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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (71 total).

Gould Z, Smith H. 2025. State priorities in serving children and youth with chronic and complex medical needs . Washington, DC: National Academy for State Health Policy,

Annotation: This brief explores state policy strategies and priorities for improving systems of care for children and youth with chronic and complex health needs, including disabilities, medical complexities, and behavioral health disorders. It describes efforts to promote integrated and coordinated care through state agency alignment and Medicaid managed care arrangements while facilitating access to specialty care via workforce expansion and telehealth. The brief also addresses supports for transition-age youth, strategies to compensate family caregivers, and methods for engaging families as system partners. It features practice examples from Alaska, Delaware, Louisiana, Pennsylvania, and Texas and discusses policy considerations using national standards for care coordination and systems of care.

Keywords: Adolescents, Child health, Chronic illnesses and disabilities, Health care systems, Policy Development, Quality improvement, Service integration, Youth

Lu M, Chow J. 2025. Life Course History: Interview with David Barker. Los Angeles, CA: UCLA Center for Healthier Children, Families and Communities, (Life Course History)

Annotation: This blog post features an interview with Dr. David Barker regarding the life course health development framework and the fetal origins of chronic disease,. It explores the translation of life course principles into research, specifically examining how prenatal nutrition and birth weight influence the risk of coronary heart disease in later life. The document highlights different life course models of health, contrasting the accumulation of damage with the development of physiological resilience. Recommendations are included for interdisciplinary collaboration and research priorities concerning placental health, cognitive function, and childhood obesity.

Keywords: Child health, Chronic illnesses and disabilities, History, Life course, Maternal health, Models, Prenatal influences, Prental care, Research, Social determinants of health

Virginia Department of Health. 2019. Virginia's individuals with special health care needs oral health basic screening survey 2019 results. Richmond, VA: Virginia Department of Health, 20 pp.

Annotation: This report provides information about Virginia’s first Special Health Care Needs Oral Health Basic Screening Survey. The report describes results in the following areas: whether the respondent has a special health care need, respondent age and living situation, respondent health insurance and dental insurance status, whether the respondent had a problem with their teeth or mouth during the past 12 months, whether the respondent had a dentist to go to regularly and whether they had their teeth cleaned in the last 12 months, how confident the respondent or their caregiver is about caring for teeth at home, and whether anything prevented the respondent from receiving dental care in the past 12 months.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Chronic Illnesses and disabilities, Oral health, State initiatives, Surveys, Virginia

Chen A, Wilson D. 2017. How Medicaid expansion benefits maternal and child health. Washington, DC: National Health Law Program, 5 pp.

Annotation: This brief explains how the Affordable Care Act (ACA), through Medicaid expansion and expanded Medicaid coverage criteria for children, has improved maternal and child health (MCH). Topics include the impact of expanded coverage for women of reproductive age, particularly for preconception and interconception health care, and eligibility criteria for children ages 6 to 19 on MCH.

Keywords: Child health, Children, Chronic illnesses and disabilities, Health care reform, Health insurance, Health status, Maternal health, Maternal health services, Medicaid, Patient Protection and Affordable Care Act, Preconception care, Pregnant women, Prenatal care, Reproductive health, Women's health

Children's Dental Health Project. [2016]. Talking points on ending cavities for oral health advocates. Washington, DC: Children's Dental Health Project, 2 pp.

Annotation: This document provides talking points on ways to eliminate dental caries in children. Topics include the consequences of poor oral health on children and their families; costs for families and states; the role of primary care health professionals and other health professionals in providing oral health care; and the need for affordable, comprehensive dental coverage.

Keywords: Advocacy, Children, Chronic illnesses and disabilities, Dental caries, Dental insurance, Disease prevention, Oral health, Oral health care

Children's Dental Health Project. 2016–. EndCavities. Washington, DC: Children's Dental Health Project, multiple items.

Annotation: These resources for policymakers, health professionals, and health advocates provide information about and strategies for preventing dental caries in young children. Contents include talking points, fact sheets, an issue brief, infographics, and videos. Topics include risk-based care, oral health during pregnancy, and what states can do to prevent dental caries in early childhood. Findings on adults’ knowledge of oral health and prevention, strategies for reducing caries in a Medicaid population, and tips for encouraging local media to cover early childhood caries are also included.

Keywords: Advocacy, Chronic illnesses and disabilities, Costs, Dental caries, Dental insurance, Disease prevention, Low income groups, Medicaid, Oral health, Oral health care, Policy development, Pregnancy, Pregnant women, Risk factors, Safety, Young children

National Center on Health, Behavioral Health, and Safety. 2016-. Healthy habits for happy smiles. Washington, DC: National Center on Health, Behavioral Health, and Safety, 42 items.

Annotation: This series of handouts for pregnant women and parents of infants and young children provides simple tips on nutrition and oral health issues. Topics include brushing a young child’s teeth, choosing healthy drinks, encouraging children to drink water with fluoride, giving children healthy snacks, taking care of oral health for pregnant women, and taking care of an infant’s oral health. The series is written in simple language and is available in English and in Spanish. One handout, Using Silver Diamine Fluoride on Children's Teeth, is also available in Arabic, Chinese, Haitian Creole, Persian, and Somali.

Keywords: Asian language materials, Chronic illnesses and disabilities, Consumer education materials, Fluorides, Infants, Injury prevention, Non Englishs language materials, Nutrition, Oral health, Oral hygiene, Pregnant women, Preventive health services, Spanish language materials, Special health care needs, Young children

California Pan-Ethnic Health Network. 2016. Taking a bite out of oral health inequities: Promoting equitable oral health policies for communities of color. Oakland, CA: California Pan-Ethnic Health Network, 11 pp.

Annotation: This brief highlights oral health disparities within communities of color in California. Topics include oral health disparities and the impact of oral health inequities on communities of color, including oral health and children, oral health and employment, and oral health and chronic conditions. Also discussed are causes of oral health inequities, including lack of access to affordable care, absence of a culturally and linguistically competent work force, and social and environmental inequities. In addition, the brief provides policy recommendations (improving access to and quality of oral health care, ensuring that there is a culturally competent work force, and engaging in efforts to improve underlying socioeconomic inequities).

Keywords: Access to health care, Barriers, California, Children, Chronic illnesses and disabilities, Environmental influences, Equal opportunities, Health care disparities, Health status disparities, Oral health, Policy development, Social factors, State surveys, Work force

U.S. Department of Health and Human Services. 2016. 2015 annual report on the quality of care for children in Medicaid and CHIP: Chart pack. Washington, DC: U.S. Department of Health and Human Services, 75 pp.

Annotation: This document summarizes state reporting on the quality of health care service for children covered by Medicaid and the Children's Health Insurance Program (CHIP) during the fiscal year. which generally covers care delivered during the calendar year. Contents include detailed analyses of state performance on publicly reported measures. Topics include the child core set, primary care access and preventive care, perinatal care, care of acute and chronic conditions, behavioral health care, oral health services, and trends in state performance. Reference tables and additional resources are also included. The information presented is abstracted from the Annual Secretary's Report on the Quality of Care for Children in Medicaid and CHIP.

Keywords: Access to health care, Acute care, Adolescent health, Child health, Children's Health Insurance Program, Chronic illnesses and disabilities, High risk children, Measures, Medicaid, Mental health, Oral health, Perinatal care, Perinatal health, Preventive health services, Primary care, Program improvement, Progress reports, Quality assurance, State programs, Statistical data, Trends

Foster L, Booth M, Reusch C. 2015. Reducing early childhood tooth decay: An overview for state policymakers. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, 4 pp. (Issue brief)

Annotation: This brief for state policymakers presents strategies for addressing the problem of early childhood caries (ECC) in participants enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The brief defines ECC, describes the disproportionate impact of ECC on children ages 2–5 from families with low incomes and from minority households, and outlines ways that states can promote ECC prevention and management within Medicaid and CHIP policies. Topics include emphasizing prevention, assessing and addressing risk, educating and engaging parents, and supporting providers.

Keywords: Children's Health Insurance Program, Chronic illnesses and disabilities, Disease management, Disease prevention, Early childhood caries, Health care disparities, Health promotion, Low income groups, Medicaid, Minority groups, Oral health, Policy development, State programs, Young children

Foster L, Booth M, Reusch C. 2015. Reducing early childhood tooth decay: Leading steps for state policymakers. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, 3 pp. (Issue brief)

Annotation: This issue brief for state policymakers describes the problem of early childhood caries (ECC) and the leadership needed to address the problem. Topics include the proportion of children with untreated ECC, the disproportionate impact of untreated ECC on children from families with low incomes, and the important role of state leaders (including Medicaid and Children's Health Insurance Program managers) in assessing policy and implementing next steps. Topics include emphasizing prevention, promoting risk assessments and individualized care plans for children at high risk for ECC, and educating and engaging parents.

Keywords: Children's Health Insurance Program, Chronic illnesses and disabilities, Dental caries, Disease management, Disease prevention, Early childhood caries, Health care disparities, Health promotion, Low income groups, Medicaid, Oral health, Policy development, State programs, Young children

Reusch C, Booth M, Foster M. 2015. Reducing early childhood tooth decay: Strategies for state Medicaid and CHIP dental program managers. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, 5 pp. (Issue brief)

Annotation: This issue brief for state oral health program managers presents strategies for preventing and managing early childhood caries in children enrolled in Medicaid and the Children's Health Insurance Program (CHIP). The brief also provides examples of state efforts to implement prevention, risk-assessment, care-plan, and quality-improvement strategies in Medicaid and CHIP.

Keywords: Children's Health Insurance Program, Chronic illnesses and disabilities, Disease management, Disease prevention, Early childhood caries, Health care disparities, Health promotion, Low income groups, Medicaid, Oral health, Policy development, State programs, Young children

Martinez AK. 2015. State health department leadership in addressing chronic health conditions in schools: Case studies from Massachusetts and Missouri. Atlanta, GA: National Association of Chronic Disease Directors, 25 pp.

Annotation: These case studies highlight the work and accomplishments of state health agencies in Massachusetts and Missouri related to addressing chronic health conditions in the school environment. Topics include collaborating with health and education partners; strengthening school nursing infrastructure and health services, including oral health care; identifying and tracking students with chronic health conditions; and meeting management and care needs of students with chronic health conditions.

Keywords: Case studies, Chronic illnesses and disabilities, Collaboration, Disease management, Massachusetts, Missouri, Public health infrastructure, School age children, School health services, School nursing, Schools, Special health care needs, State health agencies

Special Olympics. 2014-. Project UNIFY toolkit. Washington, DC: Special Olympics,

Annotation: This toolkit provides resources to help schools implement Project UNIFY, an initiative that focuses on social inclusion that brings youth with and without intellectual disabilities together through sports and related activities. The resources describe Project UNIFY's vision, its major components, how to get started, implementation models, the connection to equal education and inclusion, evaluation reports, and the project's impact.

Keywords: Physical fitness, Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, School health programs, Sports

Soni A. 2014. The five most costly children's conditions, 2011: Estimates for the U.S. civilian noninstitutionalized children, ages 0-17. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 6 pp. (MEPS statistical brief; no. 434)

Annotation: This statistical brief presents data from the Household Component of the Medical Expenditure Panel Survey on medical expenditures associated with the five most costly conditions for children ages 0–17 in 2011. Topics include mental disorders, asthma/chronic obstructive pulmonary disease, trauma-related disorders, acute bronchitis and upper respiratory infections, and otitis media.

Keywords: Acute diseases, Adolescents, Asthma, Bronchitis, Children, Chronic illnesses and disabilities, Costs, Infants, Mental disorders, Otitis media, Pediatric care, Pulmonary disorders, Respiratory diseases, Statistics, Trauma

McDaniel M, Popkin SJ, Berman J, Barahona P, Saxena P, Quint D, Teach SJ. 2014. Making sense of childhood asthma: Lessons for building a better system of care. Washington, DC: Urban Institute, 33 pp.

Annotation: This report highlights key findings from a qualitative exploratory study about asthma care for African American and Latino children ages 4-14 from families with low incomes in Washington, DC. Topics include poor housing, the lack of health professionals in low-income neighborhoods, the gap between acute and chronic care, barriers to asthma management, and lessons for improving asthma care and children's asthma outcomes. The appendices contain information about the study sample, recruitment, lessons learned, and focus group and one-on-one interview discussion guides.

Keywords: Asthma, Blacks, Children, Chronic illnesses and disabilities, Critical care, Disease management, Hispanic Americans, Local initiatives, Low income groups, Pediatric care, Program improvement

Partnership for People with Disabilities, Virginia Commonwealth University, Virginia Department of Social Services, Virginia Department of Criminal Justice Services. 2014. Tipping the scales in their favor: Your role in recognizing and responding to abuse and neglect of children with disabilities. Richmond, VA: Virginia Commonwealth University,

Annotation: This is a prerecorded multidisciplinary course for family members of children with disabilities and the professionals who support them about preventing abuse and neglect of children with disabilities. Topics include how widespread abuse and neglect of children with disabilities is, why children with disabilities are at greater risk of abuse and neglect, why it is difficult to identify abuse and neglect in children with disabilities, and roles in identifying and reporting abuse and neglect of children with disabilities. The 3-session course lasts approximately 90 minutes.

Keywords: Adolescents, Bullying, Child abuse, Child neglect, Children, Chronic illnesses and disabilities, Families, Infants, Injury prevention, Interdisciplinary approach, Multidisciplinary teams, Special health care needs, Training, Violence prevention

Kleinman RE, ed. 2013. Pediatric nutrition handbook. (7th ed.). Elk Grove Village, IL: American Academy of Pediatrics, 1477 pp.

Annotation: This handbook is intended to serve as a ready reference for practicing clinicians on the requirements and metabolism of specific nutrients, methods of assessing nutrition status, and the nutrition support of healthy infants, children, and adolescents, as well as children with acute and chronic illness. Topics that arise frequently in pediatric practice, such as breastfeeding, the impact of diet on long-term health, the use of fast foods and vegetarian diets, food technology and novel foods or ingredients that may become available to consumers, and food labeling are also covered in individual chapters.

Keywords: Acute diseases, Adolescents, Child health, Child nutrition, Children with special health care needs, Chronic illnesses and disabilities, Food, Food labeling, Food preferences, Infant nutrition, Manuals, Nutrients, Nutrition assessment, Nutritional status, Pediatrics, Technology, Vegetarianism

Childhood Asthma Leadership Coalition. 2013. Making high-quality clinical care, case management and asthma education available to all children. Washington, DC: George Washington University School of Public Health and Health Services, Department of Health Policy, 5 pp. (Leveraging Affordable Care Act opportunities to improve childhood asthma outcomes)

Annotation: This chart describes several Affordable Care Act (ACA) provisions and implementation activities that target quality improvement of clinical care, case management and education for children with asthma, including enrolling Medicaid beneficiaries with chronic conditions into a health home; medication management services; educational tools to aid in patient decision-making and patient navigators to assist with linkages to community care; funding to support community and clinical prevention and wellness strategies; and upgrades to school based health centers. the chart also describes potential areas for asthma stakeholder engagement, policy research and development, and advocacy action at the national, state, and local levels.

Keywords: Health insurance, Access to health care, Asthma, Barriers, Child health, Children, Chronic illnesses and disabilities

Genetic Alliance, Family Voices. 2013. Children and youth with special healthcare needs in Healthy People 2020: A consumer perspective. Washington, DC: Genetic Alliance; Albuquerque, NM: Family Voices, 44 pp.

Annotation: This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Heath Needs in the Health Resources and Services Administration's Maternal and Child Health Bureau. The document provides background; discusses trends in programs, legislation, and care for children and youth with special health care needs (CYSCN); provides core performance measures for CYSCN; discusses who is at risk for chronic illnesses and disabilities; and offers information about preparing children and families for the future. Stories about individual children and families are included.

Keywords: Adolescents with special health care needs, Chronic illnesses and disabilities, Environmental influences, Families, Health services, Healthy People 2020: Children with special health care needs, High risk children, High risk infants, Infants with special health care needs, Legislation, Programs, Transition planning, Young adults

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The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.