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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 3 (3 total).

Pearson HA, Berman LC, Crocker AC, eds. 1997. Thalassemia intermedia: A Region I conference. Arlington, VA: National Center for Education in Maternal and Child Health, 52 pp.

Annotation: These proceedings are from a conference sponsored by the New England Thalassemia Program held in Boston on November 14, 1996. They define thalassemia intermedia, present data from patients, discuss research at the National Institutes of Health on the use of sodium phenylbutyrate and hydroxyurea to stimulate fetal hemoglobin, and analyze the molecular basis of the disease. Other presentations deal with the assessment of iron overload, the use of chelation therapy, splenectomy, and infection control. Finally, there is a panel discussion about treatment approaches. The proceedings are published as a special issue of The Genetic Resource (vol 11, no. 2). [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Available from the website. Document Number: ISBN 1-57285-041-8.

Keywords: Conference proceedings, Genetic disorders, Hematologic diseases, Thalassemia

Hutchins VL, Duffy EA. 1981. Psychological and social components of comprehensive care for persons with hemophilia and their families. Rockville, MD: U.S. Department of Health and Human Services, Office for Maternal and Child Health, 6 pp.

Annotation: This paper presents an attempt to meet a request by hemophilia diagnostic and treatment centers for guidance to assist them in meeting the requirement for mental health services as part of comprehensive care for patients and their families. The guidance consists of listing the psychological and social components in a comprehensive hemophilia care center at the primary, secondary and tertiary care levels. Professional staff roles and related services are also discussed in terms of what is desirable for effective care.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Photocopy available at no charge. Document Number: HRSA Info. Ctr. MCHB107; DHHS (HSA) 81-5247A.

Keywords: Hematologic diseases, Hemophilia

Ross Conference on Pediatric Research (48th: 1963: Madison, WI). 1965. Aplastic anemia. Columbus, OH: Ross Laboratories, 111 pp. (Report of the Forty-eighth Ross conference on Pediatric Research)

Annotation: This conference report discusses granulocytopoiesis, humoral control, erythrokinetics, the role of DNA reutilization in kinetics of the thymolymphatic system, embryonic thymus development and thymic function, the thymus and its relationship to other proliferative systems, blood cell chimerism, bone marrow transplantation, pathogenesis of bone marrow failure associated with chloramphenicol, pathogenesis of bone marrow failure associated with phenothiazine derivatives, aplastic anemia in children, association of paroxysmal nocturnal hemoglobinuria and aplastic anemia, congenital and genetically influenced syndromes associated with aplastic anemia, and the role and results of the American Medical Association study group on blood dyscrasias.

Keywords: Anemia, Children with special health care needs, Conferences, Hematologic diseases

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.