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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (741 total).

Guam Department of Public Health and Social Services. n.d.. Family planning. Agana, GU: Guam Department of Public Health and Social Services, 1 videotape.

MetroHealth Medical Center, Pediatric Service Coordination Program. n.d.. Working with your health insurance. Cleveland, OH: MetroHealth Medical Center, Pediatric Service Coordination Program, 16 pp.

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

National Maternal and Child Health Resource Center. n.d.. A national goal: Building service delivery systems for children with special health care needs and their families—Family centered community based coordinated care. Iowa City, IA: National Maternal and Child Health Resource Center, 9 pp.

Annotation: This document describes the elements of a family-centered, community-based system for delivering health care for children with special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHF061.

Keywords: Children with special health care needs, Family centered community based care

National Center for Clinical Infant Programs. n.d.. Infancy in the eighties: Social policy and the earliest years of life. Washington, DC: National Center for Clinical Infant Programs, 20 pp.

Annotation: This small pamphlet summarizes new knowledge about infant and toddler development and its impact on public policy. New research findings and clinical experience can be used to increase the effectiveness of legislation affecting children and families, programs for health screening, disease prevention and related issues for families, and public and private policies toward parents in the workplace.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Contact Phone: (202) 638-0840 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org

Keywords: Family support services, Health policy, Infant health services, Policy development

Berman C. n.d.. Project Zero to Three: [Final report]. Washington, DC: National Center for Clinical Infant Programs, 48 pp.

Annotation: The main goal of this project was to improve services for infants and toddlers with disabilities (or at risk for disabililties) and for their families by developing an interstate network for early identification and intervention services for this population. Activities included a national network meeting, two regional conferences, an intensive course, small topical meetings, consultations, publications, and a newsletter. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB92-103373.

Keywords: American Public Welfare Association, Children's Defense Fund, Collaboration of Care, EPDST, Early Intervention, Environmental Risk, Families, Family-Based Health Care, Healthy Mothers Healthy Babies Coalition, High risk infants, Networking, PL 99-457, WIC Program

Magrab P. n.d.. Networking and Community-Based Services for Children with Special Needs: [Final report]. Washington, DC: Georgetown University Medical Center, 45 pp.

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147130.

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Nelson R. n.d.. CHSC Parent Partnership Project: [Final report]. Iowa City, IA: University of Iowa , 46 pp.

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Nicol P. n.d.. Coordinated Community-Based Services: [Final report]. Frankfort, KY: Division of Maternal and Child Health, Department for Health Services, Kentucky Cabinet for Human Resources, 39 pp.

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Poisson S. n.d.. Maternal and Child Health Cooperative Agreement [Final report]. Rockville, MD: Reginald S. Lourie Center for Infants and Young Children, 52 pp.

Annotation: The goal of this project was to develop and implement comprehensive and family-centered approaches to early identification, assessment, and treatment of infants and young children who are at risk for or suffering from emotional and/or regulatory difficulties. To this end, the Regional Center for Infants and Young Children: (1) Monitored types of families and children referred to and receiving services from an agency specializing in the early detection of emotional disorders or potential risk; (2) developed principles and technology to identify infants and young children/families at risk for psychosocial and developmental difficulties; (3) developed comprehensive, family-centered approaches to assessment and diagnosis; (4) developed prevention-oriented, family-centered approaches to intervention; (5) developed and disseminated technical assistance and training approaches; (6) engaged State and local maternal and child health (MCH) agencies in the project; and (7) accessed multiple financial resources to support its efforts. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158236.

Keywords: Affective Disorders, Behavioral Disorders, Data Collection, Family-Centered Health Care, High risk groups: Families, High risk infants, Parents, Regulatory Disorders, Screening Tools, Temperament

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158277.

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Pratt S. n.d.. Montana Project for Children with Special Health Care Needs [Final report]. Helena, MT: Montana Department of Health and Environmental Sciences, 16 pp.

Annotation: The overall goal of this project was to develop a replicable system of family-centered, community-based case management for children with special health care needs in a frontier State. Targeted communities were under 20,000 in population and served areas at least 50 miles from a level II facility. The project objectives were to: (1) Upgrade case management and assessment skills of local public health nurses; (2) develop family-centered, community-based case management programs that address the needs of the family and the child with special needs; and (3) develop community-based teams that empower families to actively participate in identifying and meeting educational, social, psychological, health, and financial needs for themselves and the child with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158640.

Keywords: Case Management, Chronically Ill, Community-Based Health Care, Education of Health Professionals, Families, Family-Centered Health Care, Public Health Nurses, Rural Populations

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158251.

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161891.

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Thomas R. n.d.. Child and Family Support Project [Final report]. Seattle, WA: Children's Hospital and Medical Center, 144 pp.

Annotation: The Child and Family Support Project was designed to facilitate and support access to and coordination of health care services for children with chronic conditions and their families in order to strengthen family capacity to care for their child in the community setting. The project included activities to identify and develop models for services through: improvement of communication and coordination between community-based services; development of a data base of resources for the populations; enhancement of transition from institutional to community or least restrictive environment; and support for the families of children with chronic conditions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106291.

Keywords: Chronically Ill, Coordination of Health Care, Data Bases, Family Support, Family-Based Health Care, Networking

Johnson C. n.d.. Making It Work for Children with Special Needs: The Family, the Community, the State [Final report]. Morgantown, WV: W. G. Klingberg Center for Child Development, 17 pp.

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121867.

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Camic N. n.d.. Families in the Changing Health Care Marketplace [Final report]. Madison, WI: Center for Public Representation, 21 pp.

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-199156.

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.