Search Results: MCHLine

Annotation: This policy statement sets a vision and provides recommendations to states, local educational agencies, schools, and public and private early childhood programs for increasing the inclusion of infants, toddlers, and preschool children with disabilities in high-quality early childhood programs. Contents include information about the scientific base for the benefits of inclusion, the legal foundation for inclusion, challenges to inclusion in early childhood programs, partnering to build a nationwide culture of inclusion, and recommendations for state action.

Contact: U.S. Department of Education, 400 Maryland Avenue, S.W., Washington, DC 20202, Telephone: (800) 872-5327 Secondary Telephone: (800) 437-0833 Web Site: http://www.ed.gov Available from the website.

• Policy Statement
• Executive Summary

Keywords: Children with developmental disabilities, Children with special health care needs, Collaboration, Early childhood development, Early childhood education, Early intervention, Federal initiatives, Inclusion, Inclusive schools, Infants, Learning, Legal responsibility, Policy development, Program development, Quality assurance, Resources for professionals, Schools, Young children

Annotation: This policy brief focuses on the efforts of 211 L.A. County's Developmental Screening and Care Coordination Program, which works to encourage partnerships between health professionals and community organizations to identify children at risk for developmental delays. The brief provides information about the program and about the importance of identifying developmental delays early. A personal story about a parent and child who received help from the program is also included.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

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Keywords: Access to health care, Child development, Children with developmental disabilities, Collaboration, Community programs, Early childhood development, Early intervention, Health services, Infant development, Infants, Infants with developmental disabilities, Screening, Diagnosis, Treatment, Service coordination, Young children

Annotation: This report provides findings from an 18-month evaluation to examine parent outcomes for families involved with the Community Partnership's Capable Kids and Families (CKF) program and for a comparison group of non CKF families who received services from other providers. CKF supports family functioning and fosters positive developmental outcomes for families raising children with disabilities or developmental delays from birth to age 6. The report discusses the following six broad domains: (1) understanding their child's strengths and needs, (2) helping their child learn and develop, (3) learning to advocate for their child, (4) support systems, (5) access to resources, and (6) positive interactions with their child. The report also provides information about the service experiences of CKF families and indicates other areas in which the CKF program could affect family well-being that could be explored in future research.

Contact: Chapin Hall at the University of Chicago, 1313 East 60th Street, Chicago, IL 60637, Telephone: (773) 753-5900 Fax: (773) 753-5940 Web Site: http://www.chapinhall.org Available from the website.

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Keywords: Advocacy, Children with developmental disabilities, Children with special health care needs, Chronic illnesses and disabilities, Family support services, Infants with developmental disabilities, Infants with special health care needs, Parent child relations, Parenting skills, Program evaluation, Programs, Research, Service delivery systems

Annotation: This electronic resource focuses on describing what infants and young children in child care need and offers 15 recommendations to help states move toward ensuring that these needs are met. The resource explains what infant screening is and why it is needed and discusses how states can ensure that infants and young children are screened for developmental delays. A bibliography, policy ideas, state examples, and online resources are included.

Contact: Center for Law and Social Policy, 1200 18th Street, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 906-8000 Fax: (202) 842-2885 E-mail: http://www.clasp.org/about/contact Web Site: http://www.clasp.org Available from the website.

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Keywords: Child care, Child health, Children with developmental disabilities, Developmental disabilities, Developmental screening, Early childhood development, High risk children, High risk infants, Infant development, Infant health, Infants with developmental disabilities, Public policy, Resource materials, State programs, Young children

Annotation: This guide assists the training director in implementing interdisciplinary training in LEND (Leadership Education in Neurodevelopmental and related Disabilities) Programs and UCEDDs (University Centers for Excellence in Developmental Disabilities). Contents include an introduction to interdisciplinary training, components of a core curriculum, training director roles and mentorship, resources for outcome evaluation, the content of disability studies, and lessons learned. The appendices provide a definition of interdisciplinary practice; sample core curricula from Arkansas, Georgia, Missouri, and Utah; and a chart of common funding sources for training. [Funded by the Maternal and Child Health Bureau]

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

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Keywords: Adolescents, Children with special health care needs, Curricula, Developmental disabilities, Evaluation, Infants, Interdisciplinary training

Annotation: This report provides a first step in reviewing the current state of pediatric primary care linkage to developmental services, identifying key strategies, developing linkage typology, and providing recommendations to improve linkage for developmental care. The report, which includes an abstract and an executive summary, describes the context in which pediatric developmental care and linkages take place, provides working definitions and a typology for describing linkage strategies, identifies and discusses key linkage strategies used by exemplary practices, and provides recommendations and next steps for improved linkage. Summary findings and guiding principles and recommendations are included. The report includes endnotes and an appendix that lists practices and programs that were interviewed for the report and key informants from other organizations. A list of related publications is also included.

Contact: Commonwealth Fund, One East 75th Street, New York, NY 10021, Telephone: (212) 606-3800 Fax: (212) 606-3500 E-mail: [email protected] Web Site: http://www.commonwealthfund.org Available from the website.

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Keywords: Child development, Children with developmental disabilities, Early childhood development, Infants with developmental disabilities, Pediatrics, Primary care, Service coordination

Annotation: This booklet provides information on procedural safeguards of the early intervention system that are designed to protect the interests of both the families of young children with special needs and the service providers under the Individuals with Disabilities Education Act (IDEA), part H. Ways to explain procedures for complaint resolution and strategies for establishing opportunities for family input are presented. The booklet contains principles and examples of family-friendly language from materials submitted by early intervention programs across the country. The IDEA regulations on procedural safeguards are included.

Contact: Early Childhood Technical Assistance Center, Campus Box 8040, UNC-CH, Chapel Hill, NC 27599-8040, Telephone: (919) 962-2001 Secondary Telephone: (919) 843-3269 Fax: 919.966.7463 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://ectacenter.org/ $6.00 includes shipping and handling; quantity discounts available.

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Keywords: Children with developmental disabilities, Development, Dispute resolution, Early childhood education, Early intervention, Family centered services, Federal legislation, High risk populations, Infants, Special education, Special health care needs, Toddlers

Annotation: This two-volume set examines evidence to determine if very-low-birthweight in infants, with or without other conditions, is associated with long-term disabling outcomes. Volume one reviews six primary outcomes of interest included in this report: (1) cerebral palsy and neurologic disability, (2) abnormal cognitive development and mental retardation, (3) hearing/speech/language impairments, (4) visual disability, (5) adverse pulmonary function, and (6) impaired growth. Report sections include a topic overview, reporting the evidence, study methods, an outline of the findings, and future research. Two additional sections review conclusions and future research. References and a bibliography are provided along with appendices including search strategies, a data abstraction form, acronyms and abbreviations, and acknowledgments. Statistics are included throughout the report. Volume two contains the evidence tables evaluating associations between low-birth-weight and 13 outcomes or disorders.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available in libraries.

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Keywords: Cerebral palsy, Congenital abnormalities, Growth disorders, Infants with developmental disabilities, Low birthweight infants, Physical disabilities, Pregnancy complications, Pregnancy outcome, Premature infants, Preterm birth, Research, Sensory impairments, Statistical data

Annotation: This report reviews the history of the Promoting Success in Zero to Three Services Project and considers the implications of that study for maternal and child health care services for developing public policy. The project involved case studies in six communities: Fremont County, Colorado; Lawndale Community in Chicago, Illinois; Scott County, Indiana; Kent County, Rhode Island; Travis County, Texas; and Snohomish County, Washington. The report details the programs that were established in each community. The project itself focused on defining early intervention services for families with young children, developing systems at the local level, accessing data to integrate services, promoting leadership and support for developing systems to provide needed services. The authors include recommendations for national and state policymakers, and for community planners and policymakers. An executive summary contains the main points of the full report. [Funded in part by the Maternal and Child Health Bureau]

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (800) 899-4301 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org $14.95, case study; $4.00, executive summary (plus $2.50 shipping and handling). Document Number: HRSA Info. Ctr. MCHH055 (report), MCHH052 (executive summary); ISBN 0-943657-33-4.

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Keywords: Case studies, Child health services, Children with developmental disabilities, Children with special health care needs, Colorado, Community based services, Early intervention, Family centered services, Family support services, Illinois, Indiana, Infants with developmental disabilities, Infants with special health care needs, Maternal health services, Policy development, Preschool children, Public policy, Rhode Island, Service integration, Texas, Toddlers, Washington

Annotation: This book draws upon the work of researchers and practitioners worldwide to examine prenatal, perinatal, and neonatal development. This reference offers research from animal and human studies that affect early intervention efforts. Chapters provide information on factors that make an infant at risk; new ideas and tests for assessment and identification; strategies to enhance family involvement in intervention efforts; and suggestions for future research that can help decipher the many facets of intervention efforts.

Contact: Brookes Publishing, P.O. Box 10624, Baltimore, MD 21285-0624, Telephone: (800) 638-3775 Secondary Telephone: (410) 337-9580 Fax: (410) 337-8539 E-mail: [email protected] Web Site: http://www.brookespublishing.com Available in libraries.

Keywords: Assessment, Early intervention, High risk populations, Infant health, Infants, Infants with developmental disabilities, Infants with special health care needs, Low birthweight infants, Screening

Annotation: This report presents the lessons learned through a case study of six communities that have been recognized for their success in providing family-oriented, community-based services to families with young children. This is the preliminary report in an ongoing case study; the final report is scheduled to be issued in April 1994. [Funded by the Maternal and Child Health Bureau]

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (800) 899-4301 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

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Keywords: Children with developmental disabilities, Children with special health care needs, Community based services, Family centered services, Family support services, Infants with developmental disabilities, Infants with special health care needs, Parenting, Preschool children, Toddlers

Annotation: This paper synthesizes current thinking, issues, and practices related to the use of paraprofessionals in providing early intervention and preschool services to children with disabilities (ages birth through five years) and to their families. Current practices in 31 states are documented; practices in two states—Illinois and Utah—are presented in more detail. Also discussed are trends in establishing new occupational categories (such as including parents as service providers), extending allied health services to rural and remote regions, and reaching varied service environments.

Contact: Early Childhood Technical Assistance Center, Campus Box 8040, UNC-CH, Chapel Hill, NC 27599-8040, Telephone: (919) 962-2001 Secondary Telephone: (919) 843-3269 Fax: 919.966.7463 E-mail: [email protected] Contact E-mail: [email protected] Web Site: http://ectacenter.org/ Available from the website.

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Keywords: Children with developmental disabilities, Early intervention, Early intervention services, Family centered services, Infants with developmental disabilities, Paraprofessional personnel, Preschool children, Service coordination

Annotation: This report deals with the implementation of Part H of the Individuals with Disabilities Education Act (IDEA). A case study of three states that use very different approaches to the development of family-centered policies illuminates the wide diversity of processes and approaches to policy development. Study findings and recommendations are given for each of the three states.

Contact: Carolina Institute for Child and Family Policy, Carolina Policy Studies Program, University of North Carolina at Chapel Hill, 300 NationsBank Plaza, Chapel Hill, NC 27599, Telephone: (919) 962-7374 Available from the website.

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Keywords: Children with developmental disabilities, Children with special health care needs, Early intervention, Family centered services, Family support services, Federal legislation, Individuals with Disabilities Education Act, Part H, Infants with special health care needs, Interagency cooperation, Policy analysis, Policy development, State agencies

Annotation: The report presents the findings of an expert panel convened in Florida to define at-risk children, ages birth to two, as beneficiaries of early intervention services to prevent/minimize developmental delays. The report examines current definitions and services for at-risk infants and toddlers and discusses the need for identifying a more targeted population to receive presently available intervention services. Recommendations from the panel's findings will be incorporated into Florida's administration of the Education of the Handicapped Act Amendments of 1986, Part H (P. L. 99-457, Part H).

Keywords: Children with special health care needs, Developmental disabilities, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, High risk populations, High risk toddlers, Infants

Annotation: This book discusses problems in child health and the influence of medical advances and the changing pattern of society. It is intended for both laymen and child-care professionals. British pediatricians discuss disease, diet, inherited diseases and congenital abnormalities, care of newborns, the reality of handicap, child health and the environment, health services for children and their relationship to educational and social services, ethical issues in child health and disease, changing pediatric perceptions and perspectives, and lifestyle in infancy and childhood, its effects on the early years of life, and how it determines the state of physical and mental health throughout adulthood.

Keywords: Child health, Child health services, Children with developmental disabilities, Congenital abnormalities, Diet, Disease, Environment, Ethics, Lifestyle, Newborn infants, Pediatrics

Annotation: This publication contains information to help families deal with practical considerations surrounding the death of newborns under a variety of circumstances, as well as a section on prayer and religious observances relating to physically and mentally handicapped children and their families. It also contains model burial services and a discussion of the role of the clergy in genetic counseling. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHB354.

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Keywords: Clergy, Genetic counseling, Infant death, Infants with developmental disabilities, Infants with special health care needs, Parent support services, Pastoral care, Perinatal bereavement, Role

Annotation: This procedures manual is designed to accompany the Connecticut Infant/Toddler Developmental Assessment Training Program, which uses an integrated approach based on 3 components: health, family, and developmental assessment. The goal of the program is to prepare practitioners to assess children along multiple lines of development. The manual covers procedures for the assessment process, child assessment directions, developmental dimensions and sequences, and forms and procedural aids. A copy of the Connecticut Infant/Toddler Developmental Assessment is included in the manual. [Funded by the Maternal and Child Health Bureau]

Contact: Yale Child Study Center, 230 South Frontage Rd. , New Haven, CT 06520, Telephone: (203) 785-5759 Secondary Telephone: (203) 785-2513 E-mail: [email protected] Web Site: http://childstudycenter.yale.edu/ Price unknown.

Keywords: Assessment, Child development, Children with developmental disabilities, Developmental screening, Emotional development, Family centered services, Infants with developmental disabilities, Language development, Motor development, Psychosocial development, Training

Annotation: The primary objective of the study resulting in this report was to examine the services and costs associated with serving chronically ill children in alternative care settings, namely Medicaid waiver programs serving these children. Other objectives were: to determine whether serving chronically ill children in alternative care settings under Medicaid waiver programs is a cost-effective alternative to institutionalization; to profile the population served under these waivers; and to determine what measures and assurances of quality care were and are being utilized by waiver program administrators. 9 states serving chronically ill and/or disabled children were visited and client level data were abstracted from each site. The 4 major findings of the study were: 1) that Medicaid waiver programs serving chronically ill children in home care settings result in lower costs to Medicaid; 2) that the population served by the waiver programs is a severely ill and disabled one; 3) that the role of State Crippled Children Services Agencies varied widely among states; and 4) that waiver programs in many states were infrequently used, used only by a specific disease group population, or used primarily by the patients of a specific provider institution.

Contact: La Jolla Management Corporation, 11426 Rockville Pike, Suite 400, Rockville, MD 20852, Price unknown.

Keywords: Children with developmental disabilities, Children with special health care needs, Chronic illnesses and disabilities, Health care financing, Infants with developmental disabilities, Infants with special health care needs, Medicaid, Waiver programs

Annotation: This document contains the text of Public Law 99-457, also known as Education of the Handicapped Act Amendments of 1986. The Education of the Handicapped Act was amended to reauthorize the discretionary programs under that Act, authorize an early intervention program under that Act for handicapped infants and toddlers and their families, and for other purposes.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHB250.

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Keywords: Children with developmental disabilities, Children with special health care needs, Early intervention services, Education of the Handicapped Act Amendments of 1986, Federal legislation, Infants with developmental disabilities, Learning disabilities

Annotation: This book for those who work with infants and young children with developmental disabilities in the educational setting provides information on conditions, tests, and other health care issues that are relevant to this population, with an emphasis on aspects which affect day-to-day functioning. Topics range from anemia to visual impairment; each section presents information on cause, detection, course, accompanying health problems, medical management, and implications for education. It was published in 3 editions: 1983, 1990, and 1997. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Children with developmental disabilities, Infants with developmental disabilities, Young children