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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

Rapoff M. 1997. Prevention of Medication Compliance Problems in Children with Juvenile Rheumatoid Arthritis: [Final report]. Kansas City, KS: University of Kansas, 26 pp.

Annotation: This study was a randomized, two-group trial of a program to strengthen compliance with medication regimes among children with juvenile rheumatoid arthritis. The experimental prevention component includes: 1) written and videotaped educational materials aimed specifically at preventing and managing compliance problems; 2) instruction by a nurse practitioner in behavioral strategies for improving compliance; and 3) followup telephone contacts in which these strategies are reinstated. Both the literature and previous research by this research team suggests that a combination of educational and behavioral management strategies can be effective at improving compliance in patients who previously had been noncompliant. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-107229.

Keywords: Children with Special Health care Needs, Chronic Illnesses and Disabilities, Juvenile Rheumatoid Arthritis, MCH Research, Patient compliance, Preventive Health Care Education, Research, Rheumatic Diseases

Athreya B. 1987 (ca.). Regional Pediatric Rheumatology Program of Eastern Pennsylvania [Final report]. Philadelphia, PA: Children's Seashore House and Children's Hospital of Philadelphia,

Office for Maternal and Child Health; Children's Hospital of Los Angeles; University of Southern California School of Medicine. 1980. Proceedings of Model Community Program for Arthritic Children. [Los Angeles, CA: University of Southern California School of Medicine?], 123 pp.

Annotation: These proceedings of a conference held October 9-11, 1980, are aimed at designing a comprehensive program for the care of children with rheumatic disease, and cover these topics: the rheumatic diseases of childhood; problems related to the management of juvenile rheumatoid arthritis; the costs of care; education for family and health professionals; federal agencies with a role in the provision of services for handicapped children; state agencies, community programs, and models of comprehensive care; the plan for comprehensive care for children with rheumatic disease; and program evaluation. [Funded by the Maternal and Child Health Bureau]

Keywords: Conference proceedings, Juvenile rheumatic arthritis, Model programs
   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.