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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (341 total).

Holden E. n.d.. Families in Transition: [Final report]. Baltimore, MD: University of Maryland at Baltimore, 39 pp.

Annotation: Families in Transition (FIT) was a comprehensive health care program for homeless children and their families that was a collaborative effort between the University of Maryland School of Medicine and Health Care for the Homeless, Inc. The FIT program provided primary health care services and a wide array of psychosocial services to homeless children and their families. A substantial emphasis was placed upon outreach services that involved linking and collaborating with other service systems in the community. The FIT program developed an innovative model of service delivery that addressed the needs of thousands of homeless children and their families over its five years of operation. Material were developed and information was disseminated that will assist with the development and replication of these types of programs in the future. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-134876.

Keywords: Case Management, Families, Healthy Tomorrows Partnership for Children, Homelessness, Preventive Health Care

Calkins R. n.d.. Planning and Establishment of a Parent-Child Development Center=Family Based Education Centers: [Final report]. Honolulu, HI: Kamehameha Schools/Bishop Estate Center for Development of Early Education, 50 pp.

Annotation: This project developed a model integrated service system of educational, health, and social service programs for families of Hawaiian children (prenatal to age 5 years) who are disproportionately at risk for health, social, and educational handicaps. Four Native Hawaiian Family Based Education Centers were established, with three core educational components: A home visiting program, a traveling preschool program, and a center-based preschool. Activities included conducting an extensive assessment of community needs and developing ongoing ties with institutions of higher learning in the State. Strong health promotion and social service programs complemented the educational focus, and a case management system helped families assess their own goals in each of these areas. Community participation and ownership of the program were critical components. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147023.

Keywords: Community-Based Education Programs, Data Collection, Early Intervention, Education, Family-Based, Hawaiians, Home Visiting, Infant Mortality, Learning Disabilities, Low Birthweight, Parents, Prenatal Care

Peter M. n.d.. Medical Home Project: [Final report]. Honolulu, HI: Hawaii Medical Association, 30 pp.

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121-891.

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Gates A. n.d.. Interagency Home Care Model for Ventilator Assisted Individuals in Louisiana: [Final report]. New Orleans, LA: Children's Hospital, 17 pp.

Annotation: This project developed a model for care and services, a services resource network and coordinated education and training resources. The project worked with over 40 families, published a book, Homeward Bound: Resources for Living at Home with a Chronically Ill Child, and produced training videotapes for health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152957.

Keywords: Chronic illnesses and disabilities, Dependence, Home-Based Health Care, Technology, Ventilator Dependence

Kaufman J. n.d.. A Model for Home and Community Care for Children who are Technology Assisted [Final report]. Baltimore, MD: Children's Medical Services , 13 pp.

Annotation: This project developed a model for public/private sector collaboration in the financing and case management of home care for technology-assisted children. The project also developed a methodology for educating professionals in case management for family-centered care; identified and analyzed options to hospitalization; and provided family-centered case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158269.

Keywords: Children with special health care needs, Community based care, Financing, Home care, Technology dependent, Ventilator dependent

Cataldo M. n.d.. Project ABLE - Altering Bowel Learning Effectively [Final report]. Baltimore, MD: Kennedy Institute for Handicapped Children, 9 pp.

Annotation: This project addressed the problem of fecal incontinence in children with myelomeningocele by developing an affordable instructional package for health care providers and a parent instruction program in order to help these children develop bowel control. Improvement was documented in half the children using this systematic home-based method. The training program included a videotape and written provider and parent manuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152999.

Keywords: Bowel Control, Chronically Ill, Home-Based Health Care, Meningomyelocele, Parent Education Clinics, Spina Bifida Association, Spina Bifida Incontinence, Toilet Training

Perrin J. n.d.. Home Care for Chronically Ill Children: Policy Analysis [Final report]. Boston, MA: Massachusetts General Hospital, Wang Ambulatory Care Center, 171 pp.

Annotation: The goal of this project was to improve the knowledge base from which policymakers and program directors make decisions regarding implementation of community-based and home-based services for children with long-term health care needs. Strategies included a literature review, a review of current innovative home and community-based programs, and the dissemination of findings and recommendations by means of publications and a state-of-the-art conference. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-106358.

Keywords: Children, Chronically Ill, Community-Based Health Services, Data Collection from, Home-Based Health Care, Primary Care Centers, Technology Dependence

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161891.

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Johnson C. n.d.. Making It Work for Children with Special Needs: The Family, the Community, the State [Final report]. Morgantown, WV: W. G. Klingberg Center for Child Development, 17 pp.

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121867.

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Strahs B. n.d.. Family Shelter Project [Final report]. Philadelphia, PA: Philadelphia Department of Public Health, 66 pp.

Annotation: This project addressed the dramatic rise in homelessness and substance abuse, the relationship between the two problems, and the increasing number of homeless families. The Family Shelter Project provided leadership and coordination for a broad range of health, social, and educational services to be provided to pregnant women, mothers, and children in a therapeutic community which has been established within a city shelter for homeless families. In addition, the project established a professional development collaborative to enhance the capacity of health professionals and those in related professions to serve the homeless, particularly the substance-abusing maternity services population. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-216208.

Keywords: Child Abuse and Neglect, Collaboration of Care, Education of Health Professionals, Families, High risk groups, Homeless, Low income groups, Mothers, Pregnant Women, Prenatal Care, Substance Abuse, Urban Populations

National Partnership for Dental Therapy. n.d.. Roles and functions of the oral health team. [no place]: National Partnership for Dental Therapy, 1 p.

Annotation: This fact sheet provides information on the roles and functions of oral health professionals and other providers that make up oral health teams. Information on dentists, dental hygienists, dental therapists, dental assistants, community care connectors, and non-oral-health professionals is included. Others that may be part of an oral health team are also mentioned, including denturists, dental aides, mental and behavioral health professionals, and home health aides.

Contact: National Partnership for Dental Therapy, Web Site: https://www.dentaltherapy.org Available from the website.

Keywords: Community health aides, Dental assistants, Dental hygienists, Dentists, Health professionals, Home health aides, Mental health professionals, Oral health, Patient care teams

American Academy of Pediatrics . 2024 . Medical home . Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home,

Annotation: This website offers a collection of resources focused on improving the health and well-being of children and youth with special health care needs and their families by enhancing the patient/family-centered medical home. Included are tools for medical home implementation; care coordination materials, health equity resources; Information for families and caregivers; state and national initiatives; and promising program models.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home

Keywords: Care coordination, Family centered care, Federal initiatives, Health equity, Medical home, Patient education materials, Professional education, State initiatives

Prenatal-to-3 Policy Impact Center . 2024. Prenatal-to-3 state policy roadmap . Nashville, TN: Prenatal-to-3 Policy Impact Center ,

Annotation: This roadmap provides detailed information on policies and strategies that foster nurturing environments for infants and toddlers and reduce disparities in access and outcomes. Published annually, the roadmap is designed to help state leaders (1) Assess the wellbeing of its infants and toddlers and prioritize state policy goals; (2) Identify evidence-based policy solutions proven to impact policy goals; (3) Monitor states’ adoption and implementation of effective policies and strategies; and (4) Track the impact that policy changes have on improving the wellbeing of children and families and reducing disparities between racial and ethnic groups. A summary of each state’s progress is included.

Contact: Prenatal-to-3 Policy Impact Center , Vanderbilt University , Peabody College of Education and Human Development, Nashville, TN 37203, E-mail: https://pn3policy.org/contact/ Web Site: https://pn3policy.org/

Keywords: Child health, Data collection, Early childhood development, Family leave, Health care access, Health status disparities, Home visits, Infant health, MCH programs, Policy, Prenatal care, State initiatives, State policy

Kirchner J. 2024. State strategies to mitigate the impact of housing instability on child welfare involvement . Washington, DC: National Governors Association, 5 pp.

Annotation: This brief highlights the association between child welfare involvement and the lack of stable and adequate housing among children who end up in the foster care system. It presents an overview of the complex problem and provides examples of policy levers state governors have at their disposal to address housing challenges before children are removed from their homes and separated from their families.

Contact: National Governors Association, 444 North Capitol Street, Suite 267, Washington, DC 20001-1512, Telephone: (202) 624-5300 Secondary Telephone: E-mail: [email protected] Web Site: http://www.nga.org

Keywords: Child health, Families, Foster care, Homelessness Child welfare, Housing, Policy development , Prevention

Family Connects Chicago . 2024. Family Connects Chicago 2024 report . Chicago, IL: Family Connects Chicago , 18 pp.

Annotation: This report describes the Family Connects Chicago program, a free in-home nurse visiting service available to all Chicago families with newborns born at participating hospitals. It explains how the program offers physical checkups for birthing parents and infants, connects families with community resources, and addresses health disparities, particularly the higher rates of maternal and infant mortality among Black families in Chicago. The report highlights FCC's 2023 results, including 2,649 nurse visits across 77 Chicago community areas, with 96% of participating families finding the program helpful. It features a map showing completed home visits by region and discusses the six Community Alignment Boards that help FCC understand and meet neighborhood-specific needs. The report includes photographs of diverse families with newborns and contains information about participating hospitals, program impacts, and ways to get involved or learn more about the program.

Contact: Family Connects Chicago , Chicago Department of Public Health , Chicago, IL E-mail: https://www.chicago.gov/city/en/sites/onechifam/home/contact.html Web Site: https://www.chicago.gov/city/en/sites/onechifam/home/family-wellness/family-connects.html

Keywords: Community based services, Family support services, Home visiting, Illinois, Maternal health, Model programs, Newborn infants, Nurses, Postpartum care

Prenatal-to-3 Policy Impact Center . 2023. Evidence-based home visiting programs. Nashville, TN: Prenatal-to-3 Policy Impact Center ,

Annotation: This policy brief examines evidence-based home visiting programs as an effective strategy to support parents and young children from the prenatal period through age three. It describes how home visiting programs provide support and education to parents through trained professionals or paraprofessionals in home-based settings, with services now available both traditionally and virtually. The brief details the positive impacts on parenting skills, state variations in implementation approaches, funding mechanisms including Medicaid, and the percentage of eligible families served across states. It highlights leading states like Illinois, Iowa, Kansas, Maine, and New York, and summarizes recent state initiatives to enhance these programs through increased funding and expanded eligibility.

Contact: Prenatal-to-3 Policy Impact Center , Vanderbilt University , Peabody College of Education and Human Development, Nashville, TN 37203, E-mail: https://pn3policy.org/contact/ Web Site: https://pn3policy.org/

Keywords: Early intervention, Financing, Home Visits, Illinois, Iowa, Kansas, MCH programs, Maine, Medicaid, Model programs, New York, Parent support services, Policy, Prenatal care

National Resource Center for Health and Safety in Child Care; American Academy of Pediatrics (AAP), American Public Health Association (APHA). 2022. Stepping stones to caring for our children: National health and safety performance standards–Guidelines for early care and education programs: Protecting children from harm (updated ed.). Denver, CO: University of Colorado Health Sciences Center, National Resource Center for Health and Safety in Child Care, Various

Annotation: These guidelines contain a set of standards to advance the quality and safety of early care and education environments. It is a companion to Caring for Our Children: National Health and Safety Performance Standards -- Guidelines for Early Care and Education Programs, 3rd edition. Included are new and updated standards on on safe sleep, handling and feeding of human milk, introducing solid foods to infants, monitoring children's development, unimmunized children, preventing expulsions, and availability of drinking water. [Funded by the Maternal and Child Health Bureau]

Contact: National Resource Center for Health and Safety in Child Care and Early Education, University of Colorado Denver, 13120 East 19th Avenue, Mail Stop F541, P.O. Box 6511, Aurora, CO 80045, Telephone: (800) 598-5437 (598-KIDS) Fax: (303) 724-0960 E-mail: [email protected] Web Site: http://nrckids.org Available from the website.

Keywords: Child care, Child care centers, Children with special health care needs, Facilities, Health promotion, Learning activities, Management, Nutrition, Out of home care, Personnel, Prevention, Safety, Spanish language materials , Standards

National Center for Medical Home Implementation. 2022. Fostering partnership and teamwork in the pediatric medical home: A "how to" webinar series. Elk Grove Village, IL: National Center for Medical Home Implementation, multiple items.

Annotation: This video series for primary care health professionals and others focuses on partnership and teamwork in pediatric care delivery. Contents include prerequisites of and strategies for implementation and examples of best practice. Topics include implementing team huddles, enhancing care partnership support, and starting and supporting family advisory groups [Funded by the Maternal and Child Health Bureau]

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home Available from the website.

Keywords: Continuing education, Family centered care, Health care delivery, Medical home, Model programs, Multimedia, Patient care teams, Pediatric care, Primary care, Teamwork

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.