Search Results: MCHLine

Annotation: This brochure provides information for parents of children with hearing loss. The brochure discusses genetics and hearing loss; insurance and paying for genetic testing; what parents should do once hearing loss has been diagnosed; why it is important for children with hearing loss to be seen by a geneticist; how to prepare for the genetics appointment; and what happens at the appointment.

Contact: American College of Medical Genetics, 7220 Wisconsin Avenue, N.W., Suite 300, Bethesda, MD 20814, Telephone: (301) 718-9603 Fax: (301) 718-9604 E-mail: [email protected] Web Site: http://www.acmg.net Available from the website.

• English
• Spanish

Keywords: Children, Consumer education materials, Genes, Genetic disorders, Genetic screening, Genetic services, Genetics, Hearing disorders, Hearing screening, Hearing tests, Infants

Annotation: This fact sheet for parents provides information about hearing loss in children. It explains what hearing loss in children is; discusses some signs of hearing loss, what causes it, and whether it can be prevented; and what parents can do it they suspect that their child has hearing loss. The fact sheet is printed in English on one side and in Spanish on the other.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

• PDF

Keywords: Child development, Children, Consumer education materials, Early childhood development, Hearing disorders, Hearing screening, Hearing tests, Heath services, Infant development, Infants, Prevention, Spanish language materials

Annotation: This bochure describes the importance of newborn screening in the early detection of heritable and genetic conditions that may otherwise be hidden in infancy or early childhood. It outlines the history of newborn screening in the United States in the past 50 years, the importance of blood-spot samples from every newborn being screened by a laboratory, the public health success of newborn screening, the economic benefits of early detection of conditions, the success of pre-discharge hearing and heart screening, and the importance of evolving and improving newborn screening. The brochure contains tables describing the most common disorders screened for and partners in the screening process. It also provides several vignettes of people who were diagnosed with various conditions and were able to lead healthy lives because their conditions could be treated if diagnosed early.

Contact: Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700 , Silver Spring, MD 20910, Telephone: (240) 485-2745 Secondary Telephone: (240) 485-2747 Fax: (240) 485-2700 E-mail: [email protected] Web Site: http://www.aphl.org Available from the website.

• PDF

Keywords: Blood tests, Genetic screening, Hearing tests, Neonatal screening, Newborn infants, Screening tests

Annotation: This guide provides information about and examples of critical components of high-quality websites that support early hearing detection and intervention (EDHI). The guide is designed to increase EDHI administrators' knowledge about key elements of effective websites. The guide also helps administrators work with partners, particularly those that design, develop, and market their sites. The guide includes information about the importance of creating standards-compliant sites that are accessible to those with disabilities. Topics include content, design and layout, key components, and marketing and management. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org Available from the website.

• PDF

Keywords: Collaboration, Design, Diagnosis, Disabilities, Early intervention, Graphic design, Hearing screening, Hearing tests, Marketing, Resource materials, Screening, Standards, World wide web

Annotation: This strategic plan for 2011-2015 discusses overarching goals and priorities for the Arizona Department of Health Services, Bureau of Women's and Children's Health. For each priority, strategies and performance measures are described.

Contact: Arizona Department of Health Services, Bureau of Women's and Children's Health, 150 N. 18th Ave., Suite 320, Phoenix, AZ 85007, Telephone: (602) 364-1400 Fax: (602) 364- 1495 E-mail: [email protected] Web Site: http://www.azdhs.gov/phs/owch/index.htm Available from the website.

• Link

Keywords: Access to health care, Adolescent health, Adolescent pregnancy, Adolescents with special health care needs, Arizona, Child health, Children with special health care needs, Female adolescents, Health services, Hearing disorders, Hearing screening, Hearing tests, Injury prevention, Obesity, Pregnancy, Prevention, Reproductive health, Transition to independent living, Women', s health

Annotation: This e-book discusses the foundation and evolution of early hearing detection and intervention, newborn hearing screening, tracking and follow-up, assessment of young children, parent counseling in the Internet age, assistive devices, early intervention, family support and cultural competence, quality assurance and improvement, financing and sustainability, information management, and early childhood screening. Chapters can be downloaded individually and will be updated as needed. The book can also be obtained on CD. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Resource Center for Early Hearing Detection and Intervention, National Center for Hearing Assessment and Management, Utah State University, 2880 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 E-mail: [email protected] Web Site: http://www.infanthearing.org/tas/index.html Available from the website.

• Link

Keywords: Cultural competence, Early intervention, Family support, Financing, Hearing disorders, Hearing screening, Hearing tests, Infants, Parent education, Parents, Quality assurance, Young children

Annotation: This brochure for parents of newborns provides information about newborn screening conducted to detect hidden disorders. The brochure explains what newborn screening is, how it is done, and its purpose. The brochure also discusses what hidden disorders are, why screening is important, whether parents can elect not to have their infant screened, screening costs, what happens to blood samples, whether infants can be screening for other disorders, and where to go for more information. It is available in English and Spanish.

Contact: Wisconsin Newborn Screening Laboratory, University of Wisconsin at Madison, 465 Henry Mall, Madison, WI 53706, Telephone: (608) 262-1293 Fax: (608) 262-3257 Web Site: http://www.slh.wisc.edu Available from the website.

• English
• Spanish

Keywords: Consumer information materials, Disorders, Genetic disorders, Genetic screening, Hearing disorders, Hearing screening, Infant health, Neonatal screening, Screening tests, Spanish language materials

Annotation: This brochure for parents describes the need for hearing screening in newborn infants, how hearing loss impacts infant and child development, what techniques are used, and how results are interpreted.

Contact: Vermont Department of Health, Division of Health Improvement, 108 Cherry Street, P.O. Box 70, Burlington, VT 05402, Telephone: (802) 865-1333 Secondary Telephone: (800) 660-4427 Web Site: http://healthvermont.gov/admin/hi/hi.aspx Available at no charge; also available from the website.

• PDF

Keywords: Child development, Consumer education materials, Hearing screening, Hearing tests, Neonatal screening, Newborn infants, Vermont

Annotation: This report, which is geared toward health professionals, discusses the common problem of failure to return for a follow-up examination among infants who are identified with hearing loss. The report aims to provide information to reduce the extent of this problem. The report addresses the following issues: (1) why don't some parents return for a follow-up examination? and (2) what all parents need to know before the leave the hospital. A list of free publications from the National Institute on Deafness and Other Communication Disorders is included, as are lists of resources for parents of a child with hearing loss, support services, general information and referral services, communication options, and clinical studies. The document is also available from the Web site in Spanish.

Contact: National Institute on Deafness and Other Communication Disorders Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892-3456, Telephone: (800) 241-1044 Secondary Telephone: (800) 241-1055 Fax: (301) 770-8977 E-mail: [email protected] Web Site: http://www.nidcd.nih.gov/Pages/default.aspx Available from the website.

• English Version
• Spanish Version

Keywords: Child health, Hearing disorders, Hearing screening, Hearing tests, Infant health, Parents, Spanish language materials

Annotation: This guide, which is geared toward health professionals, is designed to help readers comply with Wisconsin's statute requiring newborn screening. The guide provides information about the test panel and newborn screening timeline, when and how to collect a blood specimen, specimen handling and mailing, laboratory testing and reporting, treatment centers and where to go for more information, newborn screening disorders, newborn hearing screening, newborn screening statute WS.253.13, newborn screening funding, the Wisconsin newborn screening advisory group, and newborn screening program administration.

Contact: Wisconsin Newborn Screening Laboratory, University of Wisconsin at Madison, 465 Henry Mall, Madison, WI 53706, Telephone: (608) 262-1293 Fax: (608) 262-3257 Web Site: http://www.slh.wisc.edu Available from the website.

• PDF

Keywords: Financing, Hearing screening, Legislation, Neonatal screening, Screening tests, Wisconsin

Annotation: This issue of "Seminars in Hearing" summarizes the procedures and current results of the Rhode Island Hearing Assessment Project (RIHAP) which was designed to systematically evaluate the feasibility, validity and cost efficiency of using a recently introduced technique, transient evoked otoacoustic emissions (TEOAE), to screen infants for hearing loss. It discusses the implications from RIHAP for policy and practice related to neonatal hearing screening. Self-assessment questions follow each article to allow the reader to review the material. The issue includes a computer disk which contains supplementary information, such as otoacoustic emissions (OAE) applications software, to assist readers understand the material presented in the articles. [Funded by the Maternal and Child Health Bureau]

Contact: Thieme Medical Publishers, 333 Seventh Avenue, New York, NY 10001, Telephone: (212) 760-0888 Fax: (212) 947-1112 E-mail: [email protected] Web Site: http://www.thieme.com Available in libraries.

Keywords: Early intervention, Hearing disorders, Hearing tests, Infants, Professional education, Screening

Annotation: This report summarizes a Maternal and Child Health Bureau funded project presented at a seminar June 24, 1993. One project goal was developing a time-efficient and cost-effective test for simultaneously screening speech, language, and hearing in young children. Another goal was developing a standard screening tool for predicting the developmental status of preschool children. The report discusses developing and testing the project prototype, components of the simultaneous screening test, and study design and methodology. It ends with comments and reaction to the project. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Photocopy available at no charge; also available from the website.

• PDF
• Series Page

Keywords: Developmental screening, Hearing screening, Language development, MCH research, Preschool children, Screening tests, Speech development

Annotation: This book contains state-of the-art information on early identification of auditory dysfunction in children which was presented at the International Symposium on screening children for Auditory Function. The topics are: (1) some of the critical problems involved in screening children; (2) issues, techniques, and model programs associated with newborn screening; (3) and (4) issues concerned with screening preschool and school age children; and (5) intervention issues and strategies appropriate for children with hearing loss. The book also contains appendices, references, an author index, and a subject index. [Funded by the Maternal and Child Health Bureau]

Contact: Bill Wilkerson Center, 1114 19th Avenue, South, Nashville, TN 37212, Telephone: (615) 320-5353 Secondary Telephone: (615) 340-5711 Available in libraries. Document Number: ISBN 0-9631439-0-5.

Keywords: Audiologists, Audiology, Early intervention, Hearing screening, Hearing tests, High risk infants, Newborn infants, Otitis media, School age children

Annotation: This continuation project followed successful completion of a 3-year project originally designed for 5 years. The overall goals were to (1) develop a means of screening for speech, language, and hearing problems in a child health setting, using no more time than is ordinarily committed to hearing screening alone; and (2) improve current hearing screening procedures in order to be more sensitive to a wider range of audiologic impairments than is possible by routine pure tone screening. The project developed a prototype system called the Pediatric Communication Screening System (PCSS). The system shows clear potential as an efficient means to screen for hearing, articulation, and language. Large scale validation studies of representative populations are still needed to define cut off points for prediction of speech, language and hearing outcomes. In addition, replication of these studies would be needed to confirm findings. It is hoped that after these projects, the Pediatric Communication Screening System could be recommended for clinical use. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-105889.

Keywords: Hearing disorders, Hearing tests, Language disorders, Preschoolers, Screening, Speech disorders

Annotation: This project's goals were to evaluate and improve the auditory testing techniques used with severely and profoundly multihandicapped (S/PMH) children, and longitudinally investigate the auditory development of S/PMH children. Evidence was found that indicated the traditional methods and interpretive techniques used in testing the hearing of S/PMH children should be modified to best serve this population. The popular method of testing, as used with nonhandicapped infants and young children, requires modifications in the way the tests are performed and in the way results are interpreted when applied to S/PMH individuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB90-147471.

Keywords: Adolescents, Audiometry, Auditory Brainstem Evoked Response, Hearing Tests, Noise-Tone Difference Testing

Annotation: This report discusses visits to MCH funded projects in Israel and Yugoslavia and visits to Iceland, the Netherlands, and Hungary. It provides information on neonatal projects designed to develop procedures for early identification of hearing loss.

Keywords: Hearing screening, Hearing tests, Hungary, Iceland, Israel, MCH programs, Neonatal screening, Netherlands, Yugoslavia

Annotation: This publication is a revised edition of a guide drafted for members of the Children's Bureau staff to be used in consulting with states that were developing programs in audiology. This publication contains suggested principles which have been selected from a number of sources and reviewed by specialists in the field of audiology as well as those in allied fields. [Funded by the Maternal and Child Health Bureau]

Contact: HathiTrust Digital Library, University of Michigan, Telephone: (734) 764-8016 E-mail: [email protected] Web Site: https://www.hathitrust.org/digital_library

• Link

Keywords: Children, Deafness, Diagnosis, Hearing aids, Hearing disorders, Hearing screening, Hearing tests

Annotation: This publication is a revised edition of a guide drafted for members of the Children's Bureau staff to be used in consulting with states that were developing programs in audiology. This publication contains suggested principles which have been selected from a number of sources and reviewed by specialists in the field of audiology as well as those in allied fields. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

• PDF

Keywords: Children, Children', Deafness, Diagnosis, Hearing aids, Hearing disorders, Hearing screening, Hearing tests, s Bureau