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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 4 (4 total).

Gordon LJ. Tullis K, Hanson A, eds. 2004. Building on family strengths: Research and services in support of children and their families—2003 conference proceedings. Portland, OR: Research and Training Center on Family Support and Children's Mental Health, 204 pp.

Annotation: These conference proceedings describe a conference held June 26-28, 2003 in Portland, OR, to share and learn about current research and best practices for supporting children and youth with emotional and behavioral challenges and their families. Topics include systems of care, wraparound processes, promoting children's mental health in early childhood settings; youth violence; perceptions of service delivery; links between successful inclusion and family support in child care centers; understanding collaboration in systems of care; case studies, family support, family participation, and individualized services and support planning. The proceedings include keynote and plenary transcripts, with presentation summaries including presentation PowerPoint slides and links to corresponding Web-based versions of individual presentations, along with a complete conference agenda with contact information for lead presenters. The appendix includes the conference agenda and the report concludes with an index.

Contact: National Wraparound Initiative, Research and Training Center on Family Support and Children's Mental Health, Portland State University, P.O. Box 751, Portland, OR 97207-0751, Telephone: (503) 725-8236 Fax: (503) 725-4180 E-mail: Web Site: Available from the website.

Keywords: Affective disorders, Behavior problems, Case studies, Child care, Child mental health, Collaboration, Conference proceedings, Early intervention services, Family centered services, Family support services, Individualized family service plans, Model programs, Research

Gallagher JJ. 1998. Planning for young children with disabilities and their families: The evidence from IFSP/IEPs. Chapel Hill, NC: University of North Carolina at Chapel Hill, Early Childhood Research Institute on Service Utilization, 29 pp.

Annotation: The purpose of this study was to analyze the goals statements produced from discussions involving 72 families, and the professionals serving their child, on either the Individualized Family Service Plan (IFSP) or the Individual Education Program (IEP) and to examine changes in these individual plans over time. The study attempts to discover the type and amount of goals generated by this process for both the IFSP and IEP for these young children with disabilities. These families were also part of a major case study project being conducted by McWilliam and his colleagues.

Keywords: Children with developmental disabilities, Families, Individualized education programs, Individualized family service plans, Research

Bruder M. [1997]. Early Intervention CONNECT [Final report]. Farmington, CT: University of Connecticut, 53 pp.

Annotation: The project goal was to ensure that all infants and children with special health needs (CSHN) would have an individualized early intervention (EI) program that integrated the child's health needs and services into the individualized family service plan. Training materials were developed and training activities were implemented for physicians, families, and EI service providers. A collaborative, community-based, culturally competent model of care for CSHN and their families was developed and implemented at six service coordination centers. A data system was developed to monitor services to children and families. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Early Intervention, Individualized Family Service Plans, Interagency Cooperation, Service Coordination, Training

McGonigel MJ, Kaufmann RK, Johnson BH, eds. 1991. Guidelines and recommended practices for the individualized family service plan. (2nd ed.). Bethesda, MD: Association for the Care of Children's Health, ca. 200 pp.

Annotation: This manual provides a history of its publication and explains its relationship to the first edition which presented a consensus on the best practices for providing family centered comprehensive early intervention services as required in Part H of the Education of the Handicapped Act Amendments of 1986. This edition contains the final regulations developed by the U.S. Department of Education regarding the implementation of Part H of P.L. 99-457. It explains the rationale for developing an individualized family service plan (IFSP), the process for developing one, and describes how to build strong relationships between families and professionals. Other topics covered are assessing the child's needs and strengths; working with families to identify concerns, priorities, and resources; and implementing the IFSP. A final chapter assesses future directions for the IFSP; this chapter considers issues of interest to state planners and policy makers. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Developmental disabilities, Education of the Handicapped Act Amendments of 1986, Federal legislation, Guidelines, Individualized family service plans


This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.