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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 3 (3 total).

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

American College of Rheumatology, Lupus Foundation of America. 2017. Be Fierce. Take Control™. Atlanta, GA: American College of Rheumatology; Washington, DC: Lupus Foundation of America, multiple items.

Annotation: This public health campaign website was launched with the goal of educating and empowering young African American and Latino women (including those ages 15-18), who are most at-risk for developing lupus, to be aware of it signs and symptoms. The campaign uses the web, social media, digital advertising, and audience engagement to reach young women and educate them about the signs and symptoms of lupus. The campaign website also provides tools and resources such as the Lupus Foundation of America’s “Could it Be Lupus?” interactive questionnaire so those with possible symptoms can learn how to take that next step and talk to their health care provider.

Contact: Lupus Foundation of America, 2000 L Street, N.W., Suite 410, Washington, DC 20036, Telephone: (202) 349-1155 Secondary Telephone: (800) 558-0121 Fax: (202) 349-1156 Web Site: http://www.lupus.org Available from the website.

Keywords: Adolescent health, Advocacy, African Americans, Autoimmune diseases, Early intervention programs, Empowerment, Ethnic factors, Hispanic Americans, Lupus erythematosus, Prevention programs, Public awareness campaigns, Reproductive health, Risk factors, Self care, Women', s health

National Women's Health Information Center. 2010. Could I Have Lupus?. Washington, DC: U.S. Department of Health and Human Services, Office on Women's Health; Washington, DC: Ad Council,

Annotation: This campaign website is designed to heighten awareness and create a sense of urgency about lupus. Topics include how lupus affects the body, lupus symptoms and statistics, and resources for living with lupus. Printed and online promotional materials, and video and radio public services announcements are also available.

Contact: U.S. Department of Health and Human Services, Office on Women's Health, 200 Independence Avenue, S.W., Room 712E, Washington, DC 20201, Telephone: (800) 690-7650 Fax: (202) 205-2631 Web Site: http://www.womenshealth.gov Available from the website.

Keywords: Consumer education materials, Lupus erythematosus, Multimedia, Public awareness campaigns, Web sites, Women', s health promotion
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.