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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 1 (1 total).

Anders T. 1987. Family Adaptation to Childhood Chronic Illness [Final report]. Sacramento, CA: Emma Pendleton Bradley Hospital, 39 pp.

Annotation: The main objectives of this study were to: (1) Delineate the adaptive compromises that families make to the severe chronic illness or disability of a child; (2) identify factors associated with good adaptation; (3) construct and pretest instruments that might be useful in studying adaptation; and (4) explore conceptions concerning family adaptation among health professionals who care for chronically ill or disabled children. A total of 50 parents from three illness groups were evaluated: Parents of children with cystic fibrosis; of children with autism; and of children with cancer. The study found that during the developmental phase, neither parents nor professionals approached the situation or their task with unanimity. Parental answers to questions about adaptation indicate that this process required a fundamental value change and reorientation about what—both in the day-to-day and in the long run—matters. Although the study was originally intended to help develop a screening instrument useful to service personnel in the identification of families at risk, the researchers conclude that in light of both the lack of consensus among professionals and the investigator's inability to differentiate families at risk with the scales used, it is questionable whether families can or should be screened for risk. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB87-199048.

Keywords: Autism, Cancer, Children with special health care needs, Chronically ill, Coping behavior, Cystic fibrosis, Families, Family functioning, Risk assessment

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.