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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (53 total).

North Dakota Department of Health. n.d.. Your own special goodbye: A guide to arranging a funeral for your baby. Bismarck, ND: North Dakota Department of Health, 22 pp.

Annotation: This guide describes, step-by-step, how to make funeral arrangements for an infant who has died. It explains where to begin; describes the choices of cremation or burial, and discusses the various ways that grieving parents can make arrangements that will have special meaning to the family while also allowing others the opportunity to say goodbye. The guide includes lined pages where families are invited to write down their plans for the funeral.

Contact: North Dakota Department of Health and Human Services, 600 East Boulevard Avenue, Bismarck, ND 58505, Telephone: (701) 328-2372 Fax: (701) 328-4727 Web Site: https://www.hhs.nd.gov Available from the website.

Keywords: Bereavement, Family support services, Funerals, Grief, Guidelines, Infant death

Lord JH. 2014. No time for goodbyes: Coping with sorrow, anger and injustice after a tragic death. (7th ed.). Ventura, CA: Pathfinder Publishing , 237 pp.

Annotation: This book is to help those who have lost a loved one through a devastating tragedy, such as homicides or motor vehicle crashes. The book gives hope and useful suggestions to survivors grieving for a loved one killed. It discusses grief, the death of children, siblings, mates and parents, holidays, spirituality, professional counseling, suicide, coping with the criminal justice system, and finance issues. A list of resource organizations and readings is included.

Keywords: Bereavement, Grief, Survivors, Victims, Violence

Lorenzo SB. 2014. Infant mortality and pregnancy loss: Family resource brief (upd.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Annotation: This resource brief helps families find links to care, services, and support and websites for expectant and new parents about ways to help babies survive and thrive, pregnancy loss, losing a baby, and grief. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Telephone: (202) 784-9770 E-mail: [email protected] Web Site: https://www.ncemch.org Available from the website.

Keywords: Bereavement, Bibliographies, Consumer education materials, Electronic publications, Families, Family support services, Grief, Infant death, Infant mortality, Infants, Pregnancy loss, Prevention programs

Lowrimore L. 2013. Books for children on dealing with death. Washington, DC: National SUID/SIDS Resource Center,

Annotation: This bibliography lists books intended to help parents or caregivers navigate children's questions that are likely to come up after the death of a younger sibling from sudden infant death. The list includes picture books, books for older children, and activity books that help children express emotions. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Bereavement, Bibliographies, Children', Funerals, Grief, Infant death, Materials for children, SIDS, s literature

Shaefer SJM, Buckley K, eds. 2012. Voices from the community: Cross cultural expressions of grief at the loss of an infant. Washington, DC: American College of Obstetricians and Gynecologists, National Fetal Infant Morality Review Program, 74 pp.

Annotation: This document summarizes a series of panel discussions conducted by the Association of SIDS and Infant Mortality Programs at four National Fetal-Infant Mortality Review Program annual conferences in 1998, 2001, 2004, and 2007. The content is drawn from the panelists' personal experiences with and professional expertise in the cultural traditions that may affect a family's expression of grief and loss. Topics include history and culture, general bereavement customs, service delivery issues, recommendations for practice, and implications for providers. Cultures and religions described include African American, specific tribes of American Indians, Hispanic/Latino, Chinese, Hmong, Iranian, Jewish, Muslim, and deaf and hard-of-hearing, [Funded by the Maternal and Child Health Bureau]

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Cultural factors, Culturally competent services, Ethnic groups, Grief, Infant death, Perinatal bereavement, Religion, Service delivery

Anastasi JM, ed. 2011. The death of a child: The grief of the parents—A lifetime journey (3rd. ed.). Washington, DC: National Sudden and Unexpected Infant / Child Death and Pregnancy Loss Resource Center, 8 pp.

Annotation: This pamphlet discusses parent and family grief when a child dies. It discusses common and individual characteristics of parental grief, parental grief and a SIDS death, fathers' grief, the impact of grief in special parenting situations, thoughts from grieving parents, and coping with the loss and moving on. The pamphlet ends with a list of references cited and recommended resources. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Bereavement, Child death, Child mortality, Grief, Parent child relations, SIDS

Horchler JN, Rice R. 2011. SIDS and infant death survival guide: Information and comfort for grieving family and friends and professionals who seek to help them. (4th ed., rev. and upd.). Hyattsville, MD: SIDS Educational Services, 324 pp. (Continues: The SIDS Survival Guide)

Annotation: This book provides information for parents and other caregivers who have lost a child to sudden infant death syndrome (SIDS). Topics include a definition of SIDS, perspectives from experts, a brief review of research into a diagnostic test, a history of SIDS, and accounts by parents of their experiences. Additional topics include dealing with guilt and anger; grieving and bereavement; the grief of fathers, other siblings, and grandparents; the loss of an infant at the childcare provider's; advice for friends of parents who have lost an infant; planning a funeral and the role of the clergy; advice on grieving and moving forward; dealing with anniversaries and holidays; advice on peer contact and professional help; emergency medical responders and the authorities; and a subsequent baby and the question of home monitoring. Additional information is provided on guilt and risk reduction; dreams and premonitions; and more stories and poems from the experience of losing an infant. The appendices include national and international organizations that provide information, counseling, research data, and grants on SIDS and related topics as well as a bibliography and a suggested reading list. The 3rd edition is available in Spanish.

Contact: SIDS Educational Services, P.O. Box 2426, Hyattsville, MD 20784-0426, Telephone: (301) 322-2620 Fax: (301) 322-9822 E-mail: [email protected] Web Site: http://www.sidssurvivalguide.org Available in libraries. Document Number: ISBN 978-0-9641218-0-5.

Keywords: Bereavement, Child care, Clergy, Consumer education materials, Family support, Grandparents, Grief, Home monitoring, Infant death, Parent support services, Parents, Risk assessment, SIDS, Siblings, Spanish language materials

American Foundation for Suicide Prevention, Suicide Prevention Resources Center Workgroup. 2011. After a suicide: A toolkit for schools. New York, NY: American Foundation for Suicide Prevention; Newton, MA: Suicide Prevention Resource Center, 48 pp.

Annotation: This resource addresses schools facing real-time crises, providing information on ways to deal with loss in a school community and how to promote a coordinated response. The toolkit provides school districts and private school associations with evidence-based programs designed to address serious childhood and adolescent distress and prevent suicide (Objective 4.2 of the National Strategy for Suicide Prevention). Content includes consensus recommendations developed in consultation with school-based personnel, clinicians, researchers, and crisis-response professionals. It incorporates relevant existing material and research findings as well as references, templates, and links to additional information and assistance. Specific areas addressed in the toolkit include crisis response, helping students cope, working with the community, memorialization, social media, suicide contagion, bringing in outside help, and going forward.

Contact: American Foundation for Suicide Prevention, 120 Wall Street, 22nd Floor, New York, NY 10005, Telephone: (212) 363-3500 Secondary Telephone: (888) 333-AFSP Fax: (212) 363-6237 E-mail: [email protected] Web Site: http://www.afsp.org Available from the website.

Keywords: Adolescents, Bereavement, Coping, Crisis intervention, Grief, Prevention, Resources for professionals, School age children, School counseling, Schools, Students, Suicide

DeFrancis Sun B, Richards JT, eds. 2011. The grieving child: Helping children cope when an infant dies. Washington, DC: National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center, 4 pp.

Annotation: This pamphlet provides guidance on how to help children cope after the unexpected loss of an infant brother, sister, or other loved one. It provides information about how children of different ages react to death and how parents and other caregivers can help them. Information about family rituals, suggestions on seeking support services, and a list of select resources are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Bereavement, Children, Consumer education materials, Coping, Grief, Infant mortality, SIDS

National Center for Cultural Competence, First Candle/SIDS Alliance Program Support Center. 2011. African American Faith Based Bereavement Initiative: Trainers manual. Washington, DC: National Center for Cultural Competence, 1 v.

Annotation: This training manual provides materials to increase the capacity of faith based communities to provide bereavement support impacted by pregnancy or infant losses, to reduce depression and anxiety among families by promoting the use of mental health services, and to promote inter-conceptual care for families experiencing infant or fetal loss. The manual contains a tool kit of materials to conduct an in-person workshop including PowerPoint slides with notes on how to present the materials, handouts, audio-visual presentations, resource lists, and group exercises; as well as materials to provide evaluation feedback. The included trainer's guide provides tips and resources on effective training with adult learners, dealing with strong emotions of participants, a guide to structuring the training, a guide to using the electronic resources provided, and a module by module guide to presenting the training. The volume included a DVD of the curriculum and two other DVDs: Black and Blue: Depression in the African-American Community and Crisis in the Crib: Saving our Nation's Babies. A different version of this information is posted online.

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Bereavement, Child death, Clergy, Fetal death, Grief, Infant death, Manuals, Pregnancy loss, Religious organizations, Resources for professionals, Training materials

SUID/SIDS Project at the National Center for Cultural Competence and SUID/SIDS Program Support Center at First Candle. 2011. African American Faith-Based Bereavement Initiative. Washington, DC: SUID/SIDS Project at the National Center for Cultural Competence; Baltimore, MD: SUID/SIDS Program Support Center at First Candle,

Annotation: This website presents a toolkit comprising eight modules designed to help the African-American Christian faith community improve supports for families who have experienced the loss of an infant during pregnancy or after birth. The toolkit is geared toward clergy in churches, chaplains in health care settings, pastoral counselors, and lay leaders. The toolkit can also be used in seminary courses and seminars to ensure that clergy in training are prepared to support bereaved families. [Funded by the Maternal and Child Health Bureau]

Contact: SUID/SIDS Project at the National Center for Cultural Competence, 3300 Whitehaven Street, Suite 3300, Washington, DC 20057, Telephone: (202) 687-8914 E-mail: [email protected] Web Site: http://nccc.georgetown.edu/projects/sids/ Available from the website.

Keywords: Blacks, Family support, Fetal death, Grief, Infant death, Perinatal bereavement, Religious organizations, Training materials

ReachOut.com. 2010. We can help us [suicide prevention campaign]. ReachOut.com,

Annotation: This Web site for adolescents, created by the organization Reach Out, is designed to help adolescents cope with mental health problems and to help prevent adolescent suicide. The site presents information about issues such as suicide and self-harm; drugs, alcohol, and tobacco; relationships; loss and grief; and sexuality. Stories told by adolescents in their own voices are also included, and opportunities for adolescents to share their own stories and become involved with Reach Out are provided. Resources for getting help and support are included, as well.

Contact: Reach Out, Inspire USA Foundation, 657 Mission Street, Suite 507, San Francisco, CA 94105, E-mail: [email protected] Web Site: http://us.reachout.com Available from the website.

Keywords: Adolescent behavior, Adolescent health, Adolescent pregnancy Grief, Adolescent sexuality, Adolescents, Alcohol consumption, Friendships, HIgh risk adolescents, Mental health, Prevention, Relationships, Resource materials, Substance abuse, Suicide prevention, Tobacco use, Violence prevention

Compassionate Friends. 2010. To the newly bereaved. Oak Brook, IL: Compassionate Friends,

Annotation: This resource offers support to bereaved parents who have recently lost a child at any age for any reason. It describes thoughts and feelings that are common during the grieving process and suggests simple steps that grieving parents can take to help cope with their loss. Although the brochure acknowledges that parents who have lost a child will never be the same, it suggests ways of finding support that can contribute to the healing process. Information on how to locate and participate in a Compassionate Friends support group is included.

Contact: Compassionate Friends, 48660 Pontiac Trail, #930808, Wixom, MI 48393, Secondary Telephone: (877) 969-0010 Fax: (630) 990-0246 E-mail: [email protected] Web Site: https://www.compassionatefriends.org Single print copies available from the website; Packets of 100 brochures are available for $15.00.

Keywords: Bereavement, Child death, Grief, Mental health, Parent support services, Support groups

Shaefer J. 2010. When an infant dies: Cross cultural expressions of grief and loss IV. Washington, DC: American College of Obstetricians and Gynecologists; [Lansing, MI]: Association of SIDS and Infant Mortality Programs, 16 pp. (Bulletin [no. 4])

Annotation: This bulletin explores the cultural traditions of African Americans, Iranians, Somalis, and hard of hearing families grieving the loss of an infant. It summarizes a panel presentation from the National Fetal and Infant Mortality Review Program’s Fifth National Conference, held in August 2007 in Alexandria, VA. It includes a brief summary of studies on grief along with insights on the grief responses and customs of families from a variety of cultures. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Bereavement, Blacks, Cultural competence, Cultural factors, Cultural sensitivity, Culturally competent services, Ethnic factors, Ethnic groups, Grief, Muslims

Minnesota Department of Health. 2010. Sudden, unexpected infant death: Infant mortality trends, parental grief and the role of the public health nurse. St. Paul, MN: Minnesota Department of Health,

Annotation: This video conference focuses on trends in sudden unexpected infant mortality and how to work with bereaved parents after the loss of an infant. Presentations focus on SIDS infant mortality trends; bereavement counseling; working with bereaved parents; preparing for home visits; developing listening skills; and risk factors that may complicate grief. The website provides access to the archived video conference as well as supplemental bereavement literature and other resources.

Contact: Minnesota Department of Health, P.O. Box 64975, St. Paul, MN 55164-0975, Telephone: (651) 201-5000 Secondary Telephone: (888) 345-0823 Web Site: http://www.health.state.mn.us Available from the website.

Keywords: Audiovisual materials, Bereavement, Conferences, Counseling, Grief, Infant mortality, Parent support services, Professional training, SIDS, Trends

First Candle. [2009]. Surviving stillbirth. Baltimore, MD: First Candle, 8 pp.

Annotation: This brochure provides advice to grieving mothers and fathers who have lost an unborn or stillborn child. Topics include grief and bereavement, reserving the right to observe cultural beliefs in saying goodbye, considering an autopsy, funerals and memorials, and tips for coping after arriving home. The brochure is written with English on one side and Spanish on the other.

Contact: CJ First Candle, 49 Locust Avenue, Suite 104, New Canaan, CT 06840, Telephone: (800) 221-7437 E-mail: [email protected] Web Site: http://cjfirstcandle.org/ Available from the website.

Keywords: Bereavement, Consumer education materials, Coping, Fathers, Fetal death, Grief, Mothers, Spanish language materials, Spontaneous abortion

First Candle. [2009]. Surviving stillbirth for fathers. Baltimore, MD: First Candle, 6 pp.

Annotation: This brochure focuses on the grief of fathers who have lost a child to stillbirth. Topics include tips for addressing personal grief as well as the grief in the relationship, in the workplace, and in the future. The brochure is written with English on one side and Spanish on the other.

Contact: CJ First Candle, 49 Locust Avenue, Suite 104, New Canaan, CT 06840, Telephone: (800) 221-7437 E-mail: [email protected] Web Site: http://cjfirstcandle.org/ Available from the website.

Keywords: Bereavement, Consumer education materials, Coping, Fathers, Fetal death, Grief, Spanish language materials, Spontaneous abortion

American Foundation for Suicide Prevention. [2009]. Surviving a suicide loss: A resource and healing guide. New York, NY: American Foundation for Suicide Prevention, 27 pp.

Annotation: This guide is designed to help survivors cope with the experience of losing a loved one to suicide. The guide includes practical information about coping with the loss, personal survivor stories, articles on bereavement, resource listings, and a bibliography.

Contact: American Foundation for Suicide Prevention, 120 Wall Street, 22nd Floor, New York, NY 10005, Telephone: (212) 363-3500 Secondary Telephone: (888) 333-AFSP Fax: (212) 363-6237 E-mail: [email protected] Web Site: http://www.afsp.org Available at no charge; also available from the website.

Keywords: Bereavement, Consumer education materials, Coping, Grief, Suicide

Shaefer SJM. 2009. Annotated bibliography on grief and bereavement following pregnancy loss perinatal and infant death. [Upd. ed.]. [Washington, DC]: National Fetal and Infant Mortality Review Program; [Lansing, MI] Association of SIDS and Infant Mortality Programs, 22 pp.

Annotation: This updated bibliography includes references from 2001-2008 from published literature as located in PubMed and CINAHL Plus. Topics include grief, beravement, perinatal loss, and infant death. Citations are categorized into research articles, practice recommendations, or systematic literature reviews.

Contact: National Fetal-Infant Mortality Review Program, American College of Obstetricians and Gynecologists, 409 12th Street, S.W.***DEFUNCT***, Washington, DC 20024, Telephone: (202) 863-2587 E-mail: [email protected] Web Site: http://www.nfimr.org Available from the website.

Keywords: Bibliographies, Grief, Bereavement, Infant mortality, Perinatal bereavement, Infant death

Rosen Publishing Online. 2009. Teen health and wellness: Real life, real answers . New York, NY: Rosen Publishing Online,

Annotation: This Web site provides students with curricular support and self-help on topics including diseases, drugs, alcohol, nutrition, fitness, mental health, diversity, family life, and more. Users can subscribe for a fee or use a 3-day free trial. Sample articles on anorexia nervosa, asthma, and decision making are available.

Contact: Rosen Publishing Group, 29 East 21st Street, New York, NY 10010, Telephone: (800) 237-9932 Fax: (888) 436-4643 Web Site: http://www.rosenpublishing.com/ Available from the website.

Keywords: Adolescent development, Adolescent health, Adolescent sexuality, Alcohol consumption, Drug use, Eating disorders, Families, Food, Grief, Mental health, Nutrition, Relationships, Safety, World Wide Web

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.