Search Results: MCHLine

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

Annotation: This document describes the elements of a family-centered, community-based system for delivering health care for children with special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHF061.

Keywords: Children with special health care needs, Family centered community based care

Annotation: Environmental tobacco smoke (ETS) has been proven harmful to those who live with smokers, especially infants and children. This project worked with three culturally diverse, lower socioeconomic status communities to develop appropriate materials to educate family day care providers, parents, and children about the importance of a smoke-free environment. In addition, the project built local community networks to continue this commitment after the project was completed. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198380.

Keywords: Preschoolers, Caregivers, Child care, Family child care, Parents, Respiratory Illnesses, Smoking

Annotation: The main goal of this project was to improve services for infants and toddlers with disabilities (or at risk for disabililties) and for their families by developing an interstate network for early identification and intervention services for this population. Activities included a national network meeting, two regional conferences, an intensive course, small topical meetings, consultations, publications, and a newsletter. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-103373.

Keywords: American Public Welfare Association, Children', Collaboration of Care, EPDST, Early Intervention, Environmental Risk, Families, Family-Based Health Care, Healthy Mothers Healthy Babies Coalition, High risk infants, Networking, PL 99-457, WIC Program, s Defense Fund

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147130.

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121867.

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Annotation: The goal of this project was to reduce the barriers to obtaining health and educational services for children with special health needs by providing a community-based, family-oriented system of comprehensive and coordinated services. Strategies included increasing community awareness of services; establishing interagency collaboration; and developing a centralized data collection system related to health status, service, and educational needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196954.

Keywords: Children with special health care needs, Community-Based Health Care, Data Collection, Family-Based Health Care

Annotation: The project's goals were to: (1) Develop and implement structures and processes in defined community areas to plan and implement a family-centered, community-based health care delivery system for children; (2) develop data system capacity and function statewide to ensure family-centered, community-based primary care services for children; and (3) share experiences in family-centered, community-based system change in the area of primary health care for children with other State, regional, and national maternal and child health providers. At the State level, strategies were directed toward developing a system of children's primary health care delivery that was family centered and community based. At the local level, child health steering committees in established projects were to continue to plan and implement child health system changes in their service areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Child Mortality, Community Based Health Services, Databases, Family Centered Health Care, Information Systems, Primary Care, Standards of Care, State Programs

Annotation: This project was a partnership between families and their medical home to develop a demonstration model for care coordination for environmentally at-risk infants and toddlers in low-income culturally diverse urban and rural settings. The families were being served as part of the eligible population under P.L. 99–457, with an individualized family support plan (IFSP) developed for each family. The target population included many families of different ethnic origins. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-133969.

Keywords: Access to Health Care, Children with Special Health care Needs, Cultural Diversity, Families, Family Centered Health Care, Family Support Programs, Hawaiians, Health Promotion, Healthy Tomorrows Partnership for Children, Low Income Population, PL 99-457, Parents, Preschool Children, Primary Care, Rural Population, Service Coordination, Urban Population

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

Contact: Family Voices, IMPACT, 3701 San Mateo Boulevard, N.E., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-impact.org Available from the website.

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Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Annotation: This brief reviews what has been accomplished to date in the development of the family voice in all child-serving systems including substance abuse, mental health, child welfare, juvenile justice, trauma support, education, and primary care. The review indicates what needs to occur to create true cross-systems collaboration supporting family involvement, so that youth and their families can fully access the service and supports they need to obtain and maintain optimum health.

Contact: U.S. Substance Abuse and Mental Health Services Administration, 5600 Fishers Lane , Rockville, MD 20857, Telephone: (877) SAMHSA-7 Secondary Telephone: (877) 726-4727 E-mail: Web Site: https://www.samhsa.gov Available from the website.

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Keywords: Child health, Child welfare, Collaboration, Families, Family centered care, Health care systems, Interagency cooperation, Parent professional relations, Service coordination, Service delivery systems

Annotation: This roadmap provides detailed information on policies and strategies that foster nurturing environments for infants and toddlers and reduce disparities in access and outcomes. Published annually, the roadmap is designed to help state leaders (1) Assess the wellbeing of its infants and toddlers and prioritize state policy goals; (2) Identify evidence-based policy solutions proven to impact policy goals; (3) Monitor states’ adoption and implementation of effective policies and strategies; and (4) Track the impact that policy changes have on improving the wellbeing of children and families and reducing disparities between racial and ethnic groups. A summary of each state’s progress is included.

Contact: Prenatal-to-3 Policy Impact Center , Vanderbilt University , Peabody College of Education and Human Development, Nashville, TN 37203, E-mail: https://pn3policy.org/contact/ Web Site: https://pn3policy.org/

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• 2023

Keywords: Child health, Data collection, Early childhood development, Family leave, Health care access, Health status disparities, Home visits, Infant health, MCH programs, Policy, Prenatal care, State initiatives, State policy

Annotation: This online resource includes shared care planning tool for families of children with special health care needs (CSHCN) and a 5-item screening tool to identify CSHCN based on the definition provided by the federal Maternal and Child Health Bureau. A searchable library contains reports, data and research briefs, presentations, project summaries, and additional materials aimed at promoting lifelong health for children, youth, and families using family-centered measurement, data and tools.

Contact: Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, Department of Population, Family, and Reproductive Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: [email protected] Web Site: http://www.cahmi.org

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Keywords: Adolescent health, Adolescents with special health care needs, Child health, Children with special health care needs, Data , Family centered care, Screening tests, Surveys

Annotation: This online resource for health care practices describes the characteristics of family centered care; provides tools to assist practices in implementing family centered care; and links to patient education materials and assessment forms (in both English and Spanish) to give to families and caregivers. The site also includes a video presentation on family centered care within the medical home.

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home

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Keywords: Adolescent health, Child health, Family centered care, Medical home

Annotation: This videorecording documents a multi-state roundtable discussion on telehealth applications for individuals with hearing impairments, drawing participation from 31 states and territories. The presenters—McVicar (Utah), Stone (Massachusetts), Kirschner (Montana), Culpepper (Georgia), and Messersmith (South Dakota)—share diverse perspectives on teleaudiology implementation within Early Hearing Detection and Intervention (EHDI) programs, including universal newborn screening initiatives. Their presentations highlight both successes and persistent challenges: while telehealth expands access to specialized audiological services, barriers remain including geographic isolation, transportation costs, equipment accessibility, parental hesitation to engage with public health systems, and technical limitations for certain procedures like cochlear implant testing. The interactive format allowed participants to pose questions directly to presenters, and concluded with the sharing of a comprehensive resource website to support ongoing telehealth advancement for hearing-impaired populations across diverse regional contexts.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Utah, Massachusetts, Montana, Family support services, Georgia, South Dakota, Staff development

Annotation: This presentation by Marsha Quinn, Co-Executive Director of Parent to Parent USA (P2P USA), outlines how the organization virtually supports families of children with special needs. As a mother of two children, Quinn addresses MCH leaders about P2P USA's comprehensive support system, which includes providing resources and best practices, facilitating member communication through various platforms, offering Spanish language services, and organizing virtual events like Coffee Talks and webinars. The presentation emphasizes how Alliance Members provide virtual family support through family/professional partnerships, information sharing, and emotional support via one-on-one matches and virtual support groups. It also highlights the organization's commitment to diversity, equity, and inclusion, particularly in reaching underserved communities, and provides information on how families can connect with P2P programs both locally and nationally.

Contact: Parent to Parent USA , P.O. Box 9054, Austin, TX 78766, E-mail: [email protected] Web Site: http://www.p2pusa.org

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Keywords: Telemedicine, Family support services, Children with special health care needs, Youth with special health care needs

Annotation: This report identifies key policy flexibilities enacted during the COVID-19 public health emergency. It summarizes stakeholders' perspectives about the impact of the pandemic and policy flexibilities on children and youth with special health care needs and their families and providers. The authors present recommendations for continuing or ceasing temporary policy changes after the public health emergency, as well as new policies and actions to best support children and youth with special heath care needs and their families.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: [email protected] Web Site: http://www.lpfch.org

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Keywords: Access to health care, Children with special health care needs, Family support, Federal initiatives, Infectious diseases, Medicaid, Mental health, Telehealth, Virus diseases, Work force