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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (36 total).

Maine Maternal, Fetal, and Infant Mortality Review (MFIMR) Panel. 2025. Maine Maternal, Fetal, and Infant Mortality Review (MFIMR) Panel recommendations July 2223-Dec 2024. Augusta, ME: Maine Maternal, Fetal, and Infant Mortality Review (MFIMR) Panel, 31 pp.

Annotation: This report presents 97 recommendations developed by the Maine Maternal, Fetal, and Infant Mortality Review (MFIMR) Panel based on reviews of 22 cases of maternal, fetal and infant deaths occurring from July 2023 through December 2024. The 35-member panel reviewed de-identified case narratives to identify contributing factors and develop recommendations to improve health outcomes across 22 thematic areas including cardiovascular care, care coordination, cultural and linguistic support, emergency services, mental health, substance use, and social determinants of health. Panel members prioritized eight recommendations in the areas of mental health, substance use, and cultural/linguistic support, with an additional cross-cutting recommendation on stigma reduction.

Contact: Maine Department of Health and Human Services, Center for Disease Control and Prevention, 11 State House Station, 286 Water Street, Augusta, ME 04333-0011, Telephone: (207) 287-8016 Secondary Telephone: (800) 606-0215 Fax: (207) 287-9058 Web Site: http://www.maine.gov/dhhs/boh

Keywords: Fatality review, Infant mortality review, Maine, Maternal mortality, Policy development, Protocols, State initiatives, fetal mortality

Payne E, Garcia S, Minkovitz C, Grason H, Strobino D. 2017. Strengthen the evidence base for maternal and child health programs: NPM 3–Risk-appropriate perinatal care [NPM 3 brief]. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 3 pp.

Annotation: This brief identifies evidence-informed strategies that state Title V programs may consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in hospitals with a level III or higher neonatal intensive care unit. Contents include information about the methods and results of the evidence review, key findings, and implications. The full review is also available. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Hospitals, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Protective factors, Regional medical centers, Regional planning, Resources for professionals, State MCH programs, Systems development, Title V programs

Payne E, Garcia S, Minkovitz C, Grason H, Lai YH, Karp C, Strobino D. 2017. Strengthen the evidence for maternal and child health programs: National performance measure 3 risk-appropriate perinatal care evidence review. Baltimore, MD: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 46 pp. (brief 3 pp.).

Annotation: This document identifies evidence-informed strategies that state Title V programs might consider implementing to increase the percentage of very low birth weight (<1500 gm) infants born in a hospital with a level III or higher neonatal intensive care unit. Contents include an introduction and background; review methods and results, including search results, characteristics of studies reviewed, intervention components, summary of study results, and evidence rating and evidence continuum; and implications of the review. [Funded by the Maternal and Child Health Bureau]

Contact: Johns Hopkins Bloomberg School of Public Health, Women's and Children's Health Policy Center, 615 North Wolfe Street, Room E4143, Baltimore, MD 21205, Telephone: (410) 502-5450 Fax: (410) 502-5831 Web Site: http://www.jhsph.edu/wchpc Available from the website.

Keywords: Block grants, Childbirth, Evidence-based practice, High risk pregnancy, Infant mortality, Intervention, Literature reviews, Low birthweight, Measures, Model programs, Neonatal intensive care units, Newborn infants, Perinatal care, Policy development, Program planning, Resources for professionals, State MCH programs, Title V programs

National Center for Fatality Review and Prevention. 2016. Guidance for CDR and FIMR teams on addressing vicarious trauma. Washington, DC: National Center for Fatality Review and Prevention, 15 pp.

Annotation: This guidance is designed to help partners engaged in the fetal infant mortality review (FIMR) or child death review (CDR) process address the vicarious trauma (VT) that can result from exposure to child deaths. Contents include the definition, signs, and symptoms of VT; VT and fatality review; the risk factors for VT; and steps to mitigate the impact of VT. Topics include positive ways to respond to VT including what the FIMR/CDR team, can do, what the FIMR/CDR coordinator can do, and how the agency can support the FIMR or CDR program; what individuals can do for themselves; negative ways to respond to VT including what a state FIMR/CDR coordinator can do if a team resists discussion or activities concerning VT or thinks it doesn't need them. Descriptions of articles, self-inventory checklists, presentations, and other resources are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Infant mortality, Leadership, Resources for professionals, Risk factors, Role, Teamwork, Trauma, Trauma care

Connecticut Office of the Child Advocate, and Connecticut Child Fatality Review Panel. 2014. Alert: Unsafe sleep related deaths are the leading cause of preventable deaths of infants in Connecticut. Hartford, CT: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 8 pp.

Annotation: This public health alert outlines infant fatalities and unsafe sleep conditions in Connecticut and provides recommendations for prevention. Contents include risk factors associated with infant fatality including sudden unexplained or undetermined infant death, case examples, and a definition of an unsafe sleep-related infant fatality. Additional content includes information on how often infants die from unsafe sleeping conditions; the most common unsafe sleep environments in fatality cases; infant fatalities over time and trends; and the Connecticut Department of Children and Families' role in infant death prevention and policy development. The alert includes recommendations for policymakers, in-home service providers, child care providers, pediatricians, and hospitals, and safe sleep guidelines for parents.

Contact: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 999 Asylum Avenue, 1st Floor, Hartford, CT 06105, Telephone: (860) 566-2106 Secondary Telephone: (800) 994-0939 Fax: (860) 566-2251 E-mail: [email protected] Web Site: http://www.ct.gov/oca Available from the website.

Keywords: Child death review, Connecticut, Infant death, Infant mortality, Policy development, Protective factors, Public awareness materials, Risk factors, SIDS, Safety, Sleep position, State programs, Trends

National Center for the Review and Prevention of Child Deaths, Michigan Public Health Institute. (2012). Examining child fatality reviews and cross-system fatality reviews to promote the safety of children and youth at risk. Washington, DC and Okemos, MI: National Center for the Review and Prevention of Child Deaths, Michigan Public Health Insitute, 45 pp.

Annotation: This document presents slides from an August 2012 presentation focused on sharing and discussing information from multiple states and review teams on best strategies for collaborating to improve the outcomes of child fatality reviews, with particular attention to preventable deaths by caregivers. Topics include what fatality statistics reveal, study goals and methodology, systems of reviews, development and implementation of recommendations, accomplishments of fatality review teams, and opportunities for collaboration. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Child mortality, Collaboration, Infant death, Prevention

Bloom JK. 2012. Prenatal interventions that improve Native American pregnancy outcomes and reduce infant mortality: An integrative review. Bozeman, MT: Montana State University, 115 pp.

Annotation: This report describes a study to identify interventions and perspectives that positively affect pregnancy outcomes and reduce infant mortality in indigenous (Native American) communities. It examines factors at the individual, interpersonal, community and public policy levels. The report describes the literature review used to identify documents and presents findings. Appendices include a research appraisal checklist, summaries of the literature reviewed, and a socioecological framework for pregnancy outcomes in native women.

Keywords: American Indians, Infant mortality, Literature reviews, Pregnancy outcome, Prevention programs

Centers for Disease Control and Prevention. 2012. Public health approaches to reducing U.S. infant mortality. Atlanta, GA: Centers for Disease Control and Prevention, 1 video (60 min.). (Public health grand rounds)

Annotation: This 60-minute webcast explores public health approaches to reducing U.S. infant mortality. Topics include addressing racial disparities that still persist, especially in the African American and American Indian/Alaska Native populations, and preventable infant deaths continue to occur. Approaches discussed include addressing the social, behavioral, and health risk factors that affect birth outcomes, such as preterm birth, unsafe sleeping environments for infants, and tobacco smoke.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: https://www.cdc.gov/cdc-info/forms/contact-us.html Web Site: http://www.cdc.gov Available from the website.

Keywords: Audiovisual materials, Child death review, Infant death, Infant mortality, Neonatal death, Prematurity, Preterm birth, Research, Risk factors, SIDS, Sleep position, Smoking during pregnancy, Statistical data, Tobacco use

Children's Safety Network. 2012. Understanding and utilizing fatal and non-fatal injury data for infants and children ages 0-4. [Newton, MA]: Children's Safety Network,

Annotation: This webinar explains both fatal and non-fatal injury data for infants and children ages 0 through 4 years, with particular emphasis on injury mechanisms, including consumer product-related incidence and cost data for this age group. Suggestions for utilizing data for planning, the implementation of effective injury prevention interventions, and policy development are discussed.

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: [email protected] Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Audiovisual materials, Child death review, Data, Infants, Injury prevention, Mortality, Research, Young children

Davidson EC. 2011. National Fetal and Infant Mortality Review Program: From presidential initiative to successful long-term collaboration. American College of Obstetricians and Gynegologists Clinical Review 16(4 Suppl.):1S-6S ,

Annotation: This supplement focuses on the National Fetal and Infant Mortality Review (NFIMR) Program. Topics include the origins of NFIMR as a local continuous quality improvement model; the ongoing public-private partnership between the American College of Obstetricians and Gynecologists and the U.S. Maternal and Child Health Bureau to promote the community-based process; and aspects of the program's development. Additional topics include the FIMR methodology, key concepts, process, and national evaluation.

Contact: American College of Obstetricians and Gynecologists, 409 12th Street S.W. DC 20024-2188 (street address), P.O. Box 96920, Washington, DC 20024-9998, Telephone: (202) 638-5577 Secondary Telephone: (800) 673-8444 E-mail: [email protected] Web Site: http://www.acog.org Available from the website. Document Number: ISSN 1085-6862.

Keywords: Collaboration, Infant mortality review, Model programs, National programs, Program improvement, Public-private partnerships, Quality assurance

National Center for Cultural Competence and National Fetal and Infant Mortality Review Resource Center. 2011. Cultural and linguistic competence self-assessment for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 2 parts.

Annotation: This webinar discusses the concepts of cultural and linguistic competence as they apply to the Fetal and Infant Mortality Review (FIMR) process and reviews the benefits, principles, and potential approaches to cultural and linguistic competence self-assessments that are appropriate for FIMR programs. The webinar also discusses the Cultural and Linguistic Competence Organizational Assessment Instrument for FIMR programs. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Cultural competence, Assessment, Fetal mortality, Infant death review committees, Language barriers, Multimedia, Programs

California Department of Public Health, Maternal, Child, and Adolescent Health Program. 2011. Fetal and Infant Mortality Review (FIMR) Program: Policies and procedures [rev. ed.]. [Sacramento, CA]: California Department of Public Health, Maternal, Child, and Adolescent Health Program, 10 pp.

Annotation: This manual for California discusses background of the California Fetal and Infant Mortality Review (FIMR) Program, local FIMR activities, key personnel, standardized data collection and reporting, trainings and meetings, product and publication approval, and annual reports.

Contact: California Department of Public Health, Maternal, Child and Adolescent Health Program, MS 8305, P.O. Box 997420, Sacramento, CA 95899-7420, Telephone: (866) 241-0395 Fax: (916) 650-0305 E-mail: [email protected] Web Site: http://www.cdph.ca.gov/programs/MCAH/Pages/default.aspx Available from the website.

Keywords: California, Fetal mortality, Final reports, Infant death review committees, Infant mortality, State programs, Statistical data, Training

Michalski K, Gathirimu J, Benton A, Swain G, Gass E, Ngui E. 2010. 2010 City of Milwaukee fetal infant mortality review (FIMR) report: Understanding and preventing infant death and stillbirth in Milwaukee—2005-2008 stillbirths and infant deaths. Milwaukee, WI: Milwaukee Health Department, 40 pp.

Annotation: This report, which is the fifth of its kind produced since 1995, summarizes what is known about factors that contribute to Milwaukee's high number of stillbirths and infant deaths in an effort to reduce infant mortality and eliminate racial and ethnic disparities in infant mortality. The report explains what the Fetal Infant Mortality Review is and discusses Milwaukee's infant mortality rate, racial disparities, cause of infant death and stillbirth in Milwaukee from 2005 to 2008, risk factors for infant death and stillbirth, autopsies and medical follow-up, social inequality and infant mortality, and community activities.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Communities, Ethnic factors, Fetal death, Infant death, Infant death review committees, Infant mortality, Prevention, Racial factors, Risk factors, Wisconsin

Milwaukee Health Department. 2010. Infant mortality. Milwaukee, WI: Milwaukee Health Department,

Annotation: This website provides information about infant mortality in Milwaukee. It includes an overview of infant mortality and discusses leading causes, other factors affecting the infant mortality rate, and Fetal Infant Mortality Review. Links to additional infant mortality resources are provided.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Congenital abnormalities, Fetal death, Infant death, Infant death review committees, Infant mortality, Premature infants, Racial factors, Risk factors, SIDS, State surveys, Wisconsin

U.S. Maternal and Child Health Bureau. 2009. Improving infant death investigation through doll re-enactment [archive]. Rockville, MD: U.S. Maternal and Child Health Bureau,

Annotation: This archived Webcast is of the April 28, 2009 meeting to discuss the importance of and the demonstration of techniques of conducting doll reenactments to help investigators and families better understand the causes of sudden and unexpected infant death in sleeping environments. The meeting moderator was Captain Stephanie Bryn and presenters included Deborah Robinson, Dr. Terry Covington Terry W. Davis, Ann Malarcher, and Lori Cooper. Items available include audio and slides with captioning, presentation slides, transcripts, and an MP3 audio file. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Secondary Telephone: (833)852-6262 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Multimedia, Child death review, Conferences, Infant death, Infant mortality, Resources for professionals, SIDS

Goode TD, Bronheim S, Buckley K. 2009. Cultural and linguistic competence organizational assessment instrument for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 11 pp.

Annotation: This organizational self-assessment instrument is intended to help fetal and infant mortality review programs (FIMRs) to (1) plan for and incorporate culturally and linguistically competent policies, structures, and practices in all aspects of their work; (2) enhance the quality of case reviews and action plans within diverse and underserved communities; and (3) promote cultural and linguistic competence as an essential approach in the elimination of disparities and the promotion of health and mental health equity. The instrument gives definitions of terms used in the instrument, and a series of statements to assess the organization in these areas: (1) world view and practices related to cultural and linguistic competence; (2) staff diversity and training; (3) core functions including information gathering, case review, and community engagement; and (4) infrastructure, and funding. A companion document provides guidance on the use of this assessment tool. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Questionnaires, Cultural competence, Cultural diversity, Fetal death, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

Goode TD, Bronheim S, Buckley K. 2009. A guide for using the Cultural and Linguistic Competence Organizational Assessment instrument for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 27 pp.

Annotation: This document provides guidance on using an accompanying self-assessment instrument to evaluate the cultural and linguistic competence of fetal and infant mortality review programs (FIMRs). It describes the benefits, values, and principles of self-assessment for organizations; the nature of the instrument; and a recommended four-phase approach to organizational self-assessment. It also provides answers to frequently asked questions; definitions of key terms; and a process for community engagement in self-assessment, including a focus group protocol. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Cultural competence, Cultural diversity, Fetal death, Guidelines, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

U.S. Maternal and Child Health Bureau. 2008. Evidence of trends, risk factors, and intervention strategies: A report from the Healthy Start National Evaluation 2006—Racial and ethnic disparities in infant mortality. [Rockville, MD]: U.S. Maternal and Child Health Bureau, 40 pp.

Annotation: This report provides an evidence base for Healthy Start and other perinatal health initiatives by describing the racial and ethnic disparities in birth outcomes and the risk factors that may be the underlying causes of differences in birth outcomes. The authors conducted a literature review to gather this information. The report, which includes an executive summary, covers the following topics: (1) racial and ethnic disparities in birth outcomes (including racial and ethnic trends in infant mortality and causes of infant death) and (2) risk factors for poor birth outcomes (including behavioral and biological and social risk factors). A discussion section is included. Statistical information is presented in figures and tables throughout the report. The report includes two appendices: detailed tables and a glossary. References are included.

Keywords: Ethnic factors, Healthy Start, High risk groups, Infant death, Infant mortality, Initiatives, Literature reviews, Perinatal health, Prevention programs, Racial factors, Risk factors, Trends

National Fetal and Infant Mortality Review Program. 2008. Fetal and infant mortality review manual: A guide for communities. (2nd ed.). Washington, DC: National Fetal and Infant Mortality Review Program, 169 pp.

Annotation: This manual provides communities interested in developing a new Fetal and Infant Mortality Review (FIMR) Program, or continuing an existing FIMR program, with a step-by-step guide for implementing FIMR and making systems change happen for women, infants, and familles through FIMR. Contents include a description of the FIMR process, laying the groundwork, building community support and collaboration, abstracting medical records and conducting the home interview, basic team building and group process concepts for FIMR programs, the role of the case review team, the role of the community action team, taking stock of the FIMR process, and other maternal and child case review and related processes and the opportunities for collaboration. Standard definitions for reporting selected perinatal health statistics, and a glossary of terms, diagnoses and procedures is also included. [Funded by the Maternal and Child Health Bureau]

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Child death review, Collaboration, Fetal death, Infant death review, Infant mortality, Investigations, Manuals, Neonatal death, Program development, Surveillance

U.S. Agency for International Development. 2007. Demystifying community mobilization: An effective strategy to improve maternal and newborn health. Washington, DC: U.S. Agency for International Development, 28 pp.

Annotation: This report addresses concerns voiced by donors and policymakers in the field of internationl development about the ability of vulnerable communities with high infant mortality rates to develop and implement culturally appropriate solutions to improve the health of mothers and newborns, using community mobilization as a primary strategy. The report presents the results of an extensive review of articles in peer-reviewed publications, journals, and books on community mobilization, maternal and newborn health, and related subjects. The report also covers gray literature and project documents from organizations working in community mobilization in the field and reports on intervews with program implementers and donors.The report explains what community mobilization is, provides a rationale for investing in community mobilization and discusses whether communithy mobilization can be successful scaled up, and provides recommendations for donors and policymakers. Examples of successful programs in several countries are given. A conclusion, references, and a bibliography are included.

Contact: U.S. Agency for International Development, Ronald Reagan Building, Washington, DC 20523-1000, Telephone: (202) 712-4810 Fax: (202) 216-3524 Web Site: http://www.usaid.gov Available from the website.

Keywords: Community participation, Community programs, Cultural competence, Financing, Infant health, Infant mortality, International health, Literature reviews, Maternal mortality, Prevention programs, Public policy, Women', s health

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, univerity, state, and federal funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.