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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (47 total).

National Center for Fatality Review and Prevention. 2020. Parent interview guidance. Washington, DC: National Center for Fatality Review and Prevention, 465 pp. (National Center guidance report)

Annotation: This document describes the value of interviewing childbearing parents/families after the death of an infant, challenges, and steps in the process, including the parental interviewer; locating and contacting families; confidentiality, consent, and ethical considerations; conducting the interview; alternative methods; bereavement support and resources, and self-care. Appendices include sample position descriptions for interviewers, protocols, handouts and forms. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Bereavement, Child death review, Infant death review committees, Interviews, Manuals

National Center for Fatality Review & Prevention. 2017. Guidance for reviewing deaths of infants/children with disabilities and/or special health care needs. Washington, DC: National Center for Fatality Review and Prevention, 23 pp.

Annotation: This document provides guidance to Child Death Review (CDR) and Fetal Infant Mortality Review (FIMR) teams on conducting effective reviews of the deaths of infants and children who had a disability or chronic illness. Contents include definitions of disability and special health care needs; preparing for the review meeting; background and questions for discussion at the review; medical death or natural causes; maltreatment as a factor; death in foster care, group home, institution, or jail/detention facility; mental health services for children in care; death at school or on a school bus; injury deaths; and risk factors. A structure for identifying and addressing gaps in services, policies, or protocols and model recommendations is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Children with special health care needs, Infant death review committees, Infants with special health care needs, Models

Clevenger AA. 2017. Overdose poisoning deaths to children in Virginia, 2009-2013. Richmond, VA: Virginia Department of Health, Office of the Chief Medical Examiner, 57 pp.

Annotation: This report presents findings, conclusions, and recommendations from case reviews of overdose poison deaths among infants, children, and adolescents up to age 17 in Virginia for the five year period between 2009 and 2013. Topics include how overdose is impacting infants and children and their families in Virginia, which children are at risk, where are they at risk, how are they at risk, and what can be done to further promote health and safety in their lives. [Funded in part by the Maternal and Child Health Bureau]

Contact: Virginia Department of Health, Office of the Chief Medical Examiner, 400 East Jackson Street, Richmond, VA 23219, Telephone: (804) 786-3174 Fax: (804) 371-8595 E-mail: OCME_CENT@vdh.virginia.gov Web Site: http://www.vdh.virginia.gov/medical-examiner Available from the website.

Keywords: Adolescents, Case studies, Child death review, Child safety, Children, Health promotion, High risk groups, Household safety, Infants, Injury prevention, Opiates, Poisoning, Prescription drugs, Virginia

National Center for Fatality Review and Prevention and American College of Obstetricians and Gynecologists. 2016. A report on the status of fetal and infant mortality review in the United States 2015 = U.S. fetal and infant mortality review: 2015 status report. Washington, DC: National Center for Fatality Review and Prevention, 25 pp.

Annotation: This report presents findings from a national survey of state and local Fetal and Infant Mortality (FIMR) coordinators about their FIMR team structure, process, and activities. Contents include information about operations at the local level to examine medical, nonmedical, and systems-related factors and circumstances contributing to fetal and infant deaths. Information about FIMR and child death review collaboration is also included. Survey results are provided in a set of tables following the narrative. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Collaboration, Community action, Community based services, County programs, Fetal death, Infant death, Infant death review committees, Injury prevention, Local initiatives, Outcome and process assessment, Program coordination, Systems development, Teamwork

National Center for Fatality Review and Prevention. 2016. Guidance for CDR and FIMR teams on addressing vicarious trauma. Washington, DC: National Center for Fatality Review and Prevention, 15 pp.

Annotation: This guidance is designed to help partners engaged in the fetal infant mortality review (FIMR) or child death review (CDR) process address the vicarious trauma (VT) that can result from exposure to child deaths. Contents include the definition, signs, and symptoms of VT; VT and fatality review; the risk factors for VT; and steps to mitigate the impact of VT. Topics include positive ways to respond to VT including what the FIMR/CDR team, can do, what the FIMR/CDR coordinator can do, and how the agency can support the FIMR or CDR program; what individuals can do for themselves; negative ways to respond to VT including what a state FIMR/CDR coordinator can do if a team resists discussion or activities concerning VT or thinks it doesn't need them. Descriptions of articles, self-inventory checklists, presentations, and other resources are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Infant mortality, Leadership, Resources for professionals, Risk factors, Role, Teamwork, Trauma, Trauma care

National Center for Fatality Review & Prevention. 2016. Guidance for reviews of Zika-related fatalities. Washington, DC: National Center for Fatality Review and Prevention, 15 pp.

Annotation: This document is intended to inform Child Death Review and Fetal and Infant Mortality Review teams' reviews of fetal, infant, and child deaths known to be related, or potentially related, to Zika virus infection. Contents include an overview of Zika, including transmission, prevalance, and risk factors for pregnant women; preparing for review of cases; questions for teams to consider; and recommendations to health professionals and systems for preventing or mitigating Zika virus infection. Information about the clinical management of a pregnant woman with suspected Zika virus infection is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Infant death review committees, Virus diseases

Connecticut Office of the Child Advocate, and Connecticut Child Fatality Review Panel. 2014. Alert: Unsafe sleep related deaths are the leading cause of preventable deaths of infants in Connecticut. Hartford, CT: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 8 pp.

Annotation: This public health alert outlines infant fatalities and unsafe sleep conditions in Connecticut and provides recommendations for prevention. Contents include risk factors associated with infant fatality including sudden unexplained or undetermined infant death, case examples, and a definition of an unsafe sleep-related infant fatality. Additional content includes information on how often infants die from unsafe sleeping conditions; the most common unsafe sleep environments in fatality cases; infant fatalities over time and trends; and the Connecticut Department of Children and Families' role in infant death prevention and policy development. The alert includes recommendations for policymakers, in-home service providers, child care providers, pediatricians, and hospitals, and safe sleep guidelines for parents.

Contact: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 999 Asylum Avenue, 1st Floor, Hartford, CT 06105, Telephone: (860) 566-2106 Secondary Telephone: (800) 994-0939 Fax: (860) 566-2251 E-mail: oca@ct.gov Web Site: http://www.ct.gov/oca Available from the website.

Keywords: Child death review, Connecticut, Infant death, Infant mortality, Policy development, Protective factors, Public awareness materials, Risk factors, SIDS, Safety, Sleep position, State programs, Trends

Philadelphia Child Death Review Teams. 2013. Child death review report 2009-2010. [Philadelphia, PA]: Philadelphia Department of Public Health, Medical Examiner's Office, 41 pp.

Annotation: This report describes and discusses child deaths that occurred in Philadelphia in 2009 and 2010 and that were reviewed by the Philadelphia Child Death Review Team. The report provides background and an overview of child deaths reviewed during the period and discusses infant deaths, natural deaths, unintentional injury deaths, and intentional injury deaths.

Contact: Philadelphia Department of Public Health, 1401 JFK Boulevard, Philadelphia, PA 19102, Telephone: (215) 686-45200 Fax: (215) 686-5212 Web Site: http://www.phila.gov/health/index.html Available from the website.

Keywords: Asthma, Cancer, Child abuse, Child death, Child death review, Cause of death, Child neglect, Drowning, Firearm injuries, Infant death, Intentional injuries, Poisoning, SIDS, Unintentional injuries

Centers for Disease Control and Prevention. 2013. Sudden unexpected infant death case registry. [Atlanta, GA]: Centers for Disease Control and Prevention,

Annotation: This website collects comprehensive data to characterize sudden unexpected infant death (SUID) cases and to determine which sleep environment factors contribute to SUID. The site shows a map of SUID Case Registry (SUID-CR) state grantees, explains the purpose of the SUID-CR Pilot Program, describes activities of the Centers for Disease Control and Prevention in collaboration with the National Center for Child Death Review, and outlines quality-improvement goals and case-registry successes and progress.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov Available from the website.

Keywords: Child death review, Prevention, Programs, SIDS, Safety, Sleep position, Statistical data, Sudden infant death

National Center for Injury Prevention and Control, Division of Unintentional Injury Prevention. 2013. A national action plan for child injury prevention: Reducing suffocation injuries in children. Atlanta, GA: National Center for Injury Prevention and Control, Division of Unintentional Injury Prevention, 2 pp.

Annotation: This document outlines national goals and actions to further reduce suffocation-related injuries among infants and children. Examples of what can be done are organized within the following six domains: data and surveillance, research, communication, education and training, health systems and health care, and policy.

Contact: National Center for Injury Prevention and Control, Centers for Disease Control and Prevention, 4770 Buford Highway, N.E., Mailstop F-63, Atlanta, GA 30341-3717, Telephone: (800) CDC-INFO Secondary Telephone: (888) 232-6348 Fax: (770) 488-4760 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov/injury/index.html Available from the website.

Keywords: Child death review, Children, Communication, Community action, Consumer education, Data, Goals, Health care systems, Infant death, Infant death review, Infants, Injuries, Injury prevention, National initiatives, Planning, Policy development, Population surveillance, Professional education, Research, Safety, Suffocation, Training

Lullaby Trust. 2013. When a baby dies suddenly and unexpectedly. London, England: Lullaby Trust, 31 pp.

Annotation: This booklet for parents offers a helpline number for residents in the United Kingdom and describes what happens after a baby has died, the post-mortem exam, registering the baby's death, funeral arrangements, memorials, inquests, child death review, financial assistance, grieving, mothers who are on their own, if a twin dies, returning to work, life after the baby's death, helping siblings, grandparents and other family members, if someone else's baby dies in your care, finding and giving support, and having another baby.

Contact: Lullaby Trust, 11 Belgrade Road, London, England SW1V 1RB, Telephone: (020) 7802-3200 E-mail: office@lullabytrust.org.uk Web Site: http://lullabytrust.org.uk Available from the website; contact for muiltple copy cost information.

Keywords: Bereavement, Child death, Child death review, Families, Infant death, Public awareness materials, SIDS

National Center for the Review and Prevention of Child Deaths, Michigan Public Health Institute. (2012). Examining child fatality reviews and cross-system fatality reviews to promote the safety of children and youth at risk. Washington, DC and Okemos, MI: National Center for the Review and Prevention of Child Deaths, Michigan Public Health Insitute, 45 pp.

Annotation: This document presents slides from an August 2012 presentation focused on sharing and discussing information from multiple states and review teams on best strategies for collaborating to improve the outcomes of child fatality reviews, with particular attention to preventable deaths by caregivers. Topics include what fatality statistics reveal, study goals and methodology, systems of reviews, development and implementation of recommendations, accomplishments of fatality review teams, and opportunities for collaboration. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Child mortality, Collaboration, Infant death, Prevention

Centers for Disease Control and Prevention. 2012. Public health approaches to reducing U.S. infant mortality. Atlanta, GA: Centers for Disease Control and Prevention, 1 video (60 min.). (Public health grand rounds)

Annotation: This 60-minute webcast explores public health approaches to reducing U.S. infant mortality. Topics include addressing racial disparities that still persist, especially in the African American and American Indian/Alaska Native populations, and preventable infant deaths continue to occur. Approaches discussed include addressing the social, behavioral, and health risk factors that affect birth outcomes, such as preterm birth, unsafe sleeping environments for infants, and tobacco smoke.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov Available from the website.

Keywords: Audiovisual materials, Child death review, Infant death, Infant mortality, Neonatal death, Prematurity, Preterm birth, Research, Risk factors, SIDS, Sleep position, Smoking during pregnancy, Statistical data, Tobacco use

Children's Safety Network. 2012. Understanding and utilizing fatal and non-fatal injury data for infants and children ages 0-4. [Newton, MA]: Children's Safety Network,

Annotation: This webinar explains both fatal and non-fatal injury data for infants and children ages 0 through 4 years, with particular emphasis on injury mechanisms, including consumer product-related incidence and cost data for this age group. Suggestions for utilizing data for planning, the implementation of effective injury prevention interventions, and policy development are discussed.

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: csninfo@edc.org Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Audiovisual materials, Child death review, Data, Infants, Injury prevention, Mortality, Research, Young children

National Center for Cultural Competence and National Fetal and Infant Mortality Review Resource Center. 2011. Cultural and linguistic competence self-assessment for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 2 parts.

Annotation: This webinar discusses the concepts of cultural and linguistic competence as they apply to the Fetal and Infant Mortality Review (FIMR) process and reviews the benefits, principles, and potential approaches to cultural and linguistic competence self-assessments that are appropriate for FIMR programs. The webinar also discusses the Cultural and Linguistic Competence Organizational Assessment Instrument for FIMR programs. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Cultural competence, Assessment, Fetal mortality, Infant death review committees, Language barriers, Multimedia, Programs

California Department of Public Health, Maternal, Child, and Adolescent Health Program. 2011. Fetal and Infant Mortality Review (FIMR) Program: Policies and procedures [rev. ed.]. [Sacramento, CA]: California Department of Public Health, Maternal, Child, and Adolescent Health Program, 10 pp.

Annotation: This manual for California discusses background of the California Fetal and Infant Mortality Review (FIMR) Program, local FIMR activities, key personnel, standardized data collection and reporting, trainings and meetings, product and publication approval, and annual reports.

Contact: California Department of Public Health, Maternal, Child and Adolescent Health Program, MS 8305, P.O. Box 997420, Sacramento, CA 95899-7420, Telephone: (866) 241-0395 Fax: (916) 650-0305 E-mail: mchinet@cdph.ca.gov Web Site: http://www.cdph.ca.gov/programs/MCAH/Pages/default.aspx Available from the website.

Keywords: California, Fetal mortality, Final reports, Infant death review committees, Infant mortality, State programs, Statistical data, Training

Michalski K, Gathirimu J, Benton A, Swain G, Gass E, Ngui E. 2010. 2010 City of Milwaukee fetal infant mortality review (FIMR) report: Understanding and preventing infant death and stillbirth in Milwaukee—2005-2008 stillbirths and infant deaths. Milwaukee, WI: Milwaukee Health Department, 40 pp.

Annotation: This report, which is the fifth of its kind produced since 1995, summarizes what is known about factors that contribute to Milwaukee's high number of stillbirths and infant deaths in an effort to reduce infant mortality and eliminate racial and ethnic disparities in infant mortality. The report explains what the Fetal Infant Mortality Review is and discusses Milwaukee's infant mortality rate, racial disparities, cause of infant death and stillbirth in Milwaukee from 2005 to 2008, risk factors for infant death and stillbirth, autopsies and medical follow-up, social inequality and infant mortality, and community activities.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Communities, Ethnic factors, Fetal death, Infant death, Infant death review committees, Infant mortality, Prevention, Racial factors, Risk factors, Wisconsin

Milwaukee Health Department. 2010. Infant mortality. Milwaukee, WI: Milwaukee Health Department,

Annotation: This website provides information about infant mortality in Milwaukee. It includes an overview of infant mortality and discusses leading causes, other factors affecting the infant mortality rate, and Fetal Infant Mortality Review. Links to additional infant mortality resources are provided.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Congenital abnormalities, Fetal death, Infant death, Infant death review committees, Infant mortality, Premature infants, Racial factors, Risk factors, SIDS, State surveys, Wisconsin

Columbus Public Health. 2010. Sleep-related infant deaths. Columbus, OH: Columbus Public Health, 2 pp. (Health indicator brief)

Annotation: This document reviews findings from a report of infants who died in their sleep in Franklin County, Ohio, from 2006 through 2008, and the circumstances surrounding these deaths. Topics include information and statistics on diagnoses (SIDS, SUID, unknown); demographics; and risk conditions (maternal smoking during pregnancy, place at time of death, any bed sharing, and sleep position). Safe sleep recommendations from the American Academy of Pediatrics and the National Institute of Child Health and Human Development are included.

Contact: Columbus Public Health, 240 Parsons Avenue, Columbus, OH 43215, Telephone: (614) 645-7417 Web Site: http://publichealth.columbus.gov Available from the website.

Keywords: Infant death, Infant death review committees, Local MCH programs, Risk assessment, SIDS, Sleep position, Tobacco use

U.S. Maternal and Child Health Bureau. 2009. Improving infant death investigation through doll re-enactment [archive]. Rockville, MD: U.S. Maternal and Child Health Bureau,

Annotation: This archived Webcast is of the April 28, 2009 meeting to discuss the importance of and the demonstration of techniques of conducting doll reenactments to help investigators and families better understand the causes of sudden and unexpected infant death in sleeping environments. The meeting moderator was Captain Stephanie Bryn and presenters included Deborah Robinson, Dr. Terry Covington Terry W. Davis, Ann Malarcher, and Lori Cooper. Items available include audio and slides with captioning, presentation slides, transcripts, and an MP3 audio file. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Multimedia, Child death review, Conferences, Infant death, Infant mortality, Resources for professionals, SIDS

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.