Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (113 total).

Lindsley C. n.d.. Mid-America Pediatric Rheumatology Outreach Program: [Final report]. Kansas City, KS: University of Kansas Medical Center, Department of Pediatrics, 18 pp.

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-153005.

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Branca P. n.d.. The Care of Bronchopulmonary Dysplasia In a System Encompassing Tertiary, Rehabilitative and Home Care [Final report]. Philadelphia, PA: Thomas Jefferson University Hospital, 13 pp.

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161966.

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

University Centers for Excellence in Developmental Disabilities in California, Massachusetts, Iowa, and Kentucky. n.d.. Your baby and Down Syndrome: Answers to questions you might have. Los Angeles, CA: University of Southern California University Center for Excellence in Developmental Disabilities at Children's Hospital, 2 pp.

Annotation: This brochure is intended to serve as a starting point for new parents looking for information about Down syndrome and related resources and support groups. It includes talking points to use during a diagnostic consultation with a physician and answers to frequently asked questions such as (1) What is Down syndrome? (2) Where do I begin to help my baby? (3) How might Down syndrome affect my baby's health? (4) Where can I find more information about Down syndrome? and (4) How can I find other parents of children with Down syndrome? The brochure is available in both English and Spanish.

Contact: University of Southern California University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, 46550 Sunset Boulevard, Mailstop #53, Los Angeles, CA 90027-0980, Telephone: (323) 361-2300 Secondary Telephone: (323) 480-4192 Fax: (323) 361-8305 E-mail: uscucedd@chla.usc.edu Web Site: http://www.uscucedd.org/ Available from the website.

Keywords: Consumer education materials, Down syndrome, Infants with special health care needs, Spanish language materials

Wong A, Sands W. 2018. Quality resource guide: Introduction to patients with special healthcare needs. New York, NY: Metropolitan Life Insurance Company, 8 pp.

Annotation: This document for oral health professionals provides information about dental treatment and prevention of oral disease for people with special health care needs (SHCN). Topics include oral health needs among those with SHCN, delivery of care and principles to guide it, developing the oral health care team, scheduling, desensitizing, decreasing acids, additional assistance, special concerns, fluoride and tooth remineralization, and caries arrest with silver diamine fluoride.

Contact: Metropolitan Life Insurance Company, 200 Park Avenue, New York, NY 10166, Web Site: http://www.metlife.com Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Dental caries, Infants with special health care needs, Oral health, Prevention, Treatment

National Center for Fatality Review & Prevention. 2017. Guidance for reviewing deaths of infants/children with disabilities and/or special health care needs. Washington, DC: National Center for Fatality Review and Prevention, 23 pp.

Annotation: This document provides guidance to Child Death Review (CDR) and Fetal Infant Mortality Review (FIMR) teams on conducting effective reviews of the deaths of infants and children who had a disability or chronic illness. Contents include definitions of disability and special health care needs; preparing for the review meeting; background and questions for discussion at the review; medical death or natural causes; maltreatment as a factor; death in foster care, group home, institution, or jail/detention facility; mental health services for children in care; death at school or on a school bus; injury deaths; and risk factors. A structure for identifying and addressing gaps in services, policies, or protocols and model recommendations is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Children with special health care needs, Infant death review committees, Infants with special health care needs, Models

American Academy of Pediatric Dentistry. 2016. Definitions, oral health policies, and clinical guidelines. Chicago, IL: American Academy of Pediatric Dentistry, multiple items.

Annotation: This resource comprises definitions, policies, and clinical guidelines of the American Academy of Pediatric Dentistry. New, revised, and reaffirmed policies and guidelines address topics such as medically necessary care, work force issues and delivery of oral health services in a dental home, use of fluoride, use of dental bleaching, infection control, caries-risk assessment and management, restorative dentistry, oral surgery, and informed consent.

Contact: American Academy of Pediatric Dentistry, 211 East Chicago Avenue, Suite 1600, Chicago, IL 60611-2637, Telephone: (312) 337-2169 Fax: (312) 337-6329 Web Site: http://www.aapd.org Available from the website.

Keywords: Adolescents, Children, Children with special health care needs, Dental care, Guidelines, Health policy, Infants, Oral health, Pediatric dentistry, Perinatal health, Professional societies

Washington State Department of Health, Oral Health Program. 2016. Oral health promotion cards. Olympia, WA: Washington State Department of Health, Oral Health Program, 26 items.

Annotation: This series of cards provides oral health messages for health professionals to share with clients and their families. Each card addresses a specific population (pregnant women, infants, children, adolescents, children with special health care needs, adults, and older adults) and is accompanied by a brochure listing messages and resources. The cards and brochures are available in English and in Spanish.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Adolescents, Adults, Children with special health care needs, Educational materials, Health promotion, Infants, Life course, Oral health, Pregnant women, Resources for professionals, Spanish language materials, Young children

Association of Maternal and Child Health Programs. 2015. Resources for Title V action planning: Developmental screening strategies and measures. Washington, DC: Association of Maternal and Child Health Programs, 8 pp. plus appendices.

Annotation: This document highlights strategies, measures and resources to help Title V develop action plans to implement and improve screening and early identification systems and impact the national performance measure on developmental screening

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Children with special health care needs, Developmental screening, Infants with special health care needs, Program development

Association of Maternal and Child Health Programs. 2015. Putting it all together: Case example on using CYSHCN standards and SPHARC tools and resources to develop an action plan. Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This case example illustrates how a state Title V program – in hypothetical state X – could use existing tools and resources developed by the Association for Maternal and Child Health Programs in developing an action plan to address developmental screening rates.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Infants with special health care needs, Children with special health care needs, Developmental screening

U.S. Department of Health and Human Services, U.S. Department of Education. 2015. Policy statement on inclusion of children with disabilities in early childhood programs. Washington, DC: U.S. Department of Education, 43 pp.

Annotation: This policy statement sets a vision and provides recommendations to states, local educational agencies, schools, and public and private early childhood programs for increasing the inclusion of infants, toddlers, and preschool children with disabilities in high-quality early childhood programs. Contents include information about the scientific base for the benefits of inclusion, the legal foundation for inclusion, challenges to inclusion in early childhood programs, partnering to build a nationwide culture of inclusion, and recommendations for state action.

Contact: U.S. Department of Education, 400 Maryland Avenue, S.W., Washington, DC 20202, Telephone: (800) 872-5327 Secondary Telephone: (800) 437-0833 Web Site: http://www.ed.gov Available from the website.

Keywords: Children with developmental disabilities, Children with special health care needs, Collaboration, Early childhood development, Early childhood education, Early intervention, Federal initiatives, Inclusion, Inclusive schools, Infants, Learning, Legal responsibility, Policy development, Program development, Quality assurance, Resources for professionals, Schools, Young children

Save the Children. 2014. A national report card on protecting children during disasters. Westport, CT: Save the Children, 1 v.

Annotation: This report evaluates basic state emergency preparedness plans for children in each state and the District of Columbia, and highlights a critical standard that every state should have in place to address the most vulnerable children in child care. Standards discussed include an evacuation plan for children in child care, plans for reuniting children with their families after a disaster, a plan for children with disabilities and those with access and functional needs, and a multi-hazard plan for K-12 schools. The report provides state-by-state data with successful examples as well as a description of the study methodology.

Contact: Save the Children, 501 Kings Highway East, Fairfield, CT 06825, Telephone: (203) 221-4000 Web Site: http://www.savethechildren.org Available from the website.

Keywords: Child care, Children, Children with special health care needs, Disaster planning, Emergencies, Infants, State surveys, Young children

Genetic Alliance, Family Voices. 2013. Children and youth with special healthcare needs in Healthy People 2020: A consumer perspective. Washington, DC: Genetic Alliance; Albuquerque, NM: Family Voices, 44 pp.

Annotation: This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Heath Needs in the Health Resources and Services Administration's Maternal and Child Health Bureau. The document provides background; discusses trends in programs, legislation, and care for children and youth with special health care needs (CYSCN); provides core performance measures for CYSCN; discusses who is at risk for chronic illnesses and disabilities; and offers information about preparing children and families for the future. Stories about individual children and families are included.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: info@geneticalliance.org Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Adolescents with special heath care needs, Chronic illnesses and disabilities, Environmental influences, Families, Health services, Healthy People 2020: Children with special health care needs, High risk children, High risk infants, Infants with special health care needs, Legislation, Programs, Transition planning, Young adults

Moon R, ed. 2013. Sleep: What every parent needs to know (2nd ed.). Elk Grove Village, IL: American Academy of Pediatrics, 219 pp.

Annotation: This book covers the importance of sleep to growth and development and addresses proper sleep and the challenges parents face in getting their children to sleep. Topics include ages, stages, and phases for all ages of children; bedtime routines and rituals; dealing with fears, nightmares, night terrors, sleep apnea; allergies and asthma; headaches, leg pains, seizures, abdominal or gastrointestinal issues, in addition to developmental disabilities or attention deficit/hyperactivity disorders. Sleep safety and risk factors for sudden infant death are also discussed.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org $16.95, plus shipping and handling.

Keywords: Adolescents, Child development, Children, Children with special health care needs, Disabilities, Infants, SIDS, Sleep, Sleep apnea syndromes, Sleep disorders, Sleep position, Sleep stages

Children's Safety Network. 2013. Preventing and treating traumatic brain injury in young children. Newton, MA: Children's Safety Network,

Annotation: This collaborative webinar between the Children's Safety Network and the HRSA Traumatic Brain Injury Technical Assistance Center (TBI TAC) provides an overview of the burden of TBI among young children ages, 0-4, the work of the HRSA Traumatic Brain Injury Program, and efforts to mitigate the impact of TBI on this population. It discusses the Utah Medical Home Portal, highlights from the state's training on TBI in 0-4 year olds, and research in the area.

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: csninfo@edc.org Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Brain damage, Brain injuries, Child safety, Children with special health care needs, Data, Infants, Injury prevention, Trauma, Utah, Young children

Spielberger J, Winje C, Gitlow E. 2013. Evaluation of the Capable Kids and Families program: Year 2 findings. Chicago, IL: Chapin Hall at the University of Chicago, 96 pp.

Annotation: This report provides findings from an 18-month evaluation to examine parent outcomes for families involved with the Community Partnership's Capable Kids and Families (CKF) program and for a comparison group of non CKF families who received services from other providers. CKF supports family functioning and fosters positive developmental outcomes for families raising children with disabilities or developmental delays from birth to age 6. The report discusses the following six broad domains: (1) understanding their child's strengths and needs, (2) helping their child learn and develop, (3) learning to advocate for their child, (4) support systems, (5) access to resources, and (6) positive interactions with their child. The report also provides information about the service experiences of CKF families and indicates other areas in which the CKF program could affect family well-being that could be explored in future research.

Contact: Chapin Hall at the University of Chicago, 1313 East 60th Street, Chicago, IL 60637, Telephone: (773) 753-5900 Fax: (773) 753-5940 Web Site: http://www.chapinhall.org Available from the website.

Keywords: Advocacy, Children with developmental disabilities, Children with special health care needs, Chronic illnesses and disabilities, Family support services, Infants with developmental disabilities, Infants with special health care needs, Parent child relations, Parenting skills, Program evaluation, Programs, Research, Service delivery systems

Children's Hospital Association. 2013. Optimizing health care for children with medical complexity. Alexandria, VA: Children's Hospital Association, 28 pp.

Annotation: This report provides information on the special needs of children with medical complexity. The report discusses the medically complex pediatric population and the care coordination, services, and intervention these children require; challenges to changing care; solutions; and a foundation for reform. A number of children with different types of medical complexity are described within the report.

Contact: Children's Hospital Association, 600 13th Street, N.W., Suite 500, Washington, DC 20005, Telephone: (202) 753-5500 Web Site: http://www.childrenshospitals.net Available from the website.

Keywords: Access to health care, Adolescents with special health care needs, Case studies, Children with special health care needs, Chronic illnesses and disabilities, Costs, Family support services, Health insurance, Health services, Infants with special health care needs, Intervention, Medicare, Service coordination, Social services

Alaska Oral Health Program. 2012. Alaska Oral Health Program: TOHSS final report. [Juneau, AK]: Oral Health Program, 26 pp.

Annotation: This final report describes a 2007 to 2011 oral health program in Alaska to provide additional access to preventive services to pregnant women, infants, and children, including those with special health care needs, as well as to pilot a school-based dental sealant program. The report is organized into objectives and goals with a brief summary of activities in each year of the program. Also included is an overview of future oral health program activities and evaluation results. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Telephone: (202) 784-9771 E-mail: OHRCinfo@georgetown.edu Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Alaska, Children with special health care needs, Dental sealants, Final reports, Health services delivery, Infants, Low income groups, Oral health, Pregnant women, State initiatives, Young children

Day KC. 2012. Program narrative: Virginia targeted state maternal and child health oral health service systems [final report]. [Richmond, VA]: Virginia Department of Health, [Dental Health Program], 21 pp., plus appendices.

Annotation: This report describes a project in Virginia to (1) increase age 1 dental visits for children at high risk for dental caries; (2) extend oral health screening, education, and fluoride varnish programs within the Bright Smiles for Babies program; and (3) improve access to care for children with special health care needs through collaborative projects. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Telephone: (202) 784-9771 E-mail: OHRCinfo@georgetown.edu Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Access to health care, Children with special health care needs, Final reports, Final reports, Infants, Oral health, Prevention services, State initiatives, Virginia, Young children

Zero to Three. 2012. Making it happen: Overcoming barriers to providing infant-early childhood mental health. Washington, DC: Zero to Three, 20 pp.

Annotation: This publication describes the scientific evidence for infant and early childhood mental health services (I-ECMH) policies; examine issues faced by national, state, and local program directors and mental health professionals in providing I-ECMH services; and propose a set of recommendations for policy improvements at the federal level. The publication also provides context for the issues states face when financing services for vulnerable populations. Topics include the importance of including a strong and well-financed I-ECMH component in successful learning and development systems, the science of I-ECMH, barriers, the importance of responding to need of young children who participate in Medicaid, Medicaid eligibility of immigrants and their children, and I-ECMH as a building block to promote greater success for high-needs children when they reach school.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

Keywords: Child health, Children with special health care needs, Early childhood development, Eligibility, Federal programs, Health promotion, Immigrants, Infant development, Infant health, Infants, Infants with special health care needs, Local programs, Low income groups, Medicaid, Mental health, Mental health services, Public policy, School readiness, State programs, Young children

National Institute of Dental and Craniofacial Research. 2012. Dental care every day: A caregiver's guide. Bethesda, MD: National Institute of Dental and Craniofacial Research, 9 pp.

Annotation: This booklet for those who care for a person with special health care needs provides information about how to help the person brush, floss, and have a healthy mouth. Topics include getting started, brushing every day, flossing every day, positioning your body: where to sit and stand, visiting a dentist regularly, and preparing for a dental visit: your role. The booklet is illustrated with detailed drawings.

Contact: National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse, National Institutes of Health, Bethesda, MD 20892-2190, Telephone: (866) 232-4528 E-mail: nidcrinfo@mail.nih.gov Web Site: https://www.nidcr.nih.gov Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Consumer education materials, Infants with special health care needs, Oral health, Oral hygiene

    Next Page »

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.