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Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 5 (5 total).

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

Rapoff M. 1997. Prevention of Medication Compliance Problems in Children with Juvenile Rheumatoid Arthritis: [Final report]. Kansas City, KS: University of Kansas, 26 pp.

Annotation: This study was a randomized, two-group trial of a program to strengthen compliance with medication regimes among children with juvenile rheumatoid arthritis. The experimental prevention component includes: 1) written and videotaped educational materials aimed specifically at preventing and managing compliance problems; 2) instruction by a nurse practitioner in behavioral strategies for improving compliance; and 3) followup telephone contacts in which these strategies are reinstated. Both the literature and previous research by this research team suggests that a combination of educational and behavioral management strategies can be effective at improving compliance in patients who previously had been noncompliant. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-107229.

Keywords: Children with Special Health care Needs, Chronic Illnesses and Disabilities, Juvenile Rheumatoid Arthritis, MCH Research, Patient compliance, Preventive Health Care Education, Research, Rheumatic Diseases

Horsley JW, Allen ER, Daniel PW. 1996. Nutrition management of school age children with special needs: A resource manual for school personnel, families, and health professionals = Nutrition management of handicapped and chronically ill school children: A resource manual for school personnel, families and health professionals. (2nd ed.). Richmond, VA: Virginia Department of Health and Virginia Department of Education, 93 pp.

Annotation: This manual, a product of an interagency project between the Virginia Departments of Health and Education, is a guide for parents and professionals on the management of nutrition problems of school children with special needs. It helps school personnel plan nutrition services for students who have special health needs or are chronically ill. The information included facilitates the management of special diets and the expansion of nutrition education in the school curriculum. It includes information on these topics: common nutrition problems and interventions during the school day; dietary considerations of specific conditions and related factors; and nutrition goals and objectives for the individualized education program. Dietary considerations and sources of information and/or nutrition education materials for the following conditions are discussed: cerebral palsy, cystic fibrosis, diabetes mellitus, Down syndrome, juvenile rheumatoid arthritis, phenylketonuria, seizure disorders, spina bifida, constipation, feeding abnormalities, and tube feeding. Nine case studies are presented. The appendix includes information on lunch menu ideas for special diets, nutritious snacks, textural modifications, arthritis diet and drugs, complications of tube feeding, and PKU diet free foods. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHI113.

Keywords: Cerebral palsy, Children with special health care needs, Constipation, Cystic fibrosis, Diabetes mellitus, Down syndrome, Enteral nutrition, Epilepsy, Feeding disorders, Individualized education programs, Juvenile rheumatoid arthritis, Nutrition, Phenylketonuria, School food services, Spina bifida

Affiliated Children's Arthritis Centers of New England. 1990. Physical therapy standards of care for children with chronic arthritis. Boston, MA: The Affiliated Children's Arthritis Center of New England, 23 pp.

Annotation: This document consists of the standards of care developed by the Affiliated Children's Arthritis Centers of New England (ACACNE) for physical therapy in treatment of children with arthritis. The standards are meant to serve as guidelines for each of the 13 tertiary pediatric institutions located in six New England states in the ACACNE program. Topics covered include the principles of exercise and activity, assessment, problem and goal identification, the treatment plan, child and family education, the physical therapist as a member of the health care team, and physical therapist qualifications. A 3-page bibliography is included. [Funded by the Maternal and Child Health Bureau]

Keywords: Juvenile arthritis, Juvenile rheumatoid arthritis, Physical therapy, Standards

Athreya B. 1987 (ca.). Regional Pediatric Rheumatology Program of Eastern Pennsylvania [Final report]. Philadelphia, PA: Children's Seashore House and Children's Hospital of Philadelphia,

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.