Search Results: MCHLine

Annotation: This small pamphlet summarizes new knowledge about infant and toddler development and its impact on public policy. New research findings and clinical experience can be used to increase the effectiveness of legislation affecting children and families, programs for health screening, disease prevention and related issues for families, and public and private policies toward parents in the workplace.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org

Keywords: Family support services, Health policy, Infant health services, Policy development

Annotation: This guide describes, step-by-step, how to make funeral arrangements for an infant who has died. It explains where to begin; describes the choices of cremation or burial, and discusses the various ways that grieving parents can make arrangements that will have special meaning to the family while also allowing others the opportunity to say goodbye. The guide includes lined pages where families are invited to write down their plans for the funeral.

Contact: North Dakota Department of Health and Human Services, 600 East Boulevard Avenue, Bismarck, ND 58505, Telephone: (701) 328-2372 Fax: (701) 328-4727 Web Site: https://www.hhs.nd.gov Available from the website.

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Keywords: Bereavement, Family support services, Funerals, Grief, Guidelines, Infant death

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

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Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Annotation: This brief highlights home visiting models, affiliates, and initiatives serving the needs of adolescent parents. Examples include Teen Parent Connection: A Healthy Families America Affiliate, Family Spirit, Nurse-Family Partnership, and Show Me Strong (SMSF): A Parents as Teachers Initiative. The brief concludes with key service delivery features for consideration by other programs.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

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Keywords: Adolescent parents, Family support services, Home visiting, Parent support programs, Pregnant adolescents

Annotation: This brief summarizes several initiatives to advance health and/or racial equity in home visiting. Some examples include: Home Visiting Collaborative Improvement and Innovation Network 2.0 (HV CoIIN 2.0) Health Equity Collaborative, Michigan Home Visiting Initiative (MHV), and Massachusetts Racial Equity Movement. The brief also highlights the National Leadership Academy for the Public's Health (NLAPH) program.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

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Keywords: Child health, Early childhood development, Ethnic groups, Family support services, Health equity, Home visiting, Model programs, Race, Social factors

Annotation: This brief provides an overview of research-based practices and policies that state leaders can use to support meaningful family engagement in children's early learning, which ultimately improves child and family outcomes. The document provides links to Federal statutes and policies that require family engagement, evidence-based strategies for promoting family engagement, barriers to fostering family engagement, and problem-solving methods to overcome barriers. In addition, the brief provides examples of successful programs from different states.

Contact: SRI International, 333 Ravenswood Avenue, Menlo Park, CA 94025-3493, Telephone: (650) 859-2000 Web Site: https://www.sri.com

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Keywords: Early childhood education, Family centered services, Family health, Family support programs

Annotation: This report provides practical recommendations for providers, payers, and policy makers to consider in adopting approaches to transform child health care delivery. The report is a product of the Accelerating Child Health Transformation initiative, which works to identify, test, and disseminate a comprehensive and adaptable set of blueprints that can be used to transform child health care services to lead to improved child and family well-being, as well as racial equity. The Center for Health Care Strategies identified three key strategies that are integral to child health care transformation: adopting anti-racist practices and policies to advance health equity; co-creating equitable partnerships with patients, families, and providers; and identifying family strengths and addressing health-related social needs to promote resilience.

Contact: Center for Health Care Strategies, 300 American Metro Boulevard, Suite 125, Hamilton, NJ 08619, Telephone: (609) 528-8400 Fax: (609) 586-3679 Web Site: http://www.chcs.org

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Keywords: Access to health care, Child health, Family centered services, Family health, Family support programs, Health care disparities, Health status disparities, Policy development

Annotation: In this video presentation, AMCHP's Evidence and Implementation team discusses practical approaches for incorporating partners, families, and individuals with lived experience into program development and evaluation processes, with careful consideration of organizational resources and capabilities. Featured speaker Becky Burns, who serves as the Statewide Coordinator for Wisconsin Children and Youth with Special Health Care Needs, shares insights on implementing these engagement strategies effectively while working within the constraints of available organizational capacity.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Children with special health care needs, Youth with special health care needs, Epidemiology, Program evaluation, Staff development, Family support services

Annotation: This report focuses on the financial hardships facing families raising children on the autism spectrum. It discusses disability and sociodemographic characteristics of children with autism spectrum disorders, levels of family financial hardship, and safety net program use. Recommendations are included. [Funded by the Maternal and Child Health Bureau]

Contact: Drexel Autism Institute, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, E-mail: https://drexel.ed Web Site: https://drexel.edu/autisminstitute/ Available from the website.

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Keywords: Autism, Children with special health care needs, Family support services, Financial barriers, Financial support, Statistics

Annotation: This brief looks at the rapid rise of advanced analytics and explores the controversies, ethical challenges, and opportunities that it creates for youth- and family-serving agencies. It also presents four principles for identifying effective and equitable advanced analytics tools and includes real-world examples of jurisdictions that are using data science in ways that live up to—or fall short of — the social sector’s quest to develop better and fairer solutions for children, families, and communities.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org

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Keywords: Advocacy, Community participation, Data analysis, Data collection, Family support services, Initiatives, Model programs, Social services, Youth services

Annotation: These guidelines were developed by a Curriculum Workgroup in June 2016, reviewed by FPSS Advisory in July 2016, and field-tested by FPSS practitioners and their supervisors in March 2017, with the program being administered through the University of Iowa Healthcare's Iowa Peer Support Training Program. This report outlines the comprehensive scope of practice for Family Peer Support Specialists (FPSS) in Iowa, organized into five main categories. It outlines comprehensive professional guidelines starting with core ethical responsibilities and professionalism, followed by family engagement strategies, teaching and support methods, advocacy and resource navigation, and additional optional training opportunities. Notable elements include maintaining confidentiality, utilizing personal lived experience, practicing trauma-informed care, providing documentation, supporting families through various systems, and offering practical assistance.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: From the 2020 AMCHP/SPARC Peer to Peer Exchange, this presentation outlines the comprehensive training program for Family Peer Support Specialists (FPSS) in Iowa, detailing four key components: a 25-hour in-person skills training covering essential topics like cultural responsiveness, boundaries, and advocacy; specific training tools including active listening skills and the "assertion sandwich" technique for communication; supervisor training focusing on workforce management and best practices; and continuing education opportunities in areas such as ethics, mental health, and trauma. The slides also describe the development of a credentialing process through the Iowa Board of Certification, noting that Iowa is among the few states offering FPSS credentials, with the program's role including training verification and exam administration. This structured approach ensures that FPSS professionals receive comprehensive preparation for supporting families while maintaining professional standards and continuing professional development.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: This presentation details the certification program for Family Navigators in Iowa, including its online curriculum covering 13 domains (from System of Care to Trauma-Informed Care), assessment methodology using a four-level proficiency scale (Aware to Proficient), and pilot project results showing significant growth in participant proficiency. The slides outline the program's formal certification and examination requirements, along with the reasons why certification (or recertification) should be sought. Positive outcomes of the program are also discussed, noting increased professional confidence and knowledge base among participants, while highlighting the Division's support through covering certification costs. This presentation was given at the 2020 AMCHP/SPARC Peer to Peer Exchange.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Annotation: This document catalogs the Center for Disease Control's emergency preparedness and response communication resources, organized into two main sections. The first section lists general communication tools and guides, including a COVID-19 toolkit for pregnant people and new parents, access and functional needs resources, a communication resource center for state and local partners, public health media library, emergency partnership networks (EPIC), crisis communication guidelines (CERC), health equity strategies, and various communication playbooks and indices. The second section focuses specifically on maternal and infant health preparedness resources, providing safety messages and guidance for pregnant, postpartum, and breastfeeding women during disasters, including information about natural disasters, COVID-19, infant feeding, chronic disease management, radiation emergencies, and hurricane preparedness, with some materials available in Spanish.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Disaster planning, Information resources, Family support services, Communication

Annotation: This case study examines how Iowa's Title V Children and Youth with Special Health Care Needs (CYSHCN) program has implemented the National Standards for Systems of Care to build family leadership and partnerships. The program, influenced by disability rights advocate Julie Beckett (mother of Katie Beckett, for whom the Medicaid waiver was named), uses the National Standards as a framework to ensure families are active partners in decision-making at all levels of care. Key initiatives include the Iowa Family Leadership Training Institute (IFLTI), which has trained over 50 parents and caregivers since 2016 in advocacy skills, and the Iowa Family Advisory Council (FAC), established in 2014 to guide policies and programs. The program utilizes both Version 1.0 and 2.0 of the National Standards to help families advocate within health systems and to assess program performance, with a particular focus on ensuring culturally and linguistically appropriate care coordination. The case study also demonstrates how embedding these standards throughout practices helps promote family perspectives in care systems and supports peer-to-peer family support networks.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, Standards, Case studies, Iowa, Family support services, Children with special health care needs

Annotation: This tip sheet for providers supporting parents or caregivers offers guidance on selecting appropriate telehealth providers, particularly for specialized services like pediatric psychiatry for children with autism. It emphasizes the importance of thorough provider vetting through licensing boards, health plan networks, and specific board guidelines for telehealth services. The document pays special attention to autism diagnosis via telehealth, comparing different assessment tools: the M-CHAT (Modified Checklist for Autism in Toddlers) and CARS (Childhood Autism Rating Scale) screenings are noted as being well-suited for telehealth delivery, while the ADOS-2 (Autism Diagnostic Observation Schedule-Second Edition) diagnostic tool presents more challenges due to its interactive nature, requiring additional preparation and parent training to be administered remotely. Considerations for selecting providers-- e.g., technical setup quality and ability to maintain effective rapport with young patients-- are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Resources for professionals, Telemedicine, Title V programs, Family support services, Family centered care, Autism

Annotation: This information package provides a comprehensive guide for organizations planning to implement a telehealth program, using the example of behavioral health services for children with autism ages 2-18. It outlines key initial considerations through a series of essential questions, including identifying the target population, addressing specific barriers to care, determining service delivery locations, assessing payer coverage policies, evaluating technology requirements, and considering community support. The document also details six additional considerations for program implementation: utilizing Telehealth Resource Centers for guidance; securing funding sources for start-up costs; finding qualified providers; developing efficient workflows; ensuring staff buy-in through early involvement and adequate training; and providing education to families and caregivers. The example case demonstrates how these elements come together under specific Medicaid requirements, emphasizing the importance of meeting criteria for live video services, approved service locations (FQHCs - Federally Qualified Health Centers - and schools), and provider licensing requirements.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Title V programs, Family support services,

Annotation: This poster illustrates how the Minnesota Act Early and the Minnesota Department of Health cooperated to increase early childhood developmental screenings in their state. It outlines how the project trained parent leaders from Hmong, Somali, and Latino communities to promote awareness of developmental milestones and early intervention services. The document highlights the project's components, including recruitment of community leaders, customized cultural materials, and outreach through various channels such as radio stations and community events. The project involved partnerships between the Minnesota Department of Health, University of Minnesota, and several community organizations to integrate culturally appropriate developmental screening messages across diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Minnesota, Developmental screening, State CSHCN programs, Posters, Family support services, Children', s health

Annotation: This report from the Washington State Department of Health provides insights into how telehealth can improve access to services for children with autism spectrum disorder and other developmental disabilities, particularly in underserved and rural areas. Funded by the AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) federal grant, the goal of this initiative is to increase early diagnosis and service entry for these populations by leveraging telehealth. To better understand how families access and use telehealth, a survey was conducted in 2017, focusing on caregiver access to technology, interest in telehealth, and the barriers they face. The survey analyzed responses from 118 caregivers, with 94.4% being mothers and 42% on Medicaid insurance. Survey respondents discuss barriers and benefits of telehealth care, their child’s engagement with telehealth compared to in-person visits, insurance coverage, and their desire for more information on various topics. Overall, this assessment underscores the potential of telehealth to bridge gaps in service access for children with special health care needs, while highlighting the importance of addressing caregiver concerns about technology, security, and insurance coverage to ensure broader telehealth adoption.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Annotation: This 2017 report from Washington State's AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) Initiative examines the potential for expanding telehealth services for children with autism spectrum disorders and other developmental disabilities. The assessment, which included provider capacity surveys, key informant interviews, and family/caregiver feedback, the reveals significant barriers to telehealth implementation. Despite these challenges, both providers and caregivers expressed interest in telehealth and the document highlights the benefits that can be achieved by the successful implementation of a telehealth program.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health