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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (219 total).

Johnson J. n.d.. Parent-Pediatric Partnerships: Strengthening Families to Make the Vulnerable Invincible [Final report]. Honolulu, HI: Hawaii Department of Health, 16 pp.

Annotation: This project was a partnership between families and their medical home to develop a demonstration model for care coordination for environmentally at-risk infants and toddlers in low-income culturally diverse urban and rural settings. The families were being served as part of the eligible population under P.L. 99–457, with an individualized family support plan (IFSP) developed for each family. The target population included many families of different ethnic origins. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-133969.

Keywords: Access to Health Care, Children with Special Health care Needs, Cultural Diversity, Families, Family Centered Health Care, Family Support Programs, Hawaiians, Health Promotion, Healthy Tomorrows Partnership for Children, Low Income Population, PL 99-457, Parents, Preschool Children, Primary Care, Rural Population, Service Coordination, Urban Population

Thomson A, Lauderback E. 2022. Meeting the needs of pregnant and parenting adolescents through home visiting . Arlington, VA: James Bell Associates; Washington, DC: Urban Institute, 10 pp. (National Home Visiting Resource Center innovation roundup brief)

Annotation: This brief highlights home visiting models, affiliates, and initiatives serving the needs of adolescent parents. Examples include Teen Parent Connection: A Healthy Families America Affiliate, Family Spirit, Nurse-Family Partnership, and Show Me Strong (SMSF): A Parents as Teachers Initiative. The brief concludes with key service delivery features for consideration by other programs.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Adolescent parents, Family support services, Home visiting, Parent support programs, Pregnant adolescents

Singleton M, Atukpawu-Tipton G, Joraanstad A. 2022. Advancing equity in home visiting. Arlington, VA: James Bell Associates, 9 pp. (National Home Visiting Resource Center innovation roundup brief)

Annotation: This brief summarizes several initiatives to advance health and/or racial equity in home visiting. Some examples include: Home Visiting Collaborative Improvement and Innovation Network 2.0 (HV CoIIN 2.0) Health Equity Collaborative, Michigan Home Visiting Initiative (MHV), and Massachusetts Racial Equity Movement. The brief also highlights the National Leadership Academy for the Public's Health (NLAPH) program.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Child health, Early childhood development, Ethnic groups, Family support services, Health equity, Home visiting, Model programs, Race, Social factors

National Home Visiting Resource Center. 2022. 2022 Home visiting yearbook. Arlington, VA: James Bell Associates; Washington, DC: Urban Institute, multiple items

Annotation: This yearbook presents 2021 data on early childhood home visiting and provides an up-to-date look at home visiting in action. The report answers critical questions about where home visiting programs are located; the number of families and children being served by home visiting programs; home visiting models; the staffing of home visiting programs; and what is happening in the states. The yearbook includes data on virtual home visits during the COVID-19 pandemic. The National Home Visiting Resource Center uses model, state, and administrative data sources, along with publicly available information, to present the national home visiting landscape.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Child health, Early childhood development, Family support programs, Home visiting, Maternal health

Peyton S, deMonsabert J. 2021. How state leaders can promote meaningful family engagement at the state and program level. Menlo Park, CA: SRI International, 6 pp.

Annotation: This brief provides an overview of research-based practices and policies that state leaders can use to support meaningful family engagement in children's early learning, which ultimately improves child and family outcomes. The document provides links to Federal statutes and policies that require family engagement, evidence-based strategies for promoting family engagement, barriers to fostering family engagement, and problem-solving methods to overcome barriers. In addition, the brief provides examples of successful programs from different states.

Contact: SRI International, 333 Ravenswood Avenue, Menlo Park, CA 94025-3493, Telephone: (650) 859-2000 Web Site: https://www.sri.com

Keywords: Early childhood education, Family centered services, Family health, Family support programs

Gears H, Casau A, Buck L, Yard R. 2021. Accelerating child health care transformation: Key opportunities for improving pediatric care. Hamilton, NJ: Center for Health Care Strategies, 37 pp.

Annotation: This report provides practical recommendations for providers, payers, and policy makers to consider in adopting approaches to transform child health care delivery. The report is a product of the Accelerating Child Health Transformation initiative, which works to identify, test, and disseminate a comprehensive and adaptable set of blueprints that can be used to transform child health care services to lead to improved child and family well-being, as well as racial equity. The Center for Health Care Strategies identified three key strategies that are integral to child health care transformation: adopting anti-racist practices and policies to advance health equity; co-creating equitable partnerships with patients, families, and providers; and identifying family strengths and addressing health-related social needs to promote resilience.

Contact: Center for Health Care Strategies, 300 American Metro Boulevard, Suite 125, Hamilton, NJ 08619, Telephone: (609) 528-8400 Fax: (609) 586-3679 Web Site: http://www.chcs.org

Keywords: Access to health care, Child health, Family centered services, Family health, Family support programs, Health care disparities, Health status disparities, Policy development

National Home Visiting Resource Center. 2021. 2021 Home visiting yearbook . Arlington, VA: James Bell Associates; Washington, DC: Urban Institute, multiple items

Annotation: This yearbook presents 2020 data on early childhood home visiting, focusing on where home visiting programs are located, the number of families and children being served by home visiting, home visiting models, and examples of state-level programs. The yearbook includes data on virtual home visits during the COVID-19 pandemic. In addition, this updated version uses revised data language with an equity focus. The National Home Visiting Resource Center uses model, state, and administrative data sources, along with publicly available information, to present the national home visiting landscape.

Contact: James Bell Associates, 3033 Wilson Boulevard, Suite 650, Arlington, VA 22201, Telephone: (800) 546-3230 Fax: (703) 243-3017 E-mail: [email protected] Web Site: http://www.jbassoc.com

Keywords: Child health, Early childhood development, Family support programs, Home visiting

Home Visiting Evidence of Effectiveness. 2020. Home visiting models: Reviewing evidence of effectiveness. Washington, DC: U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation, annual. (OPRE report #2020-126)

Annotation: This fact sheet describes a systematic review of home visiting research to determine which home visiting program models have sufficient evidence to meet U.S. Department of Health and Human Services (DHHS) criteria for an "evidence-based early childhood home visiting service delivery model." The brief also summarizes the evidence of effectiveness for the 20 program models that met DHHS criteria. Topics include favorable and sustained program impacts on primary and secondary outcome measures and whether or not the model has been replicated.

Contact: U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation, 370 L'Enfant Promenade, S.W., Seventh Floor West, Washington, DC 20447, Web Site: http://www.acf.hhs.gov/opre Available from the website.

Keywords: Child health, Early childhood development, Family support programs, Home visiting, Maternal health, Measures, Model programs, Outcome evaluation, Parenting, Research, School readiness, Sustainability, Young children

Annie E. Casey Foundation . 2020. Four principles to make advanced data analytics work for children and families . Baltimore, MD: Annie E. Casey Foundation, 24 pp.

Annotation: This brief looks at the rapid rise of advanced analytics and explores the controversies, ethical challenges, and opportunities that it creates for youth- and family-serving agencies. It also presents four principles for identifying effective and equitable advanced analytics tools and includes real-world examples of jurisdictions that are using data science in ways that live up to—or fall short of — the social sector’s quest to develop better and fairer solutions for children, families, and communities.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org

Keywords: Advocacy, Community participation, Data analysis, Data collection, Family support services, Initiatives, Model programs, Social services, Youth services

Association of Maternal and Child Health Programs. 2020. Iowa's Title V CYSHCN program: Using the national standards to build Family leadership and partnership. [Washington, DC]: Association of Maternal and Child Health Programs; [Portland, ME]: National Academy of State Health Policy, 3 pp.

Annotation: This case study examines how Iowa's Title V Children and Youth with Special Health Care Needs (CYSHCN) program has implemented the National Standards for Systems of Care to build family leadership and partnerships. The program, influenced by disability rights advocate Julie Beckett (mother of Katie Beckett, for whom the Medicaid waiver was named), uses the National Standards as a framework to ensure families are active partners in decision-making at all levels of care. Key initiatives include the Iowa Family Leadership Training Institute (IFLTI), which has trained over 50 parents and caregivers since 2016 in advocacy skills, and the Iowa Family Advisory Council (FAC), established in 2014 to guide policies and programs. The program utilizes both Version 1.0 and 2.0 of the National Standards to help families advocate within health systems and to assess program performance, with a particular focus on ensuring culturally and linguistically appropriate care coordination. The case study also demonstrates how embedding these standards throughout practices helps promote family perspectives in care systems and supports peer-to-peer family support networks.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Standards, Case studies, Iowa, Family support services, Children with special health care needs

Center for Connected Health Policy. 2019. Tip sheet: Selecting a telehealth provider. Washington, DC: Association of Maternal and Child Health Programs, 4 pp. (Tip Sheet)

Annotation: This tip sheet for providers supporting parents or caregivers offers guidance on selecting appropriate telehealth providers, particularly for specialized services like pediatric psychiatry for children with autism. It emphasizes the importance of thorough provider vetting through licensing boards, health plan networks, and specific board guidelines for telehealth services. The document pays special attention to autism diagnosis via telehealth, comparing different assessment tools: the M-CHAT (Modified Checklist for Autism in Toddlers) and CARS (Childhood Autism Rating Scale) screenings are noted as being well-suited for telehealth delivery, while the ADOS-2 (Autism Diagnostic Observation Schedule-Second Edition) diagnostic tool presents more challenges due to its interactive nature, requiring additional preparation and parent training to be administered remotely. Considerations for selecting providers-- e.g., technical setup quality and ability to maintain effective rapport with young patients-- are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Resources for professionals, Telemedicine, Title V programs, Family support services, Family centered care, Autism

2019. Tip sheet: How to start a telehealth program. Washington, DC: Association of Maternal and Child Health Programs, 6 pp. (Tip Sheet)

Annotation: This information package provides a comprehensive guide for organizations planning to implement a telehealth program, using the example of behavioral health services for children with autism ages 2-18. It outlines key initial considerations through a series of essential questions, including identifying the target population, addressing specific barriers to care, determining service delivery locations, assessing payer coverage policies, evaluating technology requirements, and considering community support. The document also details six additional considerations for program implementation: utilizing Telehealth Resource Centers for guidance; securing funding sources for start-up costs; finding qualified providers; developing efficient workflows; ensuring staff buy-in through early involvement and adequate training; and providing education to families and caregivers. The example case demonstrates how these elements come together under specific Medicaid requirements, emphasizing the importance of meeting criteria for live video services, approved service locations (FQHCs - Federally Qualified Health Centers - and schools), and provider licensing requirements.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Telemedicine, Title V programs, Family support services,

Hall-Lande J, Askhir A, Dalbec B, Gulaid A. 2018. Building a network of community leaders to support early developmental screening: Minnesota Act Early delegate network in diverse cultural communities. [Minneapolis, MN]: Minnesota Autism Developmental Disabilities Monitoring Network; Minnesota Act Early; Minnesota Department of Health; University of Minnesota Institute on Community Integration, Research and Training Center on Community Living, 1 pp.

Annotation: This poster illustrates how the Minnesota Act Early and the Minnesota Department of Health cooperated to increase early childhood developmental screenings in their state. It outlines how the project trained parent leaders from Hmong, Somali, and Latino communities to promote awareness of developmental milestones and early intervention services. The document highlights the project's components, including recruitment of community leaders, customized cultural materials, and outreach through various channels such as radio stations and community events. The project involved partnerships between the Minnesota Department of Health, University of Minnesota, and several community organizations to integrate culturally appropriate developmental screening messages across diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Minnesota, Developmental screening, State CSHCN programs, Posters, Family support services, Children', s health

Washington State Department of Health. 2018. Washington state telehealth capacity assessment: Family/caregiver perspectives on telehealth in Washington. [Tumwater, WA]: Washington State Department of Health, 2 pp.

Annotation: This report from the Washington State Department of Health provides insights into how telehealth can improve access to services for children with autism spectrum disorder and other developmental disabilities, particularly in underserved and rural areas. Funded by the AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) federal grant, the goal of this initiative is to increase early diagnosis and service entry for these populations by leveraging telehealth. To better understand how families access and use telehealth, a survey was conducted in 2017, focusing on caregiver access to technology, interest in telehealth, and the barriers they face. The survey analyzed responses from 118 caregivers, with 94.4% being mothers and 42% on Medicaid insurance. Survey respondents discuss barriers and benefits of telehealth care, their child’s engagement with telehealth compared to in-person visits, insurance coverage, and their desire for more information on various topics. Overall, this assessment underscores the potential of telehealth to bridge gaps in service access for children with special health care needs, while highlighting the importance of addressing caregiver concerns about technology, security, and insurance coverage to ensure broader telehealth adoption.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Washington State Department of Health. 2018. Creating connections: Addressing the needs of children with autism and other developmental disabilities using telehealth. [Tumwater, WA]: Washington State Department of Health, 6 pp.

Annotation: This 2017 report from Washington State's AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) Initiative examines the potential for expanding telehealth services for children with autism spectrum disorders and other developmental disabilities. The assessment, which included provider capacity surveys, key informant interviews, and family/caregiver feedback, the reveals significant barriers to telehealth implementation. Despite these challenges, both providers and caregivers expressed interest in telehealth and the document highlights the benefits that can be achieved by the successful implementation of a telehealth program.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

2018. New York's Title V CYSHCN program: Using the national standards as a framework for action planning and data analysis. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study examines how New York State's Title V program leveraged the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) as a framework for improving healthcare delivery and system analysis. Operating through the Division of Family Health within the New York State Department of Health, the program conducted an extensive systems mapping project that included interviews with over 130 diverse families of CYSHCN. This comprehensive analysis revealed the primary needs for improvement, and highlights how New York aligned its improvement efforts with both the National Standards and other guidelines like the American Academy of Pediatrics' Bright Futures, while emphasizing family engagement as a core principle. The state found that linking their work to the National Standards enhanced stakeholder support and plans to continue using this framework to strengthen their healthcare system, ensuring consistency, equal access, and comprehensive support for CYSHCN and their families.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V Programs, New York, Standards, Data Analysis, Family Support Services, CHSCN programs

2018. New Mexico's Title V CYSHSN program: Using the national standards as a framework for educating stakeholders. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study describes New Mexico's implementation of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains how the state's Title V program, housed within the Department of Health's Family Health Bureau, integrated these standards into its framework and action plans. The document highlights New Mexico's participation in an Action Learning Collaborative that brought together diverse stakeholders from Medicaid, managed care organizations, the family-to-family organization, and the Quality Improvement Partnership to establish common objectives. These objectives included developing a standard CYSHCN definition for Medicaid contracts, creating youth transition best practices, expanding family engagement, and strengthening medical homes with better care coordination. Key lessons learned and recommendations for next steps are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V Programs, New Mexico, Standards, Family Support Services, Medical Home, State CHSCN programs, Staff Development

Annie E. Casey Foundation. 2017. Considering culture: Building the best evidence-based practices for children of color. Baltimore, MD: Annie E. Casey Foundation, 16 pp. (Race for results case study series; 4)

Annotation: This case study examines the role of culture in informing and enhancing efforts to provide equity for children of color. Readers will learn how organizations are applying evidence-based practices in culturally relevant ways and how local programs are adopting nontraditional approaches to successfully serve communities of color. Case studies of successful programs include Strong African American Families, an evidence-based program that helps rural African American families strengthen family relationships, improve parenting skills, and develop youth competencies, and Con Mi Madre, which helps young Latinas and their mothers achieve goals for higher education.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org

Keywords: Adolescents, Children, Children, Education, Ethnic groups, Evidence-based programs, Family support, Infants, Measures, Neighborhoods, Policy development, Race, Racial groups, Work force, Young children, Youth

Jivanjee P, Brennan E, Gonzalez-Prats MC, Melton R, Hayden-Lewis K. 2016. Promoting positive pathways to adulthood. Portland, OR: Research and Training Center for Pathways to Positive Futures, multiple items.

Annotation: These training modules are designed to help direct service providers engage transition age youth (ages 14–29) with serious mental health challenges in services. Each module includes information on key topics, video clips, interactive questions, and a quiz. Topics include partnering with youth and young adults; promoting recovery; increasing cultural awareness and building community support; fostering resilience and family support; promoting cross-cultural and intergenerational relationships; providing individualized and developmentally appropriate services; developing healthy relationships; planning partnerships with providers of other services and collaborating to bridge service gaps; promoting support from family, peers, and mentors; and using evidence-supported practices and individualizing interventions. An accompanying toolkit provides practice scenarios, video segments, role plays, and questions to help participants apply their learning to practice in their local context.

Contact: Research and Training Center for Pathways to Positive Futures, Portland State University, Portland, OR Web Site: http://www.pathwaysrtc.pdx.edu Available from the website.

Keywords: Adolescents, Collaboration, Competency based education, Continuing education, Families, Family support programs, Health services delivery, Mental health, Multimedia, Peer support programs, Public private partnerships, Relationships, Resilience, Training, Transition planning, Young adults

National Cancer Institute. 2016. Evidence-based cancer control programs (EBCCP). Bethesda, MD: National Cancer Institute, multiple items.

Annotation: This online, searchable database is designed to provide program planners and public health practitioners with easy and immediate access to evidence-based cancer control interventions and program materials. Program areas include breast, cervical, colorectal, and prostate cancer screening; diet and nutrition; HPV vaccination; informed decision making; obesity; physical activity; public health genomics; sun safety; survivorship/supportive care; and tobacco control.

Contact: National Cancer Institute, 6116 Executive Boulevard, Suite 300, Bethesda, MD 20892-8322, Telephone: (800) 422-6237 Secondary Telephone: Fax: (301) 402-0555 E-mail: [email protected] Web Site: http://www.cancer.gov Available from the website. Document Number: NIH Pub. No. 12-7617.

Keywords: Breast cancer, Cervical cancer, Colon cancer, Decision making, Disease prevention, Evidence based medicine, Family support programs, Genomics, Human papillomavirus, Informed consent, Nutrition, Obesity, Online databases, Peer support programs, Physical activity, Prevention programs, Preventive health services, Risk factors, Screening, Smoking, Sun exposure, Survivors, Tobacco use, Vaccines

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.