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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 2 (2 total).

Biobank Feasibility Expert Panel. 2007. Feasibility study for a statewide biobank to study preterm births and birth defects: A report to the Commissioner, Connecticut Department of Public Health. Hartford, CT: Connecticut Department of Public Health, 30 pp.

Annotation: This report summarizes 4 discussions held by a 21 member panel during 2007 concerning the feasibility of a biobank in Connecticut and the value it might add to the study of preterm births and birth defects. Biobank models; funding sources; possible increases in research potential; affordability, ethical, legal, and social issues; and the likely public and private perceptions of such a bank all receive examination. Findings and recommendations conclude the report.

Contact: Connecticut Department of Public Health, 410 Capitol Avenue, Hartford, CT 06134-0308, Telephone: (860) 509-8000 E-mail: [email protected] Web Site: http://www.ct.gov/dph Available from the website.

Keywords: Bioethics, Budgets, Congenital abnormalities, Connecticut, Genetic markers, Genetics, Low birthweight, Prenatal screening, Preterm birth, State programs

U.S. Department of Health and Human Services, Public Health Service, National Institutes of Health, National Center for Human Genome Research; and U.S. Department of Energy, Office of Energy Research, Office of Health and Environmental Research, Human Genome Program. 1990. Understanding our genetic inheritance: The U.S. Human Genome Project: The first five years FY 1991-1995. Bethesda, MD: U.S. Department of Health and Human Services, National Center for Human Genome Research; Springfield, VA: distributed by National Technical Information Service, 89 pp.

Annotation: This document contains the projected plans and goals for the first five years of the fifteen year Human Genome project. It lists the scientific goals of mapping and sequencing the human genome, collecting and analyzing data, and ethical, legal, and social considerations. The plan for implementation of all phases of the project is covered. The appendices list members of committees and advisory boards associated with the Human Genome Project.

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 Contact Phone: (703) 487-4650 E-mail: [email protected] Web Site: http://www.ntis.gov Price unknown.

Keywords: Federal programs, Genetic markers, Genetic services, Genetics, Research

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.