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Strengthen the Evidence for Maternal and Child Health Programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 5 (5 total).

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: Web Site: Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Rosenbaum S. 2013. Habilitative services coverage for children under the essential health benefit provisions of the Affordable Care Act. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 14 pp. (Issue brief)

Annotation: This brief examines habilitation coverage standards for children across multiple insurance markets and plan types. Topics include a review of the habilitative services coverage landscape prior to passage of the Affordable Care Act, the Essential Health Benefits amendments, and the course of federal agency implementation. The analysis concludes with a discussion of issues that arise as the amendments are translated into coverage in state markets.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: Web Site: Available from the website.

Keywords: Children with special health care needs, Habilitation, Health care delivery, Health care reform, Health insurance, State initiatives

University of Minnesota, Center for Children with Chronic Illness and Disability. 1996. Brave new partnerships: Children with disabilities, families and managed care. Minneapolis, MN: University of Minnesota, Institute for Health and Disability, Center for Children with Chronic Illness and Disability, 24 pp.

Annotation: This document reports on the care of children with chronic illnesses at a managed care center attached to the University of Minnesota. Interviewers determined the parents' feelings, experiences, and needs, the managements' concerns, and physicians' perspective. The report discusses utilization of the services, costs, insurance, habilitation provided by schools and other agencies, and difficulties experienced by the parents and and by physicians. The report ends with recommendations for this system and for national care for chronically ill children and their families. [Funded by the Maternal and Child Health Bureau, the National Institute on Disability and Rehabilitation Research, the Robert Wood Johnson Foundation]

Contact: University of Minnesota, Division of General Pediatrics and Adolescent Health, University of Minnesota Gateway, 200 Oak Street, S.E., Suite 260, Minneapolis, MN 55455, Telephone: (612) 624-2820 Secondary Telephone: (800) 276-8642 Contact Phone: (612) 624-3939 (V/TTY) Fax: (612) 624-0097 E-mail: Web Site: Available from the website.

Keywords: Case management, Children with special health care needs, Chronic illnesses and disabilities, Habilitation, Health care financing, Health insurance, Managed care, Patient satisfaction

Leger RR. 1987. Workshops for adolescents with chronic illnesses or disabilities: A how to and theory manual for professionals. Washington, DC: National Center for Education in Maternal and Child Health, 127 pp.

Annotation: This manual results from a series of weekend workshops for adolescents with myelomeningocele that were held by the Newington Children's Hospital in Newington, Connecticut. The workshops were designed to increase the adolescents' social skills and ability to be more independent, and included games, instruction in managing wheelchairs, discussions on sexuality, parents discussions, etc. The manual discusses the theory base for holding workshops, gives a step-by-step description of how to plan the workshops, describes social experiences and workshop contents, and discusses program evaluation. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Telephone: (202) 784-9770 E-mail: Web Site: Available from the website.

Keywords: Adolescent health, Habilitation, Meningomyelocele, Special health care needs, Spina bifida

Vulpe S, Benschoten RV, eds. 1987. Occupational therapy for maternal and child health research and leadership development: Proceedings of the conference. Los Angeles, CA: Children's Hospital of Los Angeles, Center for Child Development and Developmental Disorders, 2 v.

Annotation: Topics covered in these proceedings include current clinical issues in a historical context, leadership, and research. Leader panels discussed academic leadership, administration, future trends, grantsmanship, innovative practice, instrument development, professional advocacy, research, theory development, and physician's response. [Funded by the Maternal and Child Health Bureau]

Contact: American Occupational Therapy Association, 4720 Montgomery Lane, P.O. Box 31220, Bethesda, MD 20824-1220, Telephone: (301) 652-2682 Secondary Telephone: (800) 377-8555 Contact Phone: (301) 948-9626 Fax: (301) 652-7711 Web Site: Available in libraries.

Keywords: Child health, Conference proceedings, Habilitation, Maternal health, Occupational therapy


This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.