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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 6 (6 total).

Gates A. n.d.. Interagency Home Care Model for Ventilator Assisted Individuals in Louisiana: [Final report]. New Orleans, LA: Children's Hospital, 17 pp.

Annotation: This project developed a model for care and services, a services resource network and coordinated education and training resources. The project worked with over 40 families, published a book, Homeward Bound: Resources for Living at Home with a Chronically Ill Child, and produced training videotapes for health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152957.

Keywords: Chronic illnesses and disabilities, Dependence, Home-Based Health Care, Technology, Ventilator Dependence

Cataldo M. n.d.. Project ABLE - Altering Bowel Learning Effectively [Final report]. Baltimore, MD: Kennedy Institute for Handicapped Children, 9 pp.

Annotation: This project addressed the problem of fecal incontinence in children with myelomeningocele by developing an affordable instructional package for health care providers and a parent instruction program in order to help these children develop bowel control. Improvement was documented in half the children using this systematic home-based method. The training program included a videotape and written provider and parent manuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152999.

Keywords: Bowel Control, Chronically Ill, Home-Based Health Care, Meningomyelocele, Parent Education Clinics, Spina Bifida Association, Spina Bifida Incontinence, Toilet Training

Perrin J. n.d.. Home Care for Chronically Ill Children: Policy Analysis [Final report]. Boston, MA: Massachusetts General Hospital, Wang Ambulatory Care Center, 171 pp.

Annotation: The goal of this project was to improve the knowledge base from which policymakers and program directors make decisions regarding implementation of community-based and home-based services for children with long-term health care needs. Strategies included a literature review, a review of current innovative home and community-based programs, and the dissemination of findings and recommendations by means of publications and a state-of-the-art conference. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106358.

Keywords: Children, Chronically Ill, Community-Based Health Services, Data Collection from, Home-Based Health Care, Primary Care Centers, Technology Dependence

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161891.

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Nielson D. 1991. Quality home care for chronically ill children in a sparsely populated area [Final report]. Salt Lake City, UT: Utah Department of Health and the University of Utah, 13 pp.

Annotation: This project determined the number of technology-dependent children in home care in the project area and identified problems encountered by their caregivers and support service providers in order to develop a model program for children who require technologically sophisticated care. Other activities included development and implementation of protocols, standards of care, and teaching materials; dissemination of information; and development of a clinical outreach program. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196830.

Keywords: Chronic illnesses and disabilities Rural Population, Cystic Fibrosis, Financing Health Care, Home-Based Health Care, Outreach, Reimbursement, Technology Dependence

   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.