Au SM. 2005. Expanded Newborn Screening Using Tandem Mass Spectrometry: Financial, Ethical, Legal and Social Issues Project: Final report. Honolulu, HI: Genetics Program, Hawaii Department of Health, 9 pp., plus appendices.
Annotation: This final report describes the Expanded Newborn Screening Using Tandem Mass Spectrometry: Financial, Ethical, Legal, and Social Issues Project during the period June 1, 2001, through August 31, 2005. This multi-state, collaborative project was designed to research, identify strategies, and develop materials for addressing the financial, ethical, legal,and social issues surrounding the use of tandem mass spectrometry for neonatal metabolic screening of culturally and ethnically diverse populations. Participating states included Hawaii, California, Idaho, Oregon, and Washington. The final report is divided into the following sections: (1) overview, (2) collaboration, (3) experiences to date, (4) dissemination of materials, (5) copies of publications and other materials, and (6) next steps. The report also includes seven appendices: (1) educational activities (development), (2) educational activities (products), (3) financial, ethical, legal, and social issues, (4) parent fact sheets, (5) professional fact sheets, (6) information dissemination, and (7) Web site. [Funded by the Maternal and Child Health Bureau]
Contact: Hawaii Department of Health, Genetics Program, 741 Sunset Avenue, Honolulu, HI 96816, Telephone: (808) 733-9055 Fax: (808) 733-9068 Web Site: http://www.hawaiigenetics.org
Keywords: California, Cultural diversity, Ethics, Ethnic factors, Final reports, Financing, Hawaii, Idaho, Legal issues, Neonatal screening, Oregon, Social factors, Washington