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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (37 total).

National Center for Fatality Review and Prevention and American College of Obstetricians and Gynecologists. 2016. A report on the status of fetal and infant mortality review in the United States 2015 = U.S. fetal and infant mortality review: 2015 status report. Washington, DC: National Center for Fatality Review and Prevention, 25 pp.

Annotation: This report presents findings from a national survey of state and local Fetal and Infant Mortality (FIMR) coordinators about their FIMR team structure, process, and activities. Contents include information about operations at the local level to examine medical, nonmedical, and systems-related factors and circumstances contributing to fetal and infant deaths. Information about FIMR and child death review collaboration is also included. Survey results are provided in a set of tables following the narrative. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: info@childdeathreview.org Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Collaboration, Community action, Community based services, County programs, Fetal death, Infant death, Infant death review committees, Injury prevention, Local initiatives, Outcome and process assessment, Program coordination, Systems development, Teamwork

World Health Organization, United National Children's Fund. 2014. Every newborn: An action plan to end preventable deaths. Geneva, Switzerland: World Health Organization, Partnership for Maternal, Newborn, and Child Health, 55 pp.

Annotation: This action plan is based on epidemiology, evidence, and global and country learning, setting a framework to end preventable newborn deaths and stillbirths by 2035. Topics include information on existing commitments, rights, and the current situation; effective interventions for improving the health of newborns across the continuum of care; vision and goals; strategic objectives and principles; impact framework, coverage targets, measures of success, milestones, and core indicators; research priorities and coordination; and actions by constituency. A summary of the action plan process is included. The executive summary is available in English, French, and Spanish.

Contact: Partnership for Maternal, Newborn, and Child Health, World Health Organization, 20 avenue Appia, CH-1211, Geneva, Switzerland Telephone: +41 22 791 2595 Fax: +41 22 791 5854 E-mail: pmnch@who.int Web Site: http://www.who.int/pmnch/en Available from the website.

Keywords: Community action, Early intervention, Fetal death, Health objectives, International health, Models, Neonatal screening, Newborn infants, Primary prevention

Jackson County Prenatal Task Force. 2013. 2013 strategic action plan. Jackson, MI: Jackson County Prenatal Task Force, 6 pp.

Annotation: This document outlines goals, outcome measures, and strategies to reduce infant mortality and improve infant health in Jackson County, Mississippi. Contents include data on infant mortality, adolescent and unintended pregnancy, racial disparities, prenatal care, smoking during pregnancy, infant death due to positional asphyxia, and infant sleep position and environment. The plan presents strategies to improve women's sexual health and experience of care before, during, and after pregnancy, as well as strategies to reduce the number of infant deaths due to positional asphyxia.

Contact: Jackson County Prenatal Task Force, One Jackson Square, 9th Floor, Jackson, MI Telephone: (517) 780-7306 Available from the website.

Keywords: Collaboration, Community action, County programs, Fetal death, Goals, Infant care, Infant death, Infant health, Infant mortality, Local initiatives, Measures, Mississippi, Prenatal care, Program development, Program improvement, Strategic plans

Florida Department of Health, Division of Public Health Statistics. 2012. Fetal and infant deaths. Tallahassee, FL: Florida Department of Health, 20 pp.

Annotation: This report provides statistical information about fetal and infant deaths in Florida and the United States up to 2011. Most of the information is presented in tabular form. Information is presented about deaths by race, by county, and by selected cause.

Contact: Florida Department of Health, 4052 Bald Cypress Way, Tallahassee, FL 32399, Telephone: (850) 245-4147 Fax: (850) 487-4574 Web Site: http://www.doh.state.fl.us Available from the website.

Keywords: State surveys, Fetal death, Florida, Infant death, Racial factors, Trends

MacDorman MF, Kirmeyer SE, Wilson EC. 2012. Fetal and perinatal mortality, United States, 2006. Hyattsville, MD: National Center for Health Statistics, 14 pp. (National vital statistics reports; v. 60, no. 8)

Annotation: This report presents fetal and perinatal mortality data by maternal age, marital status, race, Hispanic origin, and state of residence, as well as by fetal birthweight, gestational age, plurality, and sex. Trends in fetal and perinatal mortality are also examined.

Contact: National Center for Health Statistics, Centers for Disease Control and Prevention, 3311 Toledo Road, Room 5419, Hyattsville, MD 20782, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 Fax: (301) 458-4020 E-mail: nchsquery@cdc.gov Web Site: http://www.cdc.gov/nchs Available from the website.

Keywords: Fetal death, Perinatal health, Population surveillance, Pregnancy loss, Trends, Vital statistics

International Stillbirth Alliance, First Candle, and International Society for the Study and Prevention of Perinatal and Infant Death. 2012. The 2012 International Conference on Stillbirth, SIDS and Infant Survival [participants' program]. Baltimore, MD: First Candle, 146 pp.

Annotation: This conference program outlines the agenda and activities of the 2012 international conference focusing on stillbirth, SIDS, and infant survival held in Baltimore, Maryland. Contents include lists of conference committees and exhibitors, the agenda, a speaker listing, abstracts of oral presentations, a list of poster presentations, and other information.

Contact: CJ First Candle, 49 Locust Avenue, Suite 104, New Canaan, CT 06840, Telephone: (800) 221-7437 E-mail: alison@cjfirstcandle.org Web Site: http://cjfirstcandle.org/ Available from the website.

Keywords: Conferences, Fetal death, Infant death, Infant death, SIDS

U.S. Congress, Senate. 2011. Stillbirth and SUID Prevention, Education, and Awareness Act. Washington, DC: Government Printing Office, 24 pp.

Annotation: This document contains the original language as introduced in November 2011, to amend the Public Health Service Act to improve the health of children and reduce the occurrence of sudden unexpected infant death (SUID) and to enhance public health activities related to stillbirth. Topics include improving the completion of death scene investigation and autopsy; training on death scene investigation; building state capacity and implementing state and local child death review programs and prevention strategies; establishing a national registry for SUID and sudden unexpected death in childhood; establishing and implementing a culturally competent public health awareness and education campaign including educating individuals about safe sleep environments, sleep positions, and reducing exposure to smoking during pregnancy and after birth; establishing grants for providing support services to families who have had a infant or child die of sudden unexpected death; evaluating state and regional needs; and enhancing public health activities related to stillbirth.

Contact: U.S. Government Publishing Office, 732 North Capitol Street, N.W., Washington, DC 20401, Telephone: (202) 512-1800 Secondary Telephone: (866) 512-1800 Fax: (202) 512-2104 E-mail: contactcenter@gpo.gov Web Site: http://www.gpo.gov Available from the website.

Keywords: Child death, Data collection, Federal legislation, Fetal death, MCH research, Neonatal death, Prevention, SIDS, Sudden unexpected infant death

National Center for Cultural Competence, First Candle/SIDS Alliance Program Support Center. 2011. African American Faith Based Bereavement Initiative: Trainers manual. Washington, DC: National Center for Cultural Competence, 1 v.

Annotation: This training manual provides materials to increase the capacity of faith based communities to provide bereavement support impacted by pregnancy or infant losses, to reduce depression and anxiety among families by promoting the use of mental health services, and to promote inter-conceptual care for families experiencing infant or fetal loss. The manual contains a tool kit of materials to conduct an in-person workshop including PowerPoint slides with notes on how to present the materials, handouts, audio-visual presentations, resource lists, and group exercises; as well as materials to provide evaluation feedback. The included trainer's guide provides tips and resources on effective training with adult learners, dealing with strong emotions of participants, a guide to structuring the training, a guide to using the electronic resources provided, and a module by module guide to presenting the training. The volume included a DVD of the curriculum and two other DVDs: Black and Blue: Depression in the African-American Community and Crisis in the Crib: Saving our Nation's Babies. A different version of this information is posted online.

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Bereavement, Child death, Clergy, Fetal death, Grief, Infant death, Manuals, Pregnancy loss, Religious organizations, Resources for professionals, Training materials

National Center for Cultural Competence and National Fetal and Infant Mortality Review Resource Center. 2011. Cultural and linguistic competence self-assessment for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 2 parts.

Annotation: This webinar discusses the concepts of cultural and linguistic competence as they apply to the Fetal and Infant Mortality Review (FIMR) process and reviews the benefits, principles, and potential approaches to cultural and linguistic competence self-assessments that are appropriate for FIMR programs. The webinar also discusses the Cultural and Linguistic Competence Organizational Assessment Instrument for FIMR programs. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Cultural competence, Assessment, Fetal mortality, Infant death review committees, Language barriers, Multimedia, Programs

SUID/SIDS Project at the National Center for Cultural Competence and SUID/SIDS Program Support Center at First Candle. 2011. African American Faith-Based Bereavement Initiative. Washington, DC: SUID/SIDS Project at the National Center for Cultural Competence; Baltimore, MD: SUID/SIDS Program Support Center at First Candle,

Annotation: This website presents a toolkit comprising eight modules designed to help the African-American Christian faith community improve supports for families who have experienced the loss of an infant during pregnancy or after birth. The toolkit is geared toward clergy in churches, chaplains in health care settings, pastoral counselors, and lay leaders. The toolkit can also be used in seminary courses and seminars to ensure that clergy in training are prepared to support bereaved families. [Funded by the Maternal and Child Health Bureau]

Contact: SUID/SIDS Project at the National Center for Cultural Competence, 3300 Whitehaven Street, Suite 3300, Washington, DC 20057, Telephone: (202) 687-8914 E-mail: bronheis@georgetown.edu Web Site: http://nccc.georgetown.edu/projects/sids/ Available from the website.

Keywords: Blacks, Family support, Fetal death, Grief, Infant death, Perinatal bereavement, Religious organizations, Training materials

California Department of Public Health, Maternal, Child, and Adolescent Health Program. 2011. Fetal and Infant Mortality Review (FIMR) Program: Policies and procedures [rev. ed.]. [Sacramento, CA]: California Department of Public Health, Maternal, Child, and Adolescent Health Program, 10 pp.

Annotation: This manual for California discusses background of the California Fetal and Infant Mortality Review (FIMR) Program, local FIMR activities, key personnel, standardized data collection and reporting, trainings and meetings, product and publication approval, and annual reports.

Contact: California Department of Public Health, Maternal, Child and Adolescent Health Program, MS 8305, P.O. Box 997420, Sacramento, CA 95899-7420, Telephone: (866) 241-0395 Fax: (916) 650-0305 E-mail: mchinet@cdph.ca.gov Web Site: http://www.cdph.ca.gov/programs/MCAH/Pages/default.aspx Available from the website.

Keywords: California, Fetal mortality, Final reports, Infant death review committees, Infant mortality, State programs, Statistical data, Training

Michalski K, Gathirimu J, Benton A, Swain G, Gass E, Ngui E. 2010. 2010 City of Milwaukee fetal infant mortality review (FIMR) report: Understanding and preventing infant death and stillbirth in Milwaukee—2005-2008 stillbirths and infant deaths. Milwaukee, WI: Milwaukee Health Department, 40 pp.

Annotation: This report, which is the fifth of its kind produced since 1995, summarizes what is known about factors that contribute to Milwaukee's high number of stillbirths and infant deaths in an effort to reduce infant mortality and eliminate racial and ethnic disparities in infant mortality. The report explains what the Fetal Infant Mortality Review is and discusses Milwaukee's infant mortality rate, racial disparities, cause of infant death and stillbirth in Milwaukee from 2005 to 2008, risk factors for infant death and stillbirth, autopsies and medical follow-up, social inequality and infant mortality, and community activities.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Communities, Ethnic factors, Fetal death, Infant death, Infant death review committees, Infant mortality, Prevention, Racial factors, Risk factors, Wisconsin

Milwaukee Health Department. 2010. Infant mortality. Milwaukee, WI: Milwaukee Health Department,

Annotation: This website provides information about infant mortality in Milwaukee. It includes an overview of infant mortality and discusses leading causes, other factors affecting the infant mortality rate, and Fetal Infant Mortality Review. Links to additional infant mortality resources are provided.

Contact: City of Milwaukee Health Department, 841 North Broadway, 3rd Floor, Milwaukee, WI 53202-3653, Telephone: (414) 286-3521 Web Site: http://city.milwaukee.gov/health Available from the website.

Keywords: Congenital abnormalities, Fetal death, Infant death, Infant death review committees, Infant mortality, Premature infants, Racial factors, Risk factors, SIDS, State surveys, Wisconsin

First Candle. [2009]. Surviving stillbirth. Baltimore, MD: First Candle, 8 pp.

Annotation: This brochure provides advice to grieving mothers and fathers who have lost an unborn or stillborn child. Topics include grief and bereavement, reserving the right to observe cultural beliefs in saying goodbye, considering an autopsy, funerals and memorials, and tips for coping after arriving home. The brochure is written with English on one side and Spanish on the other.

Contact: CJ First Candle, 49 Locust Avenue, Suite 104, New Canaan, CT 06840, Telephone: (800) 221-7437 E-mail: alison@cjfirstcandle.org Web Site: http://cjfirstcandle.org/ Available from the website.

Keywords: Bereavement, Consumer education materials, Coping, Fathers, Fetal death, Grief, Mothers, Spanish language materials, Spontaneous abortion

First Candle. [2009]. Surviving stillbirth for fathers. Baltimore, MD: First Candle, 6 pp.

Annotation: This brochure focuses on the grief of fathers who have lost a child to stillbirth. Topics include tips for addressing personal grief as well as the grief in the relationship, in the workplace, and in the future. The brochure is written with English on one side and Spanish on the other.

Contact: CJ First Candle, 49 Locust Avenue, Suite 104, New Canaan, CT 06840, Telephone: (800) 221-7437 E-mail: alison@cjfirstcandle.org Web Site: http://cjfirstcandle.org/ Available from the website.

Keywords: Bereavement, Consumer education materials, Coping, Fathers, Fetal death, Grief, Spanish language materials, Spontaneous abortion

Schroedel J. 2009. Naming the child: Hope-filled reflections on miscarriage, stillbirth, and infant death. Brewster, MA: Paraclete Press, 164 pp.

Annotation: This book, directed to consumers grieving the death of a child, offers perspectives on ways to grieve and heal after the loss of a child, and how to make difficult decisions regarding a dying or deceased child. Apart from her personal perspectives, the author recounts the child loss related experiences of many others as well.

Contact: New Futures, 6110 Bellamah, NorthEast, Albuquerque, NM 87110, Telephone: (505) 872-0463 Available in libraries. Document Number: ISBN 978-1-55725-585-3.

Keywords: Bereavement, Consumer education materials, Fetal death, Infant death, Neonatal death, Perinatal bereavement, Personal narratives, SIDS, Spontaneous abortion

MacDorman MF, Kirmeyer S. 2009. The challenge of fetal mortality. Hyattsville, MD: National Center for Health Statistics, 8 pp. (NCHS data brief, no. 16)

Annotation: This report examines data from the National Vital Statistics System for fetal death of 20 weeks gestation or more. Topics include the impact of fetal mortality on families, recent trends, differences among racial and ethnic groups, rates among twins or other multiple pregnancies, relationship between fetal mortality and maternal age, and fetal mortality rates by number of previous pregnancies.

Contact: National Center for Health Statistics, Centers for Disease Control and Prevention, 3311 Toledo Road, Room 5419, Hyattsville, MD 20782, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 Fax: (301) 458-4020 E-mail: nchsquery@cdc.gov Web Site: http://www.cdc.gov/nchs Available from the website.

Keywords: Ethnic factors, Fetal death, Fetal mortality, Maternal age, Multiple pregnancy, National surveys, Population surveillance, Pregnancy loss, Racial factors, Statistical data, Statistics

U.S. Maternal and Child Health Bureau. 2009. Sudden unexpected infant death (SUID): National developments, initiatives, studies, and opportunities. [Rockville, MD]: U.S. Maternal and Child Health Bureau,

Annotation: This Webcast describes the National Sudden Unexpected Infant Death (SUID)/Child death and pregnancy loss programs and four program centers: Project IMPACT, Resource Center at Georgetown University, program support center First Candle, and the National Center for Cultural Competence at Georgetown University; examines national trends in SIDS and SUID; presents a February 2009 Pediatrics article: Infant Accidental Suffocation and Strangulation in Bed; and describes CDC SUID initiative and case registry pilot. [Funded by the Maternal and Child Health Bureau]

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Federal programs, Fetal death, Infant death, Resource materials, SIDS

Goode TD, Bronheim S, Buckley K. 2009. Cultural and linguistic competence organizational assessment instrument for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 11 pp.

Annotation: This organizational self-assessment instrument is intended to help fetal and infant mortality review programs (FIMRs) to (1) plan for and incorporate culturally and linguistically competent policies, structures, and practices in all aspects of their work; (2) enhance the quality of case reviews and action plans within diverse and underserved communities; and (3) promote cultural and linguistic competence as an essential approach in the elimination of disparities and the promotion of health and mental health equity. The instrument gives definitions of terms used in the instrument, and a series of statements to assess the organization in these areas: (1) world view and practices related to cultural and linguistic competence; (2) staff diversity and training; (3) core functions including information gathering, case review, and community engagement; and (4) infrastructure, and funding. A companion document provides guidance on the use of this assessment tool. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Questionnaires, Cultural competence, Cultural diversity, Fetal death, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

Goode TD, Bronheim S, Buckley K. 2009. A guide for using the Cultural and Linguistic Competence Organizational Assessment instrument for fetal and infant mortality review programs. Washington, DC: National Center for Cultural Competence, 27 pp.

Annotation: This document provides guidance on using an accompanying self-assessment instrument to evaluate the cultural and linguistic competence of fetal and infant mortality review programs (FIMRs). It describes the benefits, values, and principles of self-assessment for organizations; the nature of the instrument; and a recommended four-phase approach to organizational self-assessment. It also provides answers to frequently asked questions; definitions of key terms; and a process for community engagement in self-assessment, including a focus group protocol. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: cultural@georgetown.edu Web Site: http://nccc.georgetown.edu Available from the website.

Keywords: Cultural competence, Cultural diversity, Fetal death, Guidelines, Health promotion, Infant death review, Infant mortality, Local programs, Low income groups, Mental health, Underserved communities

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.