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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (32 total).

Nelson R. n.d.. Demonstration of a Regional Nutrition Program for Handicapped or At-Risk Children: [Final report]. Iowa City, IA: University of Iowa, 40 pp.

Annotation: This project's goals were to provide comprehensive community-based nutrition consultation services to children with special health needs, nutrition-related intervention to children and adolescents identified as high risk for future coronary heart disease, and nutrition-related weight management services to children and adolescents identified as obese. The objectives were to: (1) Make available a comprehensive nutritional program for children with handicapping conditions or chronic diseases by means of screening and, if needed, through their involvement in a nutrition care plan; (2) identify at an early age and screen for hypercholesterolemia those children and adolescents who have a family history of coronary heart disease and to provide them and their families with subsequent dietary and other risk factory counseling; and (3) make available a comprehensive, individualized regional weight management program for obese children and adolescents and their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152916.

Keywords: Children with special health care needs, Handicapped High risk children, Heart Disease, Nutrition, WIC Program

Roberts RN, Innocenti MS, Goetze LD. 1997. State part H evaluators' consortium synthesis report = By what outcomes should part H be evaluated at the state level? Proceedings of the state part H evaluators' consortium. Logan, UT: Utah State University, Early Intervention Research Institute, 64 pp.

Annotation: This proceedings, prepared for the Subcommittee on Service Integration and Continuity of Services of the Federal Interagency Coordinating Council, discusses how to evaluate early childhood intervention programs under the Education of the Handicapped Act Amendments of 1986, Part H: Infants and Toddlers Program (P.L. 99-457, Part H). It then discusses service integration, eligibility for service, cost-effectiveness, outcomes, measurement, and lessons learned from the evaluations. State evaluations are described for California, Colorado, Connecticut, Florida, Hawaii, Michigan, New Jersey, North Carolina, Pennsylvania, and Utah. [Funded by the Maternal and Child Health Bureau]

Contact: Utah State University, Early Intervention Research Institute, 1400 Old Main Hill, Logan, UT 84322-1400, Telephone: (435) 797-1000 Secondary Telephone: (800) 8877-1699 Fax: (435) 797-2019 Web Site: http://www.eiri.usu.edu Available from the website.

Keywords: Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Federal legislation, Interagency cooperation, Part H, Program evaluation, Public policy, Service delivery systems, State programs

Clifford RM, Kates DA, Black T, Eckland JD, Bernier K. 1991. Reconceptualization of financing under P.L. 99-457, Part H. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 12 pp.

Harbin, G. L., Eckland, J., Gallagher, J., Clifford, R., and Place, P. 1991. State policy development for P.L. 99-457, Part H: Initial findings from six case studies. Chapel Hill, NC: Carolina Institute for Child and Family Policy, University of North Carolina at Chapel Hill, 24 pp.

Annotation: This report presents findings from the first year of a three-year study of six states (described anonymously) to examine the factors that influence progress in the stages of policy implementation of the Education of the Handicapped Act Amendments of 1986, Part H (P.L. 99-457, Part H), the early intervention program for handicapped infants and toddlers. The case studies include site visits, extensive interviews with key actors in the state policy process, and analysis of documents such as statutes and interagency agreements.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, Policy development, State policy

Anderson, K., Place, P., Gallagher, J., and Eckland, J. 1991. Status of states' policies that affect families: Case management—P.L. 99-457, Part H, The Infants and Toddlers with Handicaps Program. Chapel Hill, NC: Carolina Institute for Child and Family Policy, University of North Carolina at Chapel Hill, 20 pp.

Annotation: This report, one of three relating to states' policies that affect families with children with special health needs, deals with the selection of case managers, qualifications and training of case managers, vehicles to monitor and supervise case managers, and financing the case management system. The policies considered will be affected by the implementation of Part H of the Education of the Handicapped Act Amendments of 1986.

Keywords: Case management, Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Families, Federal legislation, State policy

Place PA, Anderson K, Gallagher JJ, Eckland JD. 1991. Status of states' policies that affect families: The early intervention system. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 24 pp.

Annotation: This report, one of three relating to states' policies that affect families, deals with the interagency coordinating council and the participation of family members, parental access to services, the identification of family strengths and needs, and family participation at the individual family service plan meeting.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Families, Federal legislation, State policy

Place P, Gallagher J, Eckland JD. 1991. Status of states' policies that affect families: Procedural safeguards. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 18 pp.

Clifford RM. 1991. State financing of services under P.L. 99-457, Part H. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 17 pp.

Annotation: This report is the initial report of the Carolina Policy Studies Program case study of six states' efforts to implement the financial provisions of the Education of the Handicapped Act Amendments of 1986, Part H (P.L. 99-457, Part H). It describes the sources and funding mechanisms used in the six states, and makes recommendations regarding state response to the requirements of part H.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, Financing, State policy

Van Dyck PC. 1991. Use of parental fees in P.L. 99-457, Part H. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 20 pp.

Annotation: This report, aimed at state level administrators, is one of a series of reports intended to present public policy perspectives on the complex task of financing services for infants and toddlers with handicaps and their families. It focuses primarily on use of parental fees as a source of funding for part H services of the Education of the Handicapped Act Amendments of 1986 (P.L. 99-457, Part H), and includes insights on the use of private insurance.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, Financing, State policy

Kastorf K. 1991. The Massachusetts experience with Medicaid support of early intervention services. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 20 pp.

Annotation: This report, aimed at state level administrators, is one of a series of reports intended to present public policy perspectives on the complex task of financing services for infants and toddlers with handicaps and their families. It presents an overview of how Massachusetts has successfully integrated the use of the federal Medicaid program into a plan for financing part H services of the Education of the Handicapped Act Amendments of 1986 (P.L. 99-457, Part H) on a statewide basis.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, Financing, Infant health, Medicaid, State policy

McGonigel MJ, Kaufmann RK, Johnson BH, eds. 1991. Guidelines and recommended practices for the individualized family service plan. (2nd ed.). Bethesda, MD: Association for the Care of Children's Health, ca. 200 pp.

Annotation: This manual provides a history of its publication and explains its relationship to the first edition which presented a consensus on the best practices for providing family centered comprehensive early intervention services as required in Part H of the Education of the Handicapped Act Amendments of 1986. This edition contains the final regulations developed by the U.S. Department of Education regarding the implementation of Part H of P.L. 99-457. It explains the rationale for developing an individualized family service plan (IFSP), the process for developing one, and describes how to build strong relationships between families and professionals. Other topics covered are assessing the child's needs and strengths; working with families to identify concerns, priorities, and resources; and implementing the IFSP. A final chapter assesses future directions for the IFSP; this chapter considers issues of interest to state planners and policy makers. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Developmental disabilities, Education of the Handicapped Act Amendments of 1986, Federal legislation, Guidelines, Individualized family service plans

Ooms T. 1990. Implementation of P.L. 99-457: Parent/professional partnership in early intervention. Washington, DC: American Association for Marriage and Family Therapy, Research and Education Foundation, Family Impact Seminar, 40 pp. (Family impact seminars)

Annotation: This report is part of a series of monthly seminars, entitled Family-Centered Social Policy: The Emerging Agenda, conducted by the Family Impact Seminar. This report reviews the scope and service needs of infants and children with disabilities and their families, describes the newly emerging field of early childhood intervention, presents the key components of the Education of the Handicapped Act Amendments of 1986, Part H: Infants and Toddlers Program (P.L. 99-457, Part H) and discusses the main issues emerging from the first planning years involved in its implementation. Copies of the background briefing reports are included.

Keywords: Child health, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation, Infant health, Infants, Toddlers

Harbin GL, Gallagher JJ, Lillie T, Eckland J. 1990. Status of states' progress in implementing Part H of P.L. 99-457: Report no. 2. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 28 pp.

Annotation: This report discusses the progress that the fifty states are making in the implementation of the Education of the Handicapped Act Amendments of 1986, Part H (P. L. 99-457, Part H). It is based on the completion by Part H coordinators in 1990 of the State Progress Scale, and updates the 1989 report. It also includes recommendations for additional assistance to the states.

Keywords: Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation

Gallagher JJ, Coleman P. 1990. Professional organizations' role in meeting the personnel demands of Part H, P.L. 99-457. Chapel Hill, NC: University of North Carolina at Chapel Hill, Carolina Institute for Child and Family Policy, 41 pp.

Annotation: This document reports on a study of ten professional associations focusing on their plans for additional certification standards to include service to infants and toddlers related to the requirements of the Education of the Handicapped Act Amendments of 1986, Part H (P. L. 99-457, Part H), the kinds of training initiatives their association was planning, and what they were doing about existing personnel shortages.

Keywords: Certification, Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Federal legislation, Health professionals, Part H

Taulbee A. 1990. Development of a Model System of Nutrition Services for Children With Disabilities [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 53 pp.

Annotation: This project sought to improve the delivery of nutrition services to children of New Mexico's low-income, tricultural, rural population by developing a model for the delivery of nutrition services to children with special needs. Activities included a comprehensive needs assessment of existing services; education and training for health professionals, parents, and lay groups; development of nutrition education materials for professionals and parents in English, Spanish and Navajo; development and implementation of nutrition screening, assessment, and referral procedures; assessment of funding sources; and publication of a handbook for other nutrition service projects. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161909.

Keywords: American Indians, Data Collection, Disabled, Financing Health Care, Handicapped, Hispanics, Low income groups, Multi-Cultural/Multi-Lingual Population, Nutrition, Parents, Rural Population, Screening Tools

White KR, Immel N. 1989 (ca.). Medicaid and other third-party payments: One piece of the early intervention financing puzzle. Bethesda, MD: Association for the Care of Children's Health, 52 pp.

Annotation: This document was developed by a consortium of four states that had used Medicaid and other third-party payments to support an early intervention program. It provides a brief overview of the mechanisms, focusing primarily on Medicaid. It includes several brief case studies of what states are actually doing, and summarizes the lessons learned from the consortium's activities and discussions. It concludes with a plan of action for incorporating Medicaid and other third-party payments into the overall financing picture for early intervention in the states. The states participating were Utah, Massachusetts, Colorado, and New Jersey, with additional input from Connecticut, Illinois and other states. The work was funded by the Maternal and Child Health Bureau, U.S. Department of Health and Human Services. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Federal legislation, Financing, Medicaid, Third party payers

National Center for Clinical Infant Programs, Project Zero to Three. 1989. The intent and spirit of P.L. 99-457: A sourcebook. Washington, DC: National Center for Clinical Infant Programs, 106 pp.

Annotation: The three reports presented in this source book articulate the intent of the Education of the Handicapped Act Amendments of 1986 (P.L. 99-457). The background and need for the law and the rationale behind each provision of the legislation are discussed as well as implications for states and local policy making. A vision of family centered, coordinated care that helped to form the conceptual foundation of the law is described. The reports include 'A Window of Opportunity' by Robert Silverstein, 'Report 99-860,' the Education of the Handicapped Act Amendments of 1986, and 'Community-based Service System for Children with Special Health Care Needs and Their Families' by Josephine Gittler. [Funded by the Maternal and Child Health Bureau]

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website. Document Number: HRSA Info. Ctr. MCHC025.

Keywords: Child health, Children with special health care needs, Community based services, Education of the Handicapped Act Amendments of 1986, Family centered care, Federal legislation, Legislation, Regulations, Special education

Martner J, Magrab P, eds. 1989. Mental health services for infants and toddlers: A three-state perspective on the implementation of Part H of P.L. 99-457, the Education of the Handicapped Act amendments of 1986. Washington, DC: Georgetown University Child Development Center, Child and Adolescent Service Support Program Technical Assistance Center, 70 pp.

Annotation: This document reports on a study of efforts to incorporate a mental health perspective into service delivery systems for young children in Maine, North Carolina, and Ohio as required by the Education of the Handicapped Act Amendments of 1986, Part H (P.L. 99-457, Part H).

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Contact Phone: (202) 338-1831 Fax: (202) 687-8899 E-mail: gucdc@georgetown.edu Web Site: http://gucchd.georgetown.edu 8.00; make check payable to Georgetown University Child Development Center.

Keywords: Children with special health care needs, Education of the Handicapped Act Amendments of 1986, Federal legislation, Infants, Mental health, Part H, Toddlers, Young children

National Center for Networking Community Based Services. 1989. Establishing a medical home for children served by Part H of Public Law 99-457. Washington, DC: Georgetown University Child Development Center, 9 pp.

Annotation: This report was prepared as a result of the conference, The Practicing Pediatrician and Family-Centered, Community-Based Health Care for Children with Chronic Illnesses and Disabling Conditions Part II, held in Long Boat Key, Florida, in February 1989. The conference was sponsored by the U. S. Bureau of Maternal and Child Health and Resources Development and the American Academy of Pediatrics. The document discusses the medical home, where the child receives the same usual pediatric services as other children, and its relationship to specialty care and to the Education of the Handicapped Act Amendments of 1986, Part H (P.L. 99-457, Part H).

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: gucdc@georgetown.edu Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Children with special health care needs, Education of the Handicapped Act Amendments of 1986, Part H, Federal legislation

U.S. Department of Education and U.S. Department of Health and Human Services. 1989. Meeting the needs of infants and toddlers with handicaps: Federal resources, services and coordination efforts in the Departments of Education and Health and Human Services—A report to the Congress. Washington, DC: U.S. Department of Education and U.S. Department of Health and Human Services, 69 pp.

Annotation: This report identifies 16 federal programs that provide funding for states to support early intervention for children with special health needs, plus six additional programs that provide funding for research, demonstration, technical assistance, information exchange, and training projects. Activities designed to facilitate coordination of federal programs for early intervention are also described.

Contact: Maternal and Child Health Library at Georgetown University, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHC112.

Keywords: Children with special health care needs, Early intervention, Education of the Handicapped Act Amendments of 1986, Federal legislation, Federal programs

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.