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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (308 total).

National Center for Clinical Infant Programs. n.d.. Infancy in the eighties: Social policy and the earliest years of life. Washington, DC: National Center for Clinical Infant Programs, 20 pp.

Annotation: This small pamphlet summarizes new knowledge about infant and toddler development and its impact on public policy. New research findings and clinical experience can be used to increase the effectiveness of legislation affecting children and families, programs for health screening, disease prevention and related issues for families, and public and private policies toward parents in the workplace.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org

Keywords: Family support services, Health policy, Infant health services, Policy development

North Dakota Department of Health. n.d.. Your own special goodbye: A guide to arranging a funeral for your baby. Bismarck, ND: North Dakota Department of Health, 22 pp.

Annotation: This guide describes, step-by-step, how to make funeral arrangements for an infant who has died. It explains where to begin; describes the choices of cremation or burial, and discusses the various ways that grieving parents can make arrangements that will have special meaning to the family while also allowing others the opportunity to say goodbye. The guide includes lined pages where families are invited to write down their plans for the funeral.

Contact: North Dakota Department of Health and Human Services, 600 East Boulevard Avenue, Bismarck, ND 58505, Telephone: (701) 328-2372 Fax: (701) 328-4727 Web Site: https://www.hhs.nd.gov Available from the website.

Keywords: Bereavement, Family support services, Funerals, Grief, Guidelines, Infant death

Genetic Alliance, Parent to Parent USA, Family Voices. 2023. Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success. Washington, DC: Genetic Alliance, multiple items.

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Thomson A, Lauderback E. 2022. Meeting the needs of pregnant and parenting adolescents through home visiting . Arlington, VA: James Bell Associates; Washington, DC: Urban Institute, 10 pp. (National Home Visiting Resource Center innovation roundup brief)

Annotation: This brief highlights home visiting models, affiliates, and initiatives serving the needs of adolescent parents. Examples include Teen Parent Connection: A Healthy Families America Affiliate, Family Spirit, Nurse-Family Partnership, and Show Me Strong (SMSF): A Parents as Teachers Initiative. The brief concludes with key service delivery features for consideration by other programs.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Adolescent parents, Family support services, Home visiting, Parent support programs, Pregnant adolescents

Singleton M, Atukpawu-Tipton G, Joraanstad A. 2022. Advancing equity in home visiting. Arlington, VA: James Bell Associates, 9 pp. (National Home Visiting Resource Center innovation roundup brief)

Annotation: This brief summarizes several initiatives to advance health and/or racial equity in home visiting. Some examples include: Home Visiting Collaborative Improvement and Innovation Network 2.0 (HV CoIIN 2.0) Health Equity Collaborative, Michigan Home Visiting Initiative (MHV), and Massachusetts Racial Equity Movement. The brief also highlights the National Leadership Academy for the Public's Health (NLAPH) program.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Child health, Early childhood development, Ethnic groups, Family support services, Health equity, Home visiting, Model programs, Race, Social factors

Peyton S, deMonsabert J. 2021. How state leaders can promote meaningful family engagement at the state and program level. Menlo Park, CA: SRI International, 6 pp.

Annotation: This brief provides an overview of research-based practices and policies that state leaders can use to support meaningful family engagement in children's early learning, which ultimately improves child and family outcomes. The document provides links to Federal statutes and policies that require family engagement, evidence-based strategies for promoting family engagement, barriers to fostering family engagement, and problem-solving methods to overcome barriers. In addition, the brief provides examples of successful programs from different states.

Contact: SRI International, 333 Ravenswood Avenue, Menlo Park, CA 94025-3493, Telephone: (650) 859-2000 Web Site: https://www.sri.com

Keywords: Early childhood education, Family centered services, Family health, Family support programs

Gears H, Casau A, Buck L, Yard R. 2021. Accelerating child health care transformation: Key opportunities for improving pediatric care. Hamilton, NJ: Center for Health Care Strategies, 37 pp.

Annotation: This report provides practical recommendations for providers, payers, and policy makers to consider in adopting approaches to transform child health care delivery. The report is a product of the Accelerating Child Health Transformation initiative, which works to identify, test, and disseminate a comprehensive and adaptable set of blueprints that can be used to transform child health care services to lead to improved child and family well-being, as well as racial equity. The Center for Health Care Strategies identified three key strategies that are integral to child health care transformation: adopting anti-racist practices and policies to advance health equity; co-creating equitable partnerships with patients, families, and providers; and identifying family strengths and addressing health-related social needs to promote resilience.

Contact: Center for Health Care Strategies, 200 American Metro Boulevard, Suite 119, Hamilton, NJ 08619, Telephone: (609) 528-8400 Fax: (609) 586-3679 Web Site: http://www.chcs.org

Keywords: Access to health care, Child health, Family centered services, Family health, Family support programs, Health care disparities, Health status disparities, Policy development

Anderson KA, Rast JE, Roux AM, Garfield T, Shattuck PT. 2020. National autism indicators report: Children on the autism spectrum and family financial hardship. Philadelphia, PA: A. J. Drexel Autism Institute, Life Course Outcomes Research Program, 47 pp.

Annotation: This report focuses on the financial hardships facing families raising children on the autism spectrum. It discusses disability and sociodemographic characteristics of children with autism spectrum disorders, levels of family financial hardship, and safety net program use. Recommendations are included. [Funded by the Maternal and Child Health Bureau]

Contact: Drexel Autism Institute, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, E-mail: https://drexel.ed Web Site: https://drexel.edu/autisminstitute/ Available from the website.

Keywords: Autism, Children with special health care needs, Family support services, Financial barriers, Financial support, Statistics

Annie E. Casey Foundation . 2020. Four principles to make advanced data analytics work for children and families . Baltimore, MD: Annie E. Casey Foundation, 24 pp.

Annotation: This brief looks at the rapid rise of advanced analytics and explores the controversies, ethical challenges, and opportunities that it creates for youth- and family-serving agencies. It also presents four principles for identifying effective and equitable advanced analytics tools and includes real-world examples of jurisdictions that are using data science in ways that live up to—or fall short of — the social sector’s quest to develop better and fairer solutions for children, families, and communities.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org

Keywords: Advocacy, Community participation, Data analysis, Data collection, Family support services, Initiatives, Model programs, Social services, Youth services

National Center on Early Childhood Health and Wellness. 2017. Healthy children are ready to learn. Washington, DC: National Center on Early Childhood Health and Wellness, 6 pp.

Annotation: This fact sheet examines how health affects school readiness. Topics include oral health and learning and how having a healthy family supports healthy child development. The fact sheet also explores how comprehensive services ensure that children are ready for school and how coordinated systems support health services. It is available in English and in Spanish.

Contact: Early Childhood Learning and Knowledge Center, U.S. Department of Health and Human Services, Office of Head Start, Washington, DC 20201, Telephone: (866) 763-6481 E-mail: [email protected] Web Site: https://eclkc.ohs.acf.hhs.gov Available from the website.

Keywords: Child development, Child health, Child mental health, Child safety, Family support services, Head Start, Infant health, School readiness, Spanish language materials, Young children

National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health. 2017. Managing chronic health conditions in schools: The role of the school nurse. Atlanta, GA: Centers for Disease Control and Prevention, 3 pp.

Annotation: This fact sheet describes the role of school nurses in improving student academic achievement and decreasing absenteeism by helping students with chronic health conditions manage their condition. Topics include providing direct care such as giving children medications, providing case management, and advocating for students and their families to help them get the resources and support they need.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov/NCCDPHP/dph Available from the website.

Keywords: Academic achievement, Case management, Chronic illnesses and disabilities, Disease management, Elementary schools, Families, Family support services, Health services delivery, Homeless persons, Program coordination, Role, School age children, School nurses, Students

Bartlett JD, Smith S, Bringewatt E. 2017. Helping young children who have experienced trauma: Policies and strategies for early care and education. Washington, DC: Child Trends; New York, NY: National Center for Children in Poverty, 31 pp.

Annotation: This report describes early childhood trauma and its effects, offers promising strategies for early care and education (ECE) programs and systems to help young children who have experienced trauma, and presents recommendations for state policymakers and other stakeholders looking to support trauma-informed ECE for this group.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org Available from the website.

Keywords: Chlld care, Community based services, Early childhood education, Family support services, Policy development, Service integration, Systems development, Trauma care, Vulnerability, Work force, Young children

Jivanjee P, Brennan E, Gonzalez-Prats MC, Melton R, Hayden-Lewis K. 2016. Promoting positive pathways to adulthood. Portland, OR: Research and Training Center for Pathways to Positive Futures, multiple items.

Annotation: These training modules are designed to help direct service providers engage transition age youth (ages 14–29) with serious mental health challenges in services. Each module includes information on key topics, video clips, interactive questions, and a quiz. Topics include partnering with youth and young adults; promoting recovery; increasing cultural awareness and building community support; fostering resilience and family support; promoting cross-cultural and intergenerational relationships; providing individualized and developmentally appropriate services; developing healthy relationships; planning partnerships with providers of other services and collaborating to bridge service gaps; promoting support from family, peers, and mentors; and using evidence-supported practices and individualizing interventions. An accompanying toolkit provides practice scenarios, video segments, role plays, and questions to help participants apply their learning to practice in their local context.

Contact: Research and Training Center for Pathways to Positive Futures, Portland State University, Portland, OR Web Site: http://www.pathwaysrtc.pdx.edu Available from the website.

Keywords: Adolescents, Collaboration, Competency based education, Continuing education, Families, Family support programs, Health services delivery, Mental health, Multimedia, Peer support programs, Public private partnerships, Relationships, Resilience, Training, Transition planning, Young adults

National Cancer Institute. 2016. Evidence-based cancer control programs (EBCCP). Bethesda, MD: National Cancer Institute, multiple items.

Annotation: This online, searchable database is designed to provide program planners and public health practitioners with easy and immediate access to evidence-based cancer control interventions and program materials. Program areas include breast, cervical, colorectal, and prostate cancer screening; diet and nutrition; HPV vaccination; informed decision making; obesity; physical activity; public health genomics; sun safety; survivorship/supportive care; and tobacco control.

Contact: National Cancer Institute, 6116 Executive Boulevard, Suite 300, Bethesda, MD 20892-8322, Telephone: (800) 422-6237 Secondary Telephone: Fax: (301) 402-0555 E-mail: [email protected] Web Site: http://www.cancer.gov Available from the website. Document Number: NIH Pub. No. 12-7617.

Keywords: Breast cancer, Cervical cancer, Colon cancer, Decision making, Disease prevention, Evidence based medicine, Family support programs, Genomics, Human papillomavirus, Informed consent, Nutrition, Obesity, Online databases, Peer support programs, Physical activity, Prevention programs, Preventive health services, Risk factors, Screening, Smoking, Sun exposure, Survivors, Tobacco use, Vaccines

Pergamit M, Gelatt J, Stratford B, Beckwith S, Martin MC. 2016. Family interventions for youth experiencing or at risk of homelessness. Washington, DC: Urban Institute, 92 pp.

Annotation: This report summarizes existing evidence on family intervention strategies for youth experiencing or at risk of homelessness. The report includes a summary of common elements of effective interventions and a discussion of gaps in the evidence base. Key implementation lessons and challenges of implementing family intervention models are also included. The appendices contain information abuot the literature review methodology; key informants; and program descriptions including evidence-based, evidence-informed, promising, and emerging interventions as well as interventions of interest and those with mixed findings.

Contact: Urban Institute, 2100 M Street, N.W., Washington, DC 20037, Telephone: (202) 833-7200 Fax: (202) 467-5775 E-mail: http://www.urban.org/about/contact.cfm Web Site: http://www.urban.org Available from the website.

Keywords: Family support services, Homeless persons, Homelessness, Interventions, Model programs, Youth services

U.S. Government Accountability Office. 2016. Medicaid-fee-for-service: State resources vary for helping beneficiaries find providers. Washington, DC: U.S. Government Accountability Office, 29 pp.

Annotation: This report examines the proportion and characteristics of Medicaid beneficiaries served in fee-for-service arrangements and federal and state resources to help them find participating providers and report related challenges. A discussion of state actions to address access challenges is included. The report addresses medical care and specialty services such as behavioral/mental health care, oral health care, vision care, pharmacies, and ancillary services such as transportation and translation and sign language services.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 Secondary Telephone: E-mail: [email protected] Web Site: http://www.gao.gov Available at no charge. Document Number: GAO-16-809.

Keywords: Access to health care, Barriers, Consumer satisfaction, Family support services, Hotlines, Information sources, Low income groups, Medicaid, Oral health, Provider participation, Service delivery systems, State programs

[U.S. Centers for Medicare & Medicaid Services]. 2016. Serving special populations: Rural areas–Fast facts for assisters. [Baltimore, MD: U.S. Centers for Medicare & Medicaid Services], 5 pp.

Annotation: This fact sheet for people who assist health care consumers living in rural areas provides information about health insurance eligibility and enrollment barriers and what assisters can do to bolster education and outreach efforts in rural areas. Scenarios and resources are included.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (877) 267-2323 Secondary Telephone: (410) 786-3000 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Access to health care, Barriers, Communication, Community participation, Costs, Family support services, Health insurance, Outreach, Relationships, Resources for professionals, Rural populations, Transportation, Trust

Brown LW, Camfield P, Capers M, Cascino G, Ciccarelli M, de Gusmao CM, Downs SM, Majnemer A, Miller AB, Saninocencio C, Schultz R, Tilton A, Winokur A, Zupanc M. 2016. The neurologist's role in supporting transition to adult health care: A consensus statement. Neurology 87(8):835–840, 7

Annotation: This article describes the child neurologist's role in planning and coordinating successful transition from the pediatric to adult health care system for youth with neurologic conditions. Topics include eight common principles that define the child neurologist's role in a successful transition process as outlined by a multidisciplinary panel, the evidence for successful transition models, and areas for future consideration. [Funded by the Maternal and Child Health Bureau]

Contact: American Academy of Neurology, 1080 Montreal Avenue, Saint Paul, MN 55116, Telephone: (651) 695-2717 Secondary Telephone: (800) 879-1960 Fax: (651) 695-2791 E-mail: [email protected] Web Site: http://www.aan.com Available from the website.

Keywords: Adolescents, Family support services, Financing, Health care systems, Interdisciplinary approach, Leadership, Legal issues, Model programs, Multidisciplinary teams, Neurologic disorders, Program coordination, Special health care needs, Transition planning, Young adults

National Advisory Committee on Rural Health and Human Services. 2016. Families in crisis: The human services implications of rural opioid misuse. [Rockville, MD]: National Advisory Committee on Rural Health and Human Services, 9 pp.

Annotation: This policy brief discusses the unique rural challenges related to opioid use disorder and the experiences of families in crisis and recommendations for federal action. Topics include the opioid epidemic as a national problem with rural differentials, opioid abuse trends in rural communities, substance abuse and child welfare, the role of federal block grants, and barriers to treatment and services. Opportunities for creating a stronger treatment system for opioid use disorders are also addressed including the role of support services, care coordination and mental health workers to address current shortages in rural communities, increasing the availability of treatment programs, and research. A case study from Indiana is included.

Contact: National Advisory Committee on Rural Health and Human Services, Health Resources and Services Administration, Federal Office of Rural Health Policy, 5600 Fishers Lane, 17W59D, Rockville, MD 20857, Telephone: (301) 443-0835 Fax: (301) 443-2803 Web Site: http://www.hrsa.gov/advisorycommittees/rural/index.html Available from the website.

Keywords: Access to health care, Barriers, Child welfare, Crisis intervention, Drug addiction, Family support services, Federal initiatives, Health care systems, Health policy, Interagency cooperation, Mental health, Opiates, Policy development, Program coordination, Rural population, Service coordination, Substance abuse prevention programs, Substance abuse treatment services, Substance use disorders, Systems development, Work force

National Cancer Institute. 2015–. Adolescents and young adults with cancer. Bethesda, MD: National Cancer Institute, multiple items.

Annotation: These resources provide information about cancer in adolescents and young adults ages 15–39. Topics include types of cancers in young people, finding a doctor and hospital, treatment choices, coping and support, after treatment, and organizations serving adolescents and young adults. Reports, research, literature, and a quiz are also available.

Contact: National Cancer Institute, 6116 Executive Boulevard, Suite 300, Bethesda, MD 20892-8322, Telephone: (800) 422-6237 Secondary Telephone: Fax: (301) 402-0555 E-mail: [email protected] Web Site: http://www.cancer.gov Available from the website.

Keywords: Access to health care, Adolescents, Cancer, Consumer education materials, Disease management, Family support services, Financial support, Peer support programs, Research, Resources for professionals, Special health care needs, Young adults

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.