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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (39 total).

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161941.

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome

Fond M, Kendall-Taylor N, Volmert A, Pineau MG, L’Hôte E. 2017. Seeing the spectrum: Mapping the gaps between expert and public understandings of fetal alcohol spectrum disorder in Manitoba. Washington, DC: FrameWorks Institute, 49 pp.

Annotation: This report presents an empirically-based framing strategy for communicating about fetal alcohol spectrum disorder (FASD). Contents include a set of principles reflecting expert understanding of what fetal alcohol spectrum disorder (FASD) is, how alcohol affects fetal development, why women consume alcohol while pregnant, what the effects of FASD are, and how FASD can be prevented and addressed. The report also describes shared but implicit understandings, assumptions, and patterns of reasoning that shape how the public thinks about FASD, points at which expert and public understandings overlap and diverge, and key challenges in communicating about FASD. Recommendations are included.

Contact: FrameWorks Institute, 1333 H Street, N.W., Suite 700 West, Washington, DC 20005, E-mail: info@FrameWorksInstitute.org Web Site: http://www.FrameWorksInstitute.org Available from the website.

Keywords: Alcohol consumption attitudes, Alcohol consumption behavior, Alcohol use during pregnancy, Beliefs, Communication, Culturally competent services, Fetal alcohol effects, Fetal alcohol syndrome, Fetal development, Prevention services, Research, Trauma care

American College of Nurse-Midwives and Centers for Disease Control and Prevention. [2015]. Alcohol and pregnancy: Tips on why and how to stop drinking. Silver Spring, MD: American College of Nurse-Midwives, 1 v.

Annotation: This resource for pregnant women provides information about drinking alcohol during pregnancy and the risk of fetal alcohol syndrome disorders (FASDs). Topics include some of the behavioral and intellectual disabilities of people with FASDs, what women can do to help themselves stop drinking alcohol, and related organizational resources.

Contact: American College of Nurse-Midwives, 8403 Colesville Road, Suite 1550, Silver Spring, MD 20910, Telephone: (240) 485-1800 Secondary Telephone: (888) MID-WIFE (643-9433) Fax: (240) 485-1818 E-mail: Web Site: http://www.midwife.org Available from the website.

Keywords: Adverse effects, Educational materials, Fetal alcohol effects, Fetal alcohol syndrome, Pregnant women, Prevention, Substance use

U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence. 2014. Tools for success: Working with youth with fetal alcohol spectrum disorders (FASD) in the juvenile justice system (rev.). Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence, 1 v.

Annotation: These modules for individuals working with youth in the juvenile justice system provide information and resources on fetal alcohol spectrum disorders (FASD). Contents include six modules on topics such as FASD basics; behaviors; screening, assessment, and diagnosis; collaborating effectively; and intervention services. Each module ends with a 10-question quiz.

Contact: U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866)786-7327 E-mail: fasdcenter1@ngc.com Web Site: http://www.fascenter.samhsa.gov Available from the website.

Keywords: Continuing education, Criminal justice system, Fetal alcohol effects, Fetal alcohol syndrome, Intervention, Resources for professionals, Training, Youth

U.S. Substance Abuse and Mental Health Services Administration. 2013. Addressing fetal alcohol spectrum disorders (FASD): A review of the literature. Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration, 1 v.

Annotation: This literature review covers the prevalence of fetal alcohol spectrum disorders, cost of care, screening women at risk, diagnostics, ARND (alcohol related neurodevelopmental disorder) consensus statement, teratogenic science and the brain, birth outcomes, cognitive and behavioral impact, co-occurrence, efficacy of intervention, research, and regulation and federal legislation.

Contact: U.S. Substance Abuse and Mental Health Services Administration, One Choke Cherry Road, Rockville, MD 20857, Telephone: (877) SAMHSA-7 Secondary Telephone: (877) 726-4727 E-mail: Web Site: http://www.samhsa.gov Available from the website.

Keywords: Fetal alcohol effects, Fetal alcohol syndrome, Literature reviews, Therapeutics

National Institutes of Health, National Institute on Alcohol Abuse and Alcoholism. 2010. Fetal alcohol spectrum disorders (upd. ed.). [Rockville, Md]: National Institutes of Health, National Institute on Alcohol Abuse and Alcoholism, 2 pp.

Annotation: This fact sheet provides information about fetal alcohol spectrum disorders (FASD). The fact sheet discusses progress in understanding, preventing, and treating the problem since alcohol's ability to cause birth defects was first recognized over three decades ago. Steps for health professionals and women who are pregnant or who are considering becoming pregnant to take to prevent FASD are provided. Research geared toward better preventing and treating FASD in the future is also discussed.

Contact: National Institute on Alcohol Abuse and Alcoholism, , 5635 Fishers Lane, MSC 9304, Bethesda, MD 20892-9304, Telephone: (301) 443-3860 Fax: (301) 780-1726 E-mail: NIAAAweb-r@exchange.nih.gov Web Site: http://www.niaaa.nih.gov Available from the website.

Keywords: Alcohol use during pregnancy, Birth injuries, Chronic illnesses and disabilities, Fetal alcohol effects, Fetal alcohol syndrome, Infant health, Prevention, Reproductive heath, Research, Treatment, Trends

Barry KL, Caetano R, Chang G, DeJoseph MC, Miller LA, O'Connor MJ, Olson, HC, Floyd RL, Weber MK, DeStefano F, Dolina S, Leeks K. 2009. Reducing alcohol-exposed pregnancies: A Report of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. Atlanta, GA: National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, 26 pp.

Annotation: This report identifies community-level fetal alcohol spectrum disorder (FASD) interventions and policies that can prevent fetal alcohol-exposed pregnancies (AEDs) and reduce the prevalence of physical, mental, behavioral, and learning disabilities due to prenatal alcohol exposure. Topics also include an epidemiological overview, screening for women at risk, current evidence, prevention interventions, and recommendations and future research directions.

Contact: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov/ncbddd Available from the website.

Keywords: Alcohol, Early intervention, Fetal alcohol effects, Fetal alcohol syndrome, Fetal development, Pregnant women, Prenatal care, Prevention, Screening, Substance abusing pregnant women

Olson HC, Ohlemiller MM, O'Connor MJ, Brown CW, Morris CA, Damus K. 2009. A call to action: Advancing essential services and research on fetal alcohol spectrum disorders—A report of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. Atlanta, GA: National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, Centers for Disease Control and Prevention, 20 pp.

Annotation: This report highlights ten recommendations to improve and expand efforts regarding early identification, diagnostic services, and quality research on interventions for individuals with fetal alcohol spectrum disorders (FASDs) and their families. Also included are action steps, accomplishments of the Task Force, an overview of the strategic plan, an overview of the Center for Excellence, and information about the Interagency Coordinating Committee on fetal alcohol syndrome.

Contact: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov/ncbddd Available from the website.

Keywords: Early intervention, Federal initiatives, Fetal alcohol effects, Fetal alcohol syndrome, MCH research, Prevention, Strategic plans, Substance abusing pregnant women

FASD Regional Training Centers, Centers for Disease Control and Prevention, and National Organization on Fetal Alcohol Syndrome. [2008]. Fetal alcohol spectrum disorders: Competency-based curriculum development guide for medical and allied health education and practice. Atlanta, GA: Centers for Disease Control and Prevention, ca. 280 pp., 1 CD-ROM.

Annotation: This purpose of this curriculum development guide is to enhance the knowledge and skills of health care providers to recognize and prevent fetal alcohol spectrum (FAS) disorders by aiding in the development of educational programs and materials. The guide is organized by three types of learning outcomes: competencies, learning goals, and learning objectives, allowing educators or trainers to select goals and objectives appropriate for participants' learning needs and skill levels, along with university or organization criteria. Chapter contents include seven competency topics: foundation; screening and brief interventions; models of addiction; biological effects of alcohol on the fetus; screening, diagnosis, and assessment of FAS; treatment across the lifespan for persons with FASDs; and ethical, legal, and policy issues.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov Available from the website.

Keywords: Alcohol use during pregnancy, CD-ROMs, Fetal alcohol effects, Fetal alcohol syndrome, Fetal development, Prenatal addiction, Prenatal care, Professional education, Resources for professionals, Screening, Substance abusing pregnant women

March of Dimes Birth Defects Foundation. 2008. Drinking alcohol during pregnancy. [White Plains, NY]: March of Dimes,

Annotation: This fact sheet provides information about the risks associated with infant physical and mental development when drinking alcohol during pregnancy. Topics also include defining fetal alcohol syndrome (FAS) and associated disorders, drinking alcohol while breastfeading, what is being done to prevent and treat FAS, and resources to get help to stop drinking alcohol.

Contact: March of Dimes, 1275 Mamaroneck Avenue, White Plains, NY 10605, Telephone: (914) 997-4488 Secondary Telephone: Web Site: http://www.marchofdimes.com Available from the website.

Keywords: Alcohol use during pregnancy, Child health, Fetal alcohol syndrome, Infant health, Prevention, Treatment

U.S. Substance Abuse and Mental Health Services Administration, Fetal Alcohol Spectrum Disorders Center for Excellence. 2008. Creating hope for women in recovery: A web guide to planning an FASD summit. Rockville, MD: U.S. Substance Abuse and Mental Health Services Administration, 77 pp.

Annotation: This guide is a reference to help communities conceptualize, plan, facilitate, and convene a successful Women in Recovery summit to bring greater awareness to fetal alcohol spectrum disorder (FASD). The Summit background, overview, and framework presented in the guide provide the basis for a focus on the effects of alcohol on unborn children and provide a context for the need to support women in recovery and for the need to educate state and local policymakers. The guide describes how to plan and convene the Summit; how to develop the agenda; how to plan the logistics; and how to market and evaluate the Summit. Included is a list of national, federal, state, and online resources related to FASD. Appendices include a planning checklist, a sample agenda, and sample letters, evaluation forms, and a Summit press release.

Contact: U.S. Substance Abuse and Mental Health Services Administration, One Choke Cherry Road, Rockville, MD 20857, Telephone: (877) SAMHSA-7 Secondary Telephone: (877) 726-4727 E-mail: Web Site: http://www.samhsa.gov Available from the website.

Keywords: Alcohol abuse, Fetal alcohol syndrome, Meetings, Perinatal addiction, Planning, Public awareness campaigns, Recovering alcoholics

Minnesota Department of Health, Maternal Child Health - Community and Family Health. 2007. Smart Women Smart Choices: iParty Smarter.com. St. Paul, MN: Maternal Child Health - Community and Family Health, Minnesota Department of Health,

Annotation: This Web site is a free self-guided change program designed for Minnesota women between the ages of 19 and 24 who are sexually active and drink alcohol, even at moderate levels or just once in a while, or may be concerned about the effects of alcohol on their lives. Women ages 25-45 may also participate. Information is provided on the goals of the program, what women will get out of the program, how the program works, and program steps. Also discussed is how drinking contributes to risky behaviors and fetal alcohol syndrome.

Contact: Minnesota Department of Health, Division of Community and Family Health, MN Telephone: (651) 201-3589 E-mail: health.cfhcommunications@state.mn.us Web Site: http://www.health.state.mn.us/divs/cfh/program/cfh Available from the website.

Keywords: Alcohol abuse, Alcohol consumption behavior, Alcoholic beverages, Fetal alcohol effects, Fetal alcohol syndrome, Minnesota, Pregnant women, Risk taking, Self help programs, State programs, Women, Young women

U.S. Center for Substance Abuse Prevention. 2006. Partnership to Prevent Fetal Alcohol Spectrum Disorders: Public education program manual. Rockville, MD: U.S. Center for Substance Abuse Prevention, 118 pp., plus 2 CD-ROMs.

Annotation: The print and CD editions of this program manual contain pretested research-based plans, strategies, and communications tools to develop public awareness about the dangers of alcohol consumption to the developing fetus. Chapter contents include partnership mobilization and program planning, provider involvement, materials dissemination, program evaluation, and pilot program descriptions. Appendices include materials and images, a glossary of terms, contact information, and references. The CD edition also provides four case studies that describe how the program was implemented and adapted by four pilot communities; links directly to Web-based resources; and provides PDF files of the communications tools. The CD supplement provides production source sfiles for the communications tools to allow graphic designers and commercial printers to create additional materials.

Contact: U.S. Substance Abuse and Mental Health Services Administration, One Choke Cherry Road, Rockville, MD 20857, Telephone: (877) SAMHSA-7 Secondary Telephone: (877) 726-4727 E-mail: Web Site: http://www.samhsa.gov Available at no charge. Document Number: HHS Pub. No. SMA-4013.

Keywords: Alcohol use during pregnancy, CD-ROMs, Fetal alcohol effects, Fetal alcohol syndrome, Pregnant women, Program development, Public awareness materials, Spanish language materials, Training materials

CityMatCH. 2006. Fetal alcohol spectrum disorders: Prevention, education, intervention, and advocacy. Omaha, NE: CityMatCH,

Annotation: This site provides access to the September 21, 2006 webcast focusing on fetal alcohol spectrum disorders (FASD). Five PowerPoint presentations are provided in addition to the agenda and the audio file. The presentations include: (1) prevention, education, intervention, and advocacy; (2) emerging issues about FASD in Michigan; (3) emerging issues about FASD in Detroit, Michigan; (4) Detroit Department of Health and Wellness promotion; and (5) the presentation from the National Organization on Fetal Alcohol Syndrome. [Funded by the Maternal and Child Health Bureau]

Contact: CityMatCH, University of Nebraska Medical Center, Department of Pediatrics, 982170 Nebraska Medical Center, Omaha, NE 68198-2170, Telephone: (402) 552-9500 E-mail: citymch@unmc.edu Web Site: http://www.citymatch.org Available from the website.

Keywords: Advocacy, Conferences, Early intervention, Fetal alcohol syndrome, Infant health, Michigan, Multimedia, Prevention, Substance abusing pregnant women

Pennsylvania Perinatal Partnership. 2006. Report and recommendations on fetal alcohol spectrum disorders (FASD) roundtables in Pennsylvania. [no place]: Pennsylvania Perinatal Partnership, 25 pp.

Annotation: This report details the proceedings and recommendations from two roundtables on fetal alcohol spectrum disorder (FASD) convened in fall 2006 in PIttsburgh, PA, and Philadelphia, PA. Topics include the FASD roundtables, FASD facts, parents' experiences, and discussion group findings.

Contact: Pennsylvania Perinatal Partnership, PA Telephone: (215) 985-6267 E-mail: liz@paperinatal.org Web Site: http://pennsylvaniaperinatal.org/ Available from the website.

Keywords: Conference proceedings, Family support, Fetal alcohol syndrome, Health care systems, High risk groups, Parents, Prenatal care, Prevention, Screening

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Understanding fetal alcohol spectrum disorders: Getting a diagnosis. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2 pp. (What you need to know)

Annotation: This fact sheet for parents provides information about fetal alcohol spectrum disorders (FASD). The fact sheet defines FASD and discusses signs that may indicate a need for assessment, why diagnosis is important, how FASD is detected, where to go for a diagnosis, how to prepare for an assessment, and what to do with the results. References are included.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: patricia.getty@samhsa.hhs.gov Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Adolescent behavior, Adolescent health, Child behavior, Child health, Consumer education materials, Diagnosis, Fetal alcohol syndrome

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Building FASD state systems: Meeting proceedings. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 51 pp.

Annotation: These meeting proceedings are from the Building FASD State Systems meeting in San Antonio, TX, held on June 20-22, 2005.The meeting is part of the Substance Abuse and Mental Health Services Administration Fetal Alcohol Spectrum Disorders Center's response to its legislative mandate to provide technical assistance to communities developing systems of care. The proceedings present information about presentations held at the meeting.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: patricia.getty@samhsa.hhs.gov Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Children with special health care needs, Communities, Conference proceedings, Fetal alcohol syndrome, Health care systems, Technical assistance

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Fetal alcohol spectrum disorders legislation by state: 2004-2005 Legislative sessions. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 25 pp.

Annotation: This report updates the Substance Abuse and Mental Health Services Administration Center's May 2005 report on legislation related to fetal alcohol spectrum disorders. The report includes legislation introduced or passed as of October 2005. For each piece of legislation, the following information is presented: (1) the state in which the legislation was introduced or passed, (2) the bill number, (3) the category, (4) a description, (5) the year introduced, and (6) the status.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: patricia.getty@samhsa.hhs.gov Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Fetal alcohol syndrome, State legislation

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Review of instructional materials on fetal alcohol spetrum disorders. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 44 pp.

Annotation: This report identifies, describes, and reviews current curricula and other educational materials that relate directly or indirectly to fetal alcohol spectrum disorders (FASD). The report highlights the critical FASD issues being addressed through training or classroom instruction and important gaps in information and target populations. Methods are discussed, and results a summary, and conclusions are presented. The report includes six appendices: (1) curricula obtained to date, (2) a list of category field definitions for the curricula database, (3) an FASD curricula discussion guide, (4) a list of curricula available online, (5) screening tools, and (6) curriculum evaluation results and the impact of training.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: patricia.getty@samhsa.hhs.gov Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Curricula, Education, Fetal alcohol syndrome, Literature reviews, Training

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence. 2005. Hope for women in recovery: Understanding and addressing the impact of prenatal alcohol exposure. Rockville, MD: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 24 pp.

Annotation: This report presents information from the summit, Hope for Women in Recovery: Understanding and Addressing the Impact of Prenatal Alcohol Exposure, held on July 21-22, 2005, in Raleigh, North Carolina. The summit was designed to educate women of childbearing age in recovery and substance abuse treatment center staff about fetal alcohol spectrum disorders. The report includes information from presentations held at the summit, including personal stories of women in recovery and presentations by health professionals.

Contact: SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence, 2101 Gaither Road, Suite 600, Rockville, MD 20850, Telephone: (866) 786-7327 E-mail: patricia.getty@samhsa.hhs.gov Web Site: http://www.fasdcenter.samhsa.gov/ Available from the website.

Keywords: Alcohol consumption during pregnancy, Education, Fetal alcohol syndrome, Perinatal addiction, Perinatal health, Personal narratives, Prenatal addiction, Recovering addicts, Recovering alcoholics, Substance abuse treatment, Substance abusing pregnant women, Women's health

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.