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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 3 (3 total).

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

American College of Rheumatology, Lupus Foundation of America. 2017. Be Fierce. Take Control™. Atlanta, GA: American College of Rheumatology; Washington, DC: Lupus Foundation of America, multiple items.

Annotation: This public health campaign website was launched with the goal of educating and empowering young African American and Latino women (including those ages 15-18), who are most at-risk for developing lupus, to be aware of it signs and symptoms. The campaign uses the web, social media, digital advertising, and audience engagement to reach young women and educate them about the signs and symptoms of lupus. The campaign website also provides tools and resources such as the Lupus Foundation of America’s “Could it Be Lupus?” interactive questionnaire so those with possible symptoms can learn how to take that next step and talk to their health care provider.

Keywords: Adolescent health, Advocacy, African Americans, Autoimmune diseases, Early intervention programs, Empowerment, Ethnic factors, Hispanic Americans, Lupus erythematosus, Prevention programs, Public awareness campaigns, Reproductive health, Risk factors, Self care, Women's health

National Women's Health Information Center. 2010. Could I Have Lupus?. Washington, DC: U.S. Department of Health and Human Services, Office on Women's Health; Washington, DC: Ad Council,

   

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