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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 6 (6 total).

Nebraska Department of Health and Human Services, Division of Public Health, School Health Program. 2012. Nebraska school health guidelines = Guidelines for school health services in Nebraska. Lincoln, NE: Nebraska Department of Health and Human Services,

Annotation: This website, which presents guidelines for Nebraska schools, focuses on the activities and practices of school nurses and other non-nurse school personnel who provide health services. The site includes information about school health services; school nursing scope and standards; individualized health care plans; the role of the school nurse in special education; school health screening; emergency guidelines; guidelines related to methicillin-resistant staphylococcus aureus in schools, athletics, and child care; and the Medication Aide Act.

Contact: Nebraska Department of Health and Human Services, P.O. Box 95026, Lincoln, NE 68509-5026, Telephone: (402) 471-3121 E-mail: [email protected] Web Site: http://www.dhhs.ne.gov Available from the website.

Keywords: Child care, Emergencies, Guidelines, Individualized health plans, Legislation, Nebraska, School health services, School heath, School nurses, School personnel, Screening, Special education, State programs

Association of Maternal and Child Health Programs. 2003. Reaching the children: The relationship between Title V and Part C. Washington, DC: Association of Maternal and Child Health Programs, 16 pp.

Annotation: This issue brief (1) examines partnerships in 20 states between Title V of the Social Security Act and Part C of the Individuals with Disabilities Education Act that address the health needs of children with disabilities, (2) outlines models of and barriers to collaboration, and (3) provides recommendations to Congress and the federal government to support this collaboration. The brief provides background, describes the survey methods used, discusses best practices, and offers recommendations to state Title V and Part C programs and for the Maternal and Child Health Bureau, the Department of Education, and Congress. Topics include an overview of the Title V and Part C programs, a description of program eligibility criteria, identification of eligible children, the importance of collaboration between the programs, care and service coordination, the medical home, provider availability, training and recruitment, family involvement, quality assurance, program funding, and financing. The brief includes one appendix: Action Plan for Children and Youth with Special Health Care Needs and Their Families: From the President's New Freedom Initiative.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Barriers, Case studies, Children with special health care needs, Collaboration, Early intervention, Eligibility, Federal programs, Individualized education programs, Individuals with Disabilities Education Act, Part C, Service coordination, Social Security Act, Title V, State programs, State programs

PACER Center. 2003. Is your child a target of bullying?: Intervention strategies for parents of children with disabilities. Minneapolis, MN: PACER Center, 1 CD-ROM.

Annotation: This CD-ROM contains a curriculum for professionals to present to parents of children with disabilities who are the targets of bullying. Information is presented as PDF files or PowerPoint presentations. The curriculum includes information about (1) common responses to bullying, (2) the Individualized Education Program (IEP) and bullying, (3) intervention strategies for parents whose child is the target of bullying, (4) notifying school administrators about bullying, (5) recordkeeping and bullying, and (6) talking to children about bullying. A reading list for young readers is also included.

Contact: PACER Center , 8161 Normandale Boulevard, Bloomington, MN 55437-1044, Telephone: (952) 838-9000 Secondary Telephone: (952) 838-0190 Fax: (952) 838-0199 Web Site: http://www.pacer.org Available from the website.

Keywords: Bullying, Children with special health care needs, Disabilities, Individualized education programs, Intervention, Parents, Schools

Schulzinger R. 2000. Understanding the 504 statute: The role of State Title V programs and health care providers. Gainesville, FL: Institute for Child Health Policy, Center for Policy and Partnerships, 26 pp. (Healthy and Ready to Work policy brief)

Annotation: This report was prepared to help Title V professionals understand the educational rights available to certain students with disabilities and chronic conditions under Section 504 of the Rehabilitation Act of 1973. The paper describes the basic components of the Federal law and suggests ways to strengthen collaboration between State Title V agencies and local schools to ensure that eligible students obtain the necessary accommodations and services to support their successful transition from high school to adult life. Specifically the paper describes the Federal law and regulations, eligibility criteria, complaint procedures available to enforce the law when students are not properly served; and ways that State Title V agencies can share their expertise with school personnel, including helping to refer potentially eligible students and suggesting appropriate accommodations to maintain wellness. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Disabilities, Eligibility, Federal legislation, Individualized education programs, State programs, Title V programs, Transition planning, Transition to independent living

Gallagher JJ. 1998. Planning for young children with disabilities and their families: The evidence from IFSP/IEPs. Chapel Hill, NC: University of North Carolina at Chapel Hill, Early Childhood Research Institute on Service Utilization, 29 pp.

Annotation: The purpose of this study was to analyze the goals statements produced from discussions involving 72 families, and the professionals serving their child, on either the Individualized Family Service Plan (IFSP) or the Individual Education Program (IEP) and to examine changes in these individual plans over time. The study attempts to discover the type and amount of goals generated by this process for both the IFSP and IEP for these young children with disabilities. These families were also part of a major case study project being conducted by McWilliam and his colleagues.

Keywords: Children with developmental disabilities, Families, Individualized education programs, Individualized family service plans, Research

Horsley JW, Allen ER, Daniel PW. 1996. Nutrition management of school age children with special needs: A resource manual for school personnel, families, and health professionals = Nutrition management of handicapped and chronically ill school children: A resource manual for school personnel, families and health professionals. (2nd ed.). Richmond, VA: Virginia Department of Health and Virginia Department of Education, 93 pp.

Annotation: This manual, a product of an interagency project between the Virginia Departments of Health and Education, is a guide for parents and professionals on the management of nutrition problems of school children with special needs. It helps school personnel plan nutrition services for students who have special health needs or are chronically ill. The information included facilitates the management of special diets and the expansion of nutrition education in the school curriculum. It includes information on these topics: common nutrition problems and interventions during the school day; dietary considerations of specific conditions and related factors; and nutrition goals and objectives for the individualized education program. Dietary considerations and sources of information and/or nutrition education materials for the following conditions are discussed: cerebral palsy, cystic fibrosis, diabetes mellitus, Down syndrome, juvenile rheumatoid arthritis, phenylketonuria, seizure disorders, spina bifida, constipation, feeding abnormalities, and tube feeding. Nine case studies are presented. The appendix includes information on lunch menu ideas for special diets, nutritious snacks, textural modifications, arthritis diet and drugs, complications of tube feeding, and PKU diet free foods. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHI113.

Keywords: Cerebral palsy, Children with special health care needs, Constipation, Cystic fibrosis, Diabetes mellitus, Down syndrome, Enteral nutrition, Epilepsy, Feeding disorders, Individualized education programs, Juvenile rheumatoid arthritis, Nutrition, Phenylketonuria, School food services, Spina bifida

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.