and home care of technology dependent children— Peabody Hotel, Memphis, Tennessee, May 7-8, 1998. Birmingham, AL: University of Alabama, Pediatric Pulmonary Center, ca. 200 pp.

Annotation: These conference proceedings discuss why interdisciplinary teams are needed, a parent's perspective of family centered care, health supervision for children with chronic illnesses, home care of pediatric pulmonary patients, guidelines for diagnosis and management of asthma, Healthy People 2010 Objectives for Children with Special Health Care Needs, asthma medications, guidelines for care of the child with a chronic tracheostomy, administering pediatric asthma medications, pediatric home ventilator care, home options for enteral support, identification and control of asthma triggers, the technology supported child in the community, promoting behavioral change and improving adherence, and smoking cessation. [Funded in part by the Maternal and Child Health Bureau]

Contact: University of Alabama at Birmingham, Department of Pediatrics, 1600 Seventh Avenue, South, Suite 620 ACC, Birmingham, AL 35233, Telephone: (205) 939-9100 Web Site: http://www.uab.edu/medicine/peds $15.00, limited quantity available.

Keywords: Asthma, Behavior modification, Children with special health care needs, Chronic illnesses and disabilities, Conferences, Drugs, Family centered care, Health supervision, Healthy People 2010, Home care, Interdisciplinary approach, Mechanical ventilators, Parents, Pediatric pulmonary care, Smoking cessation, Tracheostomy

Aday LA, Aitken MJ, Wegener DH. 1988. Pediatric home care: Results of a national evaluation of programs for ventilator assisted children. Chicago, IL: Pluribus Press, 444 pp. (Continuing CHAS research series; no. 36)

Annotation: This book reports on a comprehensive evaluation of three SPRANS demonstration projects that developed state-wide systems of care for ventilator-assisted children. It presents findings based on both quantitative and qualitative data gathered about the feasibility and success of developing home alternatives for these children. It examines the kinds of programs developed, and the impact the programs had on on systems of care, on the children, on the families, and on costs of their care, and presents lessons and implications from the study.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available in libraries. Document Number: HRSA Info. Ctr. MCHC006.

Keywords: Children with special health care needs, Mechanical ventilators, Program evaluation, SPRANS, Technology dependence

Gittler J, Colton M. 1987. Alternatives to hospitalization for technology dependent children: Program models. Iowa City, IA: University of Iowa, 338 pp.

Annotation: This report describes five case management programs that create alternatives to hospitalization and institutionalization for technology dependent children in Illinois, Iowa, Louisiana, Maryland, and Pennsylvania. For each program, the report discusses mission and goals, organization, program eligibility criteria, population served, program services, other activities, financing of services, program budget and personnel resources and costs. Appendices include forms and checklists used by the agencies and patient information handouts. [Funded by the Maternal and Child Health Bureau]

Contact: National Health Law and Policy Resource Center, University of Iowa, 412 Boyd Law Building, Melrose and Byington Streets, Iowa City, IA 52242-1113, Telephone: (319) 335-9067 Contact Phone: (319) 335-9067 Fax: (319) 335-9098 E-mail: [email protected] Web Site: http://blogs.law.uiowa.edu/nhlp Available in libraries.

Keywords: Case management, Child health, Children with special health care needs, Home care, Mechanical ventilators, Medically fragile children, Technology dependence

Bureau of Health Care Delivery and Assistance, Division of Maternal and Child Health. 1982. Report of the Surgeon General's Workshop on Children with Handicaps and Their Families: Case example—The ventilator-dependent child. Washington, DC: Bureau of Health Care Delivery and Assistance, Division of Maternal and Child Health, 69 pp.

Annotation: The Surgeon General's Workshop on Children with Handicaps and Their Families was convened in 1982 in order to develop recommendations for strategies to recognize the special burden and challenges borne by the parents and siblings of children with disabilities and to stimulate the provision of resources to safely support these children in their communities. The workshop concentrated on the specific problems of the ventilator-dependent child, and the findings for this prototype were extrapolated for their implications for all handicapped children. This report contains summaries of the presentations made at the workshop, and the recommendations developed by the workshop participants. This report contains summaries of the presentations made at the workshop, and the recommendations developed by the workshop participants.

Contact: National Library of Medicine, U.S. Department of Health and Human Services, 8600 Rockville Pike, Bethesda, MD 20894, Telephone: (301) 594-5983 Secondary Telephone: (888) 346-3656 Fax: (301) 402-1384 E-mail: [email protected] Web Site: http://www.nlm.nih.gov Available from the website.

Keywords: Children with special health care needs, Community based services, Family centered care, Mechanical ventilators, Medically fragile children, Technology dependence