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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

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Genetic Alliance, Family Voices. 2013. Children and youth with special healthcare needs in Healthy People 2020: A consumer perspective. Washington, DC: Genetic Alliance; Albuquerque, NM: Family Voices, 44 pp.

Annotation: This document examines Healthy People 2020 objectives and serves as a companion to Envision 2020, the 10-year strategic plan for the Division of Services for Children with Special Heath Needs in the Health Resources and Services Administration's Maternal and Child Health Bureau. The document provides background; discusses trends in programs, legislation, and care for children and youth with special health care needs (CYSCN); provides core performance measures for CYSCN; discusses who is at risk for chronic illnesses and disabilities; and offers information about preparing children and families for the future. Stories about individual children and families are included.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Adolescents with special health care needs, Chronic illnesses and disabilities, Environmental influences, Families, Health services, Healthy People 2020: Children with special health care needs, High risk children, High risk infants, Infants with special health care needs, Legislation, Programs, Transition planning, Young adults
   

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